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Trying to wrap my mind around all this
As I had posted the other day, my mom is rapidly progressing and was put on hospice on Tuesday. That said, when the nurse came and did her evaluation, she stated it could be weeks-month for my mom until passing. Comfort meds are being administered as she has had long time back pain and then pain from her ankle with the…
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Mom won’t go to the doctor
Hello to you all. I am wondering how to convince my mom to go to the doctor. She began showing obvious symptoms in May and has really gone downhill since then. She has seen a PCP but refuses to go to the neurologist . My dad encourages her to go to a neurologist (as suggested by the PCP), but she continues to adamantly…
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New to Forum - Where do I go from here?? So frustrating..
Short version - My mom is borderline dementia and lives alone. We've done all the appointments, been given the tools of what to do to slow progression. My mom is depressed, covid has completely shut off all activities and trips to keep her active. She refuses to take any drugs which neuro has suggested and has refused…
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Where Do I Begin
I am at a complete loss. My mother was diagnosed with Dementia about 3 years ago. After having knee surgery about 2 years ago it has gotten worse. I have heard the anesthesia can sometimes progress the disease. I am at the point of having to decide what to do, is there any assistance as she is on a limited income and…
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Time for nursing home(1)
After 5 months of having my MIL home we’ve decided it’s time for a nursing home. I feel like such a failure. I honestly gave it my all but she’s completely disabled and I have to care for her 24/7 and it started taking its toll on me. I’m 38 with 4 kids (2 I homeschool) and a grand baby(who I keep so my daughter can work).…
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Hearing loss or inability to understand?
We've noticed that MIL has symptoms of hearing loss. She's 82 and has undiagnosed dementia of some sort. In the last 9 months we've noticed a sharp decline in her ability to hear the TV and in-person conversations. It's almost maddening the amount of time we are spending repeating ourselves - between her extreme short term…
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financing 24 hr home care
My mother has mid-stage Alzheimer's and is still living in her home which she absolutely refuses to leave. She's a fall risk, plus she can't see very well, so she needs help with meal preparation. Adult Protective Services has determined that to stay in her home she needs 24 hour home care, which she can't afford. Medicaid…
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Lost and confused(1)
My dad has not been diagnosed with Alz or dem. He has had multiple strokes and 2 hrt attacks previously. He has diabetes(uncontrolled) and has had a tramautic childhood. He will not willingly talk to his doctor about anything. We have no diagnosis and dont understand what is happening. He thinks my mom is having affairs.…
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Tony Bennett's Battle With Alzheimer's
Tony Bennett's Battle With Alzheimer's Disease (aarp.org) A very thoughtful piece in the AARP Magazine.
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Appropriate responses to mom's confusion
My mother is in a nursing home in MI. She has dementia that is getting worse. She knows that I am her adult daughter and that I live in NYC. She knows that my brother is her adult son who lives in the same city that she does with his wife and adult son. However, she also believes that she has other younger children and…
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Is it the meds, or just the late stage progression?
Could use a little insight for those who have been through the late stages with a LO. In last 2 weeks dad has stopped walking, struggles to sit up - so very weak. His vocabulary was limited before, but now it's just gibberish. And his eating has decreased. He's been put on new meds - still in the facility for that, so we…
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Seeking Help for Paranoia-No Diagnosis Yet
My situation with my 67 year-old mother has progressed very rapidly over the last few months. It started out about 4 months ago when my mother began accusing my father of cheating on her. In December, she began to send me "proof" that my dad was cheating, but it was never anything that made any sense or was actual proof of…
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Suggestions for Sundowning and Agitation? Medications?
I am getting stressed out! DH has been Sun-downing for the past several months to the point where he gets into everything, gets agitated, will not sit down and when it comes to bed time he becomes angry. He had a brother, now passed away, who had this issue but his wife did not remember what medications the doctor put him…
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Could my LO completely forget who we are within a week?
I'm new to the forum. Two days ago our family dropped my MIL off at memory care, at the door due to covid. We all felt horrible, as though we were abandoning her. She very bravely walked in with 2 kind employees. We were advised to not call for about a week so she could adjust. They said if she asked about us alot they…
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Mom doesn't recognize Dad
Hi, My mom sundowns, getting increasingly confused and agitated at night (wants to go home, thinks other people are there, etc). The toughest issue is that she often does not recognize my dad. They live together in their house. My brother and I are out of state, and often get frightened calls from either or both of them. I…
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Need help. I am new here.
Hi, So glad I found this website. There is so much to say so I will try to keep it short: - my mom has memory issues, I think they have gotten worse since COVID - we can't figure out how to get her to stop driving - she is driving without a license, she lost it - she also lost her credit cards. I believe all of these…
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Mom likely has dementia but in denial; Dad paralyzed into inaction
I posted here just over a year ago, topic "Suspected demensia in Mom, but gets mean/angry if discussed; Lyme disease connection?". (Sorry, not sure how to do links in this forum.) The short version is: I'm 41, an only child, living about three hours from my parents. They are both 66 and retired. There is definitely…
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New here - help with the mornings?
Hello, I am new to join this group and in need of some help. My mother was diagnosed with Alzheimer's at 62 years old and is now 68. The progression of the disease was very slow at first but it seems in the past few months she is rapidly deteriorating. The biggest issue we have is the mornings. Every morning she wakes up…
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Letting LO help
Hello, My mother has Alzheimer’s + probably vascular dementia. She was in a memory care facility, but we brought her home to live with my dad because of COVID. Every day when I am there she asks me for things she can do to help me. I understands she wants to have a purpose. She helped me shovel snow earlier this week and…
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Need Therapeutic Fib
I got my mom an appointment for a memory assessment at a geriatric clinic at a medical center not far away. I think she's at Stage 5. She's suffering night-time anxiety, delusions, hallucinations just for starters. A thorough assessment is the first step to get her geriatric psych help. The paranoia is the biggest deal and…
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Coping with the grief of caregiving
An excellent webinar about understanding caregiver grief and how to cope with the sense of loss as a loved one’s disease progresses. It helped me gain some insight to my emotional state and I thought it is well worth sharing. There are other good resources at the Ontario Caregivers website. https://vimeo.com/421756670
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Question about Old Posts
Hi all, I haven’t been on here in awhile period I have to write a timeline of my mum’s illness and I thought I would look back on my old posts here. I started posting in 2014 but it looks like posts only go back to 2019. anybody know anything about this?
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Dad going downhill
My dad is now under the care of a neurologist (100 miles from where he lives) and will be going for a PET scan next week. A couple of weeks ago, this neurologist prescribed Paxil for his sleep problems plus his obsessive behaviors. The sleep has gotten much better. The obsessive behaviors I don’t see improvement yet. He…
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Cell Phone Recs?
Hi! My grandmother and I are looking for a phone that her mother, who is her 90s, could possibly use. She has a habit of hiding things and then forgetting that she hid them, but has a good track record of keeping a landline on the base. The reason we need the phone is that she recently tested positive for Covid in her care…
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Rapid progression- hospice
Well, for all the reading and trying to educate myself about this disease- I guess some things just don’t always follow the “usual path”. Mom was fully self functional and we had no idea she had any of this, then got a UTI in October that kicked off rapid progression and we were able to get her diagnosed with mixed…
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Importance of checking credit reports at least annually
t’s been years since I last posted. Just completed 5 years without my sweetie. It’s been both fast and slow and yet I still feel like he is coming home for dinner every day. My lifesaving alzconnected e-village is never far from my thoughts. I refer many people and do check the posts occasionally. It is difficult to come…
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Fearing the incontinence stage
I feel like a jerk saying this, but I'm really fearing the incontinence stage if/when my mother gets there. Right now, she can still manage her ADL quite well, but if she starts needing help toileting or starts having accidents (or needing help bathing), I don't know if I can handle it. I'm the secondary caregiver, my…
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How to Have Friends Over Without Live-In Mom with ALZ??
The COVID restrictions have kept everyone at bay for the past year, so not having a social life became the norm. My mother-in-law lives with us and is 91 with moderate ALZ, which is fairly unrecognizable as she's in good physical health and isn't naturally social. We're in our 60's and a lot of our friends are from our…
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For ButterflyWings
Hello ButterflyWings, I wanted to get back to you regarding this image you saw and let you know that I've searched through my old posts on the forums, and also contacted the moderators for assistant in searching my posts - none of us can find the image. The moderators let me know if they do find it they will take it down…
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When a Parent Does Not Recognizes You
Hi everybody, It’s my first time posting here but I must do so because I am looking for caregivers who are going thru a similar situation and could help me get clarity on what I am going thru with my Mom. I have been home with her for almost a year due to Covid. We got Covid at the beginning of January this year. She also…