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Dog…how should I tell DH
Our dog of 13 years is struggling and I believe it is time to let him go. DH loves this dog. Should I tell him that he fell asleep and didn’t wake up or tell him the dog is in rehab to help him walk? Has anyone had experience with this they can share? Thank you
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Mom in and out of delirium in hospital
I'm feeling very lost and confused on how best to help my mom, who lived independently and has recently had two falls that she doesn't remember. (Early in the morning, either disoriented or sleepwalking.) The latest resulted in her fracturing her pelvis. At first, we did our best to care for her at home with home health…
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Sedation for MRI?
DH had brain MRIs and is now totally against another. He said he won’t do “the coffin “ …But he may have NPH and neurosurgeon needs MRI of spine. The possibility of him getting back walking ability etc by draining some excess spinal fluid with a brain shunt is all new to me but that hope makes me think it’s worth trying to…
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Mom sang to me 🤗
Hello Alzconnect Family. Today's visit was nice, Momma sang to me. Sometimes visits are nice. I kissed prayed and hugged her. God bless. ✌️
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Broke my heart
My DH has done nothing for 2 years,besides watch TV and feed the birds and squirrels. Here in the last 2 weeks he has been cleaning out his man cave( which was disaster d/t I'm not to move or touch anything). He hoarded box's? Today I ask him what was going on with the cleaning? He said 'I'm aware of my mortality and I…
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Leqembi Concerns
I have read the posts on "The Problem with Leqembi" and recognize that it's no silver bullet. However, my DH with ES read in the newspaper about its FDA approval and wants to try it. He asked me to make an appointment with his neurologist next week. Background: DH is 84 this month. He was first evaluated in 2018 and…
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new pcp
Took MIL to her new-ish PCP yesterday. Definitely going to look for someone else. This was her second time with this one, as her usual one that we liked left the practice, and now we know for sure this new one doesn't have experience with a PWD. What PCP said: 'you know you need to bathe, change clothing and underwear…
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NPH Discussion Group
I am interested in Normal Pressure Hydrocephalus (NPH) for my DW. Searching these message boards turns up a lot of useful information, often referring to a Yahoo Group on the topic. Yahoo shutdown their groups in 2020. Does anyone know of a similar discussion group that is currently active? Thanks
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Finally made an appointment with CELA - any advice?
Soooo…with my mom safely placed in MC, and DPOA, etc. done, I have finally made an appointment with a CELA. I am so clueless: what should I ask? Obviously will ask about financial planning and services. What else? It is really just an intake interview but a big first step for me. I have been thankful we have made finances…
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Care.com settles with the FTC over misleading claims
Good to know. Care.com misled caregivers and families — and made it 'impossible' to cancel, the FTC claims
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Is this sundowning
My Dh has been increasingly waking up after a couple hours sleep getting dressed and going outside. He doesn't go anywhere just thinks it's really early in the morning. Last night I got to him before he went out. Should I think about getting a alarm or lock? To be honest I don't know what I'm suppose to be doing. Don't…
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She is the Love of My Life, will she come back for a moment?
My DW, first showed signs of mild cog impairment during covid, July of 2020. Sill very mild what everyone thought was stress related. Then in 2/2022 we both were infected with a severe. Case of covid with brain fog, that I have been able to recover from. Not so luck has been my DW, although I have made many efforts since…
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Memory care in New Jersey
Hi all, my uncle (who raised me and is practically my father) was recently diagnosed with dementia. I live in NYC and he lives in Virginia, I’m hoping to move him to a memory care facility in New Jersey in a few months. Are there any memory care facilities in NJ that people can recommend? Thanks so much!
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Sundowning
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Without love where would you be now?
my DH Lonny passed August 12. My son came to visit and we went to dinner. After dinner a band started playing. I said to my daughter “I wonder if they know the song “Long Train Running” by the Doobie Brothers. It was “our song” that we danced to many times in the 1970’s. The next song they played was our song. 😭💔 Grief is…
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Will a distinct dementia diagnosis make a difference?
My mother is 88 years old and has been demonstrating mental decline for many years. She lives with my Stepfather who has been doing the heavy lifting almost exclusively for the years of this decline. 8 months ago, they asked to move closer to me because they knew they'd need more help as time progressed and they wanted to…
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How to pay for AL
Mom was diagnosed with vascular dementia 1 and a half years ago. She has been in AL about 6 months. She has enough money now to pay for 1 more year. We have been to the lawyer and I have DPOA, she made a will, a living will, a medical POA and a ladybird deed (at her death the house goes to my brother and I and there can be…
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Any suggestions for a toothpaste that is safe to swallow?
And preferably does NOT foam. How do you manage oral care for someone that is unable to rinse and spit? My primary concern is keep her mouth sufficiently clean to avoid excess bacteria and minimize the risk of infection. Thanks everybody!
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Here we go again -Sorry this is long
There's nothing like a toxic family to make caregiving unbearable. I spent 7 years caregiving for two elderly family members with dementia. I have two siblings that questioned absolutely EVERYTHING and would not listen to me even though I was the one doing the actual work. I spent as much time explaining and defending…
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Anyone use revastagmine?
My DH was taken off donepizel a few months ago and put on revastagmine because he also takes escitolopram. Apparently there is some concern about an interaction with donepizil. I am not a doctor so I am not sure what the story is. Just wondering if anyone else is going through this.
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@ M1
You have often mentioned that sleep fragmentation is a part of AD. As you may know, I don't have AD, but a diagnosis of cognitive impairment nos. Lately, I have been having worsening sleep fragmentation. I may sleep for one to three hours, or not at all during the night. Yet around 6 am, I will fall asleep for another five…
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Afraid to use the toilet
Hello, fellow travelers. Today was day 17 of DH’s hospital stay, and I am weary to the bone. I am spending 10-11 hours there a day because he is so lost. Yesterday and today, a new issue popped up: he is afraid to use the toilet. He will use it successfully all morning, fall asleep, then wake up afraid to use it. We make…
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Honeymoon period after move to ALF?
It’s been 3 weeks since my mom moved into an ALF. After a couple of nasty days , she seems to have accepted the routine and is very different. While at home with me she would just stay in her room calling her friend, she wouldn’t get up till mid afternoon , wouldn’t come down for meals, was basically becoming a mushroom.…
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Feeling Guilty/Stressed
Hi Everyone - first time here. My father had a stroke last March and was diagnosed with Alzheimer's/Dementia....he is around Stage 4-5. I am an only child and we had to move him in with my family....Husband and 2 kids (13 and 11). It's been a little over a year and it's really taking a toll on me. My job is being really…
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Support for the spouses or partners of dementia caregivers!
:/ Is there any information on support groups for the spouses or partners or the caregivers or info on what it can do to a relationship or marriage? Any information is greatly appreciated!
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ER again
My dad fell again yesterday. It's the 3rd fall in 2 weeks. He scraped his hand pretty badly and paramedics took him to the ER when his BP was over 200/100. Hospice nurse says he's going to end up bed bound if he keeps getting up from his wheelchair and falls. Mom has been encouraging him to keep walking as much as…
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Air Tag
My DW has been showing signs of memory loss for 3+ years and continues to decline. We were gifted air tags last Christmas so I set them up and placed one in her purse (she does not carry a phone and would not know what to do with it), and included children in the connections. This last Sunday afternoon we took our usual…
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My DW changes moods
Every week I take my DW to a local "equine therapy" farm because of her love of horses. When we arrive, she often grumbles that "I'm not getting out of the car!" or "I don't feel good. I'm going to stay right here!" And so I reply by saying, "Okay, we'll sit here for a while." Yesterday when the same worker we see every…
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He is like my shadow
God love my bf (eoa age 45) but what is with the following me around like a puppy? I was cleaning around the house and every time I turned around he was right there. I went to shake out a rug and he was right behind me. He is so light footed I didn't hear him. I got upset and told him I'm not going anywhere I just need…
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MedicAlert bracelet or something else?
MedicAlert Foundation sells bracelets and monitoring. Family notification is included at the $55/year level and for $75 they will "work with local authorities to get them home." Alternatively I can just buy a similar bracelet on Amazon and have my cell number engraved and skip the monitoring. Does anyone have opinions on…