-
In Home Respite Care
I am the sole caregiver of my soon to be 98 year old mother, who was diagnosed with dementia 14 years ago. As I'm sure most of you are/have been in the same situation, I've been unable to attend major family events (births, graduations, funerals, parties, etc.). Over the years I have contacted many…
-
So Many Emotions
It's finally happening. I'm leaving my mom tomorrow after brunch. I'm driving 1000 miles back to my home. I'll have been gone a measly 6 weeks but it seems like a year. I can't wait to get back to my life. I'm terrified, so so sad, and feeling very remorseful. I'm also looking forward to a break from the responsibilities.…
-
I believe my mother may have Alzheimer’s.
My dad is 82 and in good health. My mom is 77 and my dad and I believe she has Alzheimer’s. She will not leave the house and refuses to see a doctor. She sleeps throughout the day and gets up around 7-8pm. She argues with my dad and blames him for everything she’s feeling. This goes on almost every night until 4-5 am. She…
-
The move to Memory Care....'Hotel California'
The move had to be made. That doesn't make it any easier.
-
Seeing the end but not
I’m such a mixed bag of emotions. My father is the most resilient man I know, and I mean very resilient. Every time the docs have said he won’t overcome, he does, whether it’s walking post stroke, body self healing brain bleeds, malignant stomach tumor that was supposed to be the end within a matter of months but never…
-
Coping with a father with dementia in my 20s
At the behest of my therapist, I am looking for the support of others going through similar circumstances as I am. I feel incredibly alone in my slow grieving process for my father, who is 68, and has been dealing with EO dementia for the last two years. I feel completely out of my depth as a 28 year old person without the…
-
Help help help
I have a pwd that fell in February which caused an L1 compression fracture. She had surgery then went to a skilled nursing facility. When insurance stopped paying and the facility said it was not safe for her to be home alone, I moved her to assisted living. All she wants to do is to go home. The professionals at the…
-
When is it time…
Hi all! my mom was diagnosed with late stage Alzheimer’s 2/23. Was a shock and so I moved my two kids in to her home and didn’t realize the extent of it until then. Well here we are a little over a year later and her progression has become severe. I quit working 8 months ago to take care of her 100%. Up until recently she…
-
Whether to quit my job.
I am right now on fmla to be taking care of my dad. My question is the I’m 60 and the cost of paying someone will cost more that my salary per week. Don’t know whether to quit after fmla is over and just take care of dad myself. I have moved in with him last July.
-
Suprapubic catheter
I'm thinking to have my dad try a suprapubic catheter as opposed to a Foley catheter. I will talk to his urologist next month about it. My dad is unhappy changing his catheter every month. However, I read that he still needs to change the suprapubic catheter every 4 to 6 weeks. But is it also painful? What if he gets an…
-
cross-post: looking to trade visits with someone in Nashville who's parent is in San Fran Bay
hi there this is my first post and I’m so grateful to be here and for this community. My dad has recently been diagnosed with mild cognitive decline though once he quit drinking, I’m hoping he gets that diagnosis revisited. I’m exploring alternatives to the horrific options that I see in terms of forcing him into memory…
-
Mother is undiagnosed and won’t go to doctor or allow anyone in to help
my 84 yr old mother has been deteriorating years and she lives with my 92 yo father who cant remember anything but does still drive and do groceries My mother is sleeping almost all day and in a nightgown with more holes than cloth until 7pm every day and is a hoarder. Lately there has been food out all over the counters…
-
Long Term Care Policy Eligibility
How "bad" does someone's dementia/cognitive impairment need to be before they qualify for long term care insurance? My mother's physician seems to believe that a patient needs to be almost completely incapacitated and living in a home before he would certify that she is chronically ill. Meanwhile she cannot drive anymore,…
-
Dad Going Into Hospice
Condensed Verion Weve gone through so much concerning my Dad since last summer, but I'm going to try and keep this brief. My Dad is 70 and was diagnosed with Alzheimer's last summer. He's in memory care now. He refuses his medication (even for high blood pressure and cholesterol) and won't eat. It's not due to lack of…
-
Mom fell again. . .
And fractured her c2, has a brain bleed and is now on hospice back at her MC. She's conscious but eating and drinking very little. She's on liquid diet for swallowing. I take her little dog to see her every day as well as bring her a Coca-Cola. She likes that and I help her drink it from a straw. I don't think she'll make…
-
Tips for AL transition for LO
My sister and I just went through moving our mother (almost 80) into AL a little over 2 weeks ago. We are feeling the guilt and angst that so many have shared but are realizing just how much she needed to be placed. She has been overwhelmed and confused and gets lost in the facility quite easily. We have her on meal…
-
Helping my Dad care for my Mom
My Mom was diagnosed years ago. We were told many things to expect, and prepare for. Recently, my mom's condition started progressing more rapidly. She barely eats anything, she says everything tastes unpleasant, and it is very hard to get her to consume food. She has lost a lot of weight, and she is now very frail and…
-
It’s happening quickly
My dad’s symptoms are the following: •Can’t hold a conversation. Always asks who we’re talking about. •Doesn’t remember friends & family members •Stumbles sometimes but no falls yet. •Forgot that yogurt goes in fridge. •Did not remember my son in a photo. I’m concerned that he has advanced significantly to another stage,…
-
Wondering the stage
Over past 2 weeks lo has been picking poop out of her depends. She also places it in the depends bag with clean depends and in clean baby wipes container and other random places. In IWhat Stage does this occur and is this something people with dementia do??
-
Struggling with guilt/unhealthy relationship with parents
My mom is 70 and has dementia…my dad is her primary caregiver but he is also somewhat in denial about how rapidly her condition is progressing (initially she was diagnosed with MCI - Mild Cognitive Impairment - about three years ago, and they are reluctant to get a more current diagnosis). I'm in my early 40s, work…
-
Communication help with angry paranoid delusions
Hi, I'm new here. I'm in a somewhat unusual situation in that I live on the25-acre property of a friend with dementia. We've been friends for 40 years. When I moved into the rental cottage up the hill from his house, I could see the signs of short-term memory loss. Since then he's declined a lot especially rapidly in the…
-
Bitter Sweet
Today is my LO's last day in her house. She doesn't really understand time any longer so she won't be upset until that moment of clarity and understanding occurs. I've lived with her here in SC for 1 month now. I'm 1000 miles away from my home. I just want to go home to my life and I feel relieved that day is almost here.…
-
Mom had dementia, now dad has it.
Hi, my mom passed on about 6 years ago after dealing with early onset Alzheimer's. Now my dad has been diagnosed with it, and I just came here for some support because, although he's not in the advanced stages yet, I'm starting to see changes in his memory. It reminds me of what my mom went through and how I felt when she…
-
Concern for parents mom is showing memory loss
My parents still live in thier home. They are able to do thier adls and drive. My dad is 89 and mom is 84. My mom is showing memory loss angry and not able to navigate reading mail and paying bills. I am not sure what to do next week. I have been avoiding getting too involved with Dr appts etc. We work hard on keeping them…
-
Dementia vs stage 4 lung cancer - advice needed
For those who have experience being a caregiver for someone who has significant co-morbidities, could you help me understand how to address my MIL’s changing needs? MIL is almost 92. She has had lung cancer for 10 years. The oncologist believes the tumors are very slow growing due to two immunotherapy treatments 7 years…
-
Feeling down
Might have to move my mom. Lots of problems at her place. Three more people moved out. She’s deteriorating. Looking at other places, and meeting with the director next week. She went to the ER last Wednesday again (long story, she’s fine) and there was no follow up, except by staff who really do care about her. Their…
-
What do I do?
Hello everybody. I'm from São Paulo Brazil. My mon had herpes zoster in her eye last year and had some mental problems afterwards. Her geriatric told me she was in the early stages of Alzheimer, to which I wasn't prepared. She lived by herself and did all on her own. After the herpes, I brought her to live with me. In the…
-
First time out
Today I took my mom out for an adventure from her LTC facility. She has been there for 3 weeks and I thought i would see if she could handle going to familiar places with me. Wrong,,, she did not recognize our house which I am glad for, since we just needed to just stop in and drop off the dog. She had no clue this was…
-
Looking for tips with sundowning episodes
Hello everyone, very glad to have found this forum. So my mom’s dementia has progressed fairly fast since 2022. For the last month or so her sundowing episodes have been overwhelming. I would appreciate any tips and tricks you can share. Thank you in advance. 🙂🙏🏻
-
Grieving my dad
Hello everyone, I'm new here and I hope it's ok for me to post here even though I'm not a caregiver. I'm 24. My dad was diagnosed with frontotemporal dementia almost 6 years ago, during the summer between my freshman and sophomore years of college. My parents are both in their early 60s and my mom is my dad's primary…