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Honor those who passed away from Alzheimer's
I want to tell my mother's story about the 12 years she suffered with Alzheimer's. I am in a legal battle with family who all turned their backs on my mother when she needed them the most, all they care about is the inheritance. My mother and I made an verbal agreement 13 years ago that if I moved in to care for her till…
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Cruises for PWD and caregivers
I don’t know if this link will work - the article is from the Washington Post travel section 12-1-24. I no longer have a subscription so I can’t share it.
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Lack of comprehension
My DH is Stage 6 Alz and under Hospice care. I am currently at 10 years on our journey with this disease and certainly there have been challenges but for the most part I feel I have handled it fairly well. For awhile now I have not been able to understand what he is saying. However the last week or so my DH no longer seems…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…
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hallucinations
:(
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The angry phone calls but good news
Well despite the angry phone calls I get from Dad each night, 9 pm sharp, the staff assures me he is going to activities, and classes, is social and friendly. Those phone calls are so hard. Anyone else have a coping strategy for the anger? I moved him from his home he misses his garage, lawn mower etc.
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Behavioral issues
Hi, I am new here and really need some advise. I am taking care of my 83 year old father with middle stage Alzheimer's. I actually live with him. He obsesses over everything, anxious, won't leave my side (hates being alone), paces, etc. He also thinks most of the time that I am his dead wife instead of his daughter. He is…
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Father's Illness Holding 23 Year Old Son Back; Need Advice
I am the caregiver for my DH with Alz. Our oldest son works from home and has moved in with us in the country (rural area) to help financially and practically. He is 34. Our youngest son (23) lives with our daughter (33) in the city and they both visit frequently. She visits every other week for 4 days & our youngest (23)…
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hallucinations
My wife just started to have hallucinations and keeps me awake in bed. Any suggestions
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Love & go on...
A friend posted this on Facebook and I thought it might help someone who lost a loved one this year. I'm having a hard time this year. Love & hugs to you all. 🙏💜
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Making my list, checking it twice
Ok, I should probably be thinking kinder thoughts, but I am starting to get mad. It’s been eight and a half weeks since DH died. The first four or five were pretty busy — memorial service to plan, pension and bank and finances to deal with, etc. Now that all of that has settled a bit, it is deathly quiet. Nobody seems to…
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One day and the arguing has already begun
So Mom died yesterday. I told my siblings I was inviting my step siblings over to select anything and everything they wanted from mom’s apartment in assisted living. After all it was my step-dad’s too until he died in February. The will says everything is divided six ways. I was mom’s POA and I’m the executor of the will.…
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Want to get this off of my chest
Hi y’all. I haven’t been reading or writing lately. May everyone find mercy ,under standing, acceptance and peace on your journey. My wife and I are not doing well on ours. She is in stage seven now. Stuck in bed or a Jerry chair not eating mumbling and looking like she is miserable. I cry every time I see her and get very…
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Expected taxes from SSDI (disability) income??
Hello, My husband is 56, diagnosed with EO Alzheimer's in November of '23 (at age 55), but showed obvious signs of decline beginning at about age 52-53. I'm so relieved that he was approved for SSDI in October (5 months after applying) and we will receive his first disability check this month. It will come RIGHT as his…
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Caregiver daily log with timestamps, for a caregiver agreement
Would anyone happen to have an example of a daily care log they keep? Tasks completed daily with times. I was told to keep records of everything I am doing and the times they were done. I am looking for an easy way to keep track of this. Any pictures of examples would be great.
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Advice request
Hi everyone - this is my first visit to this board. I seem to recognize more names here than I do on the spouse board. It's nice to see all your familiar names. I'm having a problem that all of you would be best to ask for advice. DH is getting closer to finally moving on. It could be weeks, it could be months. Maybe even…
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Elder Lawyer/Planning
Hello all I'm sure this has been discussed at some point, so I apologize if this is repetitive. Having the input of this community would be greatly helpful. My father is in the ES Dementia. My mother is completely overwhelmed and (as an only child) I'm doing my best to navigate this for her and take as much as I can off…
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My parent with dementia's Exboyfriend
My parent with dementia was living out of state and in a relationship with a man who as it turned out hid or did not reveal her dementia symptoms to family supposedly out of reapect for her privacy. I knew for the past two years that she had dementia due to observing her symptoms but she was not receptive to my concerns. I…
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Ambiguous Grief
Bill recently used the term "ambiguous grief," and I didn't know what it meant. Here's what some Googling turned up: …search results for the meaning and symptoms of dementia and caregivers' ambiguous grief. Ambiguous Grief in Dementia Caregiving: Physical Presence, Psychological Absence: Dementia causes a gradual loss of…
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New to the Group Dreading the Holidays
The holidays are hitting hard this year. In the last couple of weeks my mom has gotten noticeably more anxious which coincides with her not recognizing members of our immediate family. Thanksgiving was very difficult this year. She’s still physically doing pretty well it just breaks my heart to see her so upset and the…
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Length between appointments
My mom is in the back end of the moderate stage. Since she's been seeing her neurologist (maybe 3 years), the length between appointments is 6 months. Is this typical/normal? Thanks. Hugs to you all.
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A little humor
Maybe the last quip from MIL. She is in the “active dying” stage, mostly unresponsive. After spending a few hours with her this morning, I woke her up to tell her I was going home, I’d see her tomorrow, and I loved her. Although her speech is now hard to untangle, I swear she said “it was nice seeing you”.
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The last mile
I though I was ready for MIL to finish her journey but this is so hard. She’s dying of breast cancer which we chose not to treat. Hospice started morphine a few days ago. I never ever thought I would say this, but thank god for her dementia - she isn’t suffering and has no idea what’s happening to her. Although on some…
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My young dad is gone but still here
My father is 65 and in the late stages of Alzheimer’s. I just got guardianship and conservatorship of him after discovering his wife could not care for him properly. I just got him into an assisted living facility with memory care, but after only two weeks they can’t handle his behaviors and we are seeking for a new…
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Feeling sad - Missing our mom while she is still with us
We are lucky. After a number of hair raising, exhausting, heartbreaking years we finally got our mother into a safe situation. (for the moment) But now I am really missing her. I think of things I want to tell her and that she would have enjoyed talking about a few years ago and of course she can't. When she goes, I am…
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Need some word tracks
My Mom has been in MC for about 5 weeks. She’s not happy to be there but is slowly settling in. I live 6 hours away so most of my interactions with her are over the phone. I struggle with coming up with good answers to the same questions she asks me over and over again. “How long do I have to be here”? “Who do I talk to…
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How long did your loved ones stay in stage 5, 6, and 7?
I’ve read Tam Cummings staging and estimated duration of each. I’m curious as to everyone’s experience here on the time your LO’s spent in each of these stages? My DH went through 3 and 4 fast (just over a year) and is a solid 5 now with a couple of cognitive areas in 6. Do most make it to 7? I can handle a lot but am…
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New to the group
Hi to all of you. I just stumbled onto this site. I don't know if it's normal to have a dramatic turn in abilities or memory or if it comes and goes quickly? My FIL started down this road last December. He has bouts of not knowing how old he is. He's 77 and he thinks he is 20 then 30 then 50. He has always worked right up…
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Estate Planning for Long Term Care
I was on Colorado Medicaid for Seniors website and found some interesting information. They mentioned working with a Medicaid Planning Professional if you are over-income and/or over-asset. Have you ever done this or used Eldercare Resource Planning (a company they connected me to}?
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Bible Verse to Lift You Up 12/1/24
GOD IS WITH YOU AND ME Psalm 139:16-18 New International Version “Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be. 17 How precious to me are your thoughts, God! How vast is the sum of them! 18 Were I to count them, they would outnumber the grains of sand—…