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Hearing Aid Guidelines - for reference
A very long time ago, while we were Peer Volunteers, Jo C suggested I write a standing post for reference about hearing loss and hearing aids for the person with dementia. Untreated hearing loss is a known contributor to cognitive, social, and medical declines. It contributes to social withdrawal, increases fall risk, and…
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Losing my mom...
Hello. I'm 100% new around these parts, but I was encouraged by the counselor I spoke with at the Alzheimer's Association to post my story here in search of those with shared experiences. I (53) live in Texas with my wife, and my mom (83) lives in Miami, FL. Since moving to Texas in late 2012, I've traveled back to Miami…
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an awful lot of tears here
Hello dear community, So, um, I am thinking that the amount of tears I am processing through might be considered excessive by others. I am in a support group and in counseling and I have medicines on board as support. Some folks pointed out to me that I clearly need to talk this out a whole lot more than most people have…
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Progression with acknowledging and remembering
Hello everyone, I have noticed a progression with my father’s memory loss. It seems to be getting much worse in the last 3 weeks. He can’t remember to much from one instance to the next. For example he will go to set his keys down and next thing you know he does t know what he did with them and now can’t find them. He…
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What to do with Dad
My parents (Mom is 85, Dad is 82) moved into an independent living apartment (after living in their home for about 53 years) about a year ago after Mom's mixed dementia became too much for Dad to handle. Mom had a stroke 5 years ago and Dad has relied on me to do all appointments, medical decisions, etc). I help as much as…
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Sundowning
Hello ! I am new here just looking for advice. My mom is 53 years old and in the late stages of Alzheimer’s disease. She starts sundowning around the time I get home from work and I’m looking for tips and advice on how to deal with it. Im so tired after work and I just want to relax so I get frustrated. She is on meds for…
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Support
Hello, I am the youngest of my mother’s 3 daughters. I am taking it the hardest but I am able to be there for her on the weekends, as I work full time. I need some opinions. I feel depressed and sad because she doesn’t want to hang out with me sometimes when I have my daughter. She is 7 years old. They say that my mother’s…
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Hospice during hurricane
We just had a hurricane hit. Over 2 million people were without power. I'm impressed that the hospice chaplain, CNA and RN all called to check on my parents. They said to feel free to call the hospice agency if they need assistance. I thanked them for being so thoughtful. My parents have low battery on their phone and my…
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Needing to Vent
I'm having a really rough go of it. Mom with MD has gotten SIGNIFICANTLY worse in the last week. No infections, UTI, nothing on the "surface" level to have caused it. I called 911 last week so they could check her out when she refused to get into my car to go to the ER or UC. She's also sundowning pretty regularly now.…
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False Memories
I am caring for my mother who was diagnosed a little over a year ago. I have seen quite a decline in her memory and understanding. But, what I struggle with most is how to handle false memories. For example, whenever we are out at a restaurant or shopping, she will make comments like "we always sit here" or "that family is…
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Financial Assistance
Hi! Is there any sort of financial assistance available for parents still living in their house with severe dementia (other than Medicare/IHHS?) in California? Either for my Dad or for me? I am full-time caretaker having to move here and go "visit" my own home back out of state once in a while. Been doing this the past few…
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Argumentative
Hi new here my mom has had dementia for 2 years she thinks she can do whatever she want .she cancels dr appointments when she knows they Important and she argues with me she not going she does have other health issues I don't know how to help her understand how to get her to go without a argument
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Dad is closer to me now and in a memory care community - we are new to this
Hello dear community, I know that I am not alone. I think hearing from others on this journey will help me cope and understand that some of what I am going through with Dad is part of the disease process. My heart is breaking. So here I am seeking camaradarie and support. My Dad was living independently with an Alzheimer's…
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Refusing to spit
Hello all. I wanted to know if anyone is experiencing this and if you have found a remedy. My dear mother has moderate to severe Alzheimer's. She tends to hold saliva in her mouth and swish it around, refusing to spit it out. She's not rude, she will nod or say Mm hmm when I tell her to spit it out in the sink. Then she…
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Progression - coping with ongoing loss
Just a vent and an update. My mom is safe in a great MC. It costs a fortune and probably some of whatever inheritance I’d get but it’s worth it. I’m her sole caregiver. She’s doing well overall - still able to go out to dinner sometimes, still mostly knows me, still able to laugh - but her memory and adls and symptoms are…
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Frustrated
Hello again everyone! This post is more of an update and a bit of a rant, I suppose. I have moved forward with signing a lease for AL for my dad, as the place I found is very nice and space goes quickly. I attempted to have a conversation with him about the move yesterday, and took him to see that it is not a nursing home,…
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Respite care
Hello, does anyone have any information regarding respite care for your loved ones while you go away on a vacation? My mother lives in Erie County near Buffalo, NY. I am getting no assistance from her insurance company who allegedly covers this type of care.
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Anger and meanness in mom
I walked down this road 10 years ago with my daddy. It was so much fun I get a return trip with mom. Only he didn't get mean and treat me like the red headed step child. Today was bad. Really bad. She screamed and yelled and called me and my siblings names that would make a sailor blush. Luckily I don't live with her but…
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Caregivers....they are special
Whether you choose in-home or facility care, the caregivers are special people. They are there when you and your loved one need them. They earn every penny, or buck, and our most incredible, deepest thanks…..
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hallucination
Anyone know anything about hallucinations with dementia? Do they get worse?
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Am I doing the right thing?
Hi everyone, I am caring for my mom with early-onset Alzheimer's. She is 58 years old and she moved in with me last July, 2023. Before then, she was living in her own apartment in a different state and my grandmother was living with her, so she was able to care for her, while still allowing her to feel as though she had…
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Is it the Disease or Mom?
For the last several weeks our 86 old mom with dementia has been getting increasingly frustrated with her inability to answer the phone, use the TV remote, sometimes turn off the water, lots of things. I am wondering if it is the disease when she takes her frustration out on us and will wash the dishes she's used and leave…
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Planning to move my father to my home
Hello all. Im planning to move my father here with me in my home which is in a different state then he lives. He lives alone in his own home and his dementia is progressing. He thinks he is coming for a visit. But in actuality won’t be going back home this time. I will need to go thru his things at home and sell the house…
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Searching for Millennial Elder Care Support Group in the DMV
Hi, looking for a point in the right direction for a support group either in-person or virtual in the DMV that is based on the experiences of other millennial care givers and their parents with Dementia/Alzheimers.
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General Question About Medicaid
Hi everyone. I have a general question/curiousity about Medicaid (I'm completely ignorant to this). I've tried applying for Medicaid for my mom twice now, and both times, her app has been declined almost immediately. She makes less than $1700 in SS and has virtually no savings, no retirement, pension, life insurance, nada.…
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Should I tell Dad he has Alzheimers?
Is it more helpful or hurtful to remind my Dad that he has Alzheimers? My Dad refuses to move to AL. He says they are doing fine. We try to give him examples of why he's not but it feels like this is more hurtful than helpful, especially since he won't remember the conversation. What do we do/say instead? I find myself…
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New to ALZConnected - parent suspected to have ALZ
Hello All! My 74 yr old dad is concerned that he has ES ALZ because he "feels foggy" all the time and couldn't remember how to get to a specific place on a lake he visits 1x per year. While I have concerns that his memory is slipping, I am not sure it's ALZ or typical age related memory loss. He is extremely sharp and…
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Help!!! I need RESPITE for a week anywhere San Diego!!!
Well I had thought PACE was going to set up care for my mom so I can attend a work conference. I am on the verge of losing my job since my mother moved in last October. I have missed several conferences and this one is mandatory. Anyone know of any respite care that will take a dementia woman for a week. Anywhere in San…
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Finally Visited
I finally visited my LO in MC. It's pretty awful. The food is cold, hard, or non existent if they "think" she refuses to eat it. The staff, especially at night are rude or incompetent. (Daytime isn't much better) She's mad as hell! She's a tweener. She needs mental and social stimulation found in AL with extra support…
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Mother making up stories
Hi, I'm new here. My 74 yo mother is staying with my son and I for the summer, until my son goes back to school. My son is 9 yo. My mother has been making up toxic stories about me, telling her friends and even my adult daughter. This has been going on for about a month and I just found out. My mother also believes I am…