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REM Sleep Behavior Disorder/Lewy Body?
Hello! I am new to this message board and would love to get involved with this community. I am a 52 year old female diagnosed with sleep apnea and Persistent limb movement disorder at age 42. I self-diagnosed REM sleep behavior disorder from incidents in the past 20 years where I have injured myself by kicking nightstand,…
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Signs of changes...subtle or not??
Hello. My DH recently scored a 22/30 on MOCA. I don't see much change in that from months ago. I am seeing subtle things that are different and was wondering if anyone has any wisdom to share on what they may mean as far as progression. He is in the process of filing for FMLA/DI due to cognitive decline and the anxiety at…
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Forgot his age
A week ago DH knew he is 83. Today he thinks he is 60. He asked me how old I am. We happen to be the same age. He said he can’t believe he is 83. I told him it is ok he can be any age he wants to be and then asked him what age he would like to be. He responded age 3 because I wet my pants and other people can take care of…
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How to find a good live in caregiver?
Hi. After a fall and surgery, my mom, who suffers with dementia, requires 24/7 care. Where is the best place to search for a live-in caregiver? Care.com, carelinx.com, Indeed or elsewhere? I'm worried about being able to find the right person— someone reliable, kind and experienced. Thank you for your help.
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DH keeps coming out of his room naked!
My DH is in memory care, and at night especially, he comes out of his room naked. The staff will take him back to his room and put clothes on him, but he will do it again a short time later. I have noticed he is more anxious and agitated lately, but he has a heart condition that makes him unable to take the normal drugs…
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How to best poop in a diaper in bed
What is the best way for someone bedridden to take a poop? FIL feels the urge to poop, but can’t seem to go in bed. He has disposable underwear on. Should he Lay on his side? Lay the bed completely flat or elevate the torso?
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Our Last Mile
Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct. And he was thought for sure to be in…
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In-home care for parent--where to start?
I recently moved back to near my family after decades away b/c my father was diagnosed w/ ALZ a few years ago. He and my mom are adamant about remaining at home. My dad has fallen 3x in the past couple of weeks. Does anyone have recommendations for where to begin to search for an entity/agency to start getting in-home…
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New Here…
Hello all, I joined this page on behalf of my husband he was diagnosed with Alzheimer’s at the age of 54. I am currently his caregiver and plan on being by his side through this entire process. We are located in California and would love to talk and seek advice from other families with such early onset. I have spent…
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First post
My DH always wants to “go home”. When I ask where, of course he says his childhood home. It is so exhausting to try to distract him from that thought. He goes to bed saying it and wakes up saying it. He begs and pleads with me to take him there. Constantly, p l e a s e! I can’t take him anywhere without arranging for…
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I did what I said I wouldn’t
After 60 years of marriage and in year 15 of caregiving I always have said I would never wipe my DH’s royal hiney. That never day came with you know what on the bathroom floors, toilet seat, etc. and on his royal hiney. After cleaning it up -including the royal hiney-I believe I deserve a super duper big gold star on my…
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New to Alzheimer's
Hi! I am new to this site. My mom was diagnosed with Alzheimer's. My dad is her primary caregiver. My brother and I try to help the best we can right now as we have our families to take care of. My brother helps a little more cuz he lives next door. My family and I live an hour away. We try to get out there when we can. My…
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Mom wants to keep dad at home.
My dad has been in AL under hospice care for 4.5 months. Mom keeps saying that she can take care of Dad at home because she can't afford it. The only thing that's holding her back is that she can't change my dad if he poops on himself. He is double incontinent. She doesn't have the strength to turn him over. She has…
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New to forums...I really, REALLY hate this disease
52 y/o male taking care of my 76 y/o mother who got diagnosed around 2 years ago. Following a stroke my mom had, my wife and I moved our family to a more affordable town so I could move her in and care for her. I didn't know at the time that she was at the beginnings of AD. We noticed some strange behaviors but chalked it…
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Leqembi - medic alert bracelet
What are people putting on medical alert bracelets for LOs on Leqembi so that they aren't given an anti-coagulation drug accidentally? I'm wondering what words are best to convey this in a small space.
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Anyone experience a bone spur
My DH had an open sore between his toe. It healed but on his follow-up appt, his podiatrist took x-rays and saw two bone spurs. He suggested surgery to remove them, but he also said with the Alzheimer’s to deal with, we may want to do nothing. However, if the sore comes back, he’ll have 2 problems to deal with - an open…
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Alz/ Dementia diagnoses 12 years
I'm new to this discussion, but I'm thankful that I can connect to individuals that understand my situation. My husband was diagnosed with Dementia 12 years ago. Until May 2024, he was able to stay home while I continued to work. He is now in a facility with other patients. It's like a big family. I'm at peace knowing that…
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What Have I Done?!?
DH suddenly started having severe leg and knee pain yesterday. Of course, I couldn’t get an appointment with any kind of doctor for almost two weeks. He was able to get to the car, so I drove him to the ER. They ran a bunch of tests, gave him morphine, couldn’t find anything wrong and sent him home. Within 5 minutes of…
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Looking for a zoom call
I’m looking for the sign up information for the zoom call for adult children
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Newly diagnosed
Hi, This is my first time here. My mom Was diagnosed with mixed dementia today and it's been so hard to wrap my head around it. I'm so sad about the diagnosis and sad for her.
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Home care
DH diagnosed with vascular dementia 5 years ago is “progressing” in this horrible disease. He has difficulty walking due to major back issues short term memory deteriorating only leaves the house with me. I am looking into home care from some agencies nearby for companionship maybe 6 hrs a week and give me some time. What…
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New to CPAP
My DH was diagnosed with MCI, although I believe that he is a bit further along since he does showtime for doctors and nurses. Sleep studies determined that he has sleep apnea and his neurologist feels that it may be causing, or at least contributing to, his cognitive decline. So…he has a new mask and it's a challenge to…
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Sometimes I just want to hide
Hi all, been browsing thru these discussions. It nice to know I'm not alone. I'm 66 yrs old and my DW with Alts. is 68. I have allot of mental anguish for my loved one. 44 yrs of married life 2yrs of serious dementia issues. I have troubles with her sometimes telling me she doesn't know who I am-and wants me to get out of…
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Palliative Performance Scale
My wife was diagnosed with Alzheimer’s in July 2016. To keep track of her progress I used the Global Deterioration Scale, also known as the seven Clinical Stages of Alzheimer’s. She was recently placed on hospice and I was introduced to the Palliative Performance Scale. I shared it with a friend, whose wife is in the…
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Inhaled aromatherapy improves cognition in those with cognitive impairment
Unfortunately, I don't have access to the whole article, but here are some of the key findings from this meta-analysis. The effect of inhaled aromatherapy on cognitive function in patients with cognitive impairment: A systematic review and meta-analysis Inhaled aromatherapy improves cognitive function in patients with…
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Dementia caregivers in the UK
Is anyone here from the UK?
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Ups and downs toward the end
My DW has been in MC for almost a year now. She is stage 7 and every few days she is almost unresponsive and I've thought "this is it" but she bounces back. A few days ago when I was at the MC, I'm there twice daily to check on her, hold her hand, etc, the staff had laid her down in bed for an afternoon nap but she was…
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I am so angry and I can't help it
Forgive me for the ramblings but I don't know what else to do. I used to write on these boards about this but haven't written in a long time. My last email was breached so I'm writing under a new email. I am a religious person and believe that God knows what he is doing but I am still so angry and sad and full of grief. I…
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Recommendations for Group Disability Attorney
Any recommendations for a Florida attorney (focused on LTD and you've had success) to assist with the transition from active work status to FMLA/Short term/Long term disability (group benefits)?
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Work at neighbor’s - worried about DH’s reaction
One more thing to worry about…we have a section of chain link fence between us and our neighbor (fence is slightly on our property). It’s covered with a beautiful passion flower vine, which they planted so it’s rooted on their side. Now they plan on extending their vinyl fence inside the chain link which means pulling out…