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Products, gadgets, and ideas that help me...and some that don't
Over the years, the kids have given us/me several things they thought might help. Some did; others were tossed aside. I got to thinking about this and came up with a list of some things I do and some products I use that are very helpful. In the car I keep an extra hat and pair of sunglasses for DH. So many times he won't…
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My moms fatigue
Hello, new to the group. My mom has had Alzheimer’s for 10 years and sleeps until noon every day.y question is when do I get concerned with her fatigue? Some days she’s gone other days she’s exhausted. Of course we are also battling constant UTIs and have purchased bidets to try and help. Advice?
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A couple of firsts
Well the saga continues. My wife had about 3 days with very little sleep. She would not sit down. I made the house safe to roam like a big play pen and she was content. She would roam around the house talking to herself or her hallucination and simulate working. I would try to stop her for a moment and I would get a vacant…
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dealing with delusions
I am 67 and my wife is 70 and is in early stage 6. Our 18-year-old granddaughter comes over once a week to help out. My wife has started having delusions of me having an affair with our granddaughter. The first time I argued with her but since then I have said that it's not true and walked away or was able to change the…
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The things you thought were going to be hard, but were actually pretty easy
Did you have any of those? I had two. When she became urinary incontinent, I thought it would be a fight to get her to wear Depends type supplies. I went out and bought some pretty pull ups, then asked her if she'd try them. She agreed. I immediately got rid of her panties, and she never asked about them, and never saw…
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Feeling short tempered today
One of those days where I’m annoyed with just about everything DH says and does! Last 3 days of rain and spent each day thinking of things to keep him busy while still trying to do house chores. Every other sentence was I don’t know what to do. We went for rides we watched TV, one more ION crime show repeat and I’ll kill…
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Any folks in DelMarVa area?
Turns out that GG06 and I live not too far apart and we were able to get together yesterday. It was such a good experience to chat with someone who is also on this journey (plus GG06 is delightful). We're hoping to meet up again next month. If anyone is from around here and wants to join us, let us know 😁
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Best Practices?
Hello! I've seen the phrase, "Best Practices," here in the forum. Where can I go online to get more information? Many thanks!
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Community to talk with
Thanks Iris. I am finding myself going to alz… To check and see if anyone wrote to me. I take that as a sign of investing in community. I’m scared and angry and confused myself. My DH seems to be more confused lately, not remembering things he remembered two weeks ago. Although there are questions about his health and…
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Rapid Progression
Has anyone experienced a rapidly progressing diagnosis of dementia/Alzheimer's following a major surgery with General anesthesia? My DH began exhibiting "noticeable" symptoms about 6-7 weeks after his surgery. That was 10 months ago. He is now in Memory Care.
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We made the move
I just wanted to thank all of you who made recommendations or comments on moving with my DH to another place about 200 miles away. In short, we did it, and have been here about two weeks. We are very lucky in that DS and DIL have really stepped up and helped us: they've brought food, helped unpack, mounted DH's TV set and…
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“Make friends with grief”
Yesterday was a hard day. I attended a memorial services for a work colleague who took his life two weeks ago, ending his suffering from major depressive disorder. A devastating loss of a wonderful, gentle man, only 42 years old, who left behind a wife and two young children. The pastor offered a couple of thoughts that…
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Stages of this disease
Any info on how long they stay in the aggressive mean stage. Starting looking for placement and my daughter says this stage won’t last long. The verbal abuse is so bad. Just don’t know how long I can do this
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Disability or unemployment
Hi. I’m new here. My husband was diagnosed with cognitive loss in June. He was “laid off” a week ago. They will be starting Leqembi when I get him on my insurance. I dont know if he should file for unemployment or try to get disability. He is 67 and I sent in for Medicare part b. Not sure what to do next
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Having the uncomfortable conversation
This is something that we all need to do, especially while we are healthy enough to make rational decisions. We need to let others know exactly what we would want in our darkest hours, if we can't let our wishes be known for medical decisions. My wife and I talked about this several times through the years, and when the…
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Air pollution may be to blame for thousands of dementia cases each year, researchers say
https://www.cbsnews.com/news/air-pollution-dementia-cases-study/
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Stage six and possible breast cancer.
My DW's mammogram showed some anomalies in one of her breasts so now we are called in for more extensive imaging. Probably just a false alarm but my question. . . If it is breast cancer and she's in stage 6 somewhere and I have know idea how long she will be in 6 much less 7. I'm wondering if I should have it treated or…
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A Group for My Husband to Feel Comfortable In...
Are there groups for patients with Alzheimers and if so are those groups aligned with the different stages of the disease? I ask because I think my husband would benefit from being a part of a group where he can identify with others and share experiences and learn. But, what I hesitate to do is have him in a group where…
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Jo C.
How is the recovery going for your DH? Just wondering. Hope he and you are both doing well.
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Loss of memory
My wife was diagnosed with ALZ 2 years ago. She still cares for herself, dressing, bathing, preparing her meals, bathroom visits, works computer games and daily crossword puzzles. However, her memory is getting worse on a daily basis. She doesn't remember where items in the house go, even though they have been in the same…
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Stranger in the mirror
Yesterday, DH asked me to come look at something. In front of the mirror he said, “who’s that guy? He looks right at me. What’s he doing here?”. Another time, “how do I make him go away?”. This repeated several times throughout the day, in different mirrors. Once I stood beside him, touched his arm as we both looked in the…
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LONG weekend
My spouse has been in assisted living (memory care) for just about a year now. Our birthdays are both in August, and we've always taken a trip for our birthday. I checked him out, along with all his meds, and we left town, to go about an hour away. He was out of the facility maybe 27 hours. I take him out every Sunday, so…
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Today’s Chuckle
An old lady calls 911 late one night… The dispatcher answers “911, what is your emergency?” “There appear to be two men rummaging through my shed.” “A breaking and entering? We’ll have an officer over in an hour.” “An hour? But they won’t be here in an hour. They’re breaking and entering now.” “Ma’am, no officers are…
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Anyone have experience treating vascular dementia with Donepezil?
Whew - finally found my way back to this board and figured out how to start a post. My wife was just diagnosed with severe angiopathy, vascular dementia. This explains so much of what has been happening with her (memory loss, confusion, mobility degradation, hallucinations, incontinence, slurring her words especially in…
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I’m shattered - and this new format isn’t helping
I apparently have the dubious honor of having been on this forum for 7 years.. I pretty much stay away since it changed however. Intuitive it’s not and I don’t need any more complications in my life. Ok, rant off. After 20 years of caregiving, the last 5 in a facility, his tbi has crossed the rubicon. Tbi/CTE are…
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Fast Decline
I suspected for various reasons that DH has recently experienced a steep decline along his Alzheimer’s journey and my fear was validated at his doctor appointment yesterday. He was given a MoCA test and his score had dropped to 8 (severe impairment) from a 14 (moderate impairment) when tested less than 1 year ago. He was…
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caregiver or caretaker? :)
I know the terms are interchangeable and many people, including professionals, refer to me as a "caretaker". Isn't a caretaker the person that picks up the body and transfers it to the mortician or is in fact the mortician? :)
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Wandering around the house
Last night I meditated after a really rough day trying to calm my wife down. I had an epiphany. She is content. I was driving myself crazy trying to get her to sit still. Today has been great. I barricaded the kitchen and she is respecting the barrier. My office door is closed but other than that she is free to wander and…
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Good , Bad ,and Ugly of Stage 7 - now Stage 8
Well my husband passed away on Aug 5, after not eating or drinking for 10 days. It was time to let that happen , and Hospice agreed. The funeral was Thursday and it was beautiful. Just exactly what I and the kids wanted. We opened it up for anyone who wanted to speak and many did ( we let them speak from their seats which…
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Cataract Surgery
Husband’s cataracts worsened and are impacting his life. So after meeting with an opthamologist we (aka I) made the decision to do the surgery. This opthamologist was recommended as dealing well with people with dementia and the office was great. The surgery is relatively easy and once done will (I think) improve the…