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MC 2nd placement
Well, he didn't even make it two weeks. I received a call Friday night that HWD tried to pull a female resident into his room and pushed another one to the floor. I asked where we are going with this. The staff member said they will just document it in his record and were calling because they are required to notify me. I…
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Stage 5
My DH is now stage 5 cognitively and memory wise. He is still able to attend to his personal care. Our specialist said this stage can last 6 years….can you share your experience in terms length of time and behaviors? DH has had a couple of angry outbursts where he kicks us out the house, no recognition of me for over 6…
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Should a parent know they've been diagnosed with Alzheimer's?
Hello, My 84 yr old mother was diagnosed with pre-dementia in August 2023 and I'm trying to navigate how to best help her. My greatest challenge is that my 3 sisters have taken advantage of my mother's condition and changed her PoA and trust. Additionally, they have kept me away from my mother and any of her medical…
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How much do I tell him
My DH is in moderate stage but losing adl skills. He does not think he has any problems. I was diagnosed with pancreatic cancer in 2020. I have been doing good but now it has gone to my liver. I am worried sick about him. He has no short term memory. How much do I tell him? He won't remember and if he does he will just…
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What Just Happened??
So we ended up taking my FIL to ER last night because he was complaining that he had chest and abdominal pain, he As we waited in the ER for his blood tests and scans, he was starting to get restless because he said he was no longer having pain and was trying to leave. His blood tests, CAT scans and vitals turned out to be…
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I read this at my dads funeral yesterday.
its been a full week since he passed away now. The funeral is over now all that’s left is to pick up the pieces and start our new normal.
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Visits and a delicate and beautiful lesson
So after a (fantastic) vacation I came back to kind of a mess. While I was gone my mom had Covid, which combined with my absence meant she struggled. I was still so glad I went because I came back refreshed. Our first few visits were rough. Not gonna lie, I dreaded it. Nothing others haven’t described: “I’m ready to go…
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Curious?
Interesting to see the various venues this disease takes! ! Finding lately DH is now using my towel when he actually takes a shower. Choosing the soup I like to have even tho he has never liked it in the past, wanting to sit where I usually sit either at the table or watching TV? What??? Explain!
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I get afraid you're not coming back
Ending a visit remains very, very hard. My partner said this to me today and it about broke my heart (again). We had tried a white board saying when I would be back--but it didn't register, even my name. I tried putting pictures up--of me, of her parents, of us together---but she takes them down. I would love any…
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Support Group
Hi, This is my first time posting. This may seem like a silly question, but I'm looking for some support and I don't know if it is best to reach out to my local ALZ caregivers support group or the support group in my Dad's state. Which would provide me with better support and resources? Does it even matter? Also, I don't…
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Stage 8
MIL has gone hone. No more suffering thank God! Pretty sure I could add some more sub stages to stage 7. I pray your LO never has to go that far. Thank you all for your time and guidance. I'll be back.
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I want to still be functional, helpful. Needed
So my hubby had to take over our finances and I get that. I messed things up but he still left me with my Sam's account. Q e order two times in a year. We work together on the list. Part of the delivery came in today and it seems I ordered many orders. I don't remember and was positive I didn't but he checked and I did. I…
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Newbie
My LO is my spouse. He is only 71. He was diagnosed at the high end of MCI exactly a year ago with a prognosis of full blown dementia at an estimated 5 years. I’m scared for him. My adult children don’t want to discuss the challenges I have, even though they have read all the information I have received about the…
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LO on Hospice - Aide won't Give Morphine
Hi, This is about my dad. He lives at home with a wonderful aide for the past two years. He had a heart attack on Saturday. I asked the aide to take the POLST form. she did, but didn't give it to the EMT. They gave him something to make his heart beat. I put him on hospice on Sunday, these are his wishes and we spoke about…
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Norovirus outbreak at my mom's MC
My mother is 86 and lives in MC. I just got word that there is an outbreak there at her facility and that my mother is involved. I hope it passes soon but concerned how this could affect my elderly and frail mother.
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Wife refuses medical help
After 3-4 years of increasing memory loss, Finlay was able to get DW to her PCP (prescribed sertraline for anxiety) and neurophysiological testing. Diagnosed with presumptive AD but she is in denial and refuses further follow up. Related: about 12 months ago she began to not recognize me. Not sure what to do
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Family meeting
Hello, I’m caring for my mother who was just diagnosed with dementia due to Alzheimer’s. I have a big family and I’m considering having a family support meeting with my mom’s sisters and my siblings. I want her to feel supported and I also want support in getting her to stop driving. I don’t want her to feel bombarded or…
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Telling the truth
I have put my husband on the waiting list at a small number of memory care residential homes. He is probably in early stage 6. As I read the discussions here, it seems most people who place their spouses in memory care use a ruse to get them there. Is there any reason why I can't just tell the truth to my husband? The…
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Mom is at peace
Her journey is over. She passed peacefully on March 4th. Her oxygen dropped drastically as her body shut down. She was on hospice since December 2021 after being in MC for 6 months. She was in such great hands and well cared for at the RCF she was in and for that I am eternally grateful. She was there for 22 months which…
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Lawyer suggested Medicaid Divorce?
we Have only been married 6 years, no kids. I am the provider of the two of us. Husband needs extra care but he does not qualify because of my retirement accounts. He does qualify as he is under the asset limit. Married in the Catholic Church I originally did not to go this route. But I have found out that it may be my…
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Aricept
My DH had a Dr’s appt today. I gave the doctor a list of his behaviors - hallucinations, delusions, episodes of anger, not knowing who I am, waking up at night and unmaking and remaking the bed for over an hour, etc. We are starting his 10th year since diagnosis. The Dr prescribed Seroquel and Aricept. I told the Dr that I…
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Fear and Anxiety
Fear is real...Anxiety is what your mind imagines. With Alzheimer's the two combine and become one. Meet your loved one where they are; not where they were and not where you'd like them, because they aren't there.....they are where they are and they are scared NeverFearTheDream JoyInAlzheimer's
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Needing More Care...sliding down the slope
Joy's journey is taking a definite slide down the slope and she simply needs more help NeverFearTheDream.....
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Strategies for dealing with social isolation and loneliness
I am passing along this workshop sent to me by Michael Ellenbogen: On April 23, 2024, from 2:00-3:00 p.m. ET, the National Alzheimer’s and Dementia Resource Center will host the webinar, Strategies to Address Social Isolation and Loneliness for People Living with Dementia and their Caregivers. A description of the webinar…
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Finding a Neuro psych for mom
I live in Staten Island, NY and it has been a struggle to find a Neuro psych out here. Mom is on a 12month wait list . Until then I watch her forget so much about her life, it's so heartbreaking.
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Feeling Attacked by Well-Meaning Friends
My Mom was diagnosed with Alzheimer's almost a year ago now. She lived alone and was really not doing well and she lived 100+ miles away from me. I took some advice and found a really nice MC facility and (thank goodness) put a deposit down. I dreaded the thought of driving my Mom 100 miles to the MC I had reserved for…
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Mood stabilizers?
Has anyone been placed on mood stabilizers? I have had Abilify added to my medications and the neurologist is suggesting the dose be increased. Apparently I am getting more moody?!? This crap is scary, I don't remember being mad or mean or moody. I hate when someone says I did this or sad that and when I try to remember…
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Trying to Capture my Grandma's Memories for Her and the Family
My grandmother has mild dementia that's getting worse and she's slowly losing her memories. I'm trying to use my engineering background to create a sort of Scrapbook/Memorybook for my grandmother and for my family to enjoy. My goal is to design something that can help my grandma capture her memories by uploading photos to…
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Trying to learn how to navigate these discussions
Hi all, It's wonderful being here, and feeling the love and respect you all have for each other. I hope to become better conversant in the language and acronyms used in discussion threads so I can more easily understand. We just started this journey in October 2023. Found out in November 2023 that my DH's primary care doc…
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To the new members
How are you all doing? The holidays and the end of the year are here again. I hope everyone is spending time as they wish. I enjoy my own company, and relish quiet time. Merry Christmas and Happy New Year to all! Iris