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Discussion List
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Undiagnosed Gram - In need of 24hr care & I need to get back to my life
I love my gram more than anything!! However, I’m facing a difficult situation where she can no longer be left alone but I also need to get back to my life which is 1hr away. I have a business I run with my husband, two teens, and two huskies. I cannot be gone long. I live 1hr away as does my father. He will have POA once…
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How to convince a loved one to move into an assisted living facility
hello. I am a caregiver for my father. He currently lives alone. I live very close to him. His Alzheimer’s has progressed and I’m concerned about him living alone. I’ve had some things in place the last few years that have allowed him to remain home but his behaviors, especially late in the day, are concerning me. The…
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How did you know it was time for memory care from assisted living?
My mom moved into assisted living this past January. She has progressively declined since then but loves her new apartment and seems cheerful and happy when we visit and talk (which is multiple times a week between my sisters and myself). However, she has lost the cognitive skill to engage with the activities. She…
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Aricept Medication
My mom with Alzheimer's was prescribed Aricept 5mg. She was doing fine on that. She is progressing more as expected, so nuero upped it to 10 mg. She said to look out for side effects like stomach issues and dizziness. She hasn't had any of those. What I did notice was it seems she has progressed even more in a short time.…
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Starting LEQEMBI next week need some advice
Just was diagnosd 4 weeks ago and start my Leqembi next weeek ….I hate needles and I would like some information on what to expect…Thank you so much.. I have had 2 TIA's and am a little worried about this whole Leqembi thing. Is the first time really bad or is it doable? thank you so much for this web site I had no idea…
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Alarmed!
This just happened! In referring to my husband, my mom said, "The man who ate dinner with us," was the one who gave her the 2 boxes of pictures. I said, "Who, my husband (——)?" She laughed and said, "Yes, I couldn't remember his name." Omg! I've been married for 35 years and have known my hubby for 38 years. HE is the one…
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Seeing my mom out smiling with my sister
I am so greatful my sister can come when she can!! She just sent myself and my dad a picture of the two of the smiling at quabbin Reservoir where my mom loves. I got so emotional seeing this picture and I am crying!! I feel guilty for not being there yet relieved my sister is and I am not at the same time. Help! How do I…
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Visual cues for Memory Loss
Has anyone had experience with their PWD recalling a lost memory with their own hand writing ? I was thinking of having my Dad write things down while he still has the ability to. Things like instructions of his requests. How he wants his money spent…his living situation…etc. My hope is if I incorporate using it now, and…
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Virginia Housing Help
Hi! I’m wondering if there’s any help to attain housing in VA for my mother. She lives in Puerto Rico but there’s no family to care for her there. I live in VA- but is unorthodox living. I need to get her near me in VA. I have been dealing with the federal courts for almost 8 years trying to clear my name from a vindictive…
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Telling children
husband newly diagnosed with MCI and subsequent MRI found atrophy in areas of brain associated with Alzheimer’s. I’m wondering when I should tell our adult children? Husband still functions independently and I think they will be surprised.
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Days are getting tougher
Over the last week or so my DW who consistently identified me as her father is now thinking I am her grandfather as well. When her grandfather leaves, I automatically become her father again. Whatever she thinks I am I just go along with it as best as I can. It becomes especially hard when I have things to do and she wants…
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Vision in left eye
We had noticed that my FIL was having issues with what seemed to be his vision, squinting, rubbing his left eye and then Saturday evening we were watching tv and my husband said he was sitting there with his left eye closed. He had a scheduled eye appointment at the VA yesterday and apparently he has Ischemic Optic…
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Need to say no
I asked this in another discussion but came here due to the recent loss of my husband just a month ago. I am frozen right now with grief and am not ready to socialize. A cousin asked me to lunch tomorrow (we are not that close), as he is passing thru my area, and I said yes, but now I really don't want to go. And my…
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93 yo Mom that has Late Stage Dementia ALZ I am at Caregiver Burnout Stage
I have a 93 year to be Mom that is in the middle late stages of ALZ Dementia I have two businesses that I cannot run and must fulfill my broadcast schedule on the road broadcasting high school games. I have no to little help and neighbors and friends ask but advise or critique me on how to care for my mom but not lending a…
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How or if to tell my parents they are moving to memory care
I am about to move my parents into memory care in a few weeks. They are both 95 with stage 4/5 dementia. They have been living in assisted living for the past 4 years so the move would just be across the courtyard to a more secure facility with more support. My question for this group is when, how, or if to tell them they…
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In-person group for those with Alzheimer's
My wife is in the mild stages, and is having a hard time talking with others in her situation. Since her reading and writing skills are affected, an online forum is not working. Any suggestions of groups for those who have the disease?
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Puppy Care
just to lighten everyone’s load I thought I’d share the healing power of pets. DH had a fall on the grass a couple of weeks ago the outcome was three broken ribs and a day or two of pain. I called the ambulance DH, Milo our Schnoodle and myself had a limousine ride to the hospital. A day spent doing scans, ultrasounds, MRI…
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Advice needed to get Mom to agree to medicine management
Tomorrow we are meeting with the nurses at my Mom's AL facility to transition her medication management. Up until now my Mom has managed it herself but has been missing or mixing up doses from her pill box. She is very angry that this is taking place as "she can do it fine by herself". Any words of wisdom to get us over…
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Looking for programs to deal with violent dementia issue.
My mother and father live outside Texas, my mother is talking about moving here with my father who has moderate to severe dementia. He has become increasingly irritable and violent, striking my mother repeatedly in the head, the last event causing a concussion and lacerations. I frankly do not know what to do about this…
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Husband hit 89 year old wife
My mother is caring for her husband (both 89) who has been diagnosed with Alzheimer's. Tonight he hit her twice in the face in their home when he become frustrated with something that she was doing (no excuse). To the best of my knowledge this has never happened before. I am interested in any advice or guidance on how we…
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Doctors visit gone wrong
Sorry for the long post. My DH is in year 5 of official diagnosis of vascular/FTD dementia. We have a wonderful doctor we see every 6 months. Or more if needed. In March he took what I call a hard dip and we went in for his 6 months appointment . A few medicine changes started taking place that seemed to make things worse.…
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Kisunla Infusions
Hi everyone. I’m new here. My wife and I are trying to get my mother in law moved from LA out to PHX but it seems impossible to re-establish care in a new state while trying to create as smooth of a transition as possible. Hoping to get her started on Kisunla asap but insurance just denied it and now it feels like we are…
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Making the move from AL to MC
My mom is currently in AL but we have found that she has been wandering outside on her own, so we need to increase her supervision, therefore putting her in MC is the only option. Just wondering from others experience, how long should the transition take? She is in amazing physical health but currently has mid-stage…
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How to manage putting a pet down
Over the past several months our beloved cat’s nasal tumor has grown larger and her quality of life and weight have deteriorated. DW is middle-stage dementia and can’t seem to remember our discussions of when to let the cat go. Last week we agreed that it was time and scheduled it with the vet for tomorrow. We’ve talked…
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What to expect at the end
If talk of death/dying upsets you, please skip. My husband died last night. Thanks to hospice, he was able to take his final breath in a hospital bed in our living room. As a hospital nurse for 20+ years, I witnessed many deaths. While each situation is unique, my husband's passing followed a fairly predictable course.…
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Post ended
post done
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DW Doesn’t recognize me
My DW (65) has been battling Alzheimer’s for the past 8 years and is now in early Stage 7. I have been her primary caregiver throughout this journey, although earlier this year I hired a caregiver who comes four days a week during the daytime to help. Over the past several months, my wife has continued to decline. Most…
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Hubby in MC taking him to doctor first time out
hubby has been in memory care 7 months. The facility said they would take him to doctors appointment with aide and I’d meet them there. Now I find out they cannot do it so I’ll be taking him. It’s his first time out in 7 months. Trying to think what I can give him for the ride in car to distract him. The ride is about a…
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Preparing for the inevitable future.
My darling bride just turned 60 and has had a diagnosis for two years. Looking back she probably had symptoms in the past up to 5 years ago. We're still doing very well at home, and were able to do a lot of things, but I need to start preparing for the eventual time when she needs more help. My question is about what I…
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Who are we really?
We are partners, nurses, thinkers, rememberers, caretakers and captain of a ship we are trying desperately to keep from sinking. We think less of ourselves and more of who we care for. We are the lonely, the lost and often the forgotten. We are what none of us thought we would be. On the flip side of all that, we are…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
Looking for information and support for Alzheimer's disease or other dementias? Click here to view our Dementia Resources
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