-
I feel so alone and lost at times
My husband was diagnosed with "MCI with a vascular presentation." The loss of his short term memory is jaw dropping. I'm observing a slow decline in him, but then some days, he seems "OK." I've noticed when he is around other people that do not see him on a daily basis, outwardly he seems fine. His adult children do not…
-
What Is Respite?
I’m so tired from 24 hours and going of aimless, but harmless, wandering, but, but… Today I have a caregiver for three hours. DW is accepting of her today. My respite is the garage door up with a soft rain, sitting in a lawn chair with the door into the garage locked so my DW stays with the caregiver, sitting here…
-
How long survive without fluids
my DH has been put on hospice. He is in hospital. He has had zero fluids for 3 days. He’s on morphine and Valium. His BP is still good, good oxygen, had some mottling which is now back to normal, strong pulse. He had death rattle which is now gone. Has anyone had this experience?
-
Treatment Options and Initial Questions
My sister was diagnosed today and she is 66. She is already on Donepezil 5mg. I see discussion around infusions. Can someone enlighten me on this? Also wondering what some good initial questions are to ask the doctor when we have our first in person visit.
-
Tonight
As I sit here tonight at 9:56pm I think I have had a really rough evening with my DH….but I know what I think is bad now really isn’t. He is probably in early stage 5 and I know there are so many worse days/nights coming. I try to remind myself that really we are still fairly normal compared to what many are going through…
-
being prevented from communication
My DW of 45 years has ALZ and is living in an assisted care facility. The oldest daughter has POA. She and an unknown DR have implemented what they call a "NO CONTACT" plan where I am being prevented from any communication with my wife. They say this is for her "well being" and that it is permanent. She is taking 3 or 4…
-
Just needed to vent a bit
This post is just a vent to others here who know where I'm coming from. The people in my Alzheimer's support group are great and they totally get it too. My wife is 65 years old and about four years into this insanity that is Alzheimer's. She's been my best friend, wife, lover, mother of our children, grandmother now. But…
-
Useful resource, IDK?
Hello fellow caregivers. Like many of you I am on a solo journey caring for my LO with varying degrees of this baffling disease. Wondering if any of you have found AARP to be a useful resource? We live in a rural touristy mountain area, limited resources. I have been reading the 36 Hour Day which has been helpful. I ask…
-
Personality changes in caregivers
I read a very interesting comment in a Facebook caregiver group about how taking care of a person with dementia causes changes in the caregiver. Basically, the constant hypervigilance and responding to unpredictable and alarming behaviors over time produces emotional flattening and fatigue because our nervous systems…
-
Alzheimer's communication tips
Found this in another group and thought it'd help here: If you're caring for someone with Alzheimer’s, adjusting how you communicate can ease frustrations and improve understanding. From visual cues to gentle tone changes, these strategies can help build connection. Learn more about how to communicate effectively with…
-
92 years young no longer able to live independently
I have recently moved to my daughter’s home in Alaska as my memory has (lack of) caused me many problems. Doctors here indicate there is no conclusive testing for Alzheimer’s/brain disease and I have been given no clue as to my brain health or diagnosis. Parkinson’s was suggested but I do not have 2 of the 3 required…
-
How to tell a parent they are moving into a MC facility
I posted earlier about looking for a MC facility for my Dad. I forgot to ask, how do you tell them they are moving into a MC facility?
-
A Wife and A Partner
Not sure why I'm posting this……I'm not looking for validation and certainly don't need judgment. I guess just sharing my experience. My wife was diagnosed with early on-set Alzheimer's over 7 years ago. She is currently non-verbal, fully incontinent, and unable to do anything for herself. I am blessed that she is still…
-
Join Our Caregiver/Grief Support Group
https://chat.whatsapp.com/IyfD6t2EHeFB11LOSye1eIError link to join our WhatsApp support group. we also meet Thursday nights on zoom
-
Excellent information on infusion drugs
-
Excellent information on infusion drugs
-
Excellent information on Alzheimer’s infusion drugs
-
NOT DRIVING!
My wife who is three years into FTD announced this morning she intends to go driving. I told her that was not happening because her neurologist had written in her report she was not to drive and our insurance would be invalid. This, among many other reasons were enough to keep her off the road. Likely she will forget it…
-
What's the one thing that gets to you the most
Just curious. What is the single most difficult aspect of your LO's behavior that gets to you the most. For me, it is the constant vocalization of my DW. I know that many say that silence is even more difficult but that is hard for me to imagine. From the minute she wakes up until she goes to sleep 12 to 14 hours later she…
-
Kisunla vs Liqembi
I was recently diagnosed with AD after having MCI for the past 5 years. My neurologist is recommending that I start a monoclonal antibody treatment regimen and has suggested Liqembi. As I do my own research, it looks like Kisunla is considerably more effective. It more aggressively removes existing plaque while preventing…
-
Facing a Diagnosis this Week
I am meeting with our neurologist this Thursday along with my husband. I have already heard from this doctor that my husband's recent scan is positive and is consistent with Alzheimers. It indicates frequent amyloid neuritic plaques. I am alternating between depression, fright and a will to rise up and be strong. Can any…
-
Bible Verse to Lift You Up 1/21/26
LIVE A LIFE FILLED WITH LOVE "Imitate God, therefore, in everything you do, because you are his dear children. Live a life filled with love, following the example of Christ. He loved us and offered himself as a sacrifice for us, a pleasing aroma to God." Ephesians 5:1-2 NLT Join me. HOLY SPIRIT, please help me to want to…
-
Newly diagnosed this week
67 yrs old and just diagnosed with Alzheimers. For the past 6 yrs I've been diagnosed with mild cognitive decline but it just started getting worse. The memory clinic I go to had me go through a spinal tap, mri, amyloid PET/CAT, and genetic testing. All tests revealed frequent Amyloid which is now in the gray matter of my…
-
Painting pictures for our loved ones…
Cristian’s St. Peter’s’ song speaks to me of the Alzheimer’s Journey. My Michael sits by my side a little while longer while I “paint pictures” of our years together. I found it moving and wanted to share it with you, my community of beautiful carers who also paint pictures for your loved ones to briefly touch and know. Be…
-
He’s been gone for 2 weeks now…
My DH passed on Jan 3. He was late Stage 6 and it was sudden - likely his heart. So he found his “exit ramp” before moving to Stage 7. I wanted to share my observations and some things I’ve learned. 1st: Focus on the little joys each day and what you’re grateful for, even in Stage 8. During this journey, I try to journal…
-
Forgetting a loved one has passed
What do you tell a person with dementia when they don’t remember their spouse has passed away? How do you deal with them feeling like the death just happened even though it has been years?
-
Feeling misty eyed after visiting DH yesterday
Yesterday, I made the short drive to my DH's MC like I always do on Sunday's. As usual, he was glad to see me and we had a nice visit. By a nice visit I mean I tried to show him a picture album from a trip he took to Africa in 2005 while he pointed to the animals and tried to cound them. He has no memory of his "trip of a…
-
Losing my Temper With my DW
I feel so sorry for losing my temper with my DW. She just pushes the same issues over and over again to solve issues that I have no control over such as her delusions and hallucinations she continues to have. She demands that I stop imaginary people from our home who are stealing and trying to hurt and kill her. She has…
-
Aphasia
I realised this morning at 6 o’clock when we were having an early cup of tea on the front deck as usual that I can no longer have any conversation with my DH virtually no sensible words and only jibberish sentences making no sense. I try as always to piece together the words that he is trying to say and it has become…
-
Does It Start Over, And Over, And ....
It has been five months as of January 16 since my dear wife went to sleep for the last time holding my hands. The journey since has been difficult, painful, sleepless, guilt ridden, an abundance of tears at unexpected moments, lonely, oh so lonely and as the previous month began to wane, I found a day here or there when I…