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Freaking out
I read that 1/3 of caretakers pass before the PWD goes. I depend on my mom to take care of dad until he dies. But my mom also have beginning signs of Alzheimer's and don't know how it will progress. I don't know what to do if either one passes away and how I can step in to take care of them when their conditions worsen.
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Smoking
My mom stopped smoking in January, not because she wanted to but because it just wasn't safe so no one would buy her cigarettes' any longer. In early February she went into a SNF, there for 9 weeks. She came home and was doing find without cigarettes. It has been 6 months and she hasn't had a cigarettes. She had tried 3…
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Resistant to redirection or distraction
Does anyone have experience with redirection or distracting not working? Specifically, PWD wants to wash takeout containers before eating. It's not just rinsing, but washing with soap, even paper containers. These attempts don't work: It's not necessary to wash them I'll do it myself, later You can do it later Please go…
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Getting a diagnosis for someone refusing to notify a doctor
New here! My mother doesn't have a diagnosis yet--she's been refusing to address her memory loss issues or tell her doctor what is going on. My stepfather has been helping her with routine tasks and even going with her to doctor's appointments (for unrelated issues), which has masked her loss of cognitive function. Earlier…
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WRONG DECISION
My 88 year old mom has dementia, age related memory loss, depression, stubbornness, and selfishness. She lives 1000 miles away from me and decided to try to live in the same town as me. She moved from her home with daily care to a supported living apartment. She's miserable being here and I'm miserable having her here but…
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Getting angry/firm with mom
My mom is in late stage dementia. In SKN memory care. She cries and cries. She is anxious. She is on meds of course, they never seem to really work very well. Here's the thing, What happens if we get in mom's face and say, just stop crying! I watched someone else do this with their mom and wondered, does that really help?
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Didn't see Mom now for two weeks
Hello, I usually see my Mom every week. However I started a new job so last week I couldn't see her and today I locked myself out at the gym and needed an employee to cut the lock after I tried numerous times to try to unlock my lock. Why am I starting a new discussion because I can only see my Mom before I go straight to…
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Saw my Mom Today
It's been 8 years that my Mom is in a NH. So today, I spoke to her like it was her first time meeting me. I told her who I am and that I got a haircut, I asked her if I looked good. Can you believe she spoke and said yes! We also prayed together, I of course pray only. This desiese is strange but I know it's just a good…
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Alf soon
Mom is 83 and doesn't have a formal diagnosis yet, but Definitely some sort of dementia. We have a neurologist appt in Sept. Due to her memory, she needs help, with meds, food, and some Healthcare. After her last surgery I finally got her agree to move to ALF, Dr' all agree. She's supposed to move in July 12th. She is now…
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Is there an open forum for people to speak about their experiences?
Hi there, I’m Jen and my daddy has vascular dementia after suffering a stroke last year. I would like to find a place where I can talk with people in similar situations so we can share our experiences and support each other. Does anyone know where I can find such a forum please?
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Product for missing the toilet?
hi all, my dad has moderate/advanced ALZ/Dem and is in AL. He is consistently missing the toilet when he urinates, and then becomes extremely irritated because he thinks the toilet is leaking. I see on Amazon there are many disposable “pee pad” products for around the base of the toilet, has anyone had luck with these?…
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Teaching dad to care for mom
My dad believes he is ‘caring’ for my mom (who has mid-stage dementia) but I disagree. He/They want to stay at home but his version of care and conditions are deplorable. I want to educate him on what true care actually is. Any recommendations on organizations or services to do so? In home help has been vehemently refused…
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what does this mean & what are next steps
Hello, my LO is starting to exhibit physical challenges that I think are related to her ALZ diagnosis. I noticed maybe a month or 6 weeks ago that every now and then I would see that she would shake. So we bought plastic plates and cups for the house but she refuses to use them. Well this morning she couldn't manage a…
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Tax prep
My dad just called me and asked me to help with filing his taxes. I'm going to gather as much tax paperwork and see a tax preparer who might do it for free, if possible. I knew it was a matter of time that he would admit he needs help.
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Lacanemab experience + Patient Experience
Hello valued forum -- we are looking for existing lecanemab users and families - who can share their experience. my mother is approved and considering treatment. we have plenty of medical input and data - but looking for human stories and lifestyle comments. welcome a discussion here or offline too! tx, jennifer
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Risperidone for ALZ
I'm seeking advice about starting my 76-year-old mother, who has Alzheimer's, on Risperidone. I’m aware of the many risks associated with this medication, and I’m struggling to make a decision. From my research, it seems like Risperidone can be a gamble—it can either work as a miracle drug or potentially cause…
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Advice on death
Mom has some Dementia, and is moving into ALF in 2 weeks. She is very stressed about this so her dementia is pretty bad right now. We took her cat for shots, vet said he will pass any day now. I am so new at this on how to communicate. I know when it happens she will know, but what about 4hrs later when asks. What do I…
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CBD gummies
so I’m caring for a mother that has Alzheimer’s and if anybody use CBD gummy to help with anxiety, not the kind with THC and if so, any success and if so, what kind?
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Dad doesn’t like any new doctors
Have any of you also experienced your ALZ/Dem parent disliking anyone new caring for them? My dad has moderate/severe ALZ/Dem and is saying “I don’t like them” (and unable to give a reason why) for every new doctor, nurse and/or CNA he meets. I know it is common for folks with ALZ/Dem to feel uncomfortable with anything…
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Dealing with my mother’s delusions and anger
Hi. I am new to this group and fairly new to caring for my mom who was recently diagnosed with dementia. A couple of months ago, while on a day trip with her husband and sister, she sort of snapped. She was riding in the backseat while her husband was driving and her sister was riding in front. My mother became withdrawn…
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How do I handle the pets?
Hi, I’m new here. My husband and our 3 small kids moved in to help take care of his mother 3 years ago. She has dementia, suspected to be Alzheimer’s, and she had a stroke last year. Recently we have see a big decline in her ability to take care of herself and her pets. She maintained a lot of autonomy at first. With cues…
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How to manage with a caregiver
My mom is 79 years old and is in advanced stage of dementia. She has urine and bowel incontinence and hence needs to be cleaned very often. I have kept a caregiver, but my mom refuses to accept her ...for cleaning her, bathing her and nowadays is so agitated..always screaming n asking her to get out. The caregiver is very…
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How much to share with loved one
Hi. I am new to this group, and I have recently realized my aunt is farther along with memory decline. She has been diagnosed with Mild Cognitive Impairment. She has allowed me to assist with a lot of her healthcare needs and some bills (like internet/phone). But she told me I absolutely could not do anything with her…
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new to this forum
Hi! I just discovered this forum and wanted to introduce myself. I live in Maryland and coordinate care for my mother who lives in Florida. I spend one week each month (for the last 14 months) in her home. She has 24 hour care by 4 amazing caregivers. I have constant questions about optimal care and how I can help. No…
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Just need reminding that I'm doing the right things for dad
So, based on the advise of this community and my own ability to see things more clearly, I have moved forward with holding a spot for dad at an AL community. I picked this place, as it has AL (which I feel is most appropriate for dad currently), but also has the MC part of the building where he can be transitioned to when…
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Dementia vs ALZ
Hi! Are there any behavioral or communication differences between the two? Is it possible to have a little of both? My mom hasn't been formally diagnosed with ALZ, just dementia, but apparently, her doctor thinks she's having some crossover symptoms. My 90-year-old mom has pretty much decided over the last couple of weeks…
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mom thinks I'm her sister etc.
My sister and I are adopted. So the latest focus for my mom is asking everyone where her kids are. She knows I'm Jennifer, but thinks I'm a different Jennifer than in all the pictures. She thinks her kids are still little girls. And she thinks I'm her sister. Yesterday she called my aunt and cousin to ask who took her…
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Not sure how to answer.....
My mom has LBD and she is constantly asking me if my dad is her husband. There are times I say yes he and she says well nobody told me. I know that you are suppose to meet them on their level, but everyday she asks me if the "man that takes care of her is her husband" . I am afraid if I say no that she will get scared and…
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Bathroom issue
My dad, is double incontinent. if he goes out, and we have to bring some pull-ups in case of accidents, which bathroom (men or women's) should we go to change him at if we (mom and me) are women?
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Bible Verse to Lift You Up 6/24/24
GOD’S FAVOR FOR THE RIGHTEOUS Psalm 5:12 NIV "Surely, Lord, you bless the righteous; you surround them with your favor as with a shield." James 5:16 NIV 'Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective." THINK ABOUT THIS…