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Reluctance to get further tests
My wife has a recommendation from her primary Dr for a brain scan and further diagnosis by a psychiatrist/gerintologist. What are my next steps?
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Does occupational therapy help
DH in early to middle stage ALZ. There is another neurologist nearby that offers occupational therapy for dementia as part of their treatment. It is a hassle to change doctors, but if having DH do some kind of therapy that would slow the progression I would make the effort. At home, he plays Sudoku for several hours a day…
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Iris L
Iris, I found your life story absolutely fascinating. If others want to read it, it can be found on Lorita's thread at the end on the page 4. https://www.alzconnected.org/discussion.aspx?g=posts&t=2147558954 Thank you for sharing it!
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Ricardo
Richard we are all at: Just need to talk to my friends (199). just look for that heading and you will be back with us.
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Why is this so very hard?
This was hard to write and undoubtedly hard to read, so if you're not up for it go back and pick another thread. For context my DW is late stage 7e and 73 years old. She very rarely opens her eyes and even when she is not quite asleep, she looks like she is. My DW's usual aide was upset this morning. While moving her…
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toddler grandchild - advice?
My wife has been in MC for 2 months; she is adjusting well, making friends there, participating with activities, and is loved by the staff for her infectious high energy, and her eager engagement with the other residents. It can be hard for me to visit sometimes, because she wants to come with me when I leave. I tell a…
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How to deal with NEW personality traits
I am new to the site. There is 15 years difference in my husband and I. He is 75. In late May, I noticed some disturbing habits he was beginning. DH is fully functioning except for the urges and impulses he can't control. It is disturbing and I feel like I got on an apology tour a few times a week. I love my DH but he is…
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Does DH really have AD? He seems so normal.
DH has seen the neurologist and had brain scan, EEG, verbal and visual test and has been Wdiagonosed with AD, but 99% of the time he seems so normal. I begin to feel like I made a mountain out of a mole hill. For years, he has been saying, " Oh, you know what I mean." About a month ago, he peed all over the bathroom floor…
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I feel like Alice going down the rabbit hole.
I am totally new here. First-day actually. Here goes…. My husband has shown signs of Early Alz. for quite a few years, but I didn't realize what it was until about 2 years ago. He has been on medication and forgets things we just talked about but then he will tell me the store I need is down the street on the left. He will…
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sleeping 15 hour or more a night, falling asleep during the day.
Dear Alz-connected friends: I'm back because my DH is now sleeping well more that 12 hours at night and falling asleep in front of the TV. I thought he was in mid-stage VD, but this behavior is increasing now. He is MY Caretaker, so I am now caring for him. He fell backwards in the kitchen this afternoon after getting out…
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She Wants to Help
From what I read my wife is in Alzheimer's Stage 4. She is in good health and wants to help with everything. Problem is, she doesn't know how to do anything. Worst time is in the kitchen while I'm preparing dinner. She is everywhere, asking what she can do. It's driving me nuts. It would be so much easier if she would go…
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Just Vetting!
I just need to vent a little in order to keep my sanity! Our Holliday weekend was like a rollercoaster. My DW gets up as a friend, has breakfast and soon afterwards turns agitated and starts her daily trash talk to me. “shut up, come on, leave me alone, etc.” I then sit next to her and watch Hallmark movies for a couple of…
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No conversation
Is this part of this awful disease? It’s been 3 days and very little if any conversations occur between us. DH , with VD, will most times respond to questions but to have a conversation is non existent! I’m beginning to feel I’m living alone. He wanted to work on a puzzle so I bought one, encourage him to work on it with…
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Service dog
My wife was diagnosed about 3 weeks ago with Mild Cognitive Impairment with Alzheimer's pathology. She's 64 years old and I'm 54. I don't remember who brought it up, but the idea of having a service dog was discussed. My wife has pretty much always had a dog. Right now we have a 13 year old American pit bull and a 2&1/2…
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I NEED HELP
hi, my husband of over 30 years is in mid stages and has taken to chatting on singles websites. I think it’s mostly sex talk. He is using his real (unique) name and is well known in his field. I’m not dealing with this well. He would never do this or somehow justify this behavior in younger years. I have done so many…
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Sometimes I Forget
There are other stressors in our lives and when they add up and I get anxious and grouchy sometimes I forget that she really doesn't know that the question she just asked is the same as it was the 20 other times she asked. That just happened. I snapped at her and she got her feelings hurt. I tell myself I have to do…
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Update: out of Geri psych unit
After six weeks in the hospital (2 in a medical bed waiting for a Geri psych bed and 4 in the Geri psych unit), my DH was released back to his memory care on Friday. Zyprexa was the drug that finally helped him after they tried Seroquel and Risperidone. He still feels anxious sometimes due to his disorientation, but hasn’t…
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Just Rambling... Again...
Is my DH the man I knew or someone new? Does this - the worst of his personality - come from who I know he's been the last 31 years but now just exacerbated because of his disease or is this just the disease? In any case it is impossible to continue with. If he were sweet and had the disposition of some that I hear of I…
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I didn't plan for this:
I am a fairly good planner. I was a project manager, so I know planning for things that can go wrong is wise. I have not planned for the case where I die before my DW. We have wills, POAs, and family members assigned to take over health care and financial matters. However, I have not planned for someone to take over the…
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@PRC regarding Grief
(This has been reposted from the "Supporting Those who have Lost Someone" section for more exposure) Please include "@PRC" in your reply so responses go to PRC Well, here goes. I lost my DW in March after 5-6 years as her caretaker and I still feel completely lost and overwhelmed by grief. As many times as I read from…
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Shower
I have tried everything I can think of to get my wife to take a shower, she is uncomfortable with me in there with her, she instantly forgets why she is in there, I've tried a nurses aid too any ideas 🤔
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Car ride
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Dog…how should I tell DH
Our dog of 13 years is struggling and I believe it is time to let him go. DH loves this dog. Should I tell him that he fell asleep and didn’t wake up or tell him the dog is in rehab to help him walk? Has anyone had experience with this they can share? Thank you
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Leqembi Concerns
I have read the posts on "The Problem with Leqembi" and recognize that it's no silver bullet. However, my DH with ES read in the newspaper about its FDA approval and wants to try it. He asked me to make an appointment with his neurologist next week. Background: DH is 84 this month. He was first evaluated in 2018 and…
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Is this sundowning
My Dh has been increasingly waking up after a couple hours sleep getting dressed and going outside. He doesn't go anywhere just thinks it's really early in the morning. Last night I got to him before he went out. Should I think about getting a alarm or lock? To be honest I don't know what I'm suppose to be doing. Don't…
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She is the Love of My Life, will she come back for a moment?
My DW, first showed signs of mild cog impairment during covid, July of 2020. Sill very mild what everyone thought was stress related. Then in 2/2022 we both were infected with a severe. Case of covid with brain fog, that I have been able to recover from. Not so luck has been my DW, although I have made many efforts since…
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Without love where would you be now?
my DH Lonny passed August 12. My son came to visit and we went to dinner. After dinner a band started playing. I said to my daughter “I wonder if they know the song “Long Train Running” by the Doobie Brothers. It was “our song” that we danced to many times in the 1970’s. The next song they played was our song. 😭💔 Grief is…
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Anyone use revastagmine?
My DH was taken off donepizel a few months ago and put on revastagmine because he also takes escitolopram. Apparently there is some concern about an interaction with donepizil. I am not a doctor so I am not sure what the story is. Just wondering if anyone else is going through this.
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@ M1
You have often mentioned that sleep fragmentation is a part of AD. As you may know, I don't have AD, but a diagnosis of cognitive impairment nos. Lately, I have been having worsening sleep fragmentation. I may sleep for one to three hours, or not at all during the night. Yet around 6 am, I will fall asleep for another five…
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Afraid to use the toilet
Hello, fellow travelers. Today was day 17 of DH’s hospital stay, and I am weary to the bone. I am spending 10-11 hours there a day because he is so lost. Yesterday and today, a new issue popped up: he is afraid to use the toilet. He will use it successfully all morning, fall asleep, then wake up afraid to use it. We make…