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Current Situation / Eating Habits
Current situation- Mom diagnosed 2 years ago with dementia mainly due to mini-stroke damage/but potentially also has ALZ or other contributing factors. She was living alone past 2 years, but under the mostly constant care of her sister, who has decided it is now too much for her. So I moved mom here with me (and my wife…
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Dementia Exiled: Continued & Concluded
Thank you all who have related to, understood, and reached out to me with our latest batch of caregiving madness. As things keep going downhill so fast I haven't been able to say proper thanks to each of you. Here's the conclusion of our dementia exile... Dementia Exile: Part 3 - The Hospital…
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It's time to move my mom to MC, how do I tell her?
My mom is 86 with alzheimers. We have had 46 hours a week of home care but I can no longer handle the rest of those hours and she needs (and has been approved) to enter MC facility. I kno it's needed but feel so guilty. She has always been a homebody. Has said many times she would rather die than go to 'the nut house' as…
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Father is in denial of mom's Alzheimer's
Hello everyone, I'm new at this. My mother was diagnosed last June with Alzheimer and she lives with my dad. They are both in denial of this disease, Dad thinks its just old age and Mom just does not remember. I live 3+ hours away, but I visit at least twice a month. I was their this last weekend cause my dad had a stent…
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Using Poetry as an Outlet
Hello everyone. My amazing momma is writing a series about using poetry as an outlet for people who have someone close to them that have Alzheimer's Disease or Dementia. If you're interested in this idea or reading poetry about this difficult topic here's the link to the article:…
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Not Sleeping & Obsessed w/ Blankets
Well it seems we've hit another milestone in ALZ with our LO. She's not sleeping much at night. We'll go to bed and she's up and out of bed numerous times, walking the hall, trying all the doors, knocking on our bedroom door, talking right outside our door, etc. Sometimes it goes on for hours before she settles down. And…
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Respite Care(8)
I'm looking to place DW in Respite Care in the next couple of months..I went on line to search for rules & requirements but did not find much...My questions: Can I as a caregiver make the arrangements? or does Medicare have to do it as their paying for it? Who gets the ball rolling on this.. - also are weekends approved? I…
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Who would have known the Celexa was needed and works well
Was having issues with DH for a while due to extreme sun-downing, agitation, sometimes aggression, etc., that has been going on for some time. I have posted about it looking for solutions, advice, etc. DH has been on Seroquel for awhile.. Adjustments had to be made because too much at one time made him worse. Finding the…
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Dementia Exiled
The last two weeks have been a bloodbath of anguish, fear, and trauma. I'm guessing some of you have been experiencing the exact same thing... Dementia Exiled: Part 1 - Escape https://www.stumpedtowndementia.com/post/dementia-exiled-part-1 Dementia Exiled: Part 2 - Shelter from the storm without. No shelter from the storm…
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More than dementia? Parkinsonism?
Hello, My mom is 76, but I saw the first signs of dementia in her when she was in her late 50’s or early 60’s. In the mid 2000’s, she was still working but was making mistakes at work that didn’t seem normal and I knew then, something was going on. My mom also had a tendency to fall easily, or just collapse. She struggled…
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Return Home from MC
This is my first question, but I have been reading this forum for almost a year. I have read several posts recently about LO moving into MC. Has anyone moved their LO to MC, then later needed to bring them back home because they could not transition? Here is our background. Our 100 year old Mother has late stage 5…
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Haloperidol(1)
I am NOT questioning or criticizing my mom's physicians. I'll throw this waiver out here to begin with. Diagnosing people you only see once in awhile with alzheimers is a difficult thing. And then trying to help a patient is a trial and error process because everyone is different and it can be difficult to determine what…
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Walking at about a 45 degree angle
My mom started walking around maybe 2 months ago with her back bend at at 45 degree angle. I know there is such thing is muscle weakness and that it happens gradually but this just happened all at once. When we try to straighten her up she's not in pain. I don't know if this is a habit or if she's really walking like that…
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Where’s Cobalt?
Anyone seen a post from Cobalt lately? I’m wondering how she is.
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Domestic Partner of Caregiver/Daughter
NOTE: Apologies for a very long first post. I am reaching out on behalf of my girlfriend, who I've been with for about 3 and a half years. We live together and own a home. We are committed to each other, even though we are not yet married. My girlfriend's father was diagnosed with early onset in the Fall. He is still…
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Advice needed for depressed father
Hi everyone, My brother, father, sister, and I are a caretaking team for my 78 yo mother, who lives at home. My brother lives with my parents and I come every other day to be with my mom. My mom is in the later stages of dementia: incontinent, frequent UTIs, losing mobility, starting to lose her appetite, and is beginning…
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Mom with dementia wants to date!
My 71 year old Mom who has dementia, early/ moderate stage, wants to date. She is “boy crazy” like a teenage girl. Anyone have advice or been in this situation? It’s all she talks about and says she’s miserable and lonely. We are obviously not going to let her go out with a stranger or be alone with anyone.
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Parents need different levels of care
Does anyone have experience with parents needing different levels of care? Mom needs MC and SD needs assisted living but I’d like to keep them together.
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Feeding mom
My mom is in her 5th year. It's becoming so hard to figure out what she likes to eat. She used to eat fruits and vegetables, not much meat. Now it's a pancake for breakfast, cake mixed with pudding & cool whip & ice cream for dinner. She's lost a lot of weight so not worried about that & we have her blood work done & all…
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Trying to fit cleaning around people who are always around
I posted another message about being glad my FIL with dementia is finally living with us. I am. Very much so. It has been challenging to complete my household chores with my spouse working from home. Now that my FIL is here too, I'm needing to adjust my cleaning routines and not succeeding. One crinkle in the issue is that…
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Freezing cold to terribly hot
My mother with dementia for 4 years is progressing rapidly through the middle stages of Alzheimers, now she is exhibiting behaviors related to Sundowning that include hot/cold flashes. She'll scream "I'm freezing, I'm cold, I'm miserable, I can't stand it!" so I'll cover her up, but a beanie on her head, turn on a little…
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FIL finally permanently in my household
We moved early November 2020 near my FIL so that he could more easily live with us, not having to leave his familiar area where he's lived for many many years. Before that, my spouse and his brother had been switching off staying with him in his home (since July 2020) However, after we had somewhat settled in, my FIL did…
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Now what?(4)
After you lose your LO, it feels like, now what? What do I do? What do I do with myself, my dad, life? I have had periods of crying, but I think I am in a state of shock and sometimes I am just blank. My mind is not focused on anything in particular, I can’t really focus on shows or reading. I feel a bit lost now. There…
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Obsessions(1)
I know PWD often become obsessed with things, which causes them stress, and so we try to avoid the thing that is causing them stress. Usually it's something like a phone or some other mechanical object, and usually the fix is to remove the item. Our problem is that my sister is obsessed with her cat. She's convinced the…
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Communication and incontinence issues
I am new here so please bear with me..I am a caregiver to my sister who has early onset alz. She was diagnosed six years ago and has progressed pretty quickly. She lost her communication skills almost immediately. I have not had a conversation with her in about 5 years. Makes thing extremely frustrating ..she also lost her…
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Family now has so many opinions but will not help me
Hello all, since I’ve had my aunt I don’t receive any help from her siblings. My grandmother is 80 years of age so she can’t really help out physically but I asked if maybe my Grandmom or my aunt’s and uncles could call everyday just to talk to my aunt for a bit because it helps with her anxiety and it keeps her busy it…
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Bible Verse to Lift You Up 3/1/21
WE GET TO CHOOSE * Psalm 42:5 New King James Version “Why are you cast down, O my soul? And why are you disquieted within me? Hope in God, for I shall yet praise Him For the help of His countenance.” * Psalm 42:5 Easy-to-Read Version “Why am I so sad? Why am I so upset? I tell myself, “Wait for God’s help! You will again…
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MCF Chains
I posted this to the Spouse board, but forgot to cross post. There are a few national or multi state MCF or AL chains that have facilities near me. Some may be franchises. Any body have experience with Artis, Leisure Care, Benchmark, EPOCH, Masonicare? I’m sure there are more, and Amy experience you can share would be…
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grab bars in home - how to find help in central Texas
My mother is falling several times a week. So grab bars are needed ASAP. Our doctor told us to contact our local area aging organization. I emailed them and called them, and I've never had a reply. I would love someone to tell us what kind of bars, where to put the bars, and how to find someone to install them. We're in…
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MC room necessities
DW will soon be in an MC facility. Most likely stage 6 lady, needs help dressing, currently sleeps in cloths. Need help on types of clothing, bras, pajamas and whatever else to stock in room . Thanks