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This is what worries me the most. How are we going to financially pay for my DH’s care. We rent our house, don’t have savings or long term insurance and we make too much for Medicaid. This totally freaks me out. My DH just thinks insurance is going to pay. I need to work. When the time comes I don’t know what to do

I have often wondered why one person with dementia will become angry and argumentative while another seems to just seems a bit confused and tends to accept limitations without much concern. Do you think it could be related to their personality type before dementia? My mil always gave in to whatever my very strong willed…

My dad has a bandage over his wound per his dr and wound clinic. It gets changed by the wound clinic as well as my sister and I every 3 days. The dr. Said it needs to stay on to help it heal. He forgets it needs to stay on and keeps trying to take it off; gets mad at us for not taking it off when he asks. He feels he…

Please excuse if this is not appropriate to ask. I've been interviewing elder law attorneys for Medicaid planning for my early-stage spouse and am wondering if anyone has any specific recommendations for Northern NJ, Bergen County in particular.

I called mom to say hi and check in on her (she is in a nursing home). She started by telling me she has a list of things she wants from her house when I go there next. I let her rattle off the list of things she doesn’t need and made no comments about how ridiculous these items are. Thing’s quickly snowballed and she…

Bill Ritter is a news anchor who was recently diagnosed with Alzheimer's.

My daughter, age 50, has been diagnosed with early on set alzheimer’s. It took us forever to find some place that would help us. She was diagnosed about 2 years ago. We had to go to Mayo Clinic in Rochester to get that! Washington University did not help. None of the doctors we went to in our area helped so much time was…

I am 87 and my wife is 85. It's been 8 years since her Alzheimer's was first noticed and now she is in Stage 6. We have had a wonderful life overall and a great marriage (67 years) and two sons we are proud of. But face it, our life is over. We have no friends now, nothing to look forward to except a struggle to get…

Might have to put the cat to sleep. My WWD lives for that cat. I fear it will trigger a sharp decline in her condition. Would it be better for her to be present or absent when he is put to sleep?

Hello wonderful people, I was wondering if anyone has advice for a brand of overnight pull-ups that is the most absorbent. Lately my LO often soaks through even the brands that say they hold the most liquid. He does sleep over 12 hours sometimes, so i know that would be a challenge for any product. Our family has tried…

Today the Hospice nurse was here for weekly visit. Most weeks we talk about how the last week has went and then vitals are checked. About every 6 months or so they will ask my DH personal questions. Usually he can always tell the nurse his name and then the other information such as where he is, what season it is, etc is…

Does anyone know of a phone that my mother with dementia could use? She has been scammed over phone few times giving out her information. We took away the phone but she keeps asking for it back. Ty

I was just diagnosed with frozen shoulder on the left and bone on bone on the right shoulder requiring shoulder replacement. I’ve opted for cortisone shot and PT ; as I cannot figure out how to take care of DH 6 yrs into VD . How do all of you deal with this? I woke up this morning to go to PT to find my left foot was…

Hi. My name is Shank. I’m a 79-year old retired company medical director, and I was diagnosed with early stage Alzheimer’s about 6 months ago. It followed a year of an increasing number of senior moments, then neuropsychiatric testing, an amyloid PET scan, and an elevated p-tau217 level. I’m on here to learn from others…

Would having a night caregiver help an Alzheimer's patient sleep more/better at night? My mother's circadian rhythm is completely messed up. What I want to accomplish is to get my mother onto a normal sleep schedule (say 11pm to 9 or 10am). My mother is up a lot of the night sitting on the side of the bed thinking about…

It’s been a while since I’ve been on this site. I just wanted to check in and miss feeling connected here, so here’s an update. I guess the one constant of caregiving is we just can’t predict this journey. A year ago mom went on hospice after a horrible fall. MC made her get a 1:1 aid because she had so many issues. Now, a…

My DW’s psychiatrist and non-residential memory care activities director have recommended residency, telling me that my caring for her at home is “unsustainable” and that I’m harming myself by trying to be her sole caregiver. What form could/will that “harm” take? What could happen to me? I’m stressed, sure, but feel that…

I am 60 in July It seems like it is test after test. I have had all kinds of blood test. My next test is a pet scan. How long before I get a diagnosis? Not knowing is really hard.

I am the caregiver for my longtime partner who is in early/moderate stages. His four adult children live at a distance and have limited involvement and contacts with him. A son is his financial POA (minimal needs for assistance so far) and another son looks after a disabled sister, which is appreciated. They do not ever…

Good evening folks. My DH is a chronic buyer of almost all things. We married late and this year makes # 13. He is early 70's and I am mid 70's. It took me a while to see and come to grips with his hoarding nature. I feel so overwhelmed by it all at times. When he has a sort of fit about "what is all this!" as he may point…

Some things have been changing with my 79-year-old DH… Found out last week that he no longer can be relied on to get back in the vehicle so no more shopping with me. He doesn't yet qualify for hospice care. He is too healthy. Occasionally, I have to feed him. He is completely incontinent. I decided that I need some help. A…

I would like to hear from anyone who is dealing with a spouse or LO who has this dx. My husband has been diagnosed with cerebral amyloid angiopathy—which seems to be the cause of this vascular dementia. We have been married since 1994. He is 79. This dx has turned him into basically a different person. He is 6'10" and has…

Hello - I've spent a lot of time on this site for years once both my parents were going down this path of dementia. So much help and information on the board "caring for a parent" My mom passed in November of 2025 and my Dad in March of 2026. They weren't the parents I knew. My Dad's journey was different than my moms. I…

Hi, Like I guess everyone here, I'm walking through a threshold where I don't know the path, the landscape, or what's ahead. What I DO know is that I love my wife. and we. will walk this path together, as we have always done in tough situations over these last 32 years. The doctor's office called today to say the last of…

Hi Everyone, When I found this group, I knew it would be supportive. Just reading all of your responses has given me a little peace of mind. My mom is 93 and two years ago was diagnosed with possible early dementia after leaving her home at 11PM and walking to the hairdresser's. Nothing like this has ever happened again,…

Hi - I’m new to all this and dealing with my Mom who has had a stroke and then diagnosed with dementia. She doesn’t live with me and as she is recovering from a recent fall - her overall health and conductive health has declined. She is now refusing to open the door for caregivers coming to help with her rehab from the…

Hello all I am 72 year old male and retired at age 66 after serving in the US Navy, working for Siemens Automated Process Control Systems as an Engineer for about 11 years,, and lastly as an Engineer for the Department of the Navy for 33 years traveling all over the world. In 1988 I got the Ebstein Barr Virus and one year…

does anyone know of an adult daycare in Burlington Nj?

I have been trying to eliminate whiskey from the diet of my HWD, but it just seems to cause problems between he and I. I don’t mind him drinking beer or wine, but he has gone overboard regularly in the past when he starts drinking whiskey. He only drinks in the evening. We have poured 4 large bottles of whiskey down the…

Hi Everyone, My name is Elizabeth, and I'm new to this journey. My mom was diagnosed with early-stage dementia in May 2025, moved in with me and my family in August 2025, and her neurologist confirmed Alzheimer's in February 2026. She is still highly functional and stays active with Silver Sneakers (me joining the classes…