-
Diagnosed with EOD a year ago at 55 years old
Edit: Yesterday I was diagnosed with Lewy body dementia. It was upsetting, but now my family knows how to move forward and what to expect. We're moving back to Utah to be around my husband's family so he and our 11 and 13 year old kids can have a better support system. Hi. Last year I was diagnosed with EOD a day after my…
-
My MIL is getting worse
My MIL has dementia and is now starting to forget to eat, and isn't really taking care of herself. My SIL lives with them, but it's more like lives "off" them and she is NO help! I've noticed my MIL losing weight and not looking as put together as normal. When do I know when the time has come to get her more care. She…
-
Out of state sister with early Alzheimer's is stubborn, petulant and resistant to help.
I am her HCPOA and DPOA. Neurologist explained her diagnosis to her, and told her she needs 24/7 aides if she wants to remain in her home, that she may not drive or be responsible for her medication, and must use a walker (many falls.) But she states she does not have Alzheimer's, is rude to and fires every aide we hire,…
-
Regressing
DH with ALZ…he has forgotten not only that he loves bbq ribs but also how to eat them. It suddenly occured to me that there have been a number of clues that his eating habits have regressed to early childhood. He now cuts all his foods …asparagus, long green beans, meats…into bite size pieces before eating. I asked him…
-
Pairing college students with seniors
new platform “Joey” paired a college student needing housing with a senior couple. DW has EOAD and DH still works. Student can work off some of the rent with chores. It seemed to work out well for this pairing CBS reporting https://x.com/cbseveningnews/status/1928978603959533863?s=61&t=daLMzkQZ7dgrlrf3SDYEoA
-
Moving mom from AL to MC
this day is going to be so hard. We need to move mom up to MC. She has been wandering and walked out of the building. It is now a safety issue and we need to do this but it is breaking my heart. I don’t know how to navigate it all and how often I should visit after. I currently go twice a week and sibling goes twice a…
-
How to help with dementia and sundowners
I am new to all this. I worked in a dementia care unit as a companion but it is nothing compared to feeling so helpless when it comes to my grandma. My dad wants to put her in a home and I gave her my word I would not let that happen. It breaks my heart seeing her decline and not know who I am. I had never even heard of…
-
New to Group
Good morning community, I just connected to this support group. My 86 yo dad is struggling more each day with memory loss. He has always had some sort of learning disability and suffers from profound hearing loss. The increasing level of dementia is complicating daily interactions. I have a sister who lives 5 minutes from…
-
Worried
Taking my DH on a 2 hrs trip. He has VD and Alz. Early stages but has lots of anxiety. I so worried first time this far from home. There will be about 30 people there( all my famil). Just making me sorta nervous. Oh well gonna try might be the last time I see some of my aunts and uncles.
-
Am I being unreasonable?
I’m 81, my DW is 82. I have been her primary caregiver since she was diagnosed three years ago. We live in rural Western PA. Between our prior marriages we have 8 kids. They all live far away, the closest is her daughter who lives fours away. She is in stage 5. I have had to take over all the finances, medications, meal…
-
Falling issues
So, my grandfather continues to prove that he is the most stubborn person in the world. I and my father are currently full time caregivers of my grandfather who has Parkinson's and Alzheimer's. He is currently a medium fall risk as diagnosed by his doc and physical therapist. He is still very independent, being able to do…
-
How do I tell my mom we are where we are because of her illness?
First, my mom refuses to come to terms with the fact that she is mentally declining and that we need to address the fact that she is not just forgetful, but that she has severe memory loss, had a small stroke, and is starting to experience delusions. Of course, she denies and becomes enraged when these things are brought…
-
Dealing with Medication Management
Hey Y'all! I'm a 27-year-old caregiver for my grandfather with VD, while also working full-time. He is probably mid-stage by now. Medication management has been difficult to deal with, to say the least. He is very resistant to change and likes to feel in control of things. He's been this way all his life. He's been an…
-
Brain Exercising
i would really like some opinions. We are involved with a disability sailing group. One particular friend, in her 50’s, double degree, has been a mother, a teacher, piano and trumpet player, sailor and scuba diver, a very accomplished all rounder. She has had 3 traumatic head injuries, lost her memory completely and the…
-
Should we move our loved one
My ex has no diagnosis but has many symptoms of memory decline. She wants to move several states over to live close to hers and my son. But she can only afford an apartment 30 minutes away from my son. Does anyone know of similar situations and how they turned out? Thanks
-
Declining mobility and VD
There are so many on this site with much bigger issues than mine and farther along on the journey. DH has VD after several strokes in his parietal lobe. He has executive function issues, receptive and ecpressive language defecits but very little problem with memory. He can still do his ADLs but is declining physically at a…
-
don't know what to say to DW
I visited DW yesterday at her MCF, and it was pretty disheartening. I managed to record a bunch of our conversation and transcribe it. The key points: * She asks why she is there, what changed between us? * Why didn't I talk to her about the change? * Why don't I want to be with her? * Is there someone else? * What's the…
-
NYT: A Woman with a Rare Genetic Mutation ... (FTD)
From the NYT: https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html?unlocked_article_code=1.jU4.Pogt.lww3UxG0uYFK&smid=url-share https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html
-
A new experimental treatment - in a nasal spray
Something to keep an eye on. The study focuses on those with moderate Alzheimer's. Can this nasal spray slow down Alzheimer's? Once couple is helping scientists find out
-
My Mom Finally Got An Official Diagnosis
So after almost three months, my mom has officially been diagnoised with major cognitive disorder, aka dementia by a geriactic care provider. According to her, silent strokes from a while back (which affected her brain) and my mom's unresolved grief with my Dad were major contributing factors. It has been recommended that…
-
So I guess this how it goes? One day your are fine and the next you are not
I realized I cant take care of 2 dementia patients on my own. So now I need to get agreement from my Dad to go into the nursing home. I spent 8 hours today dealing with them, doc appoints, falls, ambulances, hospitals - all in one day. I can't take all this stress. Its destroying me.
-
Mom girgals after eating
Hello, has anyone noticed this with their LO? It looks like she is choking and is in pain.?
-
DH has a hernia should he have an operation
My DH has been seen by urologist. He does not have any pain in the hernia but it is large. . The doctor has said that it is not urgent for my DH to have the operation. My husband has stage 3 dementia. He was in agreement that day but has forgotten about the examination and now said he doesn't want the operation. What…
-
Dad with dementia survives mom
Mom had a massive brain hemorrhage and as medical POA, I had the difficult decision to take her off life support after 3 days in a coma. She passed 2 days later. Funeral was on the 19th. Now I'm focusing on taking care of Dad as he has late stage vascular dementia. We were supposed to plan for Dad to pass first but then…
-
Chamomile Tea for DH
Chamomile really helps ME sleep. Once I fall asleep, I sleep deeply if I drank some. It doesn't make me drowsy but once I fall asleep, I'm OUT! I'm thinking of giving this to him tonight. Has anyone else tried this?
-
First Post. I’m living with 2 challenging men.
So very grateful that you all share your stories. I’m learning all I can. I’m truly frightened for our future. My DH, age 73 hasn’t been diagnosed with dementia yet. I suspect he’s in stage 3. Maybe 4? Of vascular dementia and ALZ. His neurology report states ‘probable mild cognitive impairment’. Dr prescribed aricept and…
-
Hypersexuality
My DH has been driving me crazy for a few years with sexual comments all day. The other day at doctor's office he told the nurse she had sexy shoes. This is the first time such comments were made to others. Never before this disease would he say something like that. Several months I spoke with his geriatric doctor about…
-
Memantine
Hi, I am new to this group. My DH was recently diagnosed with "Alzheimer's type dementia". On the 7-step scale, I would rate him between 3 and 4. We are waiting to meet with a neurologist. In the mean time, our PCP has prescribed a drug called Memantine. Are any of you willing to share your experience with this drug?
-
Advice on next steps please
Hello All, I am looking for some advice from the experts here. My DH (62) does not have a diagnosis yet, but I suspect bvFTD (that is the behavioral variant of FTD. He has some memory issues, but his behavior changed dramatically in a very short period of time and I see him struggling with his executive functioning and…
-
MCF after stay in psych hospital
It has been a long while since I last posted an update here (I did last week yet found my answer) and am truly thankful for this site. My MIL finally got moved to a MCF this afternoon after a week plus stay in a psych hospital after she had a catastrophic event at my BIL and SIL’s house. My DH and I live in another State…