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What type of facility?
I'm finally admitting that it's getting to be too hard, too often. She knows everybody, seems to be fairly normal in a lot of ways. She does not have any other major health issues at this time. She does not wander. Her ability to communicate continues to get worse because she substitutes "three to elevens" for any and all…
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Folks we were all bamboozled by government again.
https://gbdeclaration.org/
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Shoes from Kizik?
Has anyone here ordered from Kizik.com? The shoes look like they would be great for PWD. Just wondering how they would hold up. I'm considering either women's Prague or women's Eco-Knit.
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Can delusions be a symptom of early Alzheimer’s?
My DH has Alzheimer’s, stage 5 or 6. His memory issues became apparent about 4 years ago. Here is my question- ( something that has been bothering me for a long time)- can delusions show up even before the memory loss? We’ve only been married 11 years. His first wife died, a very traumatic time for him. After we married…
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Bad Week(1)
This has not been a good week. About a week ago I noticed everything in our eight year old LG refrigerator wasn't cold any more and that all the ice had melted. I called a number of appliance repair places only to be told they don't service LG refrigerators because they have something different about their compressors so I…
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Kids and cops
Yesterday, the kids in the family were out in the street playing basketball. A cop came down the street, pulled his patrol car off to the side, and got in the game with them. How cool is that?
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UTI driving me crazy
This is the 2 nd UTI in a year. My wife had me leave 3 days ago cause she didnt know who i was. One day later she wanted to know why i was gone. Married 50 years this Feb. my daughter was here so it was ok but first time we’ve ever been apart. Even now a week later she isnt always sure about me. We have been dealing wit…
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Mild dementia/ Alzheimer’s
I asked neurologist what type of dementia does DH has, is it Lewy body, he said no. He doesn’t know what kind, thinks probably has Alzheimer’s. Is this a good answer? DH restless leg and shaking in his sleep, neurologist says to have sleep study done. DH had sleep apnea before, ok now. Is this a sign Dementia getting…
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Down Syndrome, Alzheimer's Disease and Drug Trials
Stunningly; 90% of people with Down Syndrome will develop Alzheimer's Disease, much of the onset being in their 40's and 50's. Considering the recent disagreement re drug approval, this is an informative link, and in some aspects, heartbreaking. Well worth reading the entire article:…
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Sleeps so much
My 88 year old DH, who I believe is into stage 6, is sleeping 18-20 hrs a day. He doesn't ever leave his chair except to use bathroom. I know to many of you this would be a blessing. I know how fortunate I am by reading what you go thru on a daily basis. He eats very little except sweets and ice cream. He is diabetic, has…
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DH Forgets who I am - follows my lead
It’s difficult to accept the disease is causing DH to not know who I am. To ask if I want to sleep in the guest room or to say we can sleep together since we are both adults and ‘will behave'. Or to think I’m his girlfriend – hasn’t a clue what my name is but knows he loves me. At one point I took out our marriage license…
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DH is gone. I am numb.
Jesse died this morning at 10:47 am. There are no words for how empty I feel.
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Music player
I was looking for a music player that my wife could use, something really really easy for her to use. I came across the Smpl Music Player in my search. All she needs to do is lift a cover and the music plays. For her it's as easy as that. The price new is way more than I would pay but I bid on one off eBay and got it for…
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Should I take DH off the ira beneficiary list
As with most couples, I have my husband as one of my beneficiaries. We have children from both our previous marriages but no children together. During 36 children of our marriage, his children have no contact with me even though they live near. My children don’t live near, one out of the country. I have my children as…
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Good resources for younger kids who have to help with caregiving in a home
https://aacy.org/
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What a month(1)
I've surfaced from a very stressful month with DH. I thought things were under control and the main problem was that I was sleep deprived and he was wandering all over the house all night...well, he started yelling at me and with the home caregivers. He has always been so polite and sweet - but this was a real change. Then…
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What to do when simple affirmations are not enough?
DW around stage 5 has increasing confabulations, a mix of real current events in her life and confused random bits from her disease. Today she came up with some story about a woman who approached her and gave her a spare pair of glasses. She is indeed using some spare glasses temporarily in preparation for a vision…
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Risperidol
Has anyone’s Loved one had significant side effects with this drug, and if so, what were the side effects?
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Nova this week on Alzheimer’s research
Just saw this ad, airs here on Wednesdays. Likely pretty interesting
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Skin Picking/Stimming/Repetitive Behavior
My DW has recurring lesions because she cannot leave a minor blemish alone to heal. Bandaids are the only cure, but she can't keep one on for more than a few hours. It's hard to watch. If she's in my field of vision, I can see her picking at her chin. There are times I have to drive with my right eye closed because seeing…
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Seroquel(Quetiapine)
My DW Dr has her on 4(25mg) seroquel for sleep at night, which is working great. Prescribed by her psychiatrist. Her Alzheimers Dr wants her to get off because it could be making her digress faster. Wants her also off her Cymbalta(120mg) which she has been taking for 30 years so she can get on amitriptyline to help with…
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gets worse and worse
OMG. Now on top of everything else, the treating psych who made all the medication errors and whom I have asked be removed from the case: this morning on rounds she told my partner that I am the reason she can't come home. No discussion with me at all. Unbelievable.
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The National Imperative to Improve Nursing Home Quality: Honoring Our Commitment to Residents, Famil
https://nap.nationalacademies.org/read/26526/chapter/1 Cahpter 10 is the recommendations
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Every stage is hard
Every stage along this journey has been hard. From not knowing what the problem was for years, to his anger and walking on eggshells, to obsessing over fixing everything, to the crying, the wanting to go home, the not knowing where to pee, the up ALL night.... and now memory care. This isn't the worst stage, but it's…
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politics not science drives Aduhlm campaign
Inside a Campaign to Get Medicare Coverage for a New Alzheimer’s Drug The Alzheimer’s Association has pushed relentlessly to get broad access to Aduhelm, despite safety risks and uncertain evidence that it helps patients. The association’s campaign makes little mention of Aduhelm’s safety risks and uncertain benefit,…
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Coming off donepezil
DH has been sleeping for 14 hours a day and complains of being exhausted all the time. He has been on donepezil (5mg) at bedtime and mementine (10 mg) twice a day for over 6 years. Both have tiredness as side effect. His geriatric psychiatrist and pcp have decided to ween him off of donepezil but are concerned it may send…
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Update on cataract surgery
Well it's been a week and we went back for a checkup,my wife has 20/20 in the eye that had surgery, praise the Lord. Last night she was upstairs looking out a window just before dark and saw the brown pitcher she uses to put bird seed out under an arbor. I was shocked she saw it. I knew her sight was better last night. The…
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How many caregivers actually die before their loved ones?
I've seen a wide range of "statistics" regarding how many caregivers die before their LOs. The one that seems to make the most sense to me says that caregivers are 63% more likely to die before their LOs, as compared to non-caregivers. That is different from saying that 63% of caregivers die before their LOs. Another said…
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Just need to talk to my friends (168)
Morning, I was having a hard time getting on the thread so thought maybe it was getting too long - so will start 168. Ron - how great that you're getting your hearing aides before your trip to Big D. I remember when Charles would get his new ones it was like a new world had opened up for him - and me - he could hear the…
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When to tell family of diagnosis
Just wondering when is the best time to tell family/friends the diagnosis of mild to moderate dementia?