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I now realize how easy this disease can get it's two for one.
My immune system is more compromised than I realized and a second round of shingles seems to confirm that. Most of it is my fault as I don't know how to deal with the constant heartbreak and stress for so long other than taking things to the limit. I think I can handle this but in reality I really can't on my own. I think…
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The Fall
Probably the worst situation possible…91 year old with Alzheimer's now with a broken femur… http://simplebender.com/2024/08/17/joy-in-alzheimers-episode-47-the-fall/
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So Where Do We Go From Here? This is an old thread revisited
Originally posted Jan 4. There's a number of us here dealing with spouses in stage 7 and a few folks still hanging out who are now in stage 8 (spouse has passed). I'm hanging in stage 7, my wife's in MC, so I have time to think about what's next, i.e, what am I gonna do when I'm in stage 8, and my spouse is no longer in my…
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Strategies to distract dad with FTD when doing obsessive and repetitive things
Hello all, thank you in advance for reading this message and for any idea you may have. I'm looking for new ideas to distract my dad (with FTD) when he starts with his obsessive routines. Until a couple of weeks ago, he would still listen to me and trust me if I would offer an alternative, now he is solely focus on his…
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Questions to ask when choosing facilities
Please list questions I should ask when choosing AL/MC facilities.
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Recent dementia diagnosis
Hi all, I am a young nearly 67 yr old female. Last week I was diagnosed with dementia. Both of my parents passed from the diseasse -my mom at age 84 passed December of last year and my dad passed one week to the day of my diagnosis, July 30, 2024. I was my mom's full time caregiver while she lived with me the last 4 years…
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Mixing up names.
For sake of discussion, we'll call youngest brother John and me Betty. DB's wife's car wouldn't start this morning, so she took his truck. When texting trying to explain this he first told me John had the truck. Between a followup call to him and younger brother I got the facts sorted out. Just a bit ago he texts with…
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New York resources
Michael sent me a video that contained this website.
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DH seems to hate me now
DH diagnosed with vascular dementia in 2020 still drives well and manages independently but lately he refuses to return from our mountain cabin or even see me because he says I’m too controlling. It doesn’t matter what I do or say; he finds everything controlling. He’s essentially run away from home (with the dog). Is this…
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Sad and caring formy mom 4 years
I'm new here. I've been caring for my 85 year old mom who was diagnosed with dementia/alzheimers in 2021. She just started asking about her mom, my grandmother every night, who I also cared for when I was a teenager right out of high school when my mom was working back in the early 1980's. My grandmother passed away in…
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Started a home health aide for my mom. I'm doing the right thing, right?
Hi - my mom is 87 and living with dementia. I arranged to have a home health aide come 4x/week. Today is day 2. I know it's the right thing to do and wow, it feels really hard. I guess I'm coming here for reassurance. My mom is about 6.5 hours away, single, and I'm her only child. We have no other family nearby. I work…
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Shingles again so I can't see my DW
The MC said I need to stay away for a couple of weeks. My heart is heavy because of that. She will be all alone. Even though she doesn't know I'm there from one day to the next she still senses time between visits it seems. It's on my chest. Second time I've had it.
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I'm new here and I need help
Hi y'all! I'm having so much difficulty dealing with my husband's dementia symptoms. He's angry all the time! He apparently thinks that if I'm sick a day or two that I'm abusing him. Or if I don't necessarily like doing what he asked me to do, I'm abusing him! Or my latest favorite, because I didn't answer his 16 texts…
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It’s all too much
I’m so over whelmed. Our son passed away from a heart attack on Fathers Day 2021. We got a puppy in Jan 2022 and now my husband has been diagnosed with mixed dementia (vascular and Alzheimer’s). I’m still grieving the loss of my son and now this as well. How will I be able to do it all? Take care of my husband, the dog,…
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Memory care adjustment
Hello All. I am moving DH to memory care in 10 days. I am told by all to not tell him ahead of time where he is going. I agree that he would not go if he knew, but it also feels deceitful. Once he realizes where he is and I will leave him there, he will be hurt, confused and angry. Can anyone share their experience with…
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Los Angeles/ Orange County members
There will be a seminar of recent research findings held in Irvine CA this coming Friday. This is sponsored by the Alzheimer's Association.
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feeling frustrated, alone with problematic family
To start; I'm 44, currently living in Colorado. My mom was diagnosed in 2016 at the age of 63 with early onset. I signed her up for medical trials, the first round did really well and was helping until it was de-funded. Tried again with another one, that treatment didn't take at all. She has obviously gotten worse as there…
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Mom new to nursing home
Hello, I’m new here. My mom, who is about to turn 85, was just recently moved into nursing home as a short-term rehab patient but will transition to long term due to dementia. I’m looking for guidance how to speak to her as she keeps asking when is she going home. She has an iPad to communicate and I am getting upsetting…
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Bed wetting
I’m new to the group and appreciate any help. My husband is in mid to late dementia. He now wears depends day and night, but frequently goes to the toilet during the day to use it. Mostly successfully. At night he has been waking up at 2 or 3am with his pjs wet in back. I use a pad over the sheet and that is frequently wet…
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Update on MC placement
I have posted before on my placement of my dear sweet Tommy in memory care. It’s been 10 days now and according to the director there he is doing well. He says he has acclimated well and participates in all activities and lives to help with the others residents. He has not mentioned me in a week now. The doctor had told me…
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When is it time for MC?
I know this question always comes up, but I need some help thinking through this for my mom and would greatly appreciate input from those who have had to make this decision before me! About my mom: she was diagnosed last summer and still lives alone. Based on her last exam, mom's neurologist says she is still early stage,…
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New here
I'm brand new to this whole disease. My mom is 87 and having horrible hallucinations and delusions. I want to know what kind of doctor to take her to. The general physician knows but hasn't really been much help. Do I need a neurologist, a psychiatrist, or what? I'm so nervous about this that I'm losing sleep .I want my…
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Feels like a series of endings and cannot find a good place anymore
I am sure there are several posts on this, but I feel like there is no end to what seems to be a constant unravelling of my parent's condition straight into the abyss. For those who are further up the road than me, did your life ever get back to anything resembling "normal"? I feel like a part of me, my enthusiasm and…
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spouse aggression
A year and a half ago my DH was diagnosed with MCI (vascular), Two weeks ago my DH started screaming at me saying he didn't want to live here anymore, I didn't care about him. He screamed he was looking at NH, Maine, WY, SC, etc. I thought he was just blowing off steam but then I found detailed "to do" lists of selling the…
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First-Time Poster Requesting Support
Hello to you all. This is my first time to post in the forum. I have been reading a few posts that may help me with my father. At his most-recent visit with his neurologist, we were told he was at stage 6B of Alzheimer's. We have been living with what we were told was dementia for several years, and the Alzheimer's…
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Repetitive questions - early stages of dementia
Hi all, I’m new here. My MIL moved in with my husband, myself and our 5 children back in January. She was living in her van after selling her home. She has 2 other children that were aware of the living situation and lived close by but refused to help. We came from 3 hours away to get her and bring her back to live with…
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Questions about end of life
Hey everybody. This is my first post. I’m curious to get an idea if my mom’s sudden crying, lack of communication ability, not being able to walk, is truly a sign of the beginning of End of Life. She still eats well, has no ailments(besides the obvious), and the memory care unit is saying she’s sleeping well. Any advice or…
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Where do We Go From Here
I live in the east & my sister in the southwest. Our mother, 79, lives alone in the midwest. In May, she was diagnosed with Alzheimer's. The plan was to move her to my sister's place this fall; everyone agreed it was the best place for her to go. In June, my mother started changing for the worst. First, she unpacked…