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Meeting with the Neurologist
New to this forum…We have met with the neurologist 4 times over the coarse of the past year. My DW does not understand why we are there, yet we sit and talk about her condition in front of her. It is very uncomfortable for me. When we leave she resents what has been said and voices her dissatisfaction with the doctor. Is…
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Bible Verse to Lift You Up 12/18/25
GOD IS OUR PEACE Isaiah 26:3 NIV You will keep in perfect peace those whose minds are steadfast, because they trust in you. John 14:27 NIV JESUS'S WORDS Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. Pray + Trust the Lord = Peace
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Memory Care Facility
There are so many MC facilities in So Cal that I just don't know what to do. Are any of you able to recommend a MC (or several MCs) to me in SoCal. Happy holidays, Russ
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It's a sad day
It's a sad day. I was in the backyard when I heard Donna bawling. I came in to see her yelling, jumping up and down and hitting the wall with her fist. When she saw me she charged at me saying I'm going to bash your face in (she stopped short) saying that if she had a gun she'd kill me. She's been on Quetiapine 25mg for…
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Using AI
I was curious as to how many of you may be using an AI platform like ChtGPT to converse about your LO. I have found this to be a very useful tool for several aspects: understanding observations, understanding the medications more in depth, confirming I'm doing the right things, confirming I'm not the only one that loses my…
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Hospice while in MC
Before I ask the people here at MC, can anyone comment on the benefits of having hospice while your LO is in MC? I’m not sure yet if he’ll qualify but wondering if it’s worth trying. He’s in late Stage 6. I don’t know how it works between hospice and the current staff nurses and caregivers. Just looking for some comments…
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TV Response
My DW with EO late stage 5 sits and watches a lot of TV lately. Her favorite is Hallmark movies but she does like to watch NCIS or Law and Order. The problem is she thinks the TV is real life. Watching Hallmark she is very calm but with the others , she jumps up and gets a foot away from the screen upset with what’s…
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87 yr old man with dementia missing…
Please don’t leave your loved ones with dementia alone for any period of time. When you are caring for them, have locks on the inside of all exits. This is so sad! Petro Kugo an 87-year-old man with dementia, reported missing and endangered from Largo, Florida, as of December 13, 2025. 😢🙏
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transition to incontinence
Most of us understand that we will eventually have to deal with this, but are any of us really prepared? This weekend DW went from having a rare, occasional accident to being unable to use the toilet. It felt like she was peeing everywhere but in the toilet. She still has good mobility and seems to get up when it is time…
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Did I draw the short straw...
I have really enjoyed being part of this forum. I get a lot of good information and it's great to share experiences. One thing I notice though is that many of you mention 'watching tv' or 'listening to music' or just in general interacting with your LOs in ways that I can't relate to anymore. And you say they are in the…
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PET Scan Amyloid results
DH just had amyloid pet scan. Just reaching out to see if anyone has any insight on where he might be with all of this based on the widespread findings. Findings were: "Tracer activity is noted in the brainstem and cerebellar peduncles but not in the cerebellar hemispheres. Tracer activity is noted in the frontal,…
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My DH is wanting to spend every minute with me
My DH is recovering well from knee surgery. I have been caring for him and not leaving the house for 4 weeks. He gets around with a walker and I can take the dog out for a walk now. He gets mad if I am out longer talking to neighbor. Doesn’t know what to do with himself. I looked into having a caregiver come to our house…
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Anger
My DW was recently diagnosed with ES. She suddenly turned angry at me as if I was to blame. She is violent in her behavior with horrible language, extremely scary facial expressions, and on a couple occasions physically striking me. Should this type of behavior be expected or is it evidence of another behavioral issue? At…
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Snacking problem
My DH (stage 4-ish ALZ) is snacking constantly. I've stopped buying anything "junk food" (nuts, cookies, etc) and have been buying him grapes, raisins, and mandarins which he will consume as much of as I leave out. I've hidden most of the foods that he can snack on but I'm at my wits end. He goes through the fridge,…
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The final blow to my Christmas spirit.....
My DH is in hospice care, and I know this will be his last Christmas. I have been trying to find some joy here and there, but on Wednesday my beloved 14-year-old kitty had to be put down. He had a mass in his abdomen and had stopped eating. His brother, my other kitty, died in September. I just feel like everything from my…
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Impulsive
DW decided this morning that she "had" to be at church early this morning to tell the pastors something. I caught myself realizing that this was one of those situations where I knew there would be no reasoning with her broken reasoner so we went early and upon arrival I just dropped her off at the door and parked the car…
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I wish you all peace
This is an extremely difficult, unexpected journey we are all on. Every day has so many challenges, it sometimes feels like the rest of life is passing us by because our loved ones and our focus have become narrower. While everyone else is getting ready for Christmas, we struggle every day to give our very best and run on…
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Newly diagnosed with Dementia. Caregiver.
I am a caregiver for my husband who has Dementia. I am very sad to see my partner in life in this stage. Some days he is better than others. What book or reading materials would you recommend for me? Thank you.
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Interesting article
After reading this, I truly believe that Gabapentin caused my DW’s EOAD. She was taking this prescription for her lower back pain caused by a car accident many years ago. Chronic and interventional painRisk of dementia following gabapentin prescription in chronic low back pain patients…
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VETERANS NEW BENEFIT - Accelerated Benefit life insurance option
If your spouse is a veteran and has Veterans Group Life Insurance the new benefit allows a family member or an alternate applicant to apply for an Accelerated Benefit Option (ABO) on a member’s behalf, such as when a member is medically incapacitated. With accelerated benefits, you can get up to 50% of the face value of…
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DH with mild dementia, sleeps a lot
DH sleeps 3 hours in the afternoon, @ 9 pm his eyes are closing. If I mention that he sleeps a lot, he gets angry and verbally Abusive. He is unable to help me in simple chores around the house that he used to. He doesn’t do much all day except go for one mile walk twice a day. Is this normal? How do I tackle this?
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Wanting to go home...
I saw this on a Facebook post by Creative Carer. Great tips on what to say or do when our loved one says they want to "go home"… The desire to “go home” is heartbreakingly common in the later stages of dementia. During the last few years of my mum’s life, she often spoke about her parents and longed to be back with…
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Feeling lonely and loosing hope.
This is my first post here, as I just joined today. My dear wife (DW) was diagnosed with early-onset Alzheimer’s back in February of 2022. I have been doing the best I can since the beginning, but I now realize I need some outside help. I’ve always been the type of person who thinks they can handle a lot and get things…
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Our 1st day
My wife (65) had lab work done recently and today the results were posted to her account that the lab work indicated that she has Alzheimer’s and we received a referral for a PET scan that is needed by insurance to ok the IV treatment. My wife is devastated and I have no idea how to begin to comfort her.
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Move to an apt. as a second home
Does anyone have experience with splitting time between two places? My dh is at his worst when it’s just the two of us home alone; he struggles with people and place recognition, including not knowing me probably 75% of the time. We live in a rural area on a lake and love our home, but given how difficult it’s becoming to…
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Door Locks
Any recommendations for door locks to prevent loved one from wandering outside?
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Acting out dreams while sleeping
My DH has started being vocal during his sleep and kicking and swinging his arms sometimes. I wake him up as he seems distressed. He says he was dreaming and was acting something out from his dream. He’s never done this before. Is this something typical for someone with dementia? Thank you.
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The Caregiver’s Brain
Greetings Friends, I have not posted here in six months. My wife’s dementia has been moving at a snail’s pace. The days, weeks, and months have melded into a fuzzy blob of time, and one day is exactly like all the others. I am nine and a half years into care giving, and the word “decade” will soon be added to the divisions…
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New to this whole thing
My husband, my best friend, was just diagnosed with AD. He is 65. He's had a amyloid/tau protein blood test, MRI, PET scan, neuropsych testing and it was determined that was the diagnosis. The neurologist was very scientific about what AD is but wouldn't tell us anything about progression or what to expect or what stage he…
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Sleeping is increasing
My DW has been sleeping 10-13 hours a day. Until recently this sleeping has been all together. Bed at 5:00pm and up between 3:00-5:00am. Of course a couple of times each night to wander the house and return to bed. We were up this morning at 4:00am and it is now 1:00pm and she has already tucked herself in for the night.…