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Traveling is a problem
It has become increasingly difficult to travel with my husband. He gets so confused. I put everything on his calendar on his phone since he looks at that all the time (not that he remembers after he reads it…) This past weekend, we were to go watch our grandson play football. We were only going for the day. We had to leave…
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Advice on how to reply with DH lack of recognition
I am asking for advice on how to appropriately respond to my DH of 45 years. In the past few weeks, he repeatedly does not recognize me and is fearful of the "lady: who is taking care of him. He calls his sister and our daughter expressing concern about who I am, that I won't give him any money/stealing his investment…
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Just need to talk to my friends (214)
Happy 2026 to all our front porch friends. Hopefully this new year will be a better year for each of us and for our Country. Everyone is probably sound asleep right now and I will be in a few minutes, too. Stormy needed to go outside for a minute and I just thought I would get 214 started. See you later.
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I want quiet, he wants to talk
My DH, probably into early stage 5 of Alz. He is still able to care for himself and do small chores around the house. He is aware he has Alz, but rarely talks about it. Often tells me he just wants to be "normal". Although he did acknowledge this week that he couldn't handle the AM Express payment online any more and that…
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talking to people who aren't there
My wife has for a long time had delusions and some hallucinations (about 3 years) but she has recently started to talk to people that are not there. She is I think early stage 7, but in the DBAT it has that in the section of the final weeks. I know every case is different but for those that have experienced this what has…
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Not Showering
My wife is in midstage Alzheimer’s, living at home with me as her only caregiver. She manages all her ADLs except showering. I remind her in the morning to shower, and most days she skips it. I know because either I don’t hear the shower running, or if she does turn it on I know she doesn’t get in because her towels are…
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Trying to keep him at home
My DH is late stage 6 and is on hospice. I have a wonderful caregiver who comes to our home during the weekdays. Lately though he’s unsteady on his feet. Very difficult for me to get him out of bed and walk him to the bathroom for me to change him, give him his bath. We had a hospital bed delivered this week. My caregiver…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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Aromatherapy(1)
Has any one tried aromatherapy for dementia in their LO? If so, which oils help? I hear music and aromatherapy help. May be it will help him stay awake. DH sleeps at least 3 hours in the afternoon, though he goes for a one mile daily morning walk by himself. We take one mile evening walk together. I told him he should keep…
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Lonely but longing to be alone…
Hello- New to posting, though I have looked in on others for several years. My DH (age 70) has Alzheimer’s and Vascular Dementia, heading into moderate stage although not yet problems with ADLs. We have known this was coming (through testing) for around 10 years. Slow progression, so I feel fortunate for that. SO many of…
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Entering fast stage 7
I don't know if it's harder on me or my wife. She still knows who I'm but doesn't know what day of the week it is. Watching stage 7 with (VD) is very hard on me to have to watch her going thru losing control of her bodily functions. One day see is her old self and the next day something else. I see her every day for an…
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Heartbroken but comforted DH No Longer Suffering
It’s been a rough road for a while. My DH ended up in hospital before being transferred to palliative. He died peacefully 7 days later. We will miss him being physically here; however, we are at peace knowing he is no longer suffering. I thank this group for being so authentic and raw in questions and answers. I’ve gone…
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Sleeping almost all the time now
My DH is declining. He was probably only awake 2-3 hours yesterday. Hospice has brought a hospital bed here because many days I can’t walk him to the bedroom. Yesterday it took me and the caregiver just to get him from the hospital bed to the chair. What can I expect from here? He still eats but not as much. For those of…
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how do you talk to an elderlaw attorney?
I'm in the beginning stages of talking to a (not officially certified) elderlaw attorney. We already have wills, health care proxies, etc., but I wanted another pair of eyes to see whether we missed something. Here's my problem. DW has anosognosia and gets angry at any suggestion that she has a problem. How can I discuss…
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Now We Wait
Last Thursday was the last time my DW got out of bed. She’s been in and out of consciousness for most of that time, not eating or drinking much. Tiny amounts. Hospice nurse believes she is transitioning and I agree, though of course she could rally. She mentioned days to a few weeks. I don’t know if it’s these years of…
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The end is near
Today I was informed by the hospice nurse that they think my DW is in the very final stage. She is having difficulty swallowing and is taking in very little food or liquid. Yesterday she had only a few partial spoons of puréed food and juice. Today they are no longer able to give her medication as pills and so they will…
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Our mailbox relocated itself...
Occasionally (or maybe frequently) I like to pretend everything is normal and then something very strange happens that snaps me back to reality. Last week it was DH calling me to tell me that he went to get our mail and that someone had removed our mailbox and reattached it in a new location. After a few minutes of me…
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Update posted in comments - Move forward with hip surgery for DH?
I'm still not positive what stage my DH is in, but guessing stage 4 with some symptoms on 5 creeping in. Some days he seems close to "normal" and then there are days that are the opposite. He's still able to care for himself and even fixes dinner for us now and again. Still does his usual chores around the house. Withthat…
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How long has it been
I don't know any of you but I have told you more about me and my situation then I have told anyone else in the world. That seams kind of odd to me. I can't tell my own kids what is and has really happened. So I would like to share more about the people that I shared life details with. My wife of 50 years (we got married…
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Peeing all over himself
My DH with mixed dementia has started having accidents in the bathroom. Some of the urine goes into the toilet the rest ends up on the toilet, floor. He wets his pats and urine runs down his leg into his shoes. His shoes are washable but they need hours to dry. I bought him sone washable slippers so that I can get through…
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A suggestion for early to midstage caregivers
I have learned so much from those of you who share your experiences with this awful disease. To stay I was depressed and overwhelmed when I learned my DH has VD is an understatement. You have taught me so much about this disease, it's progression, what to watch out for, how to prepare myself as best I can for what is…
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An even sadder Day
I'm back home, sadly, Donna didn't make it. Due to there being no traffic I got to the hospital an hour before her pickup time (better early than late). When they brought her to me she was crying but I calmed her down by telling her she be home with Jazzy soon. Then we took a short walk, about 100 feet, to the car. Half…
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Feeling sorry for myself
Just got finished cleaning a foot of snow off and away from my car. Im 70 my husband who has alz and vd was in the house watching TV. Just having a woo is me day. Don't need to answer Just needed to vent. Thanks
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Sitting Vigil
I am sitting vigil tonight at DH's bedside. It took three tries to insert a new Foley catheter this morning. Each insertion in recent months had been more and more difficult. He began bleeding out. He has an enlarged prostate and a latent tumor that he's had for 23 years. He may have a new tumor, too. He has lost a great…
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Not one to post pics or memes, but this struck a chord
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His Battle Has Ended
The love of my life, my DH Joe, lost his battle with dementia on October 31. He was diagnosed 15 years ago and progression was slow until the last year when he was in memory care. It broke my heart to move him there but it got to the point where I couldn't keep him or myself safe. Hardest decision of my life. In Aug/Sept,…
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Why isn't Alzheimer's mentioned more?
So, here we all are. Why isn't Alzheimer's and dementia talked about more in our society? It's crippling and life-altering to us caregivers and our loved ones. My DW has it. Her mother has it. Her grandmother had it. My dad had it. My uncle had hit. My brother-in-law's brother has it and my 1st cousins wife has it. It's an…
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NEED TO FIND A SUPPORT GROUP in or NEAR LOVELAND, COLORADO
My wife of 46+ years is developing dementia. I'll confess it's pretty heavy for me at present. I need to find a support group for myself and maybe with her in the Loveland or Berthoud, Colorado area. I do not want to go as far as Fort Collins - an hours drive and it's a college town. She is 78 and I'm 79 and a retired…
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Stages of Alz
I see many mentions of stages that your loved one is at. Where can I find this information. My DH is in the later stages but I'm curious which one and how it is defined. Thank you.
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Relieved, sad, brutalized, and bewildered
My spouse passed away yesterday. Diagnosed with MCI/EOAD after a spinal tap 11/2021 age 61 Hospice 6/2025 age 65 Died at home 1/21/2025 age 65 Early onset can go fast, but that young heart can keep going at the brutal, brutal end. 6 days with no food or water, 2 days of agonal gasping. Excruciating. I am so glad it is over…