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Need advise
New to this platform. My mom has been living with me for 5 years. I discovered all the symtoms of memory loss almost two years ago. I have 4 siblings but receive very little help from one and help when needed by the other. Two siblings refuse to have contact with my mom. I am heartbroken bc of this. I don't know where to…
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Personal Stigma
Why is the stigma associated with mental health, dementia, Alz, etc. so pervasive? It affects all of us, even those afflicted……
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Can Anyone share positive stories of your LO moving to Memory Care?
I am curious to hear positive stories about Memory Care, if anyone here has any? I am waiting on that phone call from MC to move my mom into the facility. Mom is having big delusions that really stress her out at home and I wonder if she will benefit from the activities and positive distractions at MC ( I am trying to be…
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Need to vent
So mom moves into ALF tomorrow. She just called me screaming and crying. She said I can't wait to lock her up in a home and get rid of her. I know this is coming from fear, but still not easy to hear. The ALF is gorgeous, looks like a hotel , I would live there! Tomorrow is going to be worse. I just hope she doesn't give…
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Just needing to rant
Since my stepmother passed away a year ago, husband and I have been caring for my father with early onset Alzheimer’s. We are his only caregivers because my sister lives out of town. I have really been struggling lately dealing with the way my dad talks to me. As my husband says, “he stays on your a**.” Any time I try to…
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How to support my Father who is caring for my Step Mom with Alzheimers.
Deep breath, and here I go. My Father turns 67 in 2 weeks. 10 years ago he decided to take early retirement because my step-mom [will call her Mom past this] was starting to show signs of memory loss, the doctors said it was too early to diagnose anything, but he wanted to get as much fun and travelling in while they could…
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working at dad's house and sorting through things
Hello dear ones, We're going to dad's to work on things at his house beginning tomorrow. This time my spouse is joining me, thankfully. It's a buddy system task, for sure. I think it was HB who explained it as a uniquely sad task. Agreed. And several of you mentioned having someone with me if possible when I posted about…
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CT Scan Finally
So, here are the results from my dad's ct scan: FINDINGS: The ventricles are normal in size and configuration for age. Enlarged bifrontal extra-axial spaces secondary to bifrontal cortical volume loss. There is no acute hemorrhage or mass effect. The gray-white matter differentiation is preserved. There are no extra-axial…
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My dad is 63 with Early on set
Just wanting some support. My dad was diagnosed with Early onset Alzheimer's in September of 2023 and it seems that it is progressing very fast. He now needing help putting on clothes, seeing things that are not there, moving his hands like he is fixing something in the air, bothering well, and struggling with holding…
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Tips for What To Say
So…..my mom has failed to recognize me as her daughter. She refers to me in the third person, "Daisy," does this or "Daisy," does that. When she asks me what "my" name is, I say, "Daisy." When I give her my last name, of course, it's the same as "her daughter's." When she asks me about my birthday, I say the same one as…
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undiagnosed
My MIL exabits many symptoms of dementia. None of the adult children have medical POA. The FIL and MIL have medical POA on each other but that is all. Both are just under age 80 and FIL has physical ailments while MIL has dementia symptoms. I communicate with their primary. Due to HIPPA it is a one sided conversation. All…
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When to go from AL to Memory Care?
Wondering how we determine when the right time is to move mom from Enhanced Assisted Living to Memory Care. The plan is to move her to the Memory Care wing at her current Sr Living bldg where she is in the Enhanced Assisted Living setting. She has always been an anxious person, is currently on Zoloft and…
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MC Care Plan meeting tomorrow/Monday afternoon
Hi community, I am seeking feedback on the notes I've made for Dad's Care Plan meeting at his new MC Community tomorrow. If I am out of line I am inviting you to point this out to me please. Thanks in advance. Notes below: Sometimes it is hard for me to know when it's Alzheimer's talking and when it's really what Dad is…
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Hospice denial / appeal
Hi there. My name is Angela and we are caring for my father in law who is in the late stages of Alzheimer’s. He is on a level 7e on the FAST scale. He is 100% bed ridden, doesn’t talk, sleeps 15-19 hours a day, in a diaper 24/7, cannot feed himself and starting to having some troubles swallowing. He has been on hospice…
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Disqualified from hospice
My dad was just put on hospice. I know some of you had LO that were on hospice but was eventually discharged. What would disqualify a person from hospice?
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Approaches and ways of handling Memory Care upsets with Dad
Hi Community, I value your experiences and your input. My learning curve on these issues is pretty steep here. A few updates and then some new questions for you. Dad's transition to a 2nd memory care (b/c it is in the same state where I live) continues to be challenging. I now have the Alexa, so at least that has paused…
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How to say "No" to adopt a new dog
Hi everyone: I'm really struggling with this one. My MIL's beloved dog passed away two weeks ago. He had been getting sick over the past weeks and she never identified that there was something wrong with him. Example: he had a huge tumor on his toe that burst open and bled everywhere. She only cleaned the blood on the…
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Mom’s Dementia
Hello, I am new to this site, but felt it’s time I should join to get help and insight. April 2020, my mom got Covid Pneumonia. Prior to this, she was getting forgetful and accusatory. Mentioned this to her doctors, but they said it was age. After a week stay, brought her home from the hospital. She kept saying her…
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When Will I Learn?
My brother is awful! He agreed with the AL facility to put my LO into MC before giving her ample time to emotionally and cognitively transition from home to institutionalize care. (3.5 WEEKS) JUST TOOO QUICKLY Assistance depends upon the amount of staff a facility has. More staff equates to more assistance. Less staff,…
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Anosognosia - Mom refuses help
I am the only living child and live on the other side of the country. Mom (89) has lived on her own for about 5 years since my dad passed away. During that time i have been paying her bills and doing as much as i can from across the country. I first noticed my mom starting to experience memory lapses about 20 months ago.…
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Genome testing
Moms doctor has suggested genome testing to see what medication she will respond best to for her anger and anxiety. It’s just a mouth swab and she said it would be covered by insurance, so we are going to give it a try. Have any of you had this done for your LO? Was it helpful?
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Newbie feeling alone
Hi everyone, I'm Catherine. I live in California. My Mom is 89, has MCD and currently lives in South Carolina. We are at the tail end of a 6 month process of me taking over everything and moving her to a CCC close to me in CA. I can see the light at the end of the tunnel for this part of the process, and will be so…
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Appointments
I am my mom’s caregiver. I am not looking for medical advice, just looking for different views. My mom is almost 85, later stage Alzheimer’s. My question is, when do you start limiting all of the extra doctor appointments? Example: she has an annual appointment with her vascular doctor. They test the pressure in her legs.…
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Primary Geriatrics PCP prescribed Lexipro
Hi all, My dad’s primary care Dr prescribed Lexipro for his looping thoughts and anxiety. anyone have an experience with this? How were the results did it help at all? Dr said she has had good results with her other dementia patients with it for anxiety.
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Transitioning to MC
Would any of you mind sharing your experiences broaching the subject of moving your LO into memory care? I will be having this discussion soon and want to hear the good, bad, and ugly!
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My father with dementia lost his wallet
Hello everyone, my father with dementia has lost/misplaced his wallet. The cards have not been used since Saturday which was when he made a transaction. I got here today and torn the house apart can’t find the wallet. The bad thing is both his IDs were in there and we are scheduled to fly out Saturday. I’m now having to…
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My mom has undiagnosed cognitive impairment
Hello, I'm new to the discussions. My mom (77) is undiagnosed, but it is obvious she has what we believe is some form of dementia and has for years. She almost never remembers conversations we had, and she is also showing gaps in her long term memory. For instance, she didn't know my husband of 22 years had siblings and…
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Weird (maybe?) idiosynchracy
My 90-year-old mom with MD consistently loses her undies! I don't know how many pairs of panties I've purchased in the last year, but it has to be well over 2 dozen. She obviously has no explanation and forgets how often I buy them. I suspect some incontinence, and maybe she throws them away. Not sure. Has anyone…
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Working with an uncooperative caregiver/parent
My dad is the primary caregiver of my mom. My mom is in the middle stages of Alzheimer's and they are living alone in their own home. Dad refuses to share medical information regarding mom or himself (my siblings and I have seen a decline in his cognition, behaviors and abilities). Dad is unable to speak due to Aphasia,…