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Feeling overwhelmed with long distance care
Hello - I am new here and am hoping to get some advice from other people who have been caring for someone with dementia. I am 38 and live in PA. My mom is 72 and lives in FL. I'm an only child and my dad passed away 10 years ago. My mom was diagnosed with MCI in 2019 and i suspect she has progressed to mild AD (waiting on…
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Questions on falls, aggitation/combativness, Seroquel, and moving to SNF
I added additional background after questions, so you didn't have to read through it all to get to what I was asking I guess here are what I'm looking for advice on: 1. When a person won't use a wheelchair or doesn't know how to use a walker how do you keep them from falling? What would should I ask that the memory care…
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Suggestions
I try and see my Mom most days in MC, everytime I go she begs me to take her to to see her Mom. I try and distract, make excuses but she gets upset and I am running out of ways to keep her from getting upset. Any suggestions?
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Coming here for Advice
How many are coming here for advice and than not using what is given. I was one of them when I first got on here. I have learned that the advice given is given by caregivers who have gone thru or going thru this journey with our Loved One's. It is a lot easier doing what is suggested or at least trying to do it. Why did we…
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Help(18)
We have noticed a decline in my mom’s memory for over a year. We finally were informed she has a form of dementia but they are still running scans and tests to determine exactly what it is. I am worried about what happens when we need to move her to a new location because she’s 60 and doesn’t qualify for disability since…
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Follow Along and Chime In as I try to relocate my LO from CA to CO
My LO has gone through hellish isolation during the pandemic and we are trying to move her here because at least she will have her POA relative and elderly sister and brother can see her. Her illness has really progressed, and I don't want her 1000 miles away when she is at her most vulnerable. Long-distance caregiving and…
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Possible bed rail help
My grandfather has dementia and it's progressing. My grandmother is looking to buy a bed rail for the house, preferably the bed rails they use in hospital settings. My grandmother ordered a hospital bed a few months ago, but unfortunately, my grandfather was confused pulling out the wires and trying to break free from the…
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Looking for advice(6)
Hi there. I'm new to this forum. Our mom lives out of state. Our dad passed a few years ago and lately, mom has been confused when we speak to her. She often thinks dad is still there and when i call her, the next day she thinks I was there. She hasn't been diagnosed with anything and can otherwise take care of herself…
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Doctor's Visits(1)
Looking for some input and or advice. Mom is currently in a memory care center with lots of wonderful services, including dentist, geriatric care physician, ophthalmology, audiology, etc. She is coming due for a dental appointment and we have made the choice to use the memory care services since she has been just awful…
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Supplements specific for cognitive decline
Hey All, I wondered whether any of you have any faith in herbal remedies for dementia? I feel like so much attention gets placed on western medicine when it comes to dementia that most every herbal remedy/supplement out there gets laughed at. Do you all have any thoughts about this? Thanks, Elizabeth
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Where To Get Alzheimer’s Blood Tests: A 2022 Update
https://www.beingpatient.com/where-can-i-get-an-alzheimers-blood-test/
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Moving Mom to Memory Care this week
I could really use some advice on what and when to tell move we are moving her to MC. Some experts have told me to transfer Mom without telling. The closer we get to the date I continue to have concerns that this may unduly hurt her and cause long term damage to our relationship. Mom's Alzherimer's is a bit uneven...short…
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Need advice on paranoia/delusions
Hello All. My darling mother is in early to mid-stage of unspecified Dementia. It is completely different than what I previously experienced with my grandmother's dementia 20 years ago and I'm struggling. In the last several weeks, her delusions and paranoia have increased greatly and I am at a loss how to deal with it.…
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Constant desire to go to the ER or visit a Dr.
87 year old mother - living nearbye in an assisted living apartment. Usually once/week she will become very anxious and want to go to the ER. At a minimum she wants to see a Dr right then because she doesn't feel well. It is an extremely tense situation to try and talk her down. She becomes angry and agitated and…
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You Are Not Alone
Kermit the Frog was right, it's not easy being dementia, but there are folks out there to help 'cause they're stuck in the muck too. You Are Not Alone https://www.stumpedtowndementia.com/post/you-are-not-alone
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(Vent) feeding her!
For the past two months or so I've been handfeeding LO every meal because she has gotten to where she just can't seem to feed herself and does not drink anything herself either. She has actually been totally still the majority of the time almost as though she is paralyzed but she can walk slowly with assistance. This was a…
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Not sure where to turn
Hi, I am new to this board, and am hoping to get some guidance. My mom has been showing signs of dementia for awhile now, but has gone downhill fast over the last few weeks. She is 82, still living in the house with my 89yo dad. She has been to a neurologist, who recommended neuropsych testing. We are in the process of…
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End stage dementia - discharge from rehab to home for hospice care
Hello all, Only child here. Reporting that mother who had a stroke and who has end stage dementia is being discharged from rehab to home for hospice care. Prior to her stroke, I and my husband had been taking care of her at home. Placing her in a long term facility crossed my mind at times. I had thought maybe she would…
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Advice please(7)
Lately my aunt hasn’t been wanting to eat , not sleeping and being argumentative about hygiene, she speaks often about hurting me, refusing medications. Is it possible that I can take her to a hospital and they can possibly admit her to a psych unit for observation?
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Increasing Trips to ER
90 yr old mom fainted yesterday and taken to ER. Fainting/ER incidents are increasing and frightening to me when they occur. Mom tells me she has no recall of what happened after she but tell stories when asked questions, PCP mentioned test results show low blood pressure etc. The main issues, causes for concern are…
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keeping oxygen on
hubby keeps taking the tubing off and canola out of his nose. Very important to keep his O2 numbers up. Any advice on how to keep it on him. He has been up for 1 hours straight and he has taken tubing off app. 20 times since then. I have it on as snug as possible.
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Care Colloquium in Roanoke, VA
I'm previewing 30-minutes of our documentary Wine, Women, and Dementia at The Care Colloquium conference in Roanoke, VA, on Monday, November 14th. Is anybody else attending? If so I'd love to meet you in person!
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Bible Verse to Lift You Up 10/15/22
POWER THROUGH HIS SPIRIT * GOD THOUGHT: Ephesians 3:14-16 * “For this reason I kneel before the Father, from whom every family in heaven and on earth derives its name. I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being,” * VICTORY THOUGHT: God’s Spirit grants me…
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Is this normal in dementia?
I see this question in so many forums, FB groups, Reddit, every space where us family caregivers congregate for help! So I decided to give write up my answer, let me know what your's is. The Question: What's normal in dementia?…
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MIL advancing, DIL primary caregiver.
Hi all! I am new here and just wanted to reach out. I am the primary caregiver for my MIL. I have cared for ALZ patients before and have moderate knowledge, though anything new always helps! My MIL used to dislike me a lot, since the ALZ has come about I am her favorite person, usually..... there are days where she blames…
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Checking vision and hearing
My wife is in stage 6. I’m sure she needs updated glasses and I wonder if she hears well. Are there ways to check vision and hearing for someone who doesn’t understand verbal directions? Someone who is incapable of providing feedback? Thank you, in advance, for your responses.
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Mother thinks grown son is a missing child
My mother has been having Alzheimer's symptoms for a long time now. She of course doesn't think anything is wrong with her and that it's my dad who has Alzheimer's. She thinks he's her father. He's having health problems too and the majority of caring for both of them is all on me. My mom isn't comfortable with anyone…
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Memory Care & Diagnosis
Hello everyone,I have a question about the memory care placement process. I have heard from other caregivers that having a dementia diagnosis may actually put you at a disadvantage when applying to memory care facilities as it may prevent your loved one from being accepted and/or may increase the cost of care. I also…
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8 Months later
I joined this forum sometime in 2021. It was a wonderful resource for advice and comfort during a very trying time. My dad died in February. I miss him so much. A Facebook memory popped up for me today and I was reminded what a difference a year can make. On October 7, 2021, I was alone in my room crying and self soothing,…
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Privacy of your online medical records - using health care websites
I'm sorry for the deadly dull sound of that subject line, but here's some stuff I learned today. The short background - my sister Peggy has Kaiser as her insurance, for better or worse. I've generally been okay with them, except for their website shenanigans. Since this last May I haven't been able to use their site when I…