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New Year
For those of us who placed our loved ones in MC in 2024, the New Year represents the first year we are no longer providing care 24/7. Nonetheless, we experience sadness, worry, and exhaustion as we struggle to reinvent our lives. We cared for our loved ones for so long until we truly couldn't anymore. We don't miss their…
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Programs for late stages
My mom is 74 in we are told she’s in the late stages of Alzheimer’s. She has started having issues swallowing. She can no longer follow conversation. She just tells you the same stories. She is still verbal but just can’t find the right words. She can barely answer questions without being confused. We have to help with…
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Supporting both parents
Both my parents (79 and 78) live with us in their own attached apartment. My mom (79) is in the very early stages and is still very active. My dad is struggling with her memory changes and becomes angry and frustrated with her. I am looking for how best to support my dad wand how best to support myself as we navigate this…
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BiPap usage as dementia progresses
My husband just got diagnosed with Alzheimer's and around the same time he finished a sleep study and found that he has central sleep apnea caused by his congestive heart failure. He has been using a BiPap since November and is doing well. My question is… what should I expect as this disease progressess. Will he most…
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Stages of Alzheimer's
I'm new here and new to caring for someone (my 82 year old husband) who just got diagnised with Alzheimer's. Early stages so I know we have a long road ahead of us. As I read some of the message boards here, I see everyone talking about the stages of the disease and mention stage 8. When I Google the stages, I only find…
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I'm learning to accept this new reality
Hey I'm a 35 year old man who takes care of his mother. She lives a few blocks from me and is going through dementia. Early 2024 is when I first noticed signs. My mom is 77 years old, she is my heart, my Queen. She fights me on EVERYTHING and feels I'm taking her independence from her. I don't really get help from my…
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How To Talk To Mom Resisting Help?
My mom has dementia and my dad is primary caregiver with my siblings and I supporting. She can’t be alone for long ( leaves stove on, wanders into neighbors apartment etc) so we plan to alternate working from their apartment once a week for 3 or 4 hours so dad can leave and get a break. Any ideas on how we present it ? She…
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Options
What are my options for care for my husband if I make too much money for Medicaid and not enough money for long term memory care? My husband is in mid stage Alzheimer’s and very difficult.
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Dementia acceptance
New here. My mother has moderate stage of dementia but does not believe or accept that she has it. She was diagnosed about 3 years ago and now believes she just has bad short term memory due to being 82 years old. She has transitioned from being angry and mean to making up false memories and rearranging the house every…
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Don’t know what to do
My parent has had dementia for years and was holding fairly steady. They turned 100 a couple weeks ago and it’s like a button was pushed. Forgot how to use the bathroom, kicks & screams when I try to help etc. I got them to wear an incontinence brief but they refuse to take it off. Help….
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Christmas gifts
Mom is in AL. She hoards and we have not taken her to the store for the last 3 months because she insists on buying things she doesn’t need. She is finally just starting to tell me if she needs something vs telling me I need to take her to the store. She is mid stage and insists on independence. She loves Christmas and…
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Casava Trial
Beset by fraud allegations and government probes, Cassava pulls plug on all ongoing studies of simufilam. My DH and I went through a horrible experience with this trial. They waited until the day he was supposed to transition into the open label live drug and then told us they would not continue. 18 months of hope and…
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Struggles with hygiene - how hard to push
I know this is such a common problem with PWD. My DH will not shower so after trying all the normal suggestions about warming the water first, warming the towels, etc, I started using rinse free soap on a soft washcloth. Tried to do a few body parts every day or so or hand him the cloth. But lately he even refuses that -…
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Ouch
The holidays sure have a way. I know I’m lucky to still have my DW, but … She asked me to take her to go Christmas shopping the last month, so I did. She got presents for everyone in her family…except for me. Put that there in the things that hurt category.
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mom coming home,the dilemma
Hi i am new here, my mom Alzheimer/dementia has been getting progressively worst over last few weeks, she is in nursing home facility. i am working on bringing her home. in these few weeks, she has been having a deep sense of sleepiness. not due to meds. we found out Friday her kidney r functioning at 49 percent, part…
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Suggestions and thank you
My mom lives in DC and I live in Virginia. For the past few months, my husband and I, have been traveling back and forth. I am a special education teacher. I was missing so many days. I was made to take off from work without pay (all my PTO was used up) to get things straight to bring her with us. It's been a…
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How does one go about finding a clinical trial?
My mom was recently diagnosed with MCI/dementia. Since she is in the beginning stages, she'd like to participate in clinical trials to help with research. Her mother had Alzheimer's and participated in a trial and she would like to do the same. I don't know where to start. Thanks for your help.
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Searching for answers
Hi … my message is very long so please bear with me The following paragraph outlines my current health situation regarding memory and concentration issues. Before and After 2024: A Timeline Before 2024, for 7 years , I had consistent issues with memory, specifically: ● Difficulty memorizing names and faces. ● Forgetting…
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primary caregiver diagnosed with terminal cancer
I am the primary caregiver to my longtime partner who has dementia. I just got diagnosed with terminal cancer and need to decide his next options. He has an adult daughter who is not very involved in his current care. And out of town siblings who might help. Who do I talk with first and when do I bring my partner into the…
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Obsessed with thinking the internet company is "Stealing"
Does anyone else have to do this or just our family?
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Diaper Disposal Pail
Has anybody found a diaper disposal pail that works with adult diapers and prevents odors? I have seen several on line, but most seem to be for baby diapers, so looking for suggestions. Thank you!
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The coming new year....
In my therapy session this past week, I told my therapist that I have nothing to look forward to this year. She said I needed to find something to look forward to. I have no ideas… DH's progression? Placement? A health crisis? But seriously, do you all have any ideas? Thank you in advance!
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Just venting
From ohio. We received 10in of snow. Can't get out of driveway. Dh has 2 sons that live no more than 10mins away. They have not called to check on us. My sons live 30mins away and are coming tonight after work to dig us out. Just peves me off! They never check on him or see if he needs anything. Just peeves me off. Ok I'm…
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Need advice and direction
my mom was diagnosed with early onset Alzheimer’s two years ago. In June the doctor gave a prognosis of 6 to 9 months. At this point mom walks with greater difficulty, is partially urine incontinent and in pull ups full time and I am assisting with shower temp, dressing, food prep, cutting food, etc. her sentences are…
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Clinical Trial?
Just received a phone call about two clinical trials. Apparently (will call neurologist tomorrow- office closed now) his neurologist gave his name as a candidate for the trial. He had done a previous clinical trial that only involved him giving blood so I guess that indicated a willingness to be part of a trial. First— a…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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LO was recently diagnosed with YOAD
My dad, who is 55 years old, was recently diagnosed with early onset Alzheimer's. I believe he is in the middle stages Alzheimer's, I'm not sure. For some reason I don't want to talk about any of it with friends or family, however, because of that I haven't really been able to come to terms with or accept it. One of the…
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I am at the end of my rope as a caregiver
Hi all, I am reaching out because I don't know where to turn. I am a very young and active 75 and I have noticed a steady decline in my husband, age 70. I have noticed a definite decline and even tried to get him into an Alzheimer's trial, but he wasn't accepted. So I was hopeful, however, now I think he just didn't have…
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Police called update
I previously posted about my guy hearing music and calling the police. Many of you advised I needed to end the relationship. Updates on the current situation. He continues to hear music and has called police at least fifteen times. Police have called me 4 times. They are considering have paramedics check him out and take…
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New Years Eve
How excited was I when we received an invitation to a NYE party from our Sailability Coordinator. I thought this will be great, they understand, we haven’t been out to a party for the last 4 years. When we arrived I noticed the table set for 6 that meant us, the hosts and another couple. We had perfectly cooked medium rare…