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Cycles of doubt
This seems to happen every few weeks or even every ten days or so. I’m sure it’s a sign of burnout, but I want to run away. I want to be alone. I want to enjoy my home and my time, which are no longer mine. Like every other carer, especially spouses, my life is no longer my own and I cannot predict if or when it will ever…
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New to Alzconnected
Hello. My name is Christine, my mother has Alzheimer’s. Soft diagnosis was in August 2023 and the final diagnosis was January 2024. It has been a wild ride to say the least. She has been on Memantine for about 6 months now and recently received her 2nd dose of Leqembi via infusion. During and immediately after the infusion…
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Seeing DH slowly fade away
The worse part of visiting is leaving & driving 3 hours back to an empty house. The worse part is also seeing the other veterans there that are farther along in their dementia journey knowing what's coming for my DH. This weekly refreshed reminders of loss & grief are dragging me down.
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Early On-Set Rate of Down-Slide?
Hello, My DH has been living with aphasia for the last 2 years and was only recently (within the last month) diagnosed with AD. Since the diagnosis, he appears to be rapidly devolving - - anxiety about a number of different world events (hurricanes, war, covid, etc.) and amnestic symptoms, neither of which had been an…
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Leaving alone
This may be an obvious question, but I'd still like your thoughts. All of the literature says don't leave your person with dementia alone after a certain stage. My husband is clearly stage 5. However, he absolutely does not wander (doesn't leave the house), doesn't try to use appliances, pretty much sits in his chair when…
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The other woman
My mother in law lives with my husband and I. In the evenings she believes that my husband, her son, Is her deceased husband. That prompts her to ask him to come to bed at night. When he tells her I'm not going to bed yet "MOM", she gets upset sometimes telling him she Is not his mom, other times getting very upset telling…
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How to answer DH's questions?
Here I am, on a beautiful Saturday, all alone, wallowing in self-pity. The need to visit DH is upon me now—ready or not—as he has a telehealth appointment with his neurologist coming up soon and I need to be present for that. Guilt has weighed heavily on me ever since I decided not to visit him after the first visit last…
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Good ways to talk to DH's doctor?
Hi all! DH has a PCP doctor appointment on Wednesday and I usually attend with him. The doctor is aware of DH cognitive issues and is fairly saavy and I usually update her the day before by leaving a message with issues, details, requests. The doc can throw me under the bus sometimes in the appointment by saying, "you wife…
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Help! I am second-guessing my decisions
My DH got COVID last month. For all of his 33-day hospitalization, they forced in to stay in bed (for falls precaution) and would restrain him much of the time. They barely walked him because he required 2 people (staffing issues or laziness?). PT might have come around 4 times in the 33 days. He was transferred to a rehab…
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Robotic therapy cat
I thought about getting a cat at one time but most of the responders on this forum discouraged the idea and I agreed with them that it would be too much stress for me as he gets worse. Even now he leaves the door open a lot so I’d be constantly worried the cat would get out. I’ve been thinking about the robotic cats and…
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My lifeblood is in MC
Hi all, I have not been of much help lately, have not been able to post. As of last Thursday, my Guy has been in a memory care unit, He had a paralysis in mid August, went to hospital for a week, then to a TCU for several weeks.. Now to a memory care facility that, actually, I could live in for $500 more a month. Diagnosis…
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Rapid Decline
My DH dropped 3 points on the MMSE in 6 months. I was told this is rapid decline. His score is 18 but they said he has/had high cognitive reserves. I put him at a solid stage 5 with a foot in stage 6 on Tam Cummings. Has anybody experienced this with their LO? Does it continue dropping at a rapid rate or can it be a one…
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I Would Pay Money for a Little Anosognosia
As my DW loses her ability to speak and has started becoming more anxious and paranoid, she will say to me, "I am about to lose it all." and then she'll cry. So I cry and think of how utterly unfair it is that she knows, really knows that her brain is failing her. I know her thinking she has nothing wrong would bring it's…
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Little kids visiting advanced stages?
My mom is in the advanced stages of EO alz. We recently moved her into memory care. I decided to travel to visit a week later to offer support to my dad who was struggling with the decision and to see my mom. I brought my two young children (6 and 2 yo)with me to visit mom. My mom often does not seem to know what is going…
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Unwanted Advice
Back story, My mom (83) was just diagnosed with dementia along with multiple other health issues. I have been bathing her and taking her to appointments since February (since and hospital and rehab stay). Now I also cook her meals. My dad does the best he can but he is 88. I work a part-time job, a seasonal job and own a…
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desperately seeking advice for unique situation
Hello everyone, I’m new to this board and am hoping some of you can offer me some advice because I have no idea where to turn. This is all really a lot so I appreciate all of you who take the time to read it. My aunt and uncle both started showing signs of memory decline approximately 10 years ago. No matter how hard my…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
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Don’t know what to respond
My DH has just moved to a new MC after he was “dumped” in the ER by the prior facility. He is now getting great care, but the stay in the ER did a lot of damage. He cannot walk, has vision problems and his speech, which was poor, has become almost unintelligible. So he has lost the ability to communicate with the care…
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New at this. HELP
My wife has short term memory loss, higher than normal fear levels, general agitation and breaks down and cries far too often and easily. Don't know how to get into her world and probably support and help. Need advice and counsel ASAP.
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Struggling with mom in NH
Mom has been in NH for over a year and has quickly become aggressive, more disrespectful then normal, talking continuously without taking a breath, hitting her call light 12 times in 4 hours for nothing important, obsessing over Money and wants to purchase hundreds of dollars of stuff she doesn’t need. Calls me names and…
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Today
Good day but cooler today. Becoming Autumn. Doing fine with some gummy assistance Sat PM now but nothing is really happening now? Anyone around?
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forgetting things
hi, yesterday mum found a coffee satchet in her handbag. she had no idea how it got there. i tried to reassure her as she was thinking oh did i steel it but my mother would never do such a thing. i told her what would of happen but she panicked for an hour about it and had a panicked attack and i had to give her a valium…
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Lost laundry and the wedding dress
Mom is in AL and as you would expect some of her clothes have come up missing. Sometimes they return other times they don’t. It’s frustrating, but kind of to be expected. Mom is so frustrated she is now washing laundry in her bathroom sink. We set up something to hang things in the shower to dry. Her comprehension socks…
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Looking in the rear view mirror
Why do we spend so much time on looking in the rear view mirror? It is so useless. We ask ourselves those questions that have no satisfactory answers. We torture ourselves with guilt, regret, resentment and remorse. Why? We complain that it is so unfair that our retirement that was dreamed of and planned for ends up in…
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Delusions- how to respond
Please help me with how to respond to delusions and paranoia. My parent is very paranoid about someone stealing his items. He often hides tools and important things, forgets where he puts it, but then accuses someone of stealing. How do I respond to this without upsetting him?
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Tired
My wife is in the beginning stages she forgets a lot of daily conversations and can’t find the right words to make a sentence. I like to go exercise walk but can only be gone for two hours. She wakes up mad at me almost every day. I go walking daily just to have me time. I take care of everything, finances, cooking,…
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moving into memory care, not sure if we should wait longer
My mom has been on the waiting list at a memory care facility for a long time. My sister and I are both burnt out. There is a room available now that shares a bathroom with another person. My mom hates sharing bathrooms with strangers and gets grossed out easily by other people in her personal space. I am not sure if we…
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What I miss the most
No question just how I feel. I have had a couple of drinks and am sitting in an empty house thinking (drinking and thinking maybe a dangerous combination). I have been married for 49 years and during the first 25 years I thought we had as close to perfect marriage as possible. the last 24 years has been much less than…
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I would like to speak with someone else who has Alzheimer's
People without Alzheimer's keep responding to my entries. I would love to join a forum where I can actually interact with people who have Alzheimer's, not mci and not caregivers. Thanks