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HOW TO CHOOSE CARE FACILITY AND XLNT WHAT TO DO DAY OF ADMISSION AND AFTER
Illinois information is excellent and a literal bible of what and how from the day of admission to thereafter: https://www.kiplinger.com/article/retirement/T027-C000-S004-how-to-choose-a-memory-care-unit.html Consumer Guides | FloridaHealthFinder.gov http://www.illinoiscares.org/book/chapter01
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Medicaid question from WV
I received a letter saying my father was denied "Medicaid and/or WVCHIP" and below that is says "Medicare premium assistance" due to his income. It says he is $380 over the limit. I don't remember applying for that. My application said "Application for long term care Medicaid and Children with Disabilities Community…
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Giving Mom New Bank Card?
My head is still spinning after incidents with card charges, repeated ordering/deliveries then claiming it wasn't her who ordered them. Now the new card has arrived (old one expired yesterday) and I have to make the decision if it is safe to give to her. The fact that there is lack of insight (Anosognosia), denial, lacking…
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AL move 6 days ago not going well at all
Hi everyone - I moved my step-dad to a very expensive, well-regarded retirement community last week, 15 months after my mom died. He has vascular dementia and I have been caring for him daily since that time, no help from his sons. I work full time and it's been a hard year. He hates the retirement community. He calls…
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Trazodone 2021
I searched for trazodone postings and the last one here was several years ago. PCP just added Trazodone 50 to LO’s medications. Both for sleeping and as an antidepressant/anxiety aid. LO is obsessing over a medical issue and is actively making it worse by obsessing over it, constantly showering and washing to relieve the…
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I CRY BECAUSE I FEEL SO LOST...
I feel lost. He has no family and is my best friend.I was alone but very happy being alone. We live together however it is a true friendship. He needed help so I sold everything I owned and moved to where he lived..His wife passed a few years before we became friends.I am single yet I feel so lost.He hardly ever talks and…
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covid vaccine(1)
Hi everyone, I am new here, can't believe it took me this long to register for this forum. here is a background before I get into my questions. My mother and I are caretakers for my late stage dementia grandmother who is 79 years old. She is currently bedridden but we take her out and put her on the wheelchair for meals…
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Bible Verse to Lift You Up 2/21/21
FOCUS ON JESUS=MORE PEACE, MORE JOY! * Colossians 2:6-7 New King James Version “As you therefore have received Christ Jesus the Lord, so walk in Him, rooted and built up in Him and established in the faith, as you have been taught, abounding in it with thanksgiving.” * From Sarah Young’s JESUS CALLING “The more you choose…
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Responding to LO's confusion
Newbie here and I searched but couldn't find an answer...I apologize. What is the best way to respond when my mom asks me questions thinking I am someone else? She thinks I am her niece and will ask me direct questions about her. If I answer as myself, she then says something like, "Well, I didn't know you worked there,…
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Dealing with delusions(2)
This is my first post here. My husband has Frontotemporal Dementia. I understand that you should not argue with a LO with dementia, however some of his delusions are harmful and I can't just let them slide. First he has been telling me that when I am at work women are coming into the house. He does not know how they ae…
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When our loved one makes wanting to end it all or suicidal statements
Hi. I’m new here. My dad, 82, is in the middle to late stage. He often has awareness of his disease and at times realizes it’s never getting Betty and feels very down. Lately he makes statements that he just wants to “end it all.” Mom and I don’t know what to say.
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Giggling and slightly manic? BvFTD
Hi all, Wondering whether this sounds familiar to anyone. My dad was recently diagnosed (late onset—he’s 77) with bvFTD. He frequently seems to find things amazing and hilarious, like his reactions are almost tipsy. This often seems to be in association with how he himself has changed. He used to be quite reserved and…
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“Ok ok ok”
My mom is not communicating much at all anymore, but she repeatedly says “ ok ok ok” and “ oh god”. I ask if she’s in pain or needs anything and her response is “no.” It’s pretty consistent and I’m at a loss with this. Anyone have any similar issues?
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Psychosomatic pain associated with Alzheimers?
Hi all, Mom has been living with my sister and me since COVID last March. She is about to be 90. Her Alz is progressing fast. Started in March 2020 with her asking me (from her living room in Maryland) when we would be landing on our plane from London. We are lucky to have an aide PT and thank god will be getting a night…
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I don't know where to begin
Background: My father passed away 2 weeks ago. He and Mom were living in another state, 1000 miles away from us. After the funeral, (although I have 5 living siblings) we brought Mom home to live with us. Everyone felt I was the best option. Now I'm not so sure. I only have one other sibling willing to take Mom in, but she…
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Looking for advice for a long-distance caregiver
Hello, I will be visiting my 80-year-old mother in Salt Lake City for the first time in 6 months, due to coronavirus. She just received her second dose of vaccine. I'm extremely anxious about seeing her, as her health has declined significantly over the past year, including her memory and cognition, but also physical…
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Dementia and Covid Vaccine
Does anyone have a loved one with dementia who took the Covid vaccine? I would be interested if they had any side effects afterwards. Per my step-father's request, my mother was given the vaccine last Monday. I visited on Tuesday and, after months of regular visits where my mother was what I call "her normal," Tuesday she…
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Thoughts on A PLACE FOR MOM service
Hi everyone, Everyone has been so helpful so far, I feel so lucky to have found this forum. I'm starting to look for facilities, probably memory care for my mother, as its only a matter of time at this point, I want to have my ducks in a row when we need to have her move for her safety (I would love for her to live with my…
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Nursing Home Bill
Hello, I am my mother's Power of Attorney. She had been paying her nursing home with her own money. She just went on Medicaid. She has a balance with the nursing home for her private pay care. She owes about $2000 there and I am able to pay $100 a month. They want the whole amount and sent me a letter threatening to send…
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Wants control back
My mom is 78, lives alone and was diagnosed with mild cognitive impairment in September 2020 but we definitely saw the signs way before she was diagnosed. She broke her hip in March 2020 and my brother and his wife took over paying her bills (they are POA). We found lots of things wrong with her bills such as multiple…
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Who Am I(1)
DH is in later stage. I went to funeral home and contacted the cemetery yesterday. DH is 65, diagnosed at age 55. Although he had the evidence couple of years before actual diagnosis. Children grown, one child is in another state and the other child is in Berlin Germany. I do not know what life is going to look like at the…
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Mischevious with super energy
I would guess my DH is in Stage 5-6, but sometimes he has symptoms of each stage so it is difficult to determine. Is it common to have a person you are caring for to be into everything - leaving water running ( I have turned off the valves under sink) open all the doors and closets, moving furniture around, bringing things…
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NY Times article on caregiving, dementia in times of covid
Interesting article with many wonderful insights: https://www.nytimes.com/2021/02/19/opinion/covid-dementia.html
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Sole caregiver-opposing family opinions on how to care for LO
I am currently the sole live-in caregiver for my 73 year old mother who was diagnosed with Alzheimer’s in 2018. I had moved back with my parents in 2018 due to traumatic marriage/divorce where I lost everything, including my physical and mental health for the most part. In 2019 my dad was diagnosed with cancer of the…
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Agitation, cussing, delusions and more
Hi friends, Folks who have experience with loved ones with dementia who experience a lot of agitation, then cuss and yell and hit... please weigh on So my mom has lived with us off and on for 8 years with Alzheimers. She has always experienced agitation. Of course, we do all of the non pharmacological things. Quiet the…
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First Appointment with Neurologist- What to expect
We have our first appointment this month with a neuro and I don;t know what to expect. She has been referred by our elder doctor and has an MRI from a few years ago. She has been acting out and angry at me so not even sure how I will get her there but not sure what to expect. Can they give her anything to make her not so…
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How to give support to the caregiver
My mother has been struggling with memory loss and confusion about events for almost 5 years now. As she started seeing specials and going through every test they could think to give her, I started researching everything I could find for an explanation. She is currently undiagnosed and going through a new set of tests as…
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Covid - Delirium - Decadron - LBD
My mom is early stages of LBD. She lives in an ALF. Before covid, she was with it cognitively, for the most part. She could hold conversations. Correct the med techs if they brought her the wrong medication. Remembered events that happened earlier in the day or week. She caught covid at a short term rehab after a hospital…
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Medical Devices, like Life Alert, but calls me instead of service
Like many on this forum I can not leave mother alone, but life happens - have to run out to the store, have my own doctor's appointments, need a break from the crazy, etc. Last week I had to run out to pick up a prescription, sat mom down in her chair, told her to be good and that I'd be right back....Like any small child,…
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White Matter Brain Disease - Dementia
My elderly mom was recently diagnosed in the hospital via CT scan with white matter disease of the brain. She was there due to a third fall in recent weeks. The hospital stupidly discharged her after 36 hours even though she could not walk and was in delirium! Her primary doctor saw her there and confirmed dementia. He…