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I'm sorry for the download. I thought I was typing in another place... sorry. If I don't belong here
→ Shaun has joined S Shaun 16:46:51 first time here But I need help S Shaun 16:48:27 My step-father has dementia, Alzheimer's. S Shaun 16:49:58 we have him in a memory care unit nearby but its REALLY complicated. Not him being there. It's the urge to get him out S Shaun 16:52:29 ok going to stop with trying to make this…
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New To Forum. Mom has UTI that has progressed dementia symptoms
Hi all. I'm 34 & I've been my mom's primary caregiver since I was 22. For the past decade, she's had some memory problems (misplacing things, forgetting what day it is, forgetting how to navigate some driving routes, forgetting there's a boiling pan on the stove). Yet this was always managable with my help until recently.…
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funny
DH has started Kisunla. I told him we were going to leave soon for his infusion. He asked why we were going as he had enough confusion and didn’t need more.
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For profit memory care
Virtually all the MC facilities in Tucson are run by big nationwide (for the most part) companies. All of them no doubt are responsible for generating income for their investors, who expect returns of 8-10%, All of them have issues related to the need to cut costs so investors may profit. Today I heard of a local entity…
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Caregiver
I started caring for my ex-husband who was diagnosed with Alzheimer’s last August. We have been friends since we got divorced over 30 years ago. I sold my condo that I lived in for 23 years and sold his home and we have a mutual home now. I knew that this was not going to be easy, but I really didn’t know how difficult it…
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The weight of the world on my shoulders
Hi - I'm new to this forum. Warning - this is going to be a lengthy post as I just need to let some of this out** Thank you for being kind. I finally sat down and joined because I am at a breaking point with being a caregiver to my mother, a mother of two teen girls, a wife and the primary (and only) income earner in my…
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CBD and Irregular Sleep Patterns
Good Morning from sunny SoCal. Over the last couple of months my husbands has been getting up two or three times a night to "go to work" - which is actually sitting at the kitchen table with his newspapers and other misc stuff. I've tried melatonin and really didn't get any good results. Has anyone tried using CBD or THC…
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recognizing and treating UTIs
My DW is late stage 5, early stage 6. She is still able to toilet by herself, but her hygiene is deteriorating. I am doing my best to help her stay clean and dry, but success is limited due to lack of cooperation. From what I have read, I should expect UTIs to become increasingly common. How will I recognize when she has…
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My wife of 50 years diagnosed with dementia
Hello , my name is Neal and I'm reaching out because I'm so emotionally upset and tired . My wife was diagnosed last nov. In the first few months she was doing everything to be pro active .. Mostly what the neurologist suggested. As of now she has a lot of anxiety and is not eating and drinking right. I do have support…
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Pictures from Michael Ellenbogen's Trip to Africa
Attached are amazing pictures from Michael Ellenbogen's trip to southern Africa. https://164boatyardroad.imgbb.com/?sort=date_asc&page=2&seek=R44FPYWY Some of you know Michael from his time on this message board. For those who don't, Michael has dementia and has been a global advocate for people with dementia for many…
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Seizure
My DW (EOAD) had a seizure this morning while we were having breakfast. I had never witnessed a seizure before and it was very scary. Luckily I was with my MIL and she was able to call 911. She had a large contusion and we had a CT which found no bleeding in the brain. She is home now. My question is does having a seizure…
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no meds
My DW was diagnosed with dementia of the altzheimer type frontal lobe complicated by depression. The main concern that I have is I do not know how to help her take her meds. When I offer she either becomrs very agitated with the final statement that she is stupid or says she will. She was given 24 amocycilin by a dentist a…
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Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
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Words I never thought I would say
We've all said things to our partner with dementia that we wish we could take back — angry, frustrated, sad, words that they can't begin to understand the reason for. Fortunately they forget quickly. Lately I've said something to friends and family that I never expected to. I'm ready for my husband to die. DH has been home…
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New to group - brother closing in on his dx
It’s been a tough few weeks as I’ve watch my 64 yr old brother (I’m 62) get the dx work up for Alzheimer’s. He had a neuro consult today to review blood and he’s definitely starting treatment for Alzheimer’s asap. He’s like a twin to me and I’ve just felt so sad all day. I haven’t had this sense of grief since our dad…
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Vascular dementia
My husband has had several strokes and has VD. He was diagnosed a few yrs ago. I read many of the alz posts and I understand dementia shares many common behaviors and the ultimate end is the same but instead of memory issues, my husband presents more executive function issues. Difficulty problem solving, multi step…
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Never been so exhausted
I am new to this forum. My mom has alz and vascular. I have been taking care of her since she was diagnosed 4 years ago. My husband retired early so he could help me(last September) Over the past 1 1/2 years she has gotten progressively worse. I had no idea how much harder that it was going to be as time went on. I sleep…
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What to do in an emergency??
it’s me again haha. I play a game with my wife that I’m feeling ill and become unconscious I ask her what do yo do , by the time she even says I don’t know I could be gone. My question is what to do ? Has trouble using phone or remembering numbers or even where those numbers are , even 911 is an issue. She’s very bad with…
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When Does Long-Distance Caregiving Stop Working?
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Does It Matter?
My mom has been living at a Memory Care Facility for a little over a year (but has had dementia for approximately 8 years) and while she still knows people that have been in her life for a long time, she essentially has no short term memory and is "stuck" where she was about 8 years ago (living in the same house, my dad…
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VENT - Pooping Confusion
DH has been in disposable briefs for quite a while. I watch him like a hawk when he is my eye sight to get him to the bathroom. And he has gotten much better at telling me when he feels the need to go. This morning DH let me know that he needed to go to the bathroom. I got him successfully to the toilet. He later told me…
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@harshedbuzz
I believe it was you who posted a link to a great article about preventing falls. I have been searching for that discussion but I can't find it. Can you point me in the right direction? Iris
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Not sure
hello everyone. I’m new here. I thought I would try this site before giving up. I joined another site a few years ago when my husband, the love of my life first showed signs of cognitive decline. There was so much negativity on what will happen and people were very harsh. I just wanted support. I got very depressed and…
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Refuses to brush teeth
Over time it’s gotten more and more difficult to get DH to brush. I first resigned to once a day, moved it from bedtime to morning when his mood was better, put the paste on both our brushes and hand him the brush. He knows what to do but now just gets mad and throws the brush in the sink because he “hates doing that and…
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BIBLE VERSES TO INSPIRE CAREGIVERS 4/4/25
THANKFUL, INSPIRED & WILLING Ephesians 2:10 Good News Translation “For it is by God's grace that you have been saved through faith. It is not the result of your own efforts but God's gift, so that no one can boast about it. God has made us what we are, and in our union with Christ Jesus he has created us for a life of good…
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Moment of Being Overwhelmed with WHY?
Please no advice! Just a listening ear is what I need. I am sitting at a Panera alone with an iced tea. I fled our home—literally—-a bit ago because I could not take another moment of being in the presence of DH with mild cognitive impairment from ALZ. I feel utterly alone in this moment and overwhelmed. I have no one to…
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Getting better, wants to come home??!
We moved my mom (75) into memory care assisted living in September. At that time she was wandering often, trying to hurt herself, not sleeping, and needed to be watched 24/7 to stay safe. The first 3 months in MC she was confused and generally accepted where she was living. She was depressed and not eating so was started…
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Taking away financial agency and bvFTD
Hi all, My dad is 77 and was diagnosed with bvFTD a few months ago. He always handled all the finances and rarely spoke of money to my mom. When I realized something was terribly wrong about 2 years ago, I started the process and now (thanks largely to advice on this board!) I have DPOA and health care proxy for both my…
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Urinary urgency
My sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and aMy sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and a half ago. She has always had problems with urgency, but now she wants to go every five minutes. She had a number of falls so now…
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Questions: Cleaning up poop with shaving cream
* Does it matter what kind of shaving cream I use to clean up poop? * Does shaving gel also work to clean up poop? * Should anything menthol be avoided? * Do I just slather the shaving cream on, then wipe it off? * Do I rinse DH after wiping off the shaving cream? * Can shaving cream also be used for the bathroom clean-up,…