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Memory care question
Has anyone ever had your MC facility ask you to spend the night with your LO? Mom fell. She went to hospital and is ok but sore. They gave her some meds but MC wants someone with her in case she tries to get up overnight. Something doesn’t seem right
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Not Political... but for Texas voters on the forums
On the Texas ballot this November is Texas Proposition 14 which establishes the Dementia Prevention and Research Institute of Texas using $3 billion from general funds. The amendment would task the institute with researching causes, means of prevention, and treatments for dementia and dementia related diseases such as…
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Desperate for Help
My mom has been recently diagnosed with rapidly progressive Alzheimer’s. She lives in Louisiana with my brother and SIL and I live in Maryland. Any tips or suggestions on caring for her from afar? Because I’m really close to having her come to meet me up here.
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shingles vaccine
A study, in Wales, found that the zoster vaccine reduced the probability of a new dementia diagnosis by approximately one-fifth over a seven-year follow-up period. https://www.nature.com/articles/s41586-025-08800-x The Zoster vaccine in the United States is no longer available, and has been replaced by the two dose…
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General housekeeping, found a little money
I took over responsibility for bills a year or so ago, credit cards and all. We have various loyalty accounts from banks, from credit cards, and from traveling, points with American Airlines, Southwest, etc. Over the past year I have combined/closed various accounts. Closed a checking account at a bank we no longer use.…
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Falling
In the last six days my dad has fallen 4 times and landed in the ER 4 times. it is always when he is getting out of bed in the morning. He is in AL and he has a UTI at the moment. The facility keeps telling me they have him but they clearly don’t. I believe his weakness is temporary and caused by UTI but we cannot be in…
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Questions about Lecanemab
Hello, Is anyone on this site receiving Lecanemab infusions or know someone who is or has received it. The doctor has offered this therapy to my husband. I am interested in hearing the experiences of others who are or have received this infusion. Thank you.
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Suicidal
Has anyone had there parent with dementia have them become suicidal after they went into nursing home? My mom is apparently talking about suicide but I don't think she would do it. I think she is just miserable being in a nursing home with progressive dementia.
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Falsely accused of elder abuse
My husband and I help care for his mom who lives in an assisted living facility and has dementia that seems to be progressing more rapidly. Over the past five years since we have been helping her, she has been sharing some increasingly bizarre stories about members of her community. In the past couple of years, I have been…
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Driving Restored?
I'm very frustrated because the doctor told my DH (58) with EOAD that he should stop all driving until he could take a driving test to certify that he is still capable. We'd been going along our daily routine just fine with me driving him daily to the gym and grocery store (as he likes to get 1 item at a time). The day…
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Care home wants more meds because of aggression
My DH has late-stage early-onset Alzheimer’s with aphasia. For his safety and because I work full time, we had to move him to memory care 10 months ago. Before moving he would sometimes strike out at our home caregiver. In memory care he became aggressive when exit seeking and during grooming. We tried medication but ended…
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Emotionally and Mentally Exhausted
Hi everyone, it took me a little while to go ahead and type this ‘new discussion’, hopefully I am doing it correctly. My 78 year old mom was finally diagnosed with moderate dementia last week. My siblings and I knew she had some memory delays, especially after my dad passed a few years ago. I didn’t realize it was bad…
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Transition to wheelchair
has anyone dealt with transition to a wheelchair? Mom has started falling but refuses to stay in or use wheelchair. What do we do?
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Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
Hi! I was on the boards here 7+ years ago for my dad, and now I'm back for my cousin. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth.…
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Social support?
I just had confirmation of my suspicion and fear that I have an early stage of AD, and like so many others I decided to look for a support group, online or in person. I don't want to go through this alone as the symptoms evolve. At the age of 84, I am caregiver for both a life partner and a daughter with dementia; however,…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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Hot Spots - Wound Care
Hello everyone - Question…. Both my Mom and Dad are under Hospice care, both are in Broda Chairs or in bed, unable to walk or stand. Hospice is treating both of them for wounds. My dad has "mushy heels" I am told, they are putting plates on the bottom of his feet and elevating his feet in his Broda chair as well as using a…
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Memory Care Week 1
DH has been in memory care one week now. Biggest issue is his combativeness when being changed, which was a huge problem for me when he was home, as it is for many of you I’m sure. He’s also difficult to redirect when he’s doing something he shouldn’t, like taking a woman’s shoes from her room. Med adjustments are being…
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Need New Neurologist
Has anyone sought 2nd or 3rd opinions on dementia diagnosis? Does Medicare (Part A & B only) need a referral for second/third opinions for neurologists treating dementia, more specifically a Lewy Body specialist? I'm not happy with our current one who seems only knowledgeable in Alzheimer's. I tried looking for an answer…
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I just cried
Today was the first day for my DW to be in daycare. We’ve been together 24/7 since her diagnoses of EOAD in 2023. I dropped her off and went back to my car and broke down in tears missing her and feeling guilty of abandoning her, I know this is good for both of us and it is only 1 day a week. I can’t even imagine my…
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Assessor tomorrow long term insurance
tomorrow Monday meeting with nurse from our long term insurance. Anyone have any experience with this? I have list of meds doctors his cognitive impairments his ADLs. If anyone has experienced this please share. Thx
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First visit memory care
our visit was terrible. Hubby has been in mc one week. He was crying he wants to go home. Can’t under why he can’t be home. I said all the right things but didn’t do any good. I told him I’d be back tomorrow. I’m hoping he will have forgotten I was there. They say this is normal. How long will it go on. Is he going to do…
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Teepa Snow video on challenging behaviors
When a PWD shows a challenging behavior, I often dismiss it as due to a broken brain, and I often just try to distract or ignore it. In other words, a broken brain means there may not be a good rhyme or reason to consider. So why bother? I learned that some detective work can help. I saw this Teepa Snow video on YouTube,…
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Home Care Agency Recommendations in San Antonio, TX
We are moving to San Antonio, TX 78218 and am asking for any personal recommendations for in-home care agencies in the area. If anyone has used a company in that area for their loved one, I would greatly appreciate hearing from you.
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Please remind me I’m not a terrible adult daughter
The past two weeks, after some really bad situations at work, I made some big changes. I stopped visiting during the week I began a new (very low dose) antidepressant medication to get me through this and back on track so I don’t lose my job. The good news is the meds and no interruptions worked great - I am, basically,…
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She thinks she's "done something bad"
My mother has later stage Alzheimers dementia. She sometimes recognizes her children but doesn't know our names and requires assistance with all of her ADLs. We care for her in the home she has lived in for over 60 years. She has recently been perseverating on "I've done something bad" We can't find any pattern or…
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Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
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When I Become a Memory
My cousin wrote this in 2015. I just found it. When I become a memory… Think of me with a smile. Tears may fill your eyes, But only for a little while. Remember all the good things we did. Remember when I was at my best. Remember only the good times, And let go of all the rest. Remember when I was healthy And so full of…
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Is it getting worse?
How do I know if things are getting worse? My mom’s dementia seems to have gotten noticeably worse over the past few days. We’ve had street repair work going on nearby, with heavy machinery and loud noise, and I think it might have affected her. A few days ago, while the workers were out with their equipment, two of her…
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Exhausted and feeling Overwelmed
Just finished breakfast with my DW after a no sleep night filled with her nonstop talking , yelling at the imaginary people in our house, wandering, looking for "stolen" items and occasional outbursts of anger and aggression. My efforts to distract her constantly failed. She has calmed down now at approx 8 Am for our…