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Man on the Inside
This post kind of off topic. We watched a 8 episode series on Netflix last night and today with Ted Danson called “Man on the Inside” which we enjoyed. It was about a retired professor who lost his wife to Alzheimer’s and when looking for a part time job to take his mind off his loneliness, ends up taking a job with an…
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Alone and missing friends. What to do?
My DH is Stage 6 and is very agitated and even aggressive to anyone new coming into the house. DH's friends have passed or no longer able to understand how to deal with him. I barely do myself. He's at home with me as sole caregiver and it is draining me. Heartbreaking is when the day passes and he realizes no one else is…
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wants to be massaged for hours
Anyone else experienced this? My DH wants me to massage his backs, hips, chest for hours on end. Sometimes it's the only thing that will calm him except listening to music. Is the any alternatives? Is it a phase?
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Burnout
Today I want to rant, I’m tired and exhausted, I really thought I had a handle on all this, I love communicating and writing on this site, it balances me and helps me to understand that I am not alone but today I feel so despondent for the last few days all I want to do is cry. I don’t want this any more 7 years is enough…
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What to do? DH paranoid/ fearful away from home but need to visit my dying father
My DH is Stage 6 and has been extremely agitated, anxious and verbally aggressive. He is stabilizing on Seroquel but still doesn't tolerate strangers or new places. I just found out that my father is in the hospital 5 hours north. He is only expected to live a few days. I have no aides or family able to care for him, the…
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Caring for an abusive parent
I am my mom's only child, adopted. Although she has several stepchildren. My mom has had many loving friends and family in her life willing to provide support, but as she aged, her abuse spread from the inner family to external family, friends, and neighbors. She is narcissistic, gaslighting, oppositionally defiant, among…
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my wife can't stop crying all day
My wife just cries all day long, the reasons change and I don't believe they are the reason. If it's stopped it will start back up when she is asked to do something. Any caregiver with this experience I'd be grateful to hear from
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How much information to share with DH?
My DH has been showing signs of cognitive decline for a while. We are beginning this journey to get a diagnosis, which (as you all are well aware) will include a lot of testing and doctor appointments. My husband has excellent coping skills, so it took a long time to convince his primary care doctor that there was an…
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Attorneys for Legal Guardianship/Custodianship - Normal Costs, Best Way to Locate?
My LO is in their 80s and has been diagnosed with moderate to severe Alzheimer's disease. I need to pursue emergency legal guardianship and custodianship for several reasons - mainly, because they have been hospitalized for over six weeks and we have mounting issues that I need to address. Our state (Massachusetts)…
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Suggestions for Activities?
My DH was diagnosed about 3 months ago with EOAD, at age 57. His biggest symptom is aphasia/difficulty communicating, as well as loss of executive functioning. He does not have significant memory loss. He has no problem doing ADL, and can still go on walks solo, etc. Our issue is that the aphasia and loss of executive…
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Turned down for Medicaid
With the help of an Elderlaw Attorney, I filed for Medicaid for my DH on August 19th here in Missouri. It had taken me several months to gather all the necessary information and was such a relief to finally have it filed. Since then, I have been paying the MC the amount the attorney said I would owe each month. Then a…
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While I wait
I’m working on trading in my anger at all those people who made this journey harder. I don’t want to hang on to the bitterness.
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Food ideas
My SO 46yo with EOA was a good eater. To the point that after eating a big meal and hour later he would be snacking on something. He was also a BIG Mt. Dew drinker. In the last month or so he hasn't drank any soda and has lost a bit of weight. However he also doesn't eat much like he used to. I know that his appetite will…
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Adult Children
We have 2 beautiful adult children 43 and 40. My DH has VD combined with very bad APHASIA. Our daughter lives near us so she is very familiar with the mental and physical decline but our son lives 1500kl away and is so involved with his work and family, our 2 young grandchildren. He doesn't have a lot of spare time for…
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Not diagnosed
My DH has not been diagnosed but is showing many symptoms. He is in denial and blames all his problems on me. It’s been a struggle the past year. I feel like a parent instead of a wife. His mouth can get pretty bad. It’s getting hard and frustrating.
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Do I s*ck at caregiving?
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Thought we were going to lose her
She was unresponsive this morning when I arrived at the MC. She stayed that way so I alerted family and friends. Hospice nurse said she is beginning to transition but she snapped back this afternoon a little.
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Dad now stating he needs a flight home
Hi all, So my LO has just realized we are in November and staying he needs me to get him a flight back home. He has been living with me for the last 4 months and he thinks he is visiting. I have been able to redirect/work around him asking when he will go home for the last 4 months. Now we are at he realizing it November…
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Daycare
I’ll be visiting a day program on Wednesday for my DH with stage 6. I have no idea if I’ll like it or if it will work out. It’s a PACE program & it’s an hour away which is really the part that makes it feel stressful. I’m just realizing that if it were local I’d jump at it. (So writing this post is already helping!) My two…
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Caught Between a Rock and a Hard Place
It has been extremely hard with my mom. When she is having a day where she is weak and feeling dizzy, she will ask to come to my house. Then, the next day, she is saying that she didn't need to be here, and she wants to go home. However, she is still weak and can't get around very well. I try to convince her to at least…
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Early onset at age 60
Hello, my husband was recently diagnosed with Early Onset Alzheimer's at age 60. We live in the Erie, PA area. The support groups in the area don't seem to fit our demographic. Although we do enjoy the company of folks older than us, some of the challenges we are facing are a lot different than if we were in our later…
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My brother
I just heard from his doctor's office. The doctor doesn't believe that my brother is impaired in any way and he won't do anything to restrict his driving. He seems to think that the MMSE that he administered supercedes the more thorough neuropsychological testing that was done in August. I'm done. There isn't a blasted…
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Neurologists recommendation
Any recommendations for a neurologist in North Central Florida (Jacksonville, Tampa, Orlando, Gainesville, etc) who is particularly good?
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New here
Today broke me down. Nothing about today so out of the ordinary but it’s been a slow build. My mom hasn’t officially been diagnosed yet but her short term memory is going. She lives with a friend and I take her to all of her appointments, manage her finances, set up her meds, communicate with all the doctors, wash and…
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Having NO LUCK getting mom an appt with a Neurologist
I am in South Carolina, just south of Charlotte, so not in a rural area or anything like that. I have been attempting to get my mom AN APPOINTMENT with a neurologist for OVER A YEAR, I've had her primary care doctor send in referrals to every neurologist in a 20 mile radius and I've called them myself, only to leave voice…
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67 year old wife trance-like state
For hours at a time on most days it is easy to believe that she has nothing more than minor memory issues. But as if she has a split personality, she will become very distant and seems depressed and goes into a trance-like state. This can last 2 to 3 hours and then she comes out of the trance. This issue began around…
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delusions
I am wondering what peoples experiences have been with delusions. Do you think there is some bases in reality for where they come from or are they just random. In my case when my wife was younger her parents went through a very mess divorce because of an affair and my wife had an affair with an old boyfriend. Now she…
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Living with two slowly declining parents
I am new to the discussion here. I am currently living with my parents. They are both slowly showing signs of dementia and I am having to take more control of their healthcare and finances. My dad has zero short term memory and constantly repeats questions that I answered for him five seconds ago. My mother has lost alot…
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How do I respond to her confusion?
What is the best way to handle when your early onset spouse is saying for the first time over and over again she doesn't know who I am? Brought out pictures but she doesn't remember me. I need advice on how to respond in this situation.