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Cups and silverware
Looking for recommendations on cups and silverware for my mother. Mom opens every cup I have purchased. She flips, twists, pops….whatever it takes to get the lid off. Not entirely sure why she’s focused on that but I was hoping there are some recommendations on mugs or cups etc. Silverware- I have seen adaptable silverware…
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Leqembi
Is anyone using Leqembi and what is your experience?
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Painful Delusions
For about 7-8 years my step dad and I were the main caregivers (we luckily eventually had in home care almost 24/7, but we still managed a lot) for my grandma with dementia, my mom completely checked out and couldn’t face it. It’s been about 8 years since my grandma passed and now my mom is showing signs. We are still…
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Updating trust while DH is still able to consent
After reading various posts here, I realize time os of the essence to make changes we've talked about for years but never got around to doing. DH is in the early stages, still able to comprehend, give input and give consent. There is no CELA in my town. Closest one is 75 miles away but there are several trust attorneys…
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Have a plan!
can some list,for those who have no idea, what exactly should be in “The Plan” moving forward
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Feeling utterly awful and needing some space to express myself
I haven't been here in a few weeks. My mom finally left the hospital and went into MC on August 19. Everything was going better than expected. She was adapting and rarely asked about me, which, while bittersweet, was good. However, she was rushed to the ER Friday night. She developed COVID. She's 90. It has turned into…
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I don't think I can do this anymore...
My husband is so rude, mean and nasty I feel like I don't want to take care of him anymore. He has had 4 meltdowns already today…which all end in him degrading me in every way imaginable. He complains constantly about me having access to his finances (god knows I wish I didn't have to),but he can't handle even the simplest…
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Shocking decline since May and now COVID
Has anyone seen their spouse rapidly decline in a short period of time? Since May, my DH has become extremely confused, constantly packs his clothes, hallucinates and is hardly audible. He was diagnosed with COVID on Sept. 1, hospitalized on Sept. 2. He is still in the hospital and he cannot understand what is asked of…
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Raw plant based possible remedy
Grand rising family!I wanted to ask a quick question?I was told that raw plant based diet could help reverse the early onset Alzheimer's and wanted to know if anyone else have heard this same information or heard of anyone who has reversed it using this method
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Caregiving has isolated me. Age 35 and burnt out
I am burnt out caregiving my mom with dementia. It wouldnt be so bad if I had community where I live— We recently moved to las vegas area to be near my sister so she could help out with mom too (I used to live in California). However me and my mom know no one here and its been very strange having no community or friends…
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State Policies on Caregiving and Alzheimer's Disease
Information from Michael Ellenbogen: We invite you to join us for our next webinar, "State Policies on Caregiving: Opportunities for Supporting Dementia Caregivers" on 10/1/24. This webinar will introduce the caregiving policy approaches of New York and Illinois, discuss successful strategies, identify policy gaps and…
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MCI and severe sleep apnea
my husband just finished testing (mri,blood,cardiac,cognitive). No unusual findings, doctors are leaning towards MCI. My only thought to make sense of all this since he has no underlying health issues is his sleep apnea which we have just started to address 3 weeks ago with sleep studies and cpac. does anyone have any…
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The trap we get into
DH has been waking me up several times a night. I hit my limit at 7. So when he went back to sleep Sunday morning I decided no more sleeping during the day when he kept me up all night and told him so. I told him to get up as we were going to church.He told me to go without him. I said no and I was going to be very noisy.…
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Ideas for Social Interactions and Activies?
I’m wondering how some of you provide socialing opportunities and activities for your LO? Prior to diagnosis, our lives in a small town revolved around food and drink: dinners out, bbq’s, etc. Now these activities are too much for DH, though he still wants to do them. He’s been a craft beer aficionado for a very long time.…
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Difficult and lonely
I had a friend disable DH truck. He went berserk. He is still upset after 7 days of trying to get me to have it fixed. Now he is upset over some scam. All his cards are locked. Our retirement money was moved to a brokerage firm. Thank goodness. I took him to the bank to withdraw cash, he randomly walked into a bankers…
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Reluctance to get further tests
My wife has a recommendation from her primary Dr for a brain scan and further diagnosis by a psychiatrist/gerintologist. What are my next steps?
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Asking when to go home continuously today
Hello all, So everyday/week it’s something new to loop over. Apparently today my Lap is aware we are in the beginning of the month based off of something he read in the paper. This has set him on looping of needing to know his bills are paid and there is enough money in his accounts. He still has a whole house that will…
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Anger from loosing driver’s license
This is my first post. I care for my mom and dad who have dementia. They are not advanced but in the mild/medium stages. They have different dementias. My dad has three different areas affected including the front part of his brain. This controls his reasoning, understanding, etc. The doctors have had his driver’s license…
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Does occupational therapy help
DH in early to middle stage ALZ. There is another neurologist nearby that offers occupational therapy for dementia as part of their treatment. It is a hassle to change doctors, but if having DH do some kind of therapy that would slow the progression I would make the effort. At home, he plays Sudoku for several hours a day…
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Iris L
Iris, I found your life story absolutely fascinating. If others want to read it, it can be found on Lorita's thread at the end on the page 4. https://www.alzconnected.org/discussion.aspx?g=posts&t=2147558954 Thank you for sharing it!
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Ricardo
Richard we are all at: Just need to talk to my friends (199). just look for that heading and you will be back with us.
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Why is this so very hard?
This was hard to write and undoubtedly hard to read, so if you're not up for it go back and pick another thread. For context my DW is late stage 7e and 73 years old. She very rarely opens her eyes and even when she is not quite asleep, she looks like she is. My DW's usual aide was upset this morning. While moving her…
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Un-dressing issues
Dear all, has anyone found a good strategy to keep a person with advanced dementia (FTD) dressed? My dad is still ok with keeping his clothes on when we are outside or at the groundfloor (with a lot of talking from us explaining this is absolutely necessary for XYZ reason, trying to make him laugh etc.) but it's becoming…
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When urgent care, when to accept what cannot be controlled?
Thank you in advance. 94 YO mom has moderate mixed AD/VD and severe small vessel disease. Low BP, no history of stroke, never-smoker. Doesn’t drink enough water. Zero meds except eyedrops. Lives in an independent community with AL services for eyedrop administration. She functions mostly on her own still. We suspect she…
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toddler grandchild - advice?
My wife has been in MC for 2 months; she is adjusting well, making friends there, participating with activities, and is loved by the staff for her infectious high energy, and her eager engagement with the other residents. It can be hard for me to visit sometimes, because she wants to come with me when I leave. I tell a…
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How to deal with NEW personality traits
I am new to the site. There is 15 years difference in my husband and I. He is 75. In late May, I noticed some disturbing habits he was beginning. DH is fully functioning except for the urges and impulses he can't control. It is disturbing and I feel like I got on an apology tour a few times a week. I love my DH but he is…
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LTC Insurance and Travel
My LO has an LTC claim started (not yet approved) and is likely eligible for benefits, but she is still eager to take trips. Does anyone know whether, typically, an LTC company might pay home healthcare benefits while the patient is still taking pleasure trips with a close companion to monitor them? Or do the LTC companies…
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Looking for a friend to get through this with in the Sacramento area
I am following the lead of Bailey who posted this request for her area. Thanks Bailey for the idea. I am 60 years old and caregiving my mother. I am looking for someone caregiving a parent or spouse at home for mutual support in the sacramento area.
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Does DH really have AD? He seems so normal.
DH has seen the neurologist and had brain scan, EEG, verbal and visual test and has been Wdiagonosed with AD, but 99% of the time he seems so normal. I begin to feel like I made a mountain out of a mole hill. For years, he has been saying, " Oh, you know what I mean." About a month ago, he peed all over the bathroom floor…