Welcome to ALZConnected! You are not alone.

I write this while recognizing that so many of you are deep into the brutal journey of caregiving. I hope it does not feel like some lecture. It's the experience I had and I felt like it might help someone if I shared. Early on in this awful journey, I was so blinded by my wife's and my own pain while I was caregiving that…

Anyone else receiving a message from angelica.lopez asking to participate in a survey. These days one never knows if these things are legit, so I am very cautious.

My DH and I went on a long weekend away. It was a great time. We flew to FL, enjoyed a weekend of beautiful weather, and shared some much needed time with our daughter, SIL, and grandkids (who met us there). I tell you this because I learned about a sanity saving option when booking our airline tickets. I was able to…

Today was a good day. When I was helping my DW get ready for bed she looked at me and said, "I love you". It came out of nowhere. She has rarely made comments about affection. I was taken aback but replied, "I love you too". I got her ready for bed while I was tearing up inside.😥 I so hate this disease!

I was persuaded to send my DH with mixed dementia to memory care. He is very hard to care for and fights anyone who tries to help him. It often takes two people to change him because he won't cooperate. I miss him. I don't miss the work. I have no idea what is next for me. I have literally spent the last three years…

My DW went to bed last night thinking I had left for the night and recogonized me as her dead father. She got up this AM and still thinking I am her father and very agitated as to why her husband isn't here and why didn't he leave a note as to where he went. She started telling me everything her and her husband did for the…

https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/dad2.70335?_kx=rCfb5sit_NnAVBLAbNJ68uR9qR_JlesaqwOu8pHjuwHCxVmtCqHjhR6RN-utNZRh.UJRVZS

Hello, I'm new here. Part time care giver for my mom, my best friend. I feel so alone in my grief. I know I'm not but this has been the hardest thing I've ever gone through and it almost feels like no one around me even notices. I feel like my family (dad & brother) and I are so isolated. No one ever really checks in on…

I live far from my sister. I was requested by her friend to check in on her and was surprised at her decline. We immediately put her into assisted living. She was living in an apartment by herself. When we arrived, she was open to visiting assisted living facilities, but I believe she thought it would be a year away or…

Mom is in a nursing home. Her former roommate called the facility and would like to take her out to lunch. The facility told her I need to approve this and they called me and gave me the woman’s phone number (they can’t legally give out mine). I haven’t called her yet. I met her, but have only talked with her briefly while…

I saw this morning a post from someone regarding how their house is now messy due to spouse having dementia. I completely understand. My DH not only has VD, but is also a bilateral above the knee amputee. So that is a totally different issue. He has a motorized wheelchair and he has struggled with maneuvering it.…

After many years of caregiving for my very ill and late husband and my dear aunt with ALZ in a facility, at age 74 I remarried a wonderful man two years ago. We are very happy together and had an ideal life. Until I had to take in my 72-year-old sister with dementia. We had to move her from an RV in Alabama where she was…

Are any of you dealing with the struggles of clothing with your LO? When my mom moved to AL near me 3 years ago, she got rid of most of what was in her closet. Not sure why, maybe fit? She constantly tells me she needs to go shopping to buy clothes and she is correct, so my daughters and I have taken her several times. She…

My DH has had 2 infusions. He is due this week for his first follow-up MRI. With both infusions he had a mild headache following the treatment. The side effects include headache, but Aria also includes headache along with other symptoms. Should I be worried, he may have ARIA or is a headache not that unusual.

Hi all! I've been struggling lately with taking care of my father who has stage 5 Alzheimer's and vascular dementia. I've been his primary caregiver for the past 3 years. It's taking a toll on me that he is not remembering me recently. We were very close prior to the Alzheimer's diagnosis. Looking for advice on how to…

DH is under hospice care, is bed bound, and I have been told he likely won’t last the summer. He asks me, “ what’s wrong with me.?… when can we leave?…why are we here?”…. I have not said “ You are dying”. I have mentioned Alzheimer’s is a difficult disease, that it is affecting how you feel…but he doesn’t remember or know…

i have just read a book on kindle which is written by a caregiver concerning her journey with her DH. Very informative and a bit of lighthearted humor at times. I enjoyed reading it and find it will be especially helpful to a new caregiver. Wish I was able to read it a few years ago. its called “Coping when your loved one…

does anyone have any iv infusion experiences?

So this is just a vent but probably one many can relate to. It’s not enough that you have to watch your LO whither away piece by piece and be hyper vigilant 24hrs a day with care and feeding but in my case I also get to watch the house we spent 36 years making into a beautiful home become a wreck. I’ve had to move a lot of…

Good morning. I joined this discussion board over five years ago. Y'all have been with me as I learned the importance of seeing a lawyer, as I hoped to keep Joe home, as I placed him in memory care, as I negotiated the girlfriend in MC, and throughout the journey. I appreciate the people here—those who were here when I…

currently mom and dad still live together. Mom has not been officially diagnosed but we are sure she has dentists or Alzheimer’s. Neurologist appt is this week. Mom is so paranoid and untrusting of dad. Through out the day she will get scared he is going to hurt her or push her down . We try to tell her he isn’t and that…

I think it's hard for others to appreciate the guilt that accompanies caring for someone with dementia. I liked this brief video https://youtube.com/shorts/NXeU5SFW5lM?si=gQ-WLKsFEfOWWf6o

I posted the following earlier in the week in a different discussion; the person who replied suggested this would be a more appropriate discussion topic as he/she was the only reply to the original post. I hope someone maybe has suggestions or has had a similar experience and let me know how they navigated the challenge. A…

Hi everyone, After a 2 1/2week trip to Japan with my stage 5 (I think) DH we're trying to get back into a routine. I've been reading other posts here since my return, but after finding that I've been sort of ignoring my old routine of documenting his behaviors and progression I felt coming here and venting might help reset…

Every so often depression rears its ugly head, throwing me off course. While helping my husband out of bed today he tells me he’s tired of sleeping under an X-ray, it hurts his legs. I calmly tell him I will make sure it doesn’t happen again. He feels better, I feel sad. He won’t remember the conversation. Live in the…

I am new here. Wife recently diagnosed with early dementia. How does a person cope with someone’s anger without throwing up your hands and running for the hills?

Happy Mother's Day to all the mothers dealing with this horrible disease and all the caregivers who are mothers as well.. God bless

My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…

Here is what I did today at the multi-thousand dollar MC where my DH lives: Woke him from a nap at 11:15 AM Brushed his hair Cleaned his smudged glasses Shaved him Took a short walk with him Requested the aide change his soiled briefs (yes, I checked them first) Walked to lunch (he didn't eat the overcooked broccoli -I…

Regarding my mom's constant requests (and demands) for things, I have found my local community Buy Nothing group has been great! Mom mom has set up a miniature "office" in her bedroom in her AL apartment. She had a large home office throughout her life and she always had it stocked (over stocked) with office stuff. So she…