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Vascular Dementia and Alzheimer Diagnosis
My dad who is an incredibly healthy 75 year old (exercises, good weight, good diet, social, optimist) was diagnosed with Vascular Dementia and Alzheimer's Disease two months ago. Right now he is in the mild cognitive phase. Does anyone have someone in their life who has both? I'm trying to grasp any idea of the timeline…
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Daughter of a dementia parent
I am new to this group. I am the oldest sibling and I do most of the caring for my mother and I need some tools that I can use so I don’t lose my ever loving mind every time I’m over there
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How to stop POA from calling/answering scam numbers
DH did it again, he called a number that was on his Ipad . I am guessing that he keeps clicking on something on FB that triggers a lockdown of his Ipad. This has been going on for several months. Unbeknownst to me, accompanying the lockdown is a message to call a certain number as the account has been hacked. Without going…
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Admitting to something you didnt do??
I know that part of being the caregiver for a person with Dementia is being accused of stealing when they misplace stuff, (like shampoo, coats, glasses) etc. When you find the item you are accused of stealing they say "oh no thats the new one I just bought" or they say "you just brought that back after stealing it". Or…
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Wondering if this happens to other parents.
I don't post very often but do a lot of reading of other post. My father was diagnosed 6 years ago with Dementia but was wondering about things I have observed over the last few weeks with my Dad. Over the last few weeks my mother and I, they both live with me as I help care give for them both, have noticed my Dad tends to…
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Dementia progressing...
My mom's dementia has been progressing so fast. She lives in a skilled nursing home, but no longer knows where she is. Although I am not her caregiver, I am her primary everything else. It is so hard to talk to her and hear her be so lost and confused. There's times where her voice sounds so familiar, like we can just have…
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Successful Strategy: Amazon "Teen" Account
I want to share an amazing, life-altering, successful strategy I've been implementing for 3 years with my mom (mild-mod ALZ). My mom has always been an Amazon-aholic. Before I moved her near me into AL, she would buy all this stuff and try to return them and getting confused and I had to straighten it all out. Now I am the…
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Parent making insulting remarks towards visitors and other residents
My parents is on a geripsych unit and I get so uncomfortable when she makes insulting remarks about other residents and visitors regarding their appearance or being crazy. She makes these remarks to me but says them so loud so they can hear. I'm scared when she says mean judgemental things about other residents and…
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Grief Differences Among Family
I wanted to reach out to others here for feedback. I struggle trying to help family understand why their grief for the loss of their mother or grandmother looks so much different than the overwhelming grief they see in me. I know each and every one misses her terribly, so it is definitely not because they cared less or…
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LEQEMBI Testimonials
Hello, I would like to hear testimonials from people, who have already completed LEQEMBI infusions. Was the cost and risk worth the benefit?
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Need a TV remote for dementia patients - any experience?
My DH is having great difficulty with the remote and then I have to try to figure out how to get it back to the stations we use. I have been looking online but haven't found what we need. Anyone have experience with either a simpler remote, voice remote or Alexa for controlling the TV? I feel so badly for my husband as he…
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What do you do when they push you away?
Dementia has really hurt my family tremendously. I live long distance from the rest of the family. My aunt has dementia. She's pretty upset with me for setting boundaries for myself. Long story short, I was expected to be her caregiver without any consent from me. So, when I would call my aunt, she would yell and cry…
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Question related to effect of repetition on memory.
I help a friend go to the gym a couple of times per week. At first, friend could not remember that they had a membership card and that they needed to scan it to gain entry. After several trips, they now always remember. At first, for many trips, friend could not remember how to use the built-in combination locks at the gym…
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Tipps and tricks needed
I have been caring for my DH for the last 13+ years with FTD. Hospices is on board and I have help from the VA. I am so grateful. My DH is beginning not to be able to walk even with assistance and is starting not to stand from bed to wheelchair. So staying in bed is becoming a reality for him. I am able to get him out of…
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A New Level of Loneliness
I see that I had a post last year about the loneliness of living with a spouse with AL. Of course, the disease has progressed. I'm guessing that he is more stage 4 than 3. Really, who can tell for sure. We have a daughter who is not currently speaking to us as she works through some things. Exactly what things, she did not…
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Alzheimer's Research at NIH
RFK Jr.: "We should have the cure for Alzheimer’s today. We don’t have it PURELY because of corruption at NIH. And we are going to have it quickly." He said that the scientists at the NIH focused on a single hypothesis and discounted multiple other hypotheses due to corruption. The NIH will now focus on finding a cure. I…
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How do you find help
I am new here. My mother was dx Alzheimers/Dementia. I believe it is early stages, but we do not know yet. We have a more in depth eval on 5/20 w Loma Linda in Cali. My question is, how do we get help? I was told by her insurance to just call around and talk w/ nursing homes to see if they will accept her and if they offer…
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FTD then reassessed with Alzheimer's disease
DW was diagnosed with logopenic variant of Primary Progressive Aphasia in March 2022. In August 2024, it was recommend to have an amyloid PET Scan. The PET Scan showed and confirmed that Alzheimer's disease was causing the aphasia not frontotemporal lobe degeneration. I've seen it referred to as atypical Alzheimer’s. Also,…
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Finances
Am encountering extreme difficulty removing my wife, diagnosed 3 years ago with Alzheimer’s, from financial access without being accused as controlling or treating her like a child.
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Three Month Ramblings
Tomorrow will mark month 3 since my DW's passing. I've spent those three months traveling and riding on the rush of gratitude I've felt about having ever met her and my relief at not watching my DW suffer every minute of the day. I'm glad to have those feelings still. But, I've also realized that with each bit of business…
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Peeing pants.
Hello. I feel like I’m drowning. My husband was diagnosed 1/22 with Alzheimer’s. I feel like he is late 5 stage or going into 6. He has peed his pants 2 times now. Does this mean he’s incontinent? Today I tried to get him to put on men’s depends. He refused to put them on. How do I get him to wear them? I’ve been touring…
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Activities for care receiver
I am new to the forum. I'm looking to find activities my wife can do. She really enjoyed reading both with physical books and articles on the web. The books have become hard to find she can enjoy, let alone follow. The computer has become too complicated for her to work of her. Any Ideas?
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Coming to peace with Hospice
Last months I posted about ESBL and Hospice. I wrestled for quite awhile about deciding to place my DH on hospice. Many things became clear to me which made the decision more manageable for me. I struggled mightily with the thought I would be killing my husband if I didn’t continue to chase any and all treatments. I…
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New behavior.. looking for dinner
Past few weeks DH has been coming into the kitchen every 10 minutes as I am cooking dinner to see if it was ready! He always has an excuse.. I want to see what you are doing. Wanted to tell you I’m going to the bathroom I want to get a drink ( he has one already) . I know he is looking for his food. So I prepare his give…
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A Full Moon Effect?
Friday and Saturday, my PWD was agitated, anxious, and a lot more verbally confrontational than usual. Today everything seemed OK again—or at least back to our current baseline. This behavior coincided with the full moon, and I am wondering whether you see such an effect in your LO. A quick search of the web turns up…
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Loss of driving privileges
My DH was advised by his PCP not to drive. When he objected, he was referred to a rehab clinic for a driving evaluation by an occupational therapist who subsequently agreed with his doctor's assessment. Since he has anosognosia he does not remember any of this, and is convinced that I won't let him drive the car. Whenever…
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April 30 FDA approved
FDA Approves First Non-Antipsychotic Drug to Treat Agitation Associated with Dementia
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Tips for Sundowning
I see many posts about sundowning but not tips to prevent the behaviors associated with it. I saw this today and thought it might help someone.
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MC and the ER
Here we go again. I visited mom this morning and was there when her palliative care nurse came to make a monthly assessment. The nurse noted that mom was pretty drowsy. This was early in the day, which is normally her most alert and interactive time of day. I told the nurse that I have noticed this extra sleepiness ever…