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Rexulti , insurance wont cover it
hi there, have a prescription for Rexulti for my mom w dementia & Alzheimer’s, however the pharmacy says Humana will not pay for it, & it’s $1,400.00 if I pay out of pocket. Does anybody know a Canadian pharmacy they trust? Thank you M
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Photograph and Memories
Photograph And Memories By Miles Woolley My beautiful wife has an interesting history of high achievement in her education and intellectual advancement. She started her adult life with a bachelor’s degree in nursing and served in the Army Nurse Corps earning the rank of First Lieutenant. Following that, she returned to…
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Increased appetite?
Recently DH has had an increase in his appetite. He will get up during the night and eat. I find the evidence of this when I wake up. I don't always wake up during the night when he gets up because I have a cochlear implant which has to be removed at bedtime, and that leaves me completely deaf. So when I do wake up, I find…
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My Mother's Siblings
I have a question, what should I do about my mother's siblings who are coming from out of state and want to spend all day at our house? I think that it's too long and offered a 3-4 hour visit yet they complain. Any thoughts?
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New to all of this as a caregiver
My brother Jim(not his real name) was recently diagnosed with Alzheimer's. They said he's at the beginning of it's advanced stage. Our other brother, Max, has been living with him and taking care of him, but he's sick too and his illness will be fatal within the year. I'm stepping up to help Jim after Max passes, likely…
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Dad, strained relationship
My dad has just been diagnosed with dementia. He and I have a strained relationship, but my sister and I are helping him as much as we can or as much as we can handle. our mom died November 20 22 and within the last year we’ve both noticed a decline in our Dad so we’ve had him tested. His memory is OK but his impulse…
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LO Needs External Help But Won’t Accept It
Our 88 year Mom, who lives alone and, was recently diagnosed with moderate Alzheimer’s. Mom’s drivers license was revoked following her diagnosis, and her children moved her car out of her home so she would not attempt to drive. The social worker assigned to help us, following Mom’s diagnosis, advised us that Mom should…
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Says he doesn’t have Alzheimer’s
Background: My DH is 56 and was diagnosed with Early Onset Alzheimer’s after an MRI, Neuropsychological Evaluation, and CT PET Scan. The doctor told him he has Alzheimer’s, and he and I talk about it every once in a while. He has been out of work for nearly a year because he accepted an Early Retirement Severance Package…
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Tracking watches
I am looking for a watch with gps tracking. What would you recommend? We have Tile gps trackers on phones, keys, wallets. Anything else you would recommend? Thank you in advance for your suggestions.
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Having a time coping with Husband
I have noticed big changes in behavior and took him to Dr. and have finally got appointment Oct 1 for neurologist. He has been throwing things away, good things, loosing thing, not knowing what day it is, I ask him all day to make his bed and he say he will get to it and it doesn't happen. I had to start checking on him…
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PBM Redlight VieLight Therapy
Has anyone explored or even tried therapy with photo bio modulation also referred to as red-light therapy? There is a device that has some clinical trials (very small population). It is called Vielight and has a very extensive website with reports on testing of the device. I have been trying to evaluate if it is worth a…
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Not there then right there
I’ve noticed that when I arrive for a visit, my mom is usually a little confused until I acclimate her. She recognizes me, but is not exactly sure who I am. Occasionally, especially if we talk a bit (meaning I talk about normal stuff in my life and she listens attentively), she says REALLY lucid things! Like today, I asked…
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CHERISH THOSE POSITIVE PEOPLE AROUND YOU
If there is anything I have learned…only in the very beginning of this incredibly difficult and challenging disease process is that you truly learn who loves & cares for you.. and spouse (DH) be it family or friends. As much as you will or have gone out on a limb for others in their difficult or challenging times.. it most…
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Favored daughter of three
I’m the middle daughter of three sisters, and I’m struggling with the challenges of caring for our aging mother. I’m a licensed mental health therapist, and I can see signs that my mom may already be in the mid-to-late stages of dementia, but my sisters won’t acknowledge it or pursue a diagnosis. The youngest, who is the…
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Brand new here; question about ptau217 test
My mom (68) was evaluated by a neurologist last month for suspected cognitive impairment. She performed poorly on the cognitive tests that were administered. The doctor ordered bloodwork, and today we learned that (a) she is an ApoE3/4 carrier and (b) her Quest PTAU217 level was 0.19. The note on her e-chart stated that…
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My husband isn’t diagnosed yet
his memory is worse every day. So frustrating with all the repeated questions, plus he cat hear wear and has a cochlear implant, so lots of yelling answers to him. Good thing I have the patience of a saint!
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Help for Caregivers of Veterans-Elizabeth Dole Foundation
The Elizabeth Dole Foundation offers assistance for caregivers of veterans who were wounded or have an illness such as dementia. The veteran does not need to have a disability rating. They offer financial assistance, mental wellness, financial wellness course, webinars, and assistance navigating the VA system with aid and…
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PWD refusing to pee with aide, instead ends up going on floor, help!
Looking for tips to improve a situation! My husband is not incontinent but sometimes needs help in the bathroom, either verbal cueing, or sometimes a bit of physical guidance, to either stand close enough to the bowl to aim or to sit down and pee that way. The problem is that now I'm back at work, the aide (who's in her…
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i am so confused
My DH has been diagnosed with early stage dementia. He has been tested and it is not Alzheimer's. His short term memory is getting worse every day. He cant remember where we are going at all. I do the driving now. As an example I will ask him over and over to put is partial plate in. By the time he gets up the stairs he…
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when to stop work
Hello family, My DH is not remembering who I am. Has our wedding picutures from one room to another. Im thinking this might be soon til , the is last time he remembers us. He sleeps alot and is awake til ??? During day I work 4 days 730-5. Should I quit working? I dont know
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How do I make this decision
My DH has had Alzheimer’s for about six years. He eats well, is somewhat responsive but does not engage in conversations, forgets to bathe and brush his teeth etc. He is not incontinent. We have hospice in once a week to help him shower, which he objects to, and a nurse to check vitals. He also has congestive heart…
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Maintaining my marriage
My MIL has not been diagnosed that we know of but she is extremely forgetful, paranoid, and just plain cruel. She swears the doctors have told her she does not have dementia but refuses to let any family or her husband go into the doctor's office with her so we seriously doubt that is true. My husband (her son) and I are…
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Update
I want to give an update on what's been happening with DH. In my last two thread I shared that the facility said the state told them he had to move because of an incident where he wandered and got into bed with a female resident and touched her in an inappropriate place. The Division of Health and Senior Services (DHHS)…
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PBM laser light therapy for Alzheimer’s
Have any of your love ones had PBM laser therapy treatments? If so, has it helped for cognition? The research on this therapy for Alzheimer’s is promising for delaying the progression.
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Need advice
I am hoping someone out there has experienced a something similar and can provide some guidance. Background: My husband was diagnosed with Alzheimer’s “with a vascular contributing factor” in 2023. I would say he is probably in the moderate stage now. To the average person, he seems normal. Short term memory is really bad;…
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Moving Mom
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Organizing home care
Hi everybody! I have learned much from this forum (thanks!), but now I face a new problem and need your kind advice again. My DW (82) has late-stage dementia. So far, I have been able to take full care of her (besides a bit of respite care from an aide), but all my current arrangements depend on my wife's ability to walk…
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The Long Quiet
Dear Friends, I am quickly approaching ten years as a caregiver for my dear wife with late Stage 6 dementia. Alzheimer’s and dementia have long been known as The Long Goodbye because of the painfully long duration of the disease. No one knows how long their journey as a caregiver will go on, but I never imagined myself…
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How to answer questions about going home.
My lo is in assisted living for past 3 weeks, she constantly cries that she wants to go home. She has moderate dementia and is 95 years old
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How to Respond to Family/ Friends who mean well but their comments are a bit much at Times
A family friend says tell your mother Hello, even though she may not remember me. Or I heard she is really bad off.