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Home(3)
The Lord God called his beloved daughter home this morning. My mother was an amazing woman. She is at peace.
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Time for Hospice Evaluation or is it too early?
DH can still walk around the house and yard. Cannot communicate well due to due to Primary Aggressive Aphasia. In the past week he barely eats two bites of anything and not drinking much either. He did use the toilet up until four days ago but goes in his depends now and does not realize it. He sleeps okay but it takes him…
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seeking advice on agitation
Good morning, I want to begin by saying thank you for offering this forum. I have been reading many of the posts for a while now and have finally decided to ask for advice. My LO has progressed to Stage 5 and resides in a memory care unit. Although we know is the best situation, she demonstrates anger and frustration at…
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Mother-in-law says she is just going to die if she has to stay in nursing homr.
Mother-in-law kept falling, incontinent, chronic weight loss past two years-down to 84 lbs, roaming at night, Dementia worse after COVID. I could no longer care for her and keep her safe after 5 years. She was in hospital with COVID then nursing home isolation for a month. She is mad she can’t come home and says she might…
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Help and advice
Hello all, new here. I need some tips. My boyfriend, who is 53, might have the early onset of dementia. He said hes been having brain fog, and I've noticed hes been kind of misplacing things like his keys and whatnot. His sister and her fiance and their young daughter just moved out and are back in Kentucky. Hes having…
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Mirtazapine - does the grogginess wear off?
My mom sundowns at night (gets agitated, scared, confused, dellusional) and then has a terrible time sleeping. She had been prescribed 5mg of Melatonin, which did nothing to help her sleep. I asked her doctor if he could prescribe something that might help her feeling of wellbeing and help her sleep a little better. He…
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My husbands doctor has prescribed Namenda - anyone else used this in late stage?
My DH is in late stage and the biggest issue I have is hygiene, especially with bowel movements. He gets very irritated and refuses to clean. His doctor prescribed Namenda to help with irritability and anxiety. Has anyone else ever heard of this being used in late stage for anxiety issues?
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Moving LO to a State or County Facility in Macomb County, MI
First off - thanks for listening. This is weighing heavy on my heart. I am going to have to move my mother to a state or county facility probably before the end of the year. I had to move her in the middle of COVID because she needed a facility that did not cost so much, and I found a fantastic place for 2,000 less than…
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Aricept(11)
Has anyone’s loved one experienced aricept lately? My DH is on 10mg, he has been on it for about two months now, takes it in the morning but has been having nightmares, seems more emotional and depressed like...
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Mother Transitioning to Assisted Living/Memory Care
Like so many others, I am new here. I've seen some of my own story in most posts I've read over the last few hours and am hoping to get some perspective from some of the many kind people on here who have been going through this transition. My mother has been in a retirement community with progressive care available for…
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Cognitive Tests - What Do the Results Really Mean?
My dear Mom was diagnosed with Dementia about 8 years ago. She is currently in an Assisted Living/Memory Care home. In March 2020, her Cognitive Test results were 11 of 30. Today I was informed, her most recent test resulted in 4 of 30. With the isolation of this past year, my mom's health has deteriorated. She no longer…
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When do you know it's time for MC?
Hi, apologies for the long letter, but I just don't know if I am doing the right thing. A little history. Mom had been living in AL since 2016. Some ES dementia, but still able to teach piano at the university up until November 2019 at 84 years old. She began getting lost driving, missing classes, not bathing, etc. At that…
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delirium after hip fracture
My father has had worsening dementia over the past 5-6 years. he had a nasty fall 2 years ago so was put in foster care near my home. he was having behaviors at night, hallucinating and pacing which the caregiver handled by monitoring him as he paced. He fell about 2 weeks ago, fracturing his hip. he went into delirium in…
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Help with behaviors
Hello, very new but trying to figure something out so I thought maybe this would be a good place to start. My aunt was recently diagnosed with dementia - something we suspected but then it was confirmed. My aunt has always struggled with mental health, mainly depression and anxiety but it was managed. Her younger brother…
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reasonable fiblet?
Yesterday we got the pre-evaluation questionnaires for my wife's upcoming memory program visits. The packet included one set for health history, and another for activies of daily living. The health questions should be easy for us to agree on, but she's in so much denial about her abilities and the reasons she can't do…
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NPH? going to Neurosurgeon
Hi - My mom is 87, living in memory care for about 5 months. She was living alone in her home till Aug 2020, I found her on floor of her bathroom disoriented, soiled and talking about people who were no longer alive. Took her to hospital where she did poorly on memory tests and had a stage 4 pressure ulcer on her bottom.…
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Mom said she is done eating (cross post)
Yesterday mom only drank about 1/4 of her chocolate ensure. This morning I asked if she was hungry.She just flat out told me no and she mumbled that she is done eating. She is sleeping almost around the clock, completely out of it when awake. She will drink water and does mumble that she wants her meds, but even the water…
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HOW TO CHOOSE CARE FACILITY AND XLNT WHAT TO DO DAY OF ADMISSION AND AFTER
Illinois information is excellent and a literal bible of what and how from the day of admission to thereafter: https://www.kiplinger.com/article/retirement/T027-C000-S004-how-to-choose-a-memory-care-unit.html Consumer Guides | FloridaHealthFinder.gov http://www.illinoiscares.org/book/chapter01
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Medicaid question from WV
I received a letter saying my father was denied "Medicaid and/or WVCHIP" and below that is says "Medicare premium assistance" due to his income. It says he is $380 over the limit. I don't remember applying for that. My application said "Application for long term care Medicaid and Children with Disabilities Community…
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Giving Mom New Bank Card?
My head is still spinning after incidents with card charges, repeated ordering/deliveries then claiming it wasn't her who ordered them. Now the new card has arrived (old one expired yesterday) and I have to make the decision if it is safe to give to her. The fact that there is lack of insight (Anosognosia), denial, lacking…
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AL move 6 days ago not going well at all
Hi everyone - I moved my step-dad to a very expensive, well-regarded retirement community last week, 15 months after my mom died. He has vascular dementia and I have been caring for him daily since that time, no help from his sons. I work full time and it's been a hard year. He hates the retirement community. He calls…
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Trazodone 2021
I searched for trazodone postings and the last one here was several years ago. PCP just added Trazodone 50 to LO’s medications. Both for sleeping and as an antidepressant/anxiety aid. LO is obsessing over a medical issue and is actively making it worse by obsessing over it, constantly showering and washing to relieve the…
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I CRY BECAUSE I FEEL SO LOST...
I feel lost. He has no family and is my best friend.I was alone but very happy being alone. We live together however it is a true friendship. He needed help so I sold everything I owned and moved to where he lived..His wife passed a few years before we became friends.I am single yet I feel so lost.He hardly ever talks and…
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covid vaccine(1)
Hi everyone, I am new here, can't believe it took me this long to register for this forum. here is a background before I get into my questions. My mother and I are caretakers for my late stage dementia grandmother who is 79 years old. She is currently bedridden but we take her out and put her on the wheelchair for meals…
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Bible Verse to Lift You Up 2/21/21
FOCUS ON JESUS=MORE PEACE, MORE JOY! * Colossians 2:6-7 New King James Version “As you therefore have received Christ Jesus the Lord, so walk in Him, rooted and built up in Him and established in the faith, as you have been taught, abounding in it with thanksgiving.” * From Sarah Young’s JESUS CALLING “The more you choose…
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Responding to LO's confusion
Newbie here and I searched but couldn't find an answer...I apologize. What is the best way to respond when my mom asks me questions thinking I am someone else? She thinks I am her niece and will ask me direct questions about her. If I answer as myself, she then says something like, "Well, I didn't know you worked there,…
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Dealing with delusions(2)
This is my first post here. My husband has Frontotemporal Dementia. I understand that you should not argue with a LO with dementia, however some of his delusions are harmful and I can't just let them slide. First he has been telling me that when I am at work women are coming into the house. He does not know how they ae…
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When our loved one makes wanting to end it all or suicidal statements
Hi. I’m new here. My dad, 82, is in the middle to late stage. He often has awareness of his disease and at times realizes it’s never getting Betty and feels very down. Lately he makes statements that he just wants to “end it all.” Mom and I don’t know what to say.
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Giggling and slightly manic? BvFTD
Hi all, Wondering whether this sounds familiar to anyone. My dad was recently diagnosed (late onset—he’s 77) with bvFTD. He frequently seems to find things amazing and hilarious, like his reactions are almost tipsy. This often seems to be in association with how he himself has changed. He used to be quite reserved and…
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“Ok ok ok”
My mom is not communicating much at all anymore, but she repeatedly says “ ok ok ok” and “ oh god”. I ask if she’s in pain or needs anything and her response is “no.” It’s pretty consistent and I’m at a loss with this. Anyone have any similar issues?