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Alzheimer's & Dementia Research Made Accessible - For *All*
Registration is now open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top Alzheimer's & Dementia experts about the latest research/news. There are three key sessions: - AAIC 2026 General Conference Highlights - AAIC 2026 in…
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Potential PoA Challenge
I have PoA (financial and medical) for my LO with dementia. Other family members and I have a difference of opinion on where my LO should live. I’m just trying to honor my LO’s wishes as long as it’s feasible. I received communications from these family members that make me think they are gearing up to challenge my…
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Mother very angry - need help
My mother was diagnosed about 2 years ago, and she's steadily declining. She has haunting memories come every week or so of when my father had an affair over 20 years ago. They got back together and had a whole life after the affair, but she is reliving the experience of when she first found out about it all those years…
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Help with the emotional toll of DH incontinence
For three weeks now, my husband has wet the bed through his Night Depends, and even with a pad and waterproof mattress pad I am doing laundry of his PJ, Shirts and sheets. Out of all the issues we have dealt with over the past 4 years with him losing so many capacities, I feel that I have dealt with them well, but this is…
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knowledge of current events in staging
Last night sweetie and I were having a relaxed conversation about life, the world and past memories. For some reason the recent events in several foreign countries came up. I asked him a couple of questions about several countries that had been prominent in all the news for the past few weeks. Some of the information we…
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Bank Doesn't Recognize POA
Hi, What to do when credit union won't allow me to use the POA? I haven't contacted the atty who drafted it yet, full, durable $$ and medical/general POAs. So far my PWD can still come with me or talk to reps on phone but that could change anytime. USA SSA won't accept either- wondering what other agencies don't and how…
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Brand new and Mom doesn't want to admit dementia.
I moved in with my Mom a year ago and have been taking care of the finances and keeping things going. Mom is 82 and her Dr. diagnosed her with Alzheimer's. She won't talk about it and is now refusing to see the Dr. because he won't listen to her. I think she is fine 90% of the time but is now forgetting the names of family…
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Help for calming
In addition to the donezpril and memantine, has anyone added any cbd products for sleep and or calming? I would also like to recommend the digital publication " What About Me" that I found on womanandwell.com for wives dealing with husbands with dementia, but would also pertain to husbands with wives living with dementia.
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What is happening?
This is just an observation and a feeling, but since my DH passed 4 months ago, I have heard from at least five people, all women, some of whom I know quite well, telling me their husbands are having cognitive issues or have dementia. It’s very unnerving and seems like it’s becoming all too common. What is going on? It’s…
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both parents have dementia
Hi My mom has a diagnosis of Alzheimer's (early stage but noticeably progressing), my dad, while he doesn't have a formal diagnosis, has some form of dementia. They live together in their home. My mom has anosognosia, thus denying anything is wrong with her. It took us 2 years to get her a diagnosis and she refuses to take…
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The Power of Gratitude
I write this while recognizing that so many of you are deep into the brutal journey of caregiving. I hope it does not feel like some lecture. It's the experience I had and I felt like it might help someone if I shared. Early on in this awful journey, I was so blinded by my wife's and my own pain while I was caregiving that…
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Survey
Anyone else receiving a message from angelica.lopez asking to participate in a survey. These days one never knows if these things are legit, so I am very cautious.
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If you have any plans to fly...
My DH and I went on a long weekend away. It was a great time. We flew to FL, enjoyed a weekend of beautiful weather, and shared some much needed time with our daughter, SIL, and grandkids (who met us there). I tell you this because I learned about a sanity saving option when booking our airline tickets. I was able to…
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My DW said she loved me today
Today was a good day. When I was helping my DW get ready for bed she looked at me and said, "I love you". It came out of nowhere. She has rarely made comments about affection. I was taken aback but replied, "I love you too". I got her ready for bed while I was tearing up inside.😥 I so hate this disease!
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First week in memory care
I was persuaded to send my DH with mixed dementia to memory care. He is very hard to care for and fights anyone who tries to help him. It often takes two people to change him because he won't cooperate. I miss him. I don't miss the work. I have no idea what is next for me. I have literally spent the last three years…
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Rough day
My DW went to bed last night thinking I had left for the night and recogonized me as her dead father. She got up this AM and still thinking I am her father and very agitated as to why her husband isn't here and why didn't he leave a note as to where he went. She started telling me everything her and her husband did for the…
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Connection between ultra processed food and dementia
https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/dad2.70335?_kx=rCfb5sit_NnAVBLAbNJ68uR9qR_JlesaqwOu8pHjuwHCxVmtCqHjhR6RN-utNZRh.UJRVZS
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Feeling alone
Hello, I'm new here. Part time care giver for my mom, my best friend. I feel so alone in my grief. I know I'm not but this has been the hardest thing I've ever gone through and it almost feels like no one around me even notices. I feel like my family (dad & brother) and I are so isolated. No one ever really checks in on…
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Wanting to leave assisted living
I live far from my sister. I was requested by her friend to check in on her and was surprised at her decline. We immediately put her into assisted living. She was living in an apartment by herself. When we arrived, she was open to visiting assisted living facilities, but I believe she thought it would be a year away or…
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Mom going to lunch
Mom is in a nursing home. Her former roommate called the facility and would like to take her out to lunch. The facility told her I need to approve this and they called me and gave me the woman’s phone number (they can’t legally give out mine). I haven’t called her yet. I met her, but have only talked with her briefly while…
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Our House is a Mess
I saw this morning a post from someone regarding how their house is now messy due to spouse having dementia. I completely understand. My DH not only has VD, but is also a bilateral above the knee amputee. So that is a totally different issue. He has a motorized wheelchair and he has struggled with maneuvering it.…
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Need Advice About My Sister, Please!
After many years of caregiving for my very ill and late husband and my dear aunt with ALZ in a facility, at age 74 I remarried a wonderful man two years ago. We are very happy together and had an ideal life. Until I had to take in my 72-year-old sister with dementia. We had to move her from an RV in Alabama where she was…
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Scary and depressing delusions - how to respond?
My mother is in stage 4 of dementia. She's been anxious for over a year. Since she hates meds, I haven't felt it's severe enough to push for anxiety medication. I've been increasingly aware she is having delusions that cause more anxiety. I know the general advice is to accept their reality and not argue with how they are…
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Struggle with clothing
Are any of you dealing with the struggles of clothing with your LO? When my mom moved to AL near me 3 years ago, she got rid of most of what was in her closet. Not sure why, maybe fit? She constantly tells me she needs to go shopping to buy clothes and she is correct, so my daughters and I have taken her several times. She…
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Leqembi
My DH has had 2 infusions. He is due this week for his first follow-up MRI. With both infusions he had a mild headache following the treatment. The side effects include headache, but Aria also includes headache along with other symptoms. Should I be worried, he may have ARIA or is a headache not that unusual.
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Looking for advice -caregiver for father with Alzheimer's
Hi all! I've been struggling lately with taking care of my father who has stage 5 Alzheimer's and vascular dementia. I've been his primary caregiver for the past 3 years. It's taking a toll on me that he is not remembering me recently. We were very close prior to the Alzheimer's diagnosis. Looking for advice on how to…
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DH asking “What’s wrong with me?”
DH is under hospice care, is bed bound, and I have been told he likely won’t last the summer. He asks me, “ what’s wrong with me.?… when can we leave?…why are we here?”…. I have not said “ You are dying”. I have mentioned Alzheimer’s is a difficult disease, that it is affecting how you feel…but he doesn’t remember or know…
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A new book for caregivers early into the journey
i have just read a book on kindle which is written by a caregiver concerning her journey with her DH. Very informative and a bit of lighthearted humor at times. I enjoyed reading it and find it will be especially helpful to a new caregiver. Wish I was able to read it a few years ago. its called “Coping when your loved one…
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Iv infusions
does anyone have any iv infusion experiences?
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Everything
So this is just a vent but probably one many can relate to. It’s not enough that you have to watch your LO whither away piece by piece and be hyper vigilant 24hrs a day with care and feeding but in my case I also get to watch the house we spent 36 years making into a beautiful home become a wreck. I’ve had to move a lot of…