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The total silence, the reproachful stare because I can't figure out what will entertain him, the complete lack of awareness of the state of the world, his family, me. Someone on this site said, wisely, we can't make them happy, only make them safe. But what do we do with our days while they sit and wait for us to make a…

Ok, just going to be straight-forward here. I've made the decision to get out and date again, find that special someone I can be with moving forward with. I'm exhausted caring my LO who's essentially a 6 yr. old at this point. I'm still in my mid-50s and don't want to continue on this way without a mate whom I can really…

I’m really struggling with communication and would appreciate any advice. My partner was diagnosed with severe dementia and has continued to decline. They now refuse to visit any doctors, and I am the sole caregiver. Most of the time, it’s very difficult to understand what he's saying. At the same time, he often tells me…

I recently received an email from one of my sister's friends who is feeling guilty about not contacting me before my sister was diagnosed with FTD and early onset Alzheimer's. Here's a portion of her email: I asked her to share your phone number with me but it was an odd request and she looked at me like she didn't…

My LO is 64 with a diagnosis of EOAD. He is progressing faster than anticipated. Everyone is saying 'travel / do things / take them places'. But what I have discovered is there is a huge price to pay. Halfway through the 'experience' I see him start declining mentally. I can see it in his eyes and the disorientation…

Edit- I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. drs have classified as severe dementia and highly recd she not live alone. They state there is nothing we can do other than wait for a crisis here (Kaiser-California). Mom will not…

Hi. I am new here. My mom who is considered to have Stage 4 Mild Alzheimer's diagnosed about a year ago. She does not believe she has this disease. They told her to not drive and she could take the test through DMV to see if she could continue. We didn't do it at the time. Now a year later she is pushing to drive but I…

My dad has Alzheimer's & can no longer drive. He wound up purchasing a car that he cannot drive when we were navigating his illness last year. (Note: Due to his 3-5 min memory the attorney general is currently investigating that purchase). He forgets that he cannot drive and has made his way to another dealership and…

My name is Dana, and my husband is in the process of his diagnosis, although we are pretty sure it’s early onset Alzheimer’s as that is an issue on his father’s side of the family. He is upset with a family member right now, unfairly, but there is no way to reason with him. My question is, do any of you have suggestions…

It's been a lifelong problem, prepping. A recent move necessitated giving away an entire cellar of goods she had bought, saved for the future. Now at the beginning of our Alzheimer's journey, we're in two rooms. Today I saw her list, we don't need to prep. When I brought it up it became that I wasn't going to control money…

My DH is participating in an annual memory evaluation study through the Alzheimer's Disease Research Center (ADRC). After a thorough evaluation, the team diagnosed him with Alzheimer's and had several useful recommendations about diet, exercise, etc. They also highly recommended that my DH stop taking Lorazepam and start…

My mom was diagnosed with Alzheimer’s two years ago. Recently, we have observed some extreme changes in behavior with delusions, anger and agitation. Since her Dr consulted AI for medication suggestions, I thought I would check here. Her doctor prescribed Rexaulti but we are having some issues getting Medicare to cover it.…

Hello, I am a single man in his late 40s who is caring for his mom with dementia. My mom is now bed-bound and I need help to assist with her. I've had different home health agencies over the years and I live in a very pricey area. We're not moving, not feasible nor can we afford it. So, I'm stuck with what I can get as far…

I saw this on a podcast and thought it would be helpful to so many. The book is available on Amazon or the link below is for the Youtube videos https://www.youtube.com/c/dementiawithgrace

I wrote a couple of weeks ago that my DH in MC is having a lot of what I guess is anxiety and agitation. He is constantly in motion. The nurse and aides told me yesterday that he wanders the halls all night going in and out of other residents rooms. He has trouble sitting still in one place for very long. Now he had gotten…

For Immediate Release: April 30, 2026 https://www.fda.gov/news-events/press-announcements/fda-approves-first-non-antipsychotic-drug-treat-agitation-associated-dementia The U.S. Food and Drug Administration today approved an expanded use for Auvelity (dextromethorphan hydrobromide and bupropion hydrochloride)…

I would love to see how many of us has 'horrible' years leading up to the unveiling of the diagnosis. The two years prior were full of arguments / fights / resentment. I look back and I cringe now that I can associate all of those times to his EOAD symptoms. I wonder how many marriages crumbled before diagnosis and the LO…

Hi All, I’m 59 and my DH is 63. He has just been diagnosed with Alzheimer’s/Dementia. He is moderate to severe. I knew something was wrong and tried to get him to seek help earlier, but he refused. He isn’t accepting the diagnosis, he just says he’s going to die. We have been married for 31 years and have had a wonderful…

This is not specific to dementia, but if your LO falls and you can't lift the patient, you can request "lift assist" in some towns, which will avoid dispatching a full set of vehicles with sirens (or even a police car) to provide medical assistance. It may take a bit longer since it a non-emergency. I have not requested…

My mother has dementia. Her brother died recently (he had Alzheimer's and died of natural causes). My mom is confused and upset by his death and has been believing her brother committed suicide (which is absolutely not true). We are comforting her but does anyone have advice for disabusing her of the suicide notion.

went to the neurologist today finally! Mom scored 19 out of 30 on the memory test. 6 months ago she was 21 out of 30. Is that fast decline? Dr mentioned possibly doing an exelon patch. Anyone have any experience with this?

Registration is now open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top Alzheimer's & Dementia experts about the latest research/news. There are three key sessions: - AAIC 2026 General Conference Highlights - AAIC 2026 in…

I have PoA (financial and medical) for my LO with dementia. Other family members and I have a difference of opinion on where my LO should live. I’m just trying to honor my LO’s wishes as long as it’s feasible. I received communications from these family members that make me think they are gearing up to challenge my…

My mother was diagnosed about 2 years ago, and she's steadily declining. She has haunting memories come every week or so of when my father had an affair over 20 years ago. They got back together and had a whole life after the affair, but she is reliving the experience of when she first found out about it all those years…

Last night sweetie and I were having a relaxed conversation about life, the world and past memories. For some reason the recent events in several foreign countries came up. I asked him a couple of questions about several countries that had been prominent in all the news for the past few weeks. Some of the information we…

Hi, What to do when credit union won't allow me to use the POA? I haven't contacted the atty who drafted it yet, full, durable $$ and medical/general POAs. So far my PWD can still come with me or talk to reps on phone but that could change anytime. USA SSA won't accept either- wondering what other agencies don't and how…

I moved in with my Mom a year ago and have been taking care of the finances and keeping things going. Mom is 82 and her Dr. diagnosed her with Alzheimer's. She won't talk about it and is now refusing to see the Dr. because he won't listen to her. I think she is fine 90% of the time but is now forgetting the names of family…

In addition to the donezpril and memantine, has anyone added any cbd products for sleep and or calming? I would also like to recommend the digital publication " What About Me" that I found on womanandwell.com for wives dealing with husbands with dementia, but would also pertain to husbands with wives living with dementia.

This is just an observation and a feeling, but since my DH passed 4 months ago, I have heard from at least five people, all women, some of whom I know quite well, telling me their husbands are having cognitive issues or have dementia. It’s very unnerving and seems like it’s becoming all too common. What is going on? It’s…

Hi My mom has a diagnosis of Alzheimer's (early stage but noticeably progressing), my dad, while he doesn't have a formal diagnosis, has some form of dementia. They live together in their home. My mom has anosognosia, thus denying anything is wrong with her. It took us 2 years to get her a diagnosis and she refuses to take…