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Sole caregiver-opposing family opinions on how to care for LO
I am currently the sole live-in caregiver for my 73 year old mother who was diagnosed with Alzheimer’s in 2018. I had moved back with my parents in 2018 due to traumatic marriage/divorce where I lost everything, including my physical and mental health for the most part. In 2019 my dad was diagnosed with cancer of the…
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Agitation, cussing, delusions and more
Hi friends, Folks who have experience with loved ones with dementia who experience a lot of agitation, then cuss and yell and hit... please weigh on So my mom has lived with us off and on for 8 years with Alzheimers. She has always experienced agitation. Of course, we do all of the non pharmacological things. Quiet the…
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First Appointment with Neurologist- What to expect
We have our first appointment this month with a neuro and I don;t know what to expect. She has been referred by our elder doctor and has an MRI from a few years ago. She has been acting out and angry at me so not even sure how I will get her there but not sure what to expect. Can they give her anything to make her not so…
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How to give support to the caregiver
My mother has been struggling with memory loss and confusion about events for almost 5 years now. As she started seeing specials and going through every test they could think to give her, I started researching everything I could find for an explanation. She is currently undiagnosed and going through a new set of tests as…
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Covid - Delirium - Decadron - LBD
My mom is early stages of LBD. She lives in an ALF. Before covid, she was with it cognitively, for the most part. She could hold conversations. Correct the med techs if they brought her the wrong medication. Remembered events that happened earlier in the day or week. She caught covid at a short term rehab after a hospital…
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Medical Devices, like Life Alert, but calls me instead of service
Like many on this forum I can not leave mother alone, but life happens - have to run out to the store, have my own doctor's appointments, need a break from the crazy, etc. Last week I had to run out to pick up a prescription, sat mom down in her chair, told her to be good and that I'd be right back....Like any small child,…
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White Matter Brain Disease - Dementia
My elderly mom was recently diagnosed in the hospital via CT scan with white matter disease of the brain. She was there due to a third fall in recent weeks. The hospital stupidly discharged her after 36 hours even though she could not walk and was in delirium! Her primary doctor saw her there and confirmed dementia. He…
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Transitioning from private pay to state assist
I am so scare to run out of money for my LO. Anybody have any helpful insight into what I need to do? Thanks in advance
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New Caregiver(2)
My mom moved in with us this past weekend. She knew she was going to move in with us and told all of her friends and neighbors years ago. This is not a new place for her as she has spent many nights with us in the past years. On Sunday, she was fine and dandy. When she woke up Monday morning, she was very agitated, using…
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Has Anyone Else Not Been Receiving Notifications to Messages?
Hi everyone, I have all the appropriate boxes checked on my profile for this site so I will receive notification via email when there is activity on a thread I began and (I think) responses to my responses. I initially received notice then they stopped. This has happened several times. I probably need to contact a Mod but…
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Know any good books about grieving for ALZ parent?
I am going through a hard time. I am close to my mother and I feel so sad that she no longer is the capable woman she always was. Mom still recognizes me and I can tell her stories about her life and about people she knows or used to remember. I feel the loss of her not remembering all the incredible things she has done in…
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Doubting my capability
Mom has been on hospice three weeks now. This has been some of the toughest time in caring for me in my short experience. While she is unable to walk, mom is still agitated and restless. Always trying to get out of bed, talking about nothing that makes sense, being mean and confrontational at times. Mom actually fell out…
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Bible Verse to Lift You Up 2/17/21
DON’T FALL FOR LIES * John 8:44 NIV “You belong to your father, the devil, and you want to carry out your father’s desires. He was a murderer from the beginning, not holding to the truth, for there is no truth in him. When he lies, he speaks his native language, for he is a liar and the father of lies.” John 10:27 NKJV “My…
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Advice on what to say(1)
I've been taking care of many things for my mom for a couple years now, including bill paying, cleaning, getting groceries, etc. As more of these things have been needed because she doesn't remember to do it, or doesn't realize how long it's been since she's done it, I've taken on more and more -which is OK, but every…
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Montelukast (Singulair) for advanced dementia?
Hi all, I’m well aware of the Montelukast trials currently in process. And I’ve had a few conversations with Larrytherunner regarding the drug, - but what I want to know, - is if anyone has used montelukast on their advanced PWD loved one? I’m wondering if those who benefit cognitively from this drug are those that are…
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What do I say???(1)
I had to run out to take some rx's to my dad. While I was gone, my mom asked husband if she was dying and saying she didn't want to die. (she is on hospice) How do I even begin on answering this? What do you say if she asks again? I am so heartbroken
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Just want to say thanks(1)
My DH is rapidly approaching end stage. He drifts further from me everyday and it is killing me. For two weeks I have begun and ended each day in tears. While he is still sleeping in the morning I pull up the forum and I just wanted to thank all of you who can relate, for giving me strength and patience and helping me to…
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Lost it big time!
I am ashamed of myself! My DH, in advanced stage AD, is making me crazy with bathroom issues. I change bedsheet, clothes and towels at least 3 times a day and night due to urinary issues. I can deal with that. Lately, he has been pooping in his depends, refusing to sit on a toilet. I can deal with that and I have no…
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Paradise gone wrong
We live on Maui and as wonderful as that may sound, our resources and care facilities here are lacking on top of being some of the highest rates in the nation. I am just wondering if anyone has experienced having a LO in between stages that doesn't allow them to be in AL yet not far gone enough to be placed in MC? We are…
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Plateau or just good at covering?
Has anyone experienced their LO plateauing in their decline with Alz? Mom has seemed to be solidly stage 5 for a long time now and holding. Being that she's younger I had been told to expect her decline to happen fairly quickly. I'm happy that she's still so able to be social and participate in things she enjoys doing at…
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How to deal with anger and emotional outbursts from my mom
Hello. I hope someone has made similar experiences and can share their experiences and how to deal with them. I''m not sure how to handle my mother''s emotional and angry outbursts. Because we live in different countries, I only able to speak with my mom over the phone. I call her every day but I''m at a point where…
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Managing getting up, bathing and breakfasting in a timely way
My husband and I get up at 7 am. However it is often 10 before he is ready to eat as he takes forever to shave, bathe and dress himself. He seems to go into another zone regularly when he is doing any of these things and I often find him just sitting or letting the water run over him for a long time. Any suggestions to get…
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Suggestions for falling
My father is in assisted living. Since moving there, he was diagnosed with cancer (metastatized to his spine) and beyond treatment. He is on hospice cate now. Unfortunately he also has dementia. He’s gotten very weak as of late, to the point where he falls once or twice a day. He just forgets that he can’t get up on his…
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Dementia and leaning
Hi, I was just wondering if anyone has a loved one with dementia that tends to lean to either the left or right when sitting? My mom has been doing this the last couple of weeks and it seems to be getting worse. I did some research online and I found a few things but I was curious to see if anyone else is experiencing…
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New diagnosis(4)
My relative was recently diagnosed with early stage dementia. Can take care of herself but mixes up words. I am the only relative helping her. How many years does early stage last? Does aricept help? Are that alot of side effects?
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Transportation and resisting help
I already limit how much I take MIL out of the house. She uses a walker to get around and is incontinent so she is already stressed she is going to have an accident in public. But, sometimes there are doctors appointments. So getting her from the house to the car is a struggle of her telling me she can’t do it because her…
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Treatment VS Life Quality
Hello! My MIL moved in with us 8 months ago and seems to be progressing/declining with dementia quickly. She has been having various issues and symptoms which the primary care doctor has been diligent about trying to find causes and treatments. Due to all the tests coming back with no answers I just decided today to look…
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Bathing(8)
Hey I am a new caregiver to my 91 yr old mom.She is mid stage Alzheimer's. She is physically in good shape and health. She can take a shower on her own brush hair and teeth and dress herself most times weather appropriate. My question is how do I get her to take a shower. She tells me she took a shower but she is just…
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Bible Verse to Lift You Up 2/14/21
WE BELIEVE! WHY? * Genesis 1:1 New International Version "In the beginning God created the heavens and the earth." * Romans 1:20 NIV "For since the creation of the world God’s invisible qualities—his eternal power and divine nature—have been clearly seen, being understood from what has been made, so that people are without…
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Care agency dropped mothers care Help!!
I was getting help for over 3 years with this agency. It started out great. 24 hour care and the day lady was great. Now i am in hell. The agency dropped care after i demanded they hire ladies who can follow the care plan of the nurse and the pt. The ladies all complained of back problems or said they did not want to hurt…