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We need help!
My husband and his siblings are struggling to get their mother into assisted living. Doctors have been ZERO help with diagnoses and claim she has memory loss due to old age. She has presented well at her last 2 appointments. However we get 5-10 calls daily because of numerous things. (Lost her keys, lost her purse, cant…
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Uncomfortable question
My DH watched his parents both go through Alzheimer's/Dementia and it terrified him. He always said "if I ever get like that please let me take my life". He was serious. Now he is at the beginning of this awful disease and on numerous occasions he has said to please let him take his life and "please don't let me live like…
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Hospice for Alzheimer's Patient
My mom is a resident at an assisted living memory care community. She is 84 years old and has had memory issues for 4.5 years. She has been living in assisted living for 2 years and is declining rapidly. She is in a wheelchair all the time and is a 2-person assist for everything. The problem is that the 2-person assist is…
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Kids Who Care for Parent(s) At Home
Are you an adult child that takes care of your parent AT HOME? This discussion is for you! Hello! 😊 I take care of my Mother ❤️ One of the hardest things is the grief felt as she progresses and how family treats you as if you're both already gone (ie, passed away) — they don't visit or help much and never say thank you.…
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How I dealt with a diagnosis of dementia
I was originally diagnosed by my neurologist as having cognitive impairment not otherwise specified. This means that the memory loss and other cognitive issues are due to another disease condition besides Alzheimer's Disease. Since I had had memory loss for some time, I was okay with that diagnosis. It is on the same order…
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Won't keep diaper or underwear on
I care for my 71 year old sister who won't flush the toilet or keep and undergarments on. She's leaving trails on my carpet and her room stinks. I'm very new at this and don't know how to help her. Any info will be appreciated.
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Hospice assessment
On Monday I asked the nurse at Mom’s AL if she thought Mom was ready for hospice. She jumped right on that. The account rep stopped by an hour later and took the initial info. She really didn’t seem that hopeful but she started the process. The PCP’s office called me Tuesday and wanted to know what diagnosis they should…
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Alternative Therapies
Hi. I’m new to Alzheimer’s and to this board. I’m wondering if there are alternatives to the standard ‘take your meds and wait’ scenario. Has anyone here researched or run across information?
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How to tell them about a death?
I found out ths morning that my bf (45 eoa) his cousin was in an accident and passed away. We have a commitment ceremony happening in 2 weeks. His mom decided to not tell him about his cousin because she wants him to focus on the ceremony and we will tell him after. We don't know what state that may put him in as this is…
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Packing up to go home
I just put my DH in memory care yesterday. This morning the nurse said he had everything packed up to go home. She said he didn’t sleep all night and wouldn’t even take his clothes off last night. Now he’s crying today saying he doesn’t understand why he had to be there. I’ve been told not to go visit for at least a week.…
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Cabin in the country
we have never been on a vacation as a family more than a few nights but I took a leap of faith and booked a cabin. My husband with FTD and three kids will hopefully have good weather. My husband and I always loved camping so these are easier trips as the woods always look like our old camping days…nothing odd or scary new…
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Lessons I've learned about "Memory Care"
I've previously made reference to lessons I've learned since placing my DH in the memory care unit on 4/1. Here are some of them. Hopefully others can add to the list and it will help others as they make this step with their loved one. Nursing care and Memory Care are two different things. Many Memory Care facilities are…
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some sort of shadowing
DH diagnosed with ES recently, but after reading more and paying attention to what is actually happening to him, he is probably at stage 4 or so. For some time now, he has been staring at me. I find it quite annoying but haven't said anything. More recently, he has been coming up behind me and kissing me on the top of my…
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Trying to make life altering decisions and. . .
Well meaning and good friends who are retired nurses and worked in most every field at the VA. I was talking about the hospice care and the meds the, well respected hospice doctor put her on. All I heard was how those drugs don't interact and make sure the hospice company isn't experimenting. Why would they experiment?…
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ALZ and the law
My father was served with a court filing against him for trespass on private residential property. He has moderate ALZ and believes that people want him to visit them. Will his doctor's notes be admissible in court as a defense?
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Medication
My LO has declined according to her recent memory test she had a few months ago. Her neurologist prescribed a medication called Memantine. The first week she was doing fine, but the second week there has been some changes. She tells me she is drowsy, dizzy and feels funny. I noticed her mood has changed since taking this…
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AD and Cataracts - Ophthalmologists Good With Alzheimers?
My LO has cataracts. She is expressing that she wants to have them removed but is having difficulty tolerating the testing required to measure lens depth. The machines attempted (e.g., IOL Master) were unable to obtain the needed readings. Without throwing any information our way, the assistants then took my LO into a room…
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Feeling Such Incredible Heartache and Pain
Well, my mom has been in the hospital for three days now. Each day, she gets more delusional and starts hallucinating. I feel so so so guilty. I feel like I made it all worse, and could I have just tried harder to be patient and less selfish about my time? But no, I couldn't, and I know that. I think I've found a facility…
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Performing a COVID-19 Nasal swab test for PWD
PWD was previously aware of what a nasal swab for an antigen test was for, and performed the nasal swab by oneself (I did the rest of the test) This week, I was asked what the test was for, and I explained; I handed the swab and how many times to turn in each nostril. PWD did that, and then tried to wipe the swab tip on a…
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Security Cameras
Can anyone recommend good indoor security/spy cameras to keep an eye on my mom with my phone? Something cheap on Amazon that does the job and will arrive quickly? Thank you!
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Asking for help( caring for a loved oned showing signs of dementia)
Hello everyone, Me & my mom would like some advice. We are currently caring for my grandma & she has been showing signs of dementia. We have been to multiple doctor appointments, just waiting to hear the results. Even though she hasn’t been diagnosed, we’re pretty sure it’s dementia being that in runs on her side of her…
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Humor: Telling Alexa on me!
In the #sometimesyougottalaugh... My sweet Jack is arguing with Alexa 🤣😂😁 There was a short story on Audible with Judd Hirsh (from Taxi) playing a retired guy who's wife died. She was named Alexa, so when his daughter bought him the Alexa speaker, he thought she named it Alexa. Anyway, it's a sweet story where he struggled…
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How to approach MC
Hello all. Like so many of you, I have had to make the difficult decision to place my DH in MC. I have secured an “apartment “ and will plan to move him at the end of the month. He still puts on a good show, but had severe loss of words which makes him hard to converse with. He has difficulty choosing clothes and would not…
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TAKING MAEDICATIONS
I do not know if anyone has been following my story. Up until now I have been able to do my own meds with my wife just checking on me once in a while just to make sure I am doing it right. Well today I could not remember which meds I take in the a.m. or the p.m. This scared the s—t out of me. I guess this proves that my…
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Where do I stand in the variants of Alz?
I am a newbie here, so forgive me for any mistakes I make… And forgive me if I talk too much. I don't remember how long ago it was that I got routed to a doctor who was, I think, fairly good with Alz patients. And, now, less than a year with me and him, I know what is going on - somewhat. My stats for measuring my problems…
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Electroconvulsive therapy (ECT)
I’ve recently discovered that some patients with dementia may be treated with ECT in the hopes that it will improve symptoms of depression. Does anyone have experience with this that you can share? Here’s just one article I found about it
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NY Times: How Hearing and Vision Loss Increase the Risk of Dementia
Gifted article for 30 days https://www.nytimes.com/2024/08/08/well/mind/hearing-vision-dementia-risk.html?unlocked_article_code=1.Bk4.olZa.vDIdaqXHJqa1&smid=url-share
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Overwhelmed with guilt & grief
It was a long road but my father in law has been living in a memory care facility close to us for about 6 weeks. Even though I know that my husband and I would be unable to care for him safely in our home because he would mostly be alone, I still feel so guilty for this major decision. When family and friends ask about my…
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ANOSOGNOSIA, MCI diagnosis in Jan 2024, probably mixed vascular dementia
Hi everyone. I am new here and this is my first post. I have been working to get a specific diagnosis but at this point don't really care. I know what I see, live and deal with and it is definitely mixed dementia probably vascular in nature (MRI showed strokes) with Anosognosia (God please help me with this one). I also…
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GPS watch
Hello…..My father is very strong and active and still wants to walk around the block. I am looking to purchase a watch with GPS for him to wear. He gets disoriented and I dont want him to get lost and he refuses to walk with the home health worker. I have researched and found some options but cant find one that has all I…