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Psychosomatic pain associated with Alzheimers?
Hi all, Mom has been living with my sister and me since COVID last March. She is about to be 90. Her Alz is progressing fast. Started in March 2020 with her asking me (from her living room in Maryland) when we would be landing on our plane from London. We are lucky to have an aide PT and thank god will be getting a night…
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I don't know where to begin
Background: My father passed away 2 weeks ago. He and Mom were living in another state, 1000 miles away from us. After the funeral, (although I have 5 living siblings) we brought Mom home to live with us. Everyone felt I was the best option. Now I'm not so sure. I only have one other sibling willing to take Mom in, but she…
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Looking for advice for a long-distance caregiver
Hello, I will be visiting my 80-year-old mother in Salt Lake City for the first time in 6 months, due to coronavirus. She just received her second dose of vaccine. I'm extremely anxious about seeing her, as her health has declined significantly over the past year, including her memory and cognition, but also physical…
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Dementia and Covid Vaccine
Does anyone have a loved one with dementia who took the Covid vaccine? I would be interested if they had any side effects afterwards. Per my step-father's request, my mother was given the vaccine last Monday. I visited on Tuesday and, after months of regular visits where my mother was what I call "her normal," Tuesday she…
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Thoughts on A PLACE FOR MOM service
Hi everyone, Everyone has been so helpful so far, I feel so lucky to have found this forum. I'm starting to look for facilities, probably memory care for my mother, as its only a matter of time at this point, I want to have my ducks in a row when we need to have her move for her safety (I would love for her to live with my…
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Nursing Home Bill
Hello, I am my mother's Power of Attorney. She had been paying her nursing home with her own money. She just went on Medicaid. She has a balance with the nursing home for her private pay care. She owes about $2000 there and I am able to pay $100 a month. They want the whole amount and sent me a letter threatening to send…
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Wants control back
My mom is 78, lives alone and was diagnosed with mild cognitive impairment in September 2020 but we definitely saw the signs way before she was diagnosed. She broke her hip in March 2020 and my brother and his wife took over paying her bills (they are POA). We found lots of things wrong with her bills such as multiple…
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Who Am I(1)
DH is in later stage. I went to funeral home and contacted the cemetery yesterday. DH is 65, diagnosed at age 55. Although he had the evidence couple of years before actual diagnosis. Children grown, one child is in another state and the other child is in Berlin Germany. I do not know what life is going to look like at the…
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Mischevious with super energy
I would guess my DH is in Stage 5-6, but sometimes he has symptoms of each stage so it is difficult to determine. Is it common to have a person you are caring for to be into everything - leaving water running ( I have turned off the valves under sink) open all the doors and closets, moving furniture around, bringing things…
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NY Times article on caregiving, dementia in times of covid
Interesting article with many wonderful insights: https://www.nytimes.com/2021/02/19/opinion/covid-dementia.html
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Sole caregiver-opposing family opinions on how to care for LO
I am currently the sole live-in caregiver for my 73 year old mother who was diagnosed with Alzheimer’s in 2018. I had moved back with my parents in 2018 due to traumatic marriage/divorce where I lost everything, including my physical and mental health for the most part. In 2019 my dad was diagnosed with cancer of the…
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Agitation, cussing, delusions and more
Hi friends, Folks who have experience with loved ones with dementia who experience a lot of agitation, then cuss and yell and hit... please weigh on So my mom has lived with us off and on for 8 years with Alzheimers. She has always experienced agitation. Of course, we do all of the non pharmacological things. Quiet the…
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First Appointment with Neurologist- What to expect
We have our first appointment this month with a neuro and I don;t know what to expect. She has been referred by our elder doctor and has an MRI from a few years ago. She has been acting out and angry at me so not even sure how I will get her there but not sure what to expect. Can they give her anything to make her not so…
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How to give support to the caregiver
My mother has been struggling with memory loss and confusion about events for almost 5 years now. As she started seeing specials and going through every test they could think to give her, I started researching everything I could find for an explanation. She is currently undiagnosed and going through a new set of tests as…
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Covid - Delirium - Decadron - LBD
My mom is early stages of LBD. She lives in an ALF. Before covid, she was with it cognitively, for the most part. She could hold conversations. Correct the med techs if they brought her the wrong medication. Remembered events that happened earlier in the day or week. She caught covid at a short term rehab after a hospital…
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Medical Devices, like Life Alert, but calls me instead of service
Like many on this forum I can not leave mother alone, but life happens - have to run out to the store, have my own doctor's appointments, need a break from the crazy, etc. Last week I had to run out to pick up a prescription, sat mom down in her chair, told her to be good and that I'd be right back....Like any small child,…
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White Matter Brain Disease - Dementia
My elderly mom was recently diagnosed in the hospital via CT scan with white matter disease of the brain. She was there due to a third fall in recent weeks. The hospital stupidly discharged her after 36 hours even though she could not walk and was in delirium! Her primary doctor saw her there and confirmed dementia. He…
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Transitioning from private pay to state assist
I am so scare to run out of money for my LO. Anybody have any helpful insight into what I need to do? Thanks in advance
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New Caregiver(2)
My mom moved in with us this past weekend. She knew she was going to move in with us and told all of her friends and neighbors years ago. This is not a new place for her as she has spent many nights with us in the past years. On Sunday, she was fine and dandy. When she woke up Monday morning, she was very agitated, using…
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Has Anyone Else Not Been Receiving Notifications to Messages?
Hi everyone, I have all the appropriate boxes checked on my profile for this site so I will receive notification via email when there is activity on a thread I began and (I think) responses to my responses. I initially received notice then they stopped. This has happened several times. I probably need to contact a Mod but…
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Know any good books about grieving for ALZ parent?
I am going through a hard time. I am close to my mother and I feel so sad that she no longer is the capable woman she always was. Mom still recognizes me and I can tell her stories about her life and about people she knows or used to remember. I feel the loss of her not remembering all the incredible things she has done in…
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Doubting my capability
Mom has been on hospice three weeks now. This has been some of the toughest time in caring for me in my short experience. While she is unable to walk, mom is still agitated and restless. Always trying to get out of bed, talking about nothing that makes sense, being mean and confrontational at times. Mom actually fell out…
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Bible Verse to Lift You Up 2/17/21
DON’T FALL FOR LIES * John 8:44 NIV “You belong to your father, the devil, and you want to carry out your father’s desires. He was a murderer from the beginning, not holding to the truth, for there is no truth in him. When he lies, he speaks his native language, for he is a liar and the father of lies.” John 10:27 NKJV “My…
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Advice on what to say(1)
I've been taking care of many things for my mom for a couple years now, including bill paying, cleaning, getting groceries, etc. As more of these things have been needed because she doesn't remember to do it, or doesn't realize how long it's been since she's done it, I've taken on more and more -which is OK, but every…
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Montelukast (Singulair) for advanced dementia?
Hi all, I’m well aware of the Montelukast trials currently in process. And I’ve had a few conversations with Larrytherunner regarding the drug, - but what I want to know, - is if anyone has used montelukast on their advanced PWD loved one? I’m wondering if those who benefit cognitively from this drug are those that are…
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What do I say???(1)
I had to run out to take some rx's to my dad. While I was gone, my mom asked husband if she was dying and saying she didn't want to die. (she is on hospice) How do I even begin on answering this? What do you say if she asks again? I am so heartbroken
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Just want to say thanks(1)
My DH is rapidly approaching end stage. He drifts further from me everyday and it is killing me. For two weeks I have begun and ended each day in tears. While he is still sleeping in the morning I pull up the forum and I just wanted to thank all of you who can relate, for giving me strength and patience and helping me to…
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Lost it big time!
I am ashamed of myself! My DH, in advanced stage AD, is making me crazy with bathroom issues. I change bedsheet, clothes and towels at least 3 times a day and night due to urinary issues. I can deal with that. Lately, he has been pooping in his depends, refusing to sit on a toilet. I can deal with that and I have no…
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Paradise gone wrong
We live on Maui and as wonderful as that may sound, our resources and care facilities here are lacking on top of being some of the highest rates in the nation. I am just wondering if anyone has experienced having a LO in between stages that doesn't allow them to be in AL yet not far gone enough to be placed in MC? We are…
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Plateau or just good at covering?
Has anyone experienced their LO plateauing in their decline with Alz? Mom has seemed to be solidly stage 5 for a long time now and holding. Being that she's younger I had been told to expect her decline to happen fairly quickly. I'm happy that she's still so able to be social and participate in things she enjoys doing at…