-
Memory care
My DW is has progressed very quickly. She was diagnosed with mild cognitive impairment about 2 1/2 years ago and is now clearly in the moderate stages. I'm afraid she is moving into the need for memory care and I really don't want to do that. I don't think she's unsafe, but there are sanitary issues, e g. leaving dog feces…
-
Neurophysiology test completed
I have been on this journey for over a year trying to find the diagnosis. My DH has severe sleep apnea (36 times per night) so we have had the cpac for 9 months now. Then they wanted his test done. Did all the blood work and MRI. Nothing noted. it’s been hard because it’s clear he is having trouble with organization and…
-
I just had to ask how much time he has left
My husband's doctor has been strongly suggesting that I put my husband in memory care. There are days when that option seems attractive but it is unaffordable. I asked the doctor how long he thinks my DH will live. I was shocked when he said "about a year". DH has mixed dementia, Alzhiemer's and Vascular dementia. He is…
-
THC for caregiver
So this may not be for everyone. But I became so desperate for some relief I figured, why not. It had been over 40 years since I had my last puff so I went to one of these smoke shops and got some gummies. I go lightly, just using a half of one. My wife of 40 years is in her later stages and we go through all the stuff you…
-
What did the techs just do here?
@ALZConnected Moderator I couldn’t get to posts for a few minutes. Now that I can member’s profile are randomly showing up next to their screen name on their comments including mine. So I have edited my profile to say ‘removed’. Which didn’t help because my profile info showed up on this comment
-
Processing The Grief
My dear wife left us three weeks ago after her eight year battle with this evil disease. I have been her primary caregiver throughout, supported most recently by a couple of caregivers for several hours each day. The family and friends were there for us at the end and for the week or so after the funeral. They all must go…
-
ALZ Caregiver Zoom
For anyone who may be interested, I created a Zoom meeting for next Tuesday, September 23 at 6 PM EST. I hope some of you see this and will join :) Elyse Caldwell is inviting you to a scheduled Zoom meeting. Join Zoom Meeting https://us02web.zoom.us/j/89572217820?pwd=eBt4xrqL3OB87URTZedzCr1ZZ0okPZ.1 Meeting ID: 895 7221…
-
Just need to talk to my friends (210)
I started this months new thread, 210, but entitled it 110. I tried to delete or change it but didn't work. Maybe this will. The other one is saved somewhere. So sorry for the confusion.
-
Alzheimer’s
I was diagnosed with Alzheimer’s about 6 months ago. Is anyone being treated with Kisunla? I started infusions about four months ago. After each infusion I get terrible headaches for about two days.
-
risperidone vs seroquel
I've recently only learned about seroquel by being on this site. My DW has been on risperidone for a very long time. One of the side effects is akathisia, or restlessness. Over the last several months she literally is spending 90% of the day on her feet pacing. She can't sit for more than a few seconds and she's up again.…
-
Wanting to go home
Does it ever end, talking about going home? DH says "I need to head to the house" or "I need to go home." Please tell me it will stop. It's driving me crazy.
-
Do You Ever?
Do you ever get so confused listening to your PWD that you wonder if you are the one impaired? There are times my DH’s view of reality is so different from mine that it makes me question who is grounded in accurate memory of the event. It is hard to describe but his verbal skills are excellent and in tact. He made his…
-
How to help mom when dad has the disease
My mom and dad are living in a memory care facility. My dad has Alzheimers and my mom does not. My dad is in the later stages of the disease and has recently begun calling my mom his ex-wife AND has been seen holding hands with other female residents. My mom has been sobbing uncontrollably. She's feeling guilty when she…
-
Feeling Guilty
Both my father and mother entered a nursing home a few months ago. I stop by each week to visit them. Its so clear they are unhappy there. They look at it as a huge loss to their freedom. The staff tell them what do - "sit here" "sit there". They are adults but treated like children sometimes. I feel terribly guilty and…
-
Area Agency on Aging assessment
Has anyone gone through a screening assessment with the Area Agency on Aging for Medicaid waiver in Florida? From what I understand, based on your answers you get assigned a priority for the waitlist for the waiver. If anyone has experience with this, I’d appreciate any advice or tips.
-
Interview a doctor?
Hello, Nice to meet you all- I'm looking to pick a new primary or geriatric spanish speaking doc for my Mom (75) with early alzheimers when open enrollment happens for Medicare. But, I wish there was a way to interview them first before making them her doctor. Is that a thing? Is it weird to do that? Do people do that?…
-
Seroquel vs Mirtazapine
I've been reading a lot on this forum about Seroquel. DH is on Mirtazapine, and I've wondered if Seroquel would be better. Has anyone here switched from Mirtazapine to Seroquel? When I asked our PCP about it, she said she could research it, but she also suggested that I ask the wonderful people here if they've had any…
-
Seroquel
The neurologist just prescribed seroquel. Any comments
-
We need guidance 🙏
We moved my MIL (83alz) out of her state and into our home in a different state 9 months ago. She is mid-late stage and still physically capable. She obsesses over 2 specific things and we haven’t been able to redirect or stop it. 1- she thinks she needs to go to the bathroom constantly. She goes back and forth from one…
-
Here's a new one I wasn't ready for
Dad was diagnosed with VD and onsight AZ almost 4 years ago. He has been in AL for the past 6 months awaiting "home renovations" and plans to move into the home when finished (depending on the day and time of course as it changes daily for him). He's doing really well and 99% of the time he absolutely loves it and the…
-
Project Lifesaver- free gps tracking watch
https://projectlifesaver.org/ Project Lifesavers is part of local sheriff’s offices. They give out free gps tacking watches to Alzheimer’s and dementia patients. They will take information on your loved one in the event he or she is lost.
-
Facebook Alzheimer/Dementia Group
I am curious if members here are aware of the Facebook group titled "Alzheimer's/Dementia Help & Support Group". A I have noted in other posts, I only learned about this forum later in my wife's condition but found it, and continue to do so, extremely helpful. Not being active at all on social media until very recently and…
-
What made you decide to place your LO in a SNF?
Hi, We don’t have money for MC or help at home. In fact, I stopped working early, depleted my savings and retirement, and my oldest son has been living with us and paying the bills for two years. Those might be enough reasons to place my partner in SNF—so I can work and my son can move on with his life. What brought me to…
-
Frustrated and overwhelmed
This is my first post. I am not tech savvy. I am so frustrated and overwhelmed with my husband. I try to be patient but I find myself getting mad at him and it isn’t fair.my heart knows this but in the moment I lash out. I am in NH and can’t seem to find a local support group that I can attend in person. I do think if I…
-
Which ID cards need to be with PWD
Which ID cards (like medical insurance card, state issued ID) ought to be in the PWD's residence for easy access? Likewise to be with person when going outside. Today, prior to a medical appointment, they were all gone, along with wallet. I asked, and PWD denied owning a wallet, cash or any ID. Fortunately, the medical…
-
Hearing, Yes or No?
It is too late for my dear wife as she left us a few weeks ago. As I often sit and think back over our path down the difficult road of AD, things pop into my head that I wish I had known or at least considered at the start. One of those topics is the subject of how much the suffering person can hear and also understand,…
-
Similar ?
I’m in my 40s, unemployed due to disability, and living with my 93-year-old adopted mother, who is in the late stages of vascular dementia. I don’t have children, friends, or a partner, so she is truly all I have. It’s painful and frightening to watch her decline, and I often feel crushed by the thought of what life will…
-
Father getting worse
I have an 82 year old father who is diagnosed. He has recently undergone chemo and radiation. He has gotten increasingly delusional and agitated. We have been associating it with the drugs. But he is so angry and lost. He cannot have a conversation now and is extremely abusive about things that do not exist. Is this normal…
-
Rapid decline since moving to assisted living/memory care
Hi! My dad was being cared for by his partner of 5 years. She recently needed surgery and we moved him to assisted living / memory care facility. He has been there for a week and we have noticed a rapid decline in his mobility (was walking with a walker) but now spending more time in a wheelchair. He has no prior history…
-
Advice for getting help for cousin
My cousin, with no immediate family, has been showing signs of dementia for over a year. I live in another state and cannot travel due to husband's health issue. I've talked to her friends and asked for their help,but no one wants to be the one to tell my cousin, or take her to doctor. Is there a good way for me to tell…