-
How to handle wanting to drive
Hi All, My DH, who definitely should not be driving, talks about driving EVERY DAY. His car has a dead battery, and he has been told by his doctors that he should not drive, but he brings it up every day. He wants his precious car fixed. He wants to drive. He has driven 3 times in the past year, and the last time he swore…
-
New Symptoms
Hi, my LO, 88, diagnosed Alzheimer’s 2024 but symptoms at least 2 years earlier. This is were we are now. Doesn’t drive, can’t cook, can’t remember his pin # for credit cards. Can’t pay bills or do meds. Latest hearing voices sing Happy Birthday at 1 AM and going outside to look for them. Hand tremors and absolutely no…
-
Kisunla infusions
Recently diagnosed (after +18 month of waiting on testing and follow up Neuro appointments) and referred for Kisunla infusions. Dr deemed him with mild cognitive impairment but I see moving to moderate impairment based on testing last done 6 months ago. I am concerned as everything I read states Kisunla is for MILD…
-
I haven't been able to post as much lately...
I've been reading the posts but haven't been able to post as much lately. As many of you know, I was diagnosed with cancer in Dec 2023 and had to place my DH in memory care so I could get treatment. I had chemo and major surgery in 2024. My DH passed in August 2024 from Alzheimer's-Posterior Cortical Atrophy. In December…
-
Scam???
I had a person from ALZ. Connect messaged me. Tell me your thoughts on her message. I looked up her profile and she just joined on the same day I got the message. I want to think that the message is legitimate but just have a gut feeling that it isn’t. If it is legitimate please accept my apologies. We are all vulnerable…
-
The Behavior is so Unpredictable
My DW just woke up from an afternoon nap. She accuses me of cutting her hair and stuffing ii onto her mouth. She also caustically accuses me of cutting her gums and teeth. Of course I deny it. Then she screams she hates me and wants me gone! Well I have somehow remained calm. I understand it is the disease. Now she will…
-
lions mane with gingo biloba
supposed to improve concentration. has anyone tried it.
-
Mother dissatisfied with live-in caregiver
My mom is fortunate enough to have a live-in caregiver, this is her second. (the first was for three weeks, didn't have a car, and was temporary until the caregiver with the car was available). The first person she had a really tough time with, and my mom got really mean and nasty to this person, they would get in shouting…
-
Disposable toilet mats
I’m a newbie compared to most here, but I wish I found these much sooner. Cleaning the bathroom tile multiple times a day was exhausting in addition to all the other “jobs”
-
Mom lives across the country & has early stage of dementia
Mother lives across the country and insist she is taking her medications regularly, but her BP says something different. She tells her doctor that she is taking her meds and feels that the doctor is calling her a liar. I know she is not taking them regularly and she meets the criteria of loss memory for the early stage.…
-
Awakes during the night to urinate
I care for my 94 year old mother who lives with me. She is in moderate stage I believe and has days and nights mixed up. She needs assistance with everything but feeding and is in a wheelchair since breaking her hip and having surgery 2 years ago. She urinates a lot at night about every 2 to 3 hours and she calls me to…
-
In memory care and taking hubby out
hubby has been in memory care facility since mid October. He always in confusion. He says where am I. What am I doing here. I want to go home. This is all he talks about. I thought I’d be able to take him home thanksgiving but no way. I’m not sure he will ever be ready to go out. I can’t imagine taking him to a diner.…
-
Control of financial power DH has Alz
hello caregivers has anyone had to control/limit their spouses powers, regarding finances, investments in particular? My DH is fine with money at home, and does not go out without me. A problem arises on rare occasions when he considers our investments. We are seeing his neurologist in three days. Do I need to get the Dr…
-
lack of empathy with my mother
My mother was diagnosed with Alzheimer's in September 2025. At the moment it is a medium/mild disorder, she still lives alone with my support. She is not able to take her medicine independently, she does not know how to do the shopping, she has difficulty preparing meals. She is not yet a danger to herself even if more and…
-
Mom is in memory care, she “wants to buy a condo”
I just had to put my mom in memory care in March. Prior to that, she was in the assisted living side of the facility, and I hoped it would meet her needs. She first moved to the facility in November. It’s been a quick progression. Then, and especially now, she wants to buy a new condo. She knew that we had to sell the old…
-
Night time sickness
My mom every night wants to call the ambulance because she feels nauseous and shaking. She has sundowners and gets fidgety and can't sleep. She also has congestive heart failure and her blood pressure gets really low. Not sure what to give her to help her relax and sleep. Doctor not much help, wants her to take Xanax.…
-
Rational father trying to relate to emotional mother in stage 5/6
Hello. We moved my mother into memory care a couple weeks ago and she is slowly starting to adjust except when my father visits. My father is, by nature, very logical and rational. My mother is, by nature, very emotional with a tendency to complain/argue with my father (it's been that way for decades). When visiting, my…
-
Accountant or bookkeeper recommendations
Hi there, Anyone know a good accountant or bookkeeper that understands trusts and Medicaid? I'm the POA for my mom, who has Alz. As part of an awful experience called Medicaid planning, a lawyer is recommending my mom put some assets into a living trust; plus open a Qualified Income Trust; plus open a Medicaid Compliant…
-
Looking for activities for my dad who has advanced dimension
Hi- My dad’s hobbies before Parkinson’s and procrastinating, dementia, or photography, reading, classical music., and the TV show Doc Martin At this point, Doc Martin is too confusing for him and doesn’t want to watch it. I was able to find some simple books for dementia patients which he seems to enjoy. But perhaps for an…
-
Both FTD and AD
Last August my DW was diagnosed with both FTD and AD. In the last few weeks she has repeatedly identified me as her dead father and is very comfortable with it but very upset as to where her husband has gone…usually says he is off with his buddy who she does not know the name of. Yesterday she was doing a wash of clothes…
-
primary support person, not direct care-giver
Hi, I'm new to the group and looking for support. I don't know this is the right place for me. My mother is in assisted living with mild-to-moderate dementia. She lives 1/2 mile down the road from me. I’m her primary care partner and decision-maker, but I’m not providing hands-on care. I'm mentally and emotionally…
-
What did you do to prepare for inevitable MC placement?
Hello everyone, I'm working on getting my ducks in a row so to speak to prepare for my DH going into MC when/if it becomes necessary. My question is this: What did you do to prepare for your LO going into MC? My DH is nowhere near ready for that level of care and I also hope to keep him at home as long as possible. With…
-
Downsizing While Caring for a Spouse with Alzheimer’s — Has Anyone Done This?
Hi everyone, My dad (65) has Alzheimer’s and is slowly declining. At this point, he can’t prepare meals beyond grabbing something simple, and he needs help or reminders with personal care like shaving and showering. His speech and understanding are very limited, and while he’s still in good spirits, his independence has…
-
Constant Need for new creative strategies!
It is amazing, how I constantly need to be "on my toes" with my mom (mild-mod-Alz in AL). I recently (due to this groups' suggestion) got Google Voice so my mom wouldn't constantly be texting and calling my real number. I can now check Google Voice (& MSG) when I want to, 2x/day. It has greatly lowered my stress response!…
-
Time to move Loved One into care center
Hello. I have not been on this site for a long time. But when I was, the info I received was so helpful. I care for my twin brother with Alzheimer's heading into Mid/late stage, progressing quickly. He is 71. He has been approved to go into a care center June 8th. Looking for guidance, suggestions for how to tell him and…
-
Sad ending because of financial abuse
https://www.nbcnews.com/news/us-news/california-woman-dead-murder-suicide-may-thousands-scammer-claiming-to-rcna346560 Tragic reminder it isn't "dignity" you are saving when an impaired loved one has free access to phones and assets. And the scammers aren't just randoms- but highly organized…
-
Possible Job Relocation and Moving Parent
Hello, I am new to this forum and after reading likely 100 posts or more, I am in tears knowing that I am not alone. The words and encouragement from this group is incredible. This is such a lonely process for the caregiver. I am envious of those who have siblings/family who step in and help. I am an only child and my…
-
Hot and Cold
My DH is in moderate stages and is constantly complaining about being too warm or cold….then when I adjust the room temperature slightly, an hour later he is the opposite. This has been going on for a few weeks now - is this a common symptom of the disease? He does not seem to have a fever or any other symptoms that would…
-
Multiple elopement attempts from MC
My mom (87YO) is in MC and has attempted to leave several times. Most recently, on Friday she managed to get upstairs before the nurses caught her. It took them an hour to get her back downstairs to the special care unit. They had to force her onto a wheelchair - she was swinging and pushing. I saw her Sat morning and she…
-
New member challenged by delusions
Hi everyone - just signed up here. 72 y.o. husband has moderate dementia, not Alzheimer’s, but due to changes from acquired brain injury from adolescent-onset hydrocephalus. He has a long history of persecutory delusions - there has often been an individual in his life that he believes intends to harm him. Those mostly…