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Things to Do for Mom with Early Onset
Hey everyone! My mom just got diagnosed with Early Onset Alzheimers, she's only 50 years old. She still knows whats going on so she is very very sad, cries a lot and is bored. I was wondering if there are some activities others like her like to do? Since she still knows what's going on, She doesn't like how she can't do…
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Nothing is enough!
My mom is in moderate to late stage dementia. Overall healthy, with many of the same issues you are all dealing with - but for the most part, with meds, manageable. It is my sister that I am worried about, she is Mom’s full time companion, but she is burnt out. She is showing signs of early onset, but it could be stress. I…
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Sudden deterioration in memory and change in demeanor
Is it common for someone with Alz/dementia to have memory suddenly decline significantly? My Mom (96) has a show she LOVES to watch on TV - loves to the point that we have recorded every episode on her DVR and replay them continually. She talks about the star (local vet), wants to meet him, wants to see his clinic, etc.…
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Choking(3)
My 77 year old mother lives with me full time and has late state (I assume) dementia. We are seeing her neurologist tomorrow and I want to go armed with information so I can help mom. What have you experienced with your LO choking? In the past 6 months she's had about 7 choking incidents where we have to give her the…
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Psychological Effects of Hoarding, Clutter, Disorganization
I've spoke on hoarding before, it seems easier to talk about than to take action and rectify. This is a house (4 floors, garage, yard) full of STUFF! I found the best approach is to tackle a project (room or space) at a time, while my mom is sleeping. The more I clear out the more it seems there is to do. Today, I cleared…
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Shifting Mom's Understanding of her Being in AL
Hi all, Mom has now lived in AL for 7 months and overall her adjustment has been great. She's made friends, participates in many activities, loves her room, and is very happy there. The problem is that her understanding of being in AL is to be safe from Covid. She thinks that she moved there temporarily to live in a covid…
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End of life stage for dad
I’ve been by my dad side threw this long journey of Alzheimer’s... In the beginning it wasn’t that bad but I would come see him daily at future care in md and notice small things but wasn’t that bad... over time he been bed bound had strokes his leg is contracted poor circulation of blood flow to the leg they believe it…
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Incontinence supplies covered by insurance?
Hello, My mother resides in memory care in an assisted living facility. The facility offers an Incontinence supplies package but the prices are very marked up. We provide them with supplies that we order from amazon. The costs really add up, does anyone know if incontinence supplies are covered by insurance for those who…
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Stimulation Activities
I am new to the site. Mom was diagnosed in 2015. Dad has been her primary caregiver until November. We have encouraged dad to accept help for years. Dad is now unable to care for himself or mom. They have lived in their home for over 50 years and now have full time care. The caregiver is amazing. She is caring for every…
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Anyone in queens ny area want to form a virtual support group?
I already posted in other forums so you may know about my mother. My mother is 84 and diagnosed with dimensia three years ago. I am her son. She seems to be progressing in the disease. I am scared of what i am told of the disease progression. I pay to have a team of ladies to help me. I do not have the physical presence of…
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Medication, UTI or just Alzheimer’s?
Mom has been home with us since December 16th, sleep has always been a little rough with her, before Gero psych unit she would sleep 12 hours a night. After coming home, she sleeps maybe six on a good night... anyways, the last week has been tough, mom says she is tired, I get her in bed, and then next thing you know she…
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Helping mom adjust
Hi everyone, my mom moved into MC a couple of weeks ago and has been having a hard time. I understand this is normal/to be expected for someone with her condition (they think she has FTD but we will find out for sure on Monday; she is 67). I live far away (3,000 miles + 3 time zones) and my mom tries to hide her condition…
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Grandmother keeps trying to give dog harmful things
In order to make sure that my grandmother eats a proper meal and that she takes her medicine*, my mom and her siblings each take a few nights a week with her. When we have Grandmom**, mealtime is an issue. She insists on feeding my dog human food. I often put a baggie of his kibble on the table, but she’ll keep on feeding…
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prescription treatments
I know individual results vary a lot, but in general: 1. Are the drugs proving to be worthwhile, in terms of symptom alleviation being more significant than the side effects? 2. Is the choice of which Rx to try first pretty much a random choice, or will certain patients and symptoms lead to one specific drug over another?
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Thank you(12)
I have been a lurker here since March 2017. I don't post, but I log in almost daily as part of my morning coffee routine to keep up to date. I just want to say thank you to all who contribute. I have learned so much here. I've laughed, cried, nodded in agreement, shaken my head in disbelief. This forum has been a comfort…
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MIL is back...FINALLY DH's sibling sees the light!!
DH's oldest sibling and spouse brought MIL back to us yesterday. The first thing out of sibling's mouth was - wow! I don't know how you did this for 16 months - we are exhausted after 6 weeks. Basically...all that happened was what MIL does here on a daily basis but since they've never had to deal with it before they were…
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Forgetting how to Walk
Hello everyone. It’s been a rough day today. My mother fell twice. The first was with me this morning. We were walking back to her bed from the bathroom. I was right behind her and she had her walker. It looked like her legs just gave out. I caught her, but had to put her onto the floor and then help her up. The second…
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Moving My Mom to New Facility and Dad Staying in Assisted Living....worried
Hi there, If you've read my posts in the past, my journey into the world of Alzheimers has been chaotic. It is about to get a little chaotic (I should say more chaotic) in the next week or so and I am looking for some guidance. My sister and I placed my parents into assisted living at the end of NOvember. My mom has been…
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Counselors For Accepting Diagnosis
Hi, My mom was recently diagnosed (in July 2020) with early onset dementia. She just turned 65 and is struggling with some minor depression from the diagnosis, only complicated by the fact that the COVID pandemic has reduced her ability to do the things she wants to do in life, and continue normal social interaction. It…
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Colectomy on Late Stage Dementia Patient Advice
Good morning - My father who is 83 years old has been suffering from significant colon issues and has been in and out of the hospital. Basically his colon is no longer functioning normally and he has significant fecal impaction. He's been in the hospital since NYE morning and none of the procedures that the doctors have…
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No no no no no
Hello everyone. My dad was diagnosed with Alzheimer about 5 years ago. Two years ago he was also diagnosed with normal pressure hydrocephalus: actually the normal pressure hydrocephalus was already there when he was diagnosed with Alzheimer but considered to be not serious. It goes without saying that we are now living…
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Bible Verse to Lift You Up 1/7/21
GOOD MEDICINE * GOD THOUGHT: Proverbs 17:22 NIV “A cheerful heart is good medicine, but a crushed spirit dries up the bones.” * VICTORY SHOUT: Cheerful thoughts! Healthy spirit! * POWER PRAYER: Holy Spirit, enable me to throw out sad, fear thoughts and replace with cheerful, courage thoughts. * The above verse is never…
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Dad is being mean to mom, can I do anything?
Hello - My parents are both 83 and living at home. Mom has moderate dementia which has been taking its course getting worse for the past four years but has not been tested. I do not think they want to even get the test. Since mom's abilities have decreased, dad has been taking on more responsibility in addition to what he…
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Looking for a good nursing facility for my grandmother in Fort Worth, Texas
I am now in a rehabilitation center with my grandmother, who is recovering from neglect and abuse from a nursing facility. I am trying to find a nursing facility that will care for her. Due to the pandemic I am finding it hard to choose a facility. I am choosing blindly.
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Sofa recommendations - Incontinence somewhat of an issue
Hi, The sofa I bought about 2 years ago is hard a rock. I'm getting it replaced but before I buy I wanted to get some advice from other caregivers. My LO has mild ALZ and pee incontinence is somewhat of an issue. She's about 4'8", feisty, and about 175 lbs. So I will get a low profile sofa but I was wondering if leather is…
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Hyperactivity
Husband is quite hyperactive with this disease. Seroquel does not seem to address this situation. Have you found that your LO is more hyper with this disease? Have you found any solutions to this? Wandering or pacing is normal but never sitting down? To be honest, I would rather DH slept more. Maybe this is something I…
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A plea
To the family of my husband’s memory care “wife”, When you left your mom at memory care’s door, you left your mom. I did the same with my husband. Our vulnerable, brain compromised, loved ones were removed from their prior lives and homes and somehow found solace in each other’s company, believing the other is their…
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advice for the early stages
Hey all. Happy new year. I'm struggling with getting my mom diagnosed (one way or the other). To skip to the end, I'm looking for advice on how to tell my mom that she has an appointment coming up. If she does have alz, I think it's in the early-ish stages. She can still care for herself and will definitely know that she…
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Conservator/Guardian Court Paperwork help!
Does anyone here have experience with filing conservatorship financial and care reporting? This is my first year doing it (last year we had an attorney who did 99% of it and we just signed and she sent it into court for us: I’m on my own this year). I feel overwhelmed with this whole process. Anyone know of…
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Information and what I have learned!
I am sorry we are all going through this! There are good days and bad days. I always remember this is not my Mom. I have learn so much online with ALZ in the last 6 year or so, feeding my brain with many different techniques. Here's an example on some of the other websites that have also helped = Teepa Snow(AMAZING),the…