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Grieving(5)
This week has been so painful. Knowing can be such a relief but no I cry more. I had to laugh honestly though yesterday when DH was looking for the salt while it was in his hand. He didn’t seem offended. All my anger and frustration is now resolved with tears and regret. Maybe anger now at how the search for diagnosis took…
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End of Life
My husband is actively dying. He was placed on Hospice and remains in a Memory Care Facility. Although I have only posted to this site twice, I wanted you all to know how much support and comfort reading your postings has given me. He has had a diagnosis of mixed dementia for the last six years and he was at home prior to…
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I am ready to throw in the towel again...
First, I screwed up. I was talking to my sister-in-law on the phone and she asked how things were going with my DH. I told her a few things that have happened. Nothing that my DH doesn't know about or I haven't talked to him about. Little did I know, my DH was listening to my conversation. I guess he felt a need to…
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Introduction and Mixed Dementia Diagnosis
I recently joined and thought I would do an introduction as I expect I'll be coming here in the future. In 2018, my wife (then age 60) starting having anxiety and then complaints that her vision was bad. We went to various eye doctors and such. She even had cataract surgery. I knew something was wrong as she couldn't pour…
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Something I learned and slight update
A couple mornings ago we were awakened at 5:30am by loud souped up cars peeling out and making as much noise as possible. Our bedroom window faces a cul-de-sac and I recognized one of the cars a belonging to our neighbor's (directly across the street) high school age son's friend tearing out then having to make a sharp…
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Salt in the Wound
I can usually be patient with DH, because I know he can't help doing and saying hurtful things...but I want to scream when people constantly ask me how he is doing. Do they really want to know or is this like the checkout lady in the grocery store?...."How are you?" and she really doesn't want to know - it's small talk to…
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thinking of you Ed
I know it's a month today. I'm sure it feels like forever--and like an instant.
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Jmlarue
You were on my mind and hope you are getting some much needed rest. Also hope you have been able to some of medical needs taken care of. Please take care of yourself! Post when you feel up to it. Know many folks on here care about you.
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my longest trip
I'm leaving today for a month in England and Germany. Lectures and colleagues. DW is well cared for and both daughters and my semi adopted sister are near at hand. She is a DNR and A "do not transport" She has had no idea who I am for four years and she no longer recognizes her care taker. The rest of her body works fine…
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We're not married! - it's getting too hard
I surprise myself, that this seems to be the back-breaking straw: "I can't believe we are married. Do you have any documents to prove it?" I know I promised (46 years ago) to stick it out, thick or thin, sickness or health; and I feel like I must, for the rest of the family, keep her here, available for them. But god darn*…
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First day of a new phase
My wife changes in sharp phases. She doesn't seem to lose capacity and then get it back, more like one day something just changes, and that's the new normal. This was day one of blanking out. It happened in the shower. We were talking and she just stopped moving and stared straight ahead with a blank look on her face. Warm…
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Scooterr
How did your meeting with the community leaders go? Hope it was good and your wife was okay!
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New links for Teepa
I believe I sent links before but are now inactive because we were using them during the editing process. Here are the active links for our two sessions with Teepa. https://youtu.be/fLZHrsDERyY https://youtu.be/Eh4hN90cO7E
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Just outside the lion's den
DH was diagnosed in early 2017. He stopped driving after a serious car accident in 2013. Alzheimer’s has been a slow steady progression over the years. The last 4-6 months things seem to be moving a little faster. He still dresses himself commando, in sweatpants and a polo shirt, socks and slip on slippers, brushes his…
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Rapid decline after move to assisted living?
My mother (diagnosed with Alzheimer's at the beginning of this year) was moved by my dad to an assisted living facility on 6/20. Prior to the move, she needed some assistance bathing & dressing, and was experiencing intermittent incontinence (mainly at night). She also had a wandering episode and regular sleep disruptions…
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Doctors Appointments
I have been caring for my husband at home for several years and we have been managing to get by. Recently, I noticed it has become increasingly difficult for him to go up and down stairs and for the past several days, I haven’t been able to get him to walk more than a few steps from bed to chair.. My husband sees several…
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Is moving the right thing?
Hi everyone, I’ve been trying for awhile to decide whether I should move or not. DH is stage 5 Alzheimer’s. We live on a 100 acre farm 15 minutes from a very small town. Town has limited resources. We have few friends (fewer as he progresses) and are here alone most of the time. So I listed the farm a couple months ago and…
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out of hospital and in memory care
DH was discharged from the hospital on Monday 7/11 and placed in memory care. His first night was not good but he has settled down. He is still unable to walk and spits out his meds. He is on solid foods again, he had thrush in the hospital which prevented him from swallowing but is now eating and drinking. He was put on…
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This is great.
https://nadrc.acl.gov/details?search1=232 See the Guide_Billing_Codes_Dementia_Services_508_RO_Final_12-29-20.docx
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Answers
Hello. I am new to your forum. I have just placed my husband, Bill, in MC. The first few days went fairly well. He engaged with folks, both residents and staff. This is day 5. He has called me many times today asking me when he is coming home. Why he can’t come home. When I come to visit him tomorrow, is he coming home…
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This may be helpful
https://pblob1storage.blob.core.windows.net/public/nadrc/docs/2022-NADRC-Emergency-Prep-Toolkit-04202022.pdf
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Confirmed Alzheimer’s
Been awhile since I updated. Trying to have the life we can have before DH a gets worse. I posted awhile back when he was doing many questionable things. Well we got to a memory care doc and after the full battery of tests, final being a PET scan we have the diagnosis.so now to make the plans while he still can thankfully.…
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Just need to talk to my friends (175)
Jo, I've been having problems, too. Meant to start 175 last night and then this morning but had to water. When I came in didn't feel too well and tablet had to be charged. While it was charging got interested in the men's semifinals at Wimbleton and when it was over Carol called.. Finally got back to the tabket. She said…
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UTI, friends, hearing aides and referral,
Well just an update on dw. I found out Monday that she has a uti, seems kinda odd,they checked her at the er when she was there? Maybe they did a culture at the geripsych? I need to ask more about that. Yesterday another close friend of dw went to visit her. He said she didn't seem medicated? She knew him and continues to…
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Body Language
Hi all, and thanks again for your support and understanding. Every day I read something here that helps me. I am a retired veterinarian and love to study animal behavior. The other evening, my DH had a panic attack, jumped out of bed, and ran out the front door. His face had the look of a trapped wild animal. We had had an…
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How the DW is doing
Yesterday she screamed at her Son then later his wife but Grandson Jon she knew. She also had been yelling at me. At bedtime she was raising hell and got in bed by herself. She usually gets out of bed after a bit and sleeps in front room. She stayed in bed I kept checking camera to see if she made in to front room. When I…
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I can lie about my age!
So, it was a very hot day here in the midwest. I was outside hanging up laundry when DH came out and asked if I needed help. (he offers, but is incapable of actually doing anything that would help). I politely told him thank you but I was doing fine. Then he said that he doesn't like it out here like he did when he was 20,…
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Significance of 58
DH just asked me to “refresh him on the significance of 58.” Hit me hard that he didn’t know the meaning of our 58th wedding anniversary today. (21,170 days of marriage but who is counting.? Ha ha) He frequently tells people we have been married 57 years and it was the best decision he ever made (I agree) ….but today he…
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Needing Advice(1)
Hi all! This is just my second post and I have some questions. First I was wondering if anyone has experience with removing a cell phone from LO. My DH uses his with some difficulty on a regular basis. He has come close to giving out to much information on several occasions that I know of and I would like to limit his use…
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Help Where do I begin
My DH is showing signs of dementia and is paranoid and he says I am seeking to "put him away, like all women do" Now granted I have never mentioned doing anything but trying to protect ourselves from losing everything we have. We do not have a diagnosis yet, our appointment isn't until January 06, 2023, I believe he will…