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Moved Mom to Memory Care...
Hello my fellow warriors,Well, February has been the month from hell in our family... After a series of falls with resulting inability to stand or walk at all, and a deep dive in the cognitive department, I was left with no choice but to move my mom into a lovely Memory Care facility that is doing a wonderful job of…
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Every dementia CAREGIVER is different...
My sister journaled her thoughts and feelings during the final days of Mom's life and has given me permission to share. Just when I think that kid doesn't have a brain in her head she writes something so beautiful I know I'm the dumb one. How The Other Girl experienced Mom's death.…
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Disability
My husband and I recently received our (annual?) statements from Social Security. We are 63 and 61. His statement confirmed what I suspected. He has not worked enough hours in the last 10 years to qualify for disability. I didn't realize this information was on the report, since I never looked for it before. It's good to…
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Doctors Aargh!!!
My father was diagnosed with VD in 2019 at a prestigious university's memory clinic. The report was sent to his PCP who completely ignored it and has done nothing to help him. Not only does he have VD, but also gets tremors and double vision. But his doctor has never sent him to a neurologist. To me, that is mind blowing!…
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Parent diagnosed with Alzheimer's when I was an adolescent.
Hi all, I am wondering if anyone else had a parent diagnosed with dementia while they were young. My father was diagnosed with dementia in 2010, when I was starting high school. I'm in my mid twenties now. Looking back, I felt that my experience growing up while my father progressed through the early stages of the disease…
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Sandwich generation
This is a new term to me, but I guess that some of us fit the description. We are in between the two pieces of sandwich bread (caring for our parents) and (caring for our children at home). Is anyone else going through this? Adding a pandemic is just making it more challenging. Currently, I'd love to have my LO and their…
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NYTimes Article: NH False Reporting to Medicare.gov Ratings To Increase Their Scores
Five star ratings on Medicare.gov that families depend on when choosing NHs? Not so fast; all may not be what it seems since NHs do their own reporting, providing numbers in data and no one checks its accuracy . . . . . This is something I have ranted about for ages; yet, I still found this lengthy article stunning in its…
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Being sandwiched between dementia and needy (adult) child
I'm wondering if there's any advice out there for DH and I in the situation we now find ourselves about to be in. MIL will be returning next month from an extended visit with Sib #3; MIL is somewhere in the Stage 4-5 area...probably closer to 5 than 4 at this point. I'm not sure how much MIL has declined in the last few…
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Television
Does any of your LO's get upset if the TV is not on their station. My mom gets so upset if the TV is changed. Is this just a part of the deme.
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sleeping during visits
At the last couple of visits to my dad at his memory care, they have brought him up to see me and he is sleeping in the wheelchair. On Friday they brought him and as we tried to talk to him and get him to open his eyes, he would answer us but never fully wake up. This was at 10:15 in the morning. I have tried different…
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Free at last - Update
Life really does go on. More than two years later. See comments at the very end. There were many comments when posted in 2019. Posted: Monday, February 11, 2019 10:29 PM Sue is finally FREE. She passed away peacefully during the night. Alzheimer’s might have won in the end but I choose to remember the beautiful, caring,…
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Opinions on speaking publicly about PWD
I've struggled since my mom's diagnosis about whether it's proper to discuss her condition publicly, like on my personal social media. I have not done so as I've felt like maybe it wasn't the right thing to do. But then, its such a huge part of my life and sometimes I want to talk about it. I'm curious what your thoughts…
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Putting Dad in hospice
Well, the unimaginable has finally happened, my father was put in hospice yesterday. It's not that I ever thought he (or I) were immune to death or the indignities of decline, but for the past ten years I've been dealing with the dementias of my parents on a very intimate, daily basis. Up early, give meds, rush around…
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Mom tosses out things she can't identify
Has anyone else experienced this with their LO? My mom tosses out things she can't identify. Bottles of shampoo, lotion, boxes of cereal, bags of Depends, etc. Every day I'm fishing stuff out of the trash.
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Searching for a facility in Dayton area
I am new to all this so apologies if this isn’t the right forum for this question. I don’t know what type of dementia/Alzheimer’s my father has but he has declined rapidly in the last 6 weeks. We went from my mother who is very frail and physically unsteady was able to take care of my father to combative and physically…
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broken hip, what to do
Hi, I have been reading these message boards for the past 10 months or so. It would not be an exaggeration to say you all have saved my sanity over the past months. In early 2020 my mom had a car accident that made clear the amount of cognitive decline she was experiencing. She was in Alabama and I in Virginia; I moved her…
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Benadryl (diphenhydramine) dementia link
My mom took Benadryl nightly for almost 20 years to help her sleep. She took 25mg per night for most of those years, then upped the dose to 50mg before she’d stopped taking it altogether in 2016 (at my urging). My mom had started showing MCI in 2010, very subtle - but when looking back I recall seeing some changes. There…
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Breaking the News
Hi, I am looking for advice on how I break the news to my mom, 73 and in the advanced moderate stages of AD, that is is time to move out of her home of 43 years and leave her loving companion dog of 7 years? I would like to move my mom closer to where I live, and into a MCF. I know that losing her dog will be devastating…
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FIL progressing. Activity suggestions welcome.
My FIL is experiencing more memory loss and lives less in the present. He is generally very accommodating and gentle, which helps me tremendously. He is often uncomfortable with confusion. Sometimes, I think he does not know who I am exactly, but that I belong here. With my mother with dementia, I was able to create…
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ALZ for 6 yrs, newly diagnosed with Parkinson's. Is it LBD?
My mom has lived with us for 11 yrs, diagnosed with ALZ almost 6 yrs ago. The hand tremors started last summer, pill rolling of the thumbs started last fall. She was diagnosed with Parkinson's yesterday. She was also put on meds a few years ago for incontinence and swallowing issues that we now believe could be early…
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Hi! I'm new here.
While my mother doesn't have a formal diagnosis, she has mild cognitive impairment, severe hearing loss even with hearing aids, and delayed processing of information coming into her brain. The audiologist said that she hears about 50% of what's said to her. I literally say everything four times before she gets it and then…
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Guilt(16)
Hi folks, I'm new here. My mom has vascular dementia and mobility issues, both of which progressed so much last year that in December, I moved her into Memory Care. I feel guilty about so many things. She needs a level of care I simply can't give her. She doesn't understand and wants to go home. Phone calls are always with…
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New member - Pregabalin
Hi I am sort of new here - infrequent I guess. My elderly mom is a dementia sufferer(mixed dementia) and we are managing her care between family and caregiving support. She's been exhibiting aggressive behavior on a more regular basis and our doctor recommended an additional medication, pregabalin, which we know little…
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1st post - advice re doctor appointment
Hello everyone. This is my first post, but I have been reading these discussion boards for several years, and have learned so much about dementia. I feel like I know you all. I found the site in 2016 when my dad was in late stage 7 alzheimers and my stepmom had to place him in memory care. I'll say right up front that I…
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Is this dad with a little alzheimers or alzheimers with a little dad?
Hi all - Dad was diagnosed several years ago but lead a relatively normal and independent life until a couple of months ago, when some pretty serious med mismanagement landed him in the hospital. He is now in an assisted living apartment and has spent most of the last month and a half trying to regain control of everything…
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quality of care or close to family?
Hi, My mother lives alone in Maine with AD, she recently scored a 9/30 on her MOCA. We have a caregiver coming to the house 5 days a week from 1-7pm, and then I drive up on the weekends to care for her. She has lots of friends who check on her, and take her out for walks regularly. The decision on where or when to move her…
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Hospice(22)
My mom has been in hospice (at home) for 5 months. I'm starting to have some issues with the hospice she's in. For example, the doctor has only came to see her once in 5 months, constant staff changes (we have had a new nurse every month since she's been in hospice), and I feel like they're not being honest with me. I have…
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Fibbed to Dad about doctor - ok?
My Dad ( not yet diagnosed) has previously scheduled CT scans of neck and lungs at his cancer center this week, Called his family doctor and asked if they could get the cancer doctor to add a head CT scan to it because my Dad has been making up stuff along with dizziness and showing paranoia and poor judgement.…
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When to move back home and in with my parents
I'm in need of some advice. I am wondering when it is time to move back in to take care of my parent who have suffering with ES dementia. They are still able to cook and take care of the daily living needs But she starting to increase on forgetting the little things like moving items and not remembering where she put them…
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Mom diagnosed literally 4 days ago
Hi Everyone, I don't even really know where to start with all this. The diagnosis was not a total shock - my sisters and I could tell my mom was not how she used to be for a while now. Us having to repeat something we literally just said, Mom really not remembering much of anything, dwindling daily routine as far as…