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Early Anger
As I've mentioned before, MRI shows my DW has Microvascular Ischemic Disease. What I'm experiencing from her at this point, besides the forgetfulness & minor confusion is a hair trigger anger, usually directed at me. Is this normal? I've tried to get her to go to talk to someone but refuses. She had a very cold childhood,…
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Heartbroken
I’m sitting here in the early morning barely able to breathe with grief. Tomorrow I’m taking my precious DH to his new home at a beautiful memory care facility. I just pray he’ll have peace and contentment in his new home. If any of you are prayer warriors please just pray that my sweet Tommy is safe and happy. He’s not…
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Sainthood
Looks like my application cannot be filed just yet, because I'm about to whine and complain like crazy. Ha! The way I interact with my DW is so dramatically different than 4 years ago. I take the blame for everything, I am patient to the point of ridiculousness. I sit and watch tv shows without moving for hours on end when…
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To the ER or not?
My DW has an abscess just outside of her private part, I know I can just say it but the contract doctor says that if antibiotics don't work in a couple of days she needs to go to the ER. God I hope not. Waiting hours in the ER with an advanced Alzheimer's wife in full incontinence and hysterics is not something I want to…
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Pros and cons of living with parent
My mom is 83 and has dementia and Alzheimer’s. She had a fall in late November of 2023. I have been living with her since then. i am the last of her immediate family and live roughly 60 miles away. My husband and daughter are still there. I don’t get to see them very often. Right now I am her sole financial/household/yard…
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Have I made a mistake?
I'm hoping this will make sense and that someone can help me with my thought process. MY DH, 76, was diagnosed with dementia 13 years ago. It progressed slowly until his back surgery when he was under general anesthesia for 5 hours about 5 yrs ago after which he was never the same - hallucinations, paranoia and nonexistent…
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Mom is 275 miles away
Hi everyone, I am the eldest daughter of four, I share POA and Advanced Healthcare with my brother, the youngest, who lives about an hour and a half from mom. Two sisters in between, one is in FL, lives within an hour but had a brain tumor and is dealing with her own health issues. I live about 275 miles, about a 7 hr…
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Caretaking the Caregiver
DH and I live about 50 miles from his mother who has mid-stage Alzheimer’s. She still recognizes all of us, but STM is rapidly failing. Her husband (DH’s step-father) has done a wonderful job taking care of her. Up until the past two weeks, DH’s nephew was living in the house, so there was someone to give some…
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Strange eating habits
My husband has got to where if he starts snacking on something he will eat until it is all gone. For instance, I bought about 2 lbs of grapes this morning. Husband ate all of them within 2 hours. And I noticed other day, we had a 3 lb bag tangerines. He ate half of them in one day. I finally hid them from him. Is this just…
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Venting/advice if possible
My mom is having her first big episode since getting sent home from the long-term care facility she was placed in on 7/25. They only kept her for 4 days, stating that she was able to make her own decisions (despite her being deemed incapable to do so 15 days earlier). So far, last night she was trying to leave/wander,…
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Repetition is "expressing concern, ask for help or coping"
An Alz.org page states "People with dementia who ask questions repeatedly may be trying to express a specific concern, ask for help, or cope with frustration, anxiety or insecurity" Does that apply to your PWD? I'm not sure what "help" one is asking for, unless it is a question about something specific, like a CD account…
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Not sure I did the right thing
My mom was having an awful delusional episode today. No sense of time or place. She didn't know the month or year, let alone the day or season. At one point, she said, "I'm not me anymore, and you're not you" to me. She was waiting for her mom to come home (dead for more than 60 years), my dad to come home (dead for 16),…
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Won't bathe
My dad has been receiving home hospice for 2 months now. So far he has been cooperative with the CNA bathing him 3x/WK. But today he outright refused being bathed and said he can do it himself. He is wheelchair bound and a fall risk. My mom can't do it herself. The nurse will come back tomorrow and see if he calmed down.…
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How would I know? Or would I know
Hi everyone, So recently I have moved my LO in with me. He still showers and uses the bathroom by himself. So how would I know if the proper things are being done while showering and using the bathroom? I think it would be obvious but not sure. Any suggestions? Thank you,
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Medication
My Dh is in stage 4 alz. 74y/o. Has VD also. Has not been taking his medicine. I set them up for him. He also has a lot of other medical problems. This morning I ask him if needed to remind him( he gets very angry) or does he just not want to take them. He has been like this for about 2 weeks. He said he would let me know…
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Possible cancer diagnosis
My DH has been in memory care for 6 months at stage 5. His recent blood test showed a PSA number high enough (20+) to indicate likely prostate cancer. He is scheduled for a CT scan on Monday and his PCP has recommended he see a urologist. I'm jittery. I understand most prostate cancer, especially at his age (75) is not…
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Suggestions about how others deal with stage 1-2 Altzheimers or dementia
I am interesting in talking to others about what works for them, Nanette
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spport group for people with Altzheimers
Are there any group for people diagnosed with Altzheimers or Dementia???
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My partner and her head
Hello there I’m new to this world of TBI and 19 years later I’m faced with my partner who has not been diagnosed yet but I’m seeing some major changes in her behavior especially over the last month and a half. Just a little back story in 2005 she fell down a flight of stairs and cracked her skull had 3 brain bleeds. Fast…
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Family counseling for transition to assisted living for L.O.
Experiencing conflict and resistance from family and spouse, who is in middle stages of dementia. What are the best resources for this.
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Emotions all over the map
I am new to this. DH has EO. We are in the 6th since diagnosis.In the last year he has really declined I am helping him with everything feeding,dressing, it is so difficult watching your spouse of 47 years wither to nothing. I feel like I have been in mourning since day of diagnosis. I feel so alone. I now will have a…
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Medication alarm
I’m looking for a dispenser that will allow pills to be dispensed at a certain time. If the pills are not dispensed, I want a ringer or alarm to ring again and continue to do so until the medication is dispensed. Like the alarm on my cell phone. Any suggestions. Thanks!
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New to this forum. Diagnosed over 4 years ago
Not sure if this is the place to introduce myself; but I had Encephalitis twice - from West Nile Virus and Powassan Virus AND Lyme Disease 7 times. Dr. told me the viruses started this ball rolling. I was doing well, dealing with changes in my life, except not driving. I haven't accepted that well. I've been going between…
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Having a bad delusional episode
So, is it true that I can take my mom to the ER if she's super bad and tell them I want them to check her vitals and make sure she's not having a stroke and then say I can't take her back with me because she won't be safe? I've been told I can do this and that they'll help make arrangements for a facility, even if it's…
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Update
As I posted last week, DH is now in a greipsych unit about thirty miles from here. I haven't gone to see him as I think it would just upset him since he would want me to take him home. They have been very good about keeping me updated. So far, the Dr. has increased his Depakote, taken him off Trazadone and put him on…
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How to honor parent wishes
Hello. My mother is living with Alzheimer’s and her primary caretaker is my father. He is a high functioning alcoholic, and struggles to care for her properly. my mother‘s behaviors have escalated to the point where I question if she can remain home even with in-home support a few hours a week. my mother and father have…
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The Move to ALF - missing anything?
So we have decided on an ALF for my mom. She can’t afford it all on her own even with Medicaid so my siblings and I must make up the difference. I have laid out the finances and sent in an email to all of them. All but one has responded in agreement. The last one hasn’t taken my calls or texted back. I am proceeding…
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HEARING THINGS
I enjoy reading and lately while reading I have been hearing music that seemed to be coming from outside. (Let me say that we have central air when the house gets too cold, we shut the air off and when the house gets stuffy, we turn the floor fan on.) I thought that I was going crazy and went outside to see if I could see…
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Lonely but longing to be alone…
Hello- New to posting, though I have looked in on others for several years. My DH (age 70) has Alzheimer’s and Vascular Dementia, heading into moderate stage although not yet problems with ADLs. We have known this was coming (through testing) for around 10 years. Slow progression, so I feel fortunate for that. SO many of…