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Establishing a daily routine
I’ve been struggling with getting DH on a regular routine. He wakes up anywhere between 7:30 to 9:30, has his coffee, sits in pj’s watching TV till 12-1:00. He will then say he will get dressed but only changes his pants if at all. He has worn the same clothes to bed and all day for days on end. Tried waking him at a…
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Mobility vs accelerating DH's decline?
This might be a bit long but wanting advice on what you would do in this situation. To recap my DH has not been formally diagnosed with alz but has short term memory issues, declining MMSE and neuropsych test scores, some brain atrophy on his MRI, and small vessel ischemic disease. This all started 10 years ago,…
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Dealing with emotional reactions based on incorrect facts
Hi All - I'm reaching out to get some help dealing with what's becoming a more frequent occurrence with my LO. She has not been formally diagnosed with dementia but has been showing signs of short term memory loss for a few years now. Her doctor has been helping her by modifying medications, etc but it feels like we are…
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Emory trial results have been posted
After being sent back twice by the FDA for corrections, the Emory Montelukast Alzheimer's clinical trial results have been posted and they are now much easier to find. Just go to the clinical trial site, click Results Posted, go to Outcome Measures, and check out 8) CSF Amyloid 9) CSF Tau and 11) NIH Toolbox. Emory…
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Neuropsych testing
When your LO has received neuropsych testing, were you given a copy of the results? I was not told anything other than DH has mild cognitive impairment and this was reported to us by his primary care doctor. I somehow feel we are missing indepth information.
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DW made it through Radiation Therapy like a trooper
I guess I’m lucky my DW is in what ever stage she’s in as this radiation teatment every day for 6 1/2,weeks no joke. She had to wear special mask locked down to table so not to move. How would most of you have done if being done now. It’s over and everything worked out great v
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Rapid progression
is there any evidence that rapid progression of Alzheimer's indicates a likely speedy end to the life of the patient? Or can symptoms plateau at any given point along the trajectory. My DH has been declining at a phenomenal rate and I just have no idea what comes next.
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Overwhelmed and not sure what to do
Hello - I am sole caregiver for my husband with dementia / Alzheimer's. Things are changing fast for him lately. He will wander around the house and look at things like he's never seen them before. He will move things around, not remember about it, then get upset about who or why it was moved. He sometimes seems like he's…
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Memory Lane TV
I just read about Memory Lane TV. This is TV geared to people with dementia. On their website, they explain how their content is not plot driven and that it is very engaging for those with dementia. There was also a short video by Teepa Snow endorsing it. It says it can easily be installed on a television and the…
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How to respond to "why don't I remember that?"
We had a couple of quick family visits this spring including my DH's sister and three others, who stayed with us for two days. He has asked me a couple of times when she is coming and when I say she came a couple of weeks ago he says "why don't I remember that?". I usually just say yes, we had a great time, show a couple…
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Husband with MCI-vascular brain damage and 2 little kids
Hello. My husband has MCI due to vascular brain damage. I work fulltime and am the sole provider. My husband is 74. I am 54. Our kids are 9 and 13. I have 2 questions. (1) How do I find a CELA in my area? (2) Is there a support group for kids? Thanks, Kristi
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Advice Needed - Agitated Behavior?
So - Easter and grandkids hunting through the house for eggs seemed so set off my DH. He walked out the door and I followed him, with him saying things like these people in the house are taking everything, I have nothing left, etc. Fortunately, my kids were with their children happily playing and I was outside, trying to…
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MC failed us
I reported a month ago DW had difficulty going from home to MC, explosive agitation, being combative with staff and other residents - went to ER and then psych hospital. MC gave assurances she could return when stabilized. Psych hospital stay ended up being 25 (!) days with multiple adjustments to meds. She was already on…
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husband with fTD 40 yrs old
Hi Im new to all this my husband has been diagnosed with FTD I need help dealing with the behaviors, just with everything. Im the main caretaker , but his parents do help me out when I need to go to work. help !!
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Walkers
My husband has a terrible time walking, he leans to one side, shuffles and his feet turn out to almost heels touching. How he hasn't fallen from this is beyond me. He has a walker and it has been a battle getting him to use it all the time. I am very tired of being mad, sad and angry all the time. He isn't afraid of…
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I'm so sad
I've been my husband's primary care giver since he was diagnosed with ALZ. Now he is in late stage and because of many problems with aggression and agitation towards me and a parttime home health aide, he is in a hospital in a unit specifically designed for short term stays for dementia patients to help stabilize them…
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That wavering line...
I feel as though I'm wavering each day as we wait for a possible MC placement. We visited a geriatric doctor this past Friday after a 6 months wait to get the appointment. My DS and I spoke very frankly with a social worker. We described incidents we've seen of unsafe behavior, but most of all I was able to tell her how…
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Does anyone do supplements?
I know supplements are a far reach. If any of them were truly any good, they’d be using them but when you’re desperate, you want to find hope and anything.
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Alternative to MC--apartment with live-in hired caregivers--good idea?
My friend is seriously considering moving his girlfriend (PWD, 59 years old, early stage 6) into an apartment, where she will live with professional caregivers (in shifts) provided for through a state program. The application is in process. She may qualify for as much as 24/7 caregiver coverage, but if less than that, they…
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Memory Care Brain Exercises
My Spouse was recently diagnosed with mild Alzheimer's in South America. We are currently in the process of relocating back to the USA working with an agent. I chose San Antonio TX because it has 1 of the 33 research centers among other reasons. Is there a site on the internet where I can find approved or suggested memory…
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Denial(4)
When will the denial end? My DH won’t see a doctor, wear hearing aids, or admit he has any problems at all.
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Thanks for the advice
I got an appointment for a lawyer on 18 April to get everything in order. It’ll be relief to have at least one part of it done. There’s still so much to learn about what’s going to happen in the future. Other than some forgetfulness and not being able to drive, my husband is still pretty good shape. He will have an…
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Memantine and Aricept
DH has been on Aricept about ten months now. In my experience there is no way to discern if it helps. But it seems he tolerates it well and he believes it helps. I would like to hear from those with experiences of Aricept used along with Memantine. It seems the combination is prescribed when LO is in mild to moderate…
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Venting (again)
DH has been in a mood all day!! Started when I asked him to wash the knife he left on the counter. Sure he said, came in and put it in the sink! Can you just please wash it? Off the wall yelling he’s always wrong. Trying to calm him down didn’t help. Decided to leave for a bit ( he’s ok alone so far). Came home and no…
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Question for the younger caregivers
I’m 51 caring for 80 year old spouse. This is a question for people like me who have given up work to be full time care givers. How do you plan for your future? What steps have you taken to stay active and engaged mentally, physically, creatively, socially, and career-wise? What are your plans for returning to paid work…
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Coming Home From Respite Question
I’m thinking of putting my DH in respite for 30 days (minimum requirement at facility) so I can have a vacation. He is stage 5 cognitively but able to physically look after personal needs. He can be pretty good during the day but sundowns daily which can get challenging. My questions are if I do put him in MC for 30 days,…
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@M1
I have to thank you for enabling me to finally get some restful sleep. For the past two months I've been awake much of the night, and then sleeping during the day, into the afternoon. I wasn't able to get much done. You had mentioned the term "fragmented sleep" on a response to a member. I asked Dr Google and learned that…
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One journey ends and another begins
Like so many lately, my best friend, partner, lover, father to our children died on Sunday, March 24. On his last day, I was at his bedside for 4 hours during which I held his hand, stroked his arm and shoulder and whispered how much I love him, and sang to him, cried an unbelievable amount of tears and told him to rest…
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It's so lonely
hi I am Amy (61) and my husband (64) was diagnosed with early onset Alzheimer's in June 2023. Since I am also disabled I knew we had to get out of our house and into a care environment before disaster struck. We are in a really nice Assisted Living place now. Currently Ive been feeling lonely even though we're together all…
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Driving saga continues…a long vent sorry
I finally came up with a plan to turnover the RMV letter to my husband. Generally it went pretty well. He was very very upset. Said he did nothing wrong. He didn’t. Said he has a great driving record. He does. Then started asking who would do such an awful thing to him as he did nothing to deserve it. I just kept…