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Just need to talk to my friends (215)
Happy February! I'm glad January is over. Maybe February will be a better month for weather and everything else. Only six more weeks until Spring. Almost time to order caladiums. Hopefully, the daffodils are okay after the freezing weather we have had this past week.
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Mixed Dementia Care Partner - I am new here
Good morning, I just found this resource and decided to reach out with my situation. My DH has a dementia diagnosis, not confirmed via MRI or bloodwork, but neuropsychological testing revealed "likely mixed dementia, due to vascular and alzheimer's". He has an aneurysm clip that is not MRI compatible. The neurologist says…
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Changes with food behaviours
Hello community, I wanted to see if anyone had observed a similar situation: since a couple of months, my dad (FTD-Parkinson, not Alzheimer, advanced stage) is spitting most food we propose to him that are salty, including those that he used to love. We thought it might be for his teeth (as he has some issues) but if we…
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88yo mother
88yo mother in memory care after a broken hip. 88yo dad living home alone visits every dad about 7-8 hours. Mom with her dementia blames him for her circumstances and he gets angry and frustrated, blows up and storms out of the facility despite the fact we tell him constantly she cant help what she saying and talking to…
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How to handle selling the toys
Hi. I am new to all of this. My DH has been diagnosed with moderate to severe LBD. We live in the country and he has many toys. I have all the keys to the toys but it is almost a daily game of asking if he can use the John Deere to move the snow or another piece of equipment. I know I will need to sell the toys, but do I…
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A bit of humor
My DH (mid-stage AD + Parkinsonism) now often struggles to name things. The other night he was standing at the kitchen sink, when this conversation ensued: Him: Did you put the pill in the whirlpool? Me: The whirlpool? What do you mean? (Thinking). Oh, do you mean did I put the soap pod in the dishwasher? That was indeed…
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Bible Verse to Lift You Up 2/28/26
Psalm 5:3 WAITING EXPECTANTLY New Living Translation Listen to my voice in the morning, Lord. Each morning I bring my requests to you and wait expectantly. HOLY SPIRIT, please continue to help me think Your thoughts so I remain strong on the inside, so I am able to serve and glorify Jesus as a loving caregiver. In His name…
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What stage he’s at?
as far as I know hallucinations are not present, my husband will get the mail multiple times if I let him, the day we are in at present are validated. We’ve been to Labcorp, the Neurologist, and SimonMed numerous times and we were never told if this is Alzheimer’s or dementia. My husband was told he carries the Alzheimer’s…
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New Here - Spouse with Young Onset
Hi all, I'm new here. My wife was formally diagnosed at the ripe young age of 51 this past December. I, myself, am her 34 year old wife. I just wanted to come in here and say hi and kind of vent to folks who may know. These past 2 years of confusion and emotional and financial upheaval have been incredibly difficult to…
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Psych Exam for exit behavior
Our LO, likely with FTD, has been at MC for close to 3 weeks but after an initial period of apparently positive acclimation they report he has started to attempt exiting the facility more often, wanting his car, resisting redirection. They will have a psych consult via state mental health services. My questions are what…
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What is next
New member here Spouse is somewhere in 5 or moving into 6of the seven stages. What is coming next? Is it time for respite care? She just said she did not know my name or that we are married. Sleeps all the time ,moves slowly, eats little. Takes her meds if I am there to watch. Showers when I remind her but now needs help…
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Learned Something New About Alzheimer’s
My DH (57) was diagnosed exactly 2 years ago with EOAD. Progression has been slowed a bit by Leqembi but he had to stop due to ARIA. Now I’m seeing more signs of progression. One are I see it in most is his loss of words. He struggles more an more just to get out a few sentences. But a few nights ago he had a dream where…
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Struggle with my identity 🥴
I received a call from my dad gf he was transitioning a year ago, I tell her to call ambulance, something felt off. Dad is hospitalized, no longer walked, multiple infections, and weird things begin happening with his girlfriend. She blocked me, she told hospital they were married, she would talk to him like a brainwashing…
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Funeral for a friend
The husband of a dear friend died and his funeral is at the church we used to attend tomorrow. I would like to attend but would need to bring my DH who now travels in a wheelchair due to falling issues. He's in stage 6. Would this be too much?
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Night time wakefulness
I’m looking for any suggestions about how to deal with my DH’s newly developed night time waking. I know many of you have dealt with similar issues and hope you can provide some ideas. My DH is wheelchair dependent and cannot get in or out of bed independently. I have a hoyer lift and can get him into bed by myself using…
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The Cavalry Is Not Coming: 9 Year Edition
This is an updated version of The Cavalry Is Not Coming. I repost this occasionally as I have been informed that this article has helped many caregivers. This edition is mostly the same, although I have brought it up to date and revised it to make it more helpful. October 1, 2024 marked nine years since my wife’s dementia…
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For the eagle-watchers
Jackie and Shadow seem to be preparing a new nest. Here is the site of the live Webcam. Some members like to observe for a break in their routine. Livestream - Friends of Big Bear Valley https://share.google/Y8pyvVpGQPuUXhFar Here is an article about the pair. 2026 nesting season underway for Big Bear’s famed bald eagles –…
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I am new
Good morning, I"m new to everything and struggling. My husband has memory issues and has gone through a personality change. It has been hard the past 2 years and getting harder. Right now I just need a group like this or some sort of support. I love my friends but they don't really understand. He has alienated some of them…
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Lorazepam and hallucinations
My wife has a prescription for Lorazepam as needed for anxiety. She has taken it a few times and it has helped but today she was upset so the MC gave her the Lorazepam and she Had hallucinations and delusions most of the day. She was talking to people that were not there. She was happy, so that is good. She has had some…
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I really miss the wife I married
I can no longer have a meaningful conversation with my DW. I try, but she isn't all there. When she speaks, it's mostly gibberish which I simply respond in agreement or positive manner. The simple affection is almost gone. Everyday consists monitoring her and helping her with showering, hygiene and getting dressing. I miss…
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Driving
DH is 62 and has FTD semantic variant. I unfortunately had to turn him in to the DMV. He doesn’t know it was me. He had his evaluation Friday and they suspended his license. He is angry and doesn’t feel he is far enough in that he is unsafe to drive. He drives a lot for work so I am not sure what his plans are for that.…
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Living as dependent
My mother and I live together as her early onset Alzheimers gets worse. I am still considered her dependent, and as an added bonus have severe disabilities as well. She will not let me talk about finances with her. I dont know how to approach this the right way, because I have nowhere else to live if she went to memory…
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I need to go to MY house
My mom is in the middle stage. She is constantly wanting a ride home when she is already home. What are some ideas that to make her realize that she is at her own house. She is getting increasingly agitated when we try and explain that she is home.
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How People Can Help
Often friends will ask how they can help. For the ones that my husband doesn’t know well I let them know just checking in on me helps. And for the ones he does know the best help is taking him out of the house (for a walk or lunch) on a regular basis. It gives me time I can count on to focus on myself or errands, and it…
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Feeling Very Thankful
I just want to express my sincere appreciation to all of you who show up on this site. The shared experiences, rants and raves, insights, advice and love and shared vulnerabilities have made a real difference to me in how I’m able to navigate my day to day with my DW. Wishing You All the very best Thanksgiving possible.…
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Suggested Meds for Aggression
My DW is 61 years old and just recently has been started to be treated for Dementia/ALZ however the truth is she started showing signs about 6 years ago but it has been very difficult to have her cooperate with seeing a DR and progressively became worse to the point she became both verbally and physically abusive.…
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Hygiene...refused to brush teeth
My DH got a not so good report from the dentist about his gums receding. He hasn't been brushing his teeth, and now when I try to get him to do it, he refuses. I need suggestions.
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Slowly learning: don't argue, don't say no, don't correct, ETC.
So we've been on this journey with familial VD for over 7 years. Recently (last week!), I finally realized that 'arguing' with DH only upsets him and doesn't change him at all, BUT it makes ME feel terrible and guilty and wastes my energy. For MY MENTAL HEALTH I have to use the techniques endorsed by so many dementia…
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Afraid
My DH diagnosed with Alzheimer's has become increasingly agitated, even on meds. We meet with a neurologist every 6 months and the agitation has been ongoing for several years, although not this extreme. On Friday the neurologist nurse and I had a phone conversation to discuss the agitation, she suggested calling 911 or…
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My father
This might seem different, but my living situation has been that I live in a large mostly one floor house with my parents. My mom had retired at 69.5 (now 72) to take care of my dad and his Early Onset (diagnosed at 67, now almost 77). My mom recently just helped make sure my grandmother was taken care of too in her last…