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Unbelievable rage
Last night we argued about sleeping in his jeans I asked him wouldn't you be more comfortable if he took them off Hours later he raged downstairs and told me to get out of the house He said he was going to call the police I had to leave for my safety slept in a hotel But let down my guard and went home Now I wish I just…
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Anosognosia, alcohol and dementia
DH has AL and small vessel disease. I was thinking that he was living in denial but I'm pretty sure that is is anosognosia. Having said that and my pointing out to him that alcohol will destroy more brain cells, he still has a glass of wine every night, sometimes two and a margarita if we go out. He is borderline dementia.…
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GLP-1's in Demetia Patients
Hello Everyone, Itws been quite a while since I"ve posted and been around. I have some things I'd like some advice on from our community. My Dad started this journey about 2 years ago and it has only become more complex and complicated. He has a myriad of health issues so I wont get into all of them, but with his Demetia…
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Showering
DH is late stage 5 and into 6. Limited vision and quite unsteady. We have a shower with a built in bench, but to get into the shower he has to step over the border that goes around the floor. I am considering a remodel, but am interested in tips and practical suggestions on getting the shower done overall. Do you both get…
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Mom lives in Independent Living Fac, needs to move to AL, hard 'No!'
I am new to this forum. I have found many discussions relevant to my situation. I received a lot of good information from these discussions, but I figured I'd post my question on the off chance some more information may come to light. I currently care for my Mother with the help of my wife. My mom moved from out of state…
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Frozen in time for a minute
I would appreciate any insight into this issue. My DH and I returned from a night flight Portland Oregon to Philadelphia, PA after seeing family for a week. Two days later he awoke around 7am as usual talking about going for a bike ride. Suddenly his body seemed to freeze, arms in mid-air for about a minute. He was staring…
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ugh I am just so sad
I hope that everyone on this platform is surviving this nightmare. I have been taking care of my sweet husband for 5 years or so. This past week, he ended up in the ER for a bowel obstruction, which is not the first one he has experienced, so I was aware of the signs before it got out of hand. While he was in the hospital,…
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I am forgetting, too
I usually am very organized, but with the stress of a DH with dementia, I am forgetting appts, lose things, and run around and getting nothing done. I know it is because of the caretaking, and am the ONLY caretaker because family has turned away from us because they just don't want to deal with this private hell
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Phantom Pain
I was just wondering if your loved ones with dementia experience phantom pains. My DH has been complaining of his thigh hurting for a few weeks. No visible signs of anything. I thought maybe a pulled muscle but after a few weeks it did not go away. He doesn't do anything physical activity except walk and that is only one…
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To My Fellow Warriors
This journey is the worst, yet we all get up, stiffen our spines and get back at taking good care of our LOs. We get irritable, cry, depressed, exhausted, and we still get up and take good care of our LOs. We put our needs second to make sure our LOs are safe and comfortable and get up the next day and do it again.…
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Struggling
My DH gets belligerent when I tell him No. We have a rodent problem in our subdivision and I’ve had to hire an exterminator to place bait traps in our fenced yard as I’ve explained to my DH that he cannot let the dogs out. And there are kill traps set in our shed that must remain closed. I just came out of the bathroom and…
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Lost partial denture - what about eating?
My wife lost her partial (upper only) dentures. It's been about 10 hours now. She has had new partial made but she can't get them for at least another week. The center she goes to has the dentist on Fridays only. I have several teeth missing, both top and bottom, and it doesn't bother me to eating soft or hard food. I do…
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Happier When I leave
Hello, So I noticed after 9 years of seeing my mom. I am happier when I leave the NH than when I go. I noticed that with the other visitors today as well. However thank God I saw her again. God bless.
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Medication control
I have a delemia. HWD can no longer be in charge of taking his main pain med. He forgets when he takes it then takes more. I have started controlling the med bottle and omg it'd causing so much stress for him. I put his daily dosage out for him and as of late he's becoming more hostile and defiant. Name calling too. I hate…
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Refusing Treatment
My DW has moderate-to-advanced AD. I am her caregiver and managing without help thus far. DW has arthritis in her thumbs and frequently suffers from strained muscles in her lower back. We have seen specialists for both problems. The doctor's instructions were to use diclofenac sodium gel for the thumbs and lidocaine…
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Dementia advancing
My mom’s MC called, then hospice social worker who visited. Dementia is advancing. She fell again (getting out of chair), doesn’t use walker, was up all night. I saw her last night and it’s true she REALLY just wants to constantly be walking around. They said the redirection has been hard. They have to lock peoples rooms…
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New stage?
Mom states she had been having urinary urgency for the past 2 weeks. She denies any known symptoms of an UTI. She has an upcoming appointment with a urologist nonetheless. Last week, she was mortified when she did not make it to the toilet in time, ending up having her bladder totally emptying itself on the floor of her IL…
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How to help LO adjust to MC
My parent is mid stage of dementia and was placed in a high quality memory care facility (supposedly the best chain in the country per US World News and Reports). This facility has programs for all levels of dementia including higher functioning people like my mom. She has been there for 6 months and she is just not…
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Waking up multiple times a night very agitated and confusedted
I read many posts about spouses sleeping many hours at night and daytime sleepiness. My husband was prescribed trazadone, 150 mg, to help him sleep. It does help him sleep, falls asleep in 5 min or less but only for a 2-3 hrs. He moans and groans then startles awake, appearing scared or confused. When i ask what's wrong he…
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Question severe difficulty walking.
My DH has started shuffling when walking. His ability to walk has severely declined rather rapidly in the last few months. His gate is unstable snd takes baby steps. If anyone can share their experience. I am not sure what to do and if there is any help or therapy. Is this part of the Disease? Thanks for sharing.
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Speech and Language Referral
My DH has AD and Logopenic Aphasia. Last summer his neurologist (in a Memory and Cognition Clinic) referred him for a speech and language evaluation, and after a 2 session lengthy assessment we were basically told that the aphasia was too far progressed for her interventions and it would just be frustrating for him. She…
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The Unexpected Journey 8/26 on abc
https://abcnews.go.com/amp/GMA/Culture/emma-heming-willis-bruce-willis-diane-sawyer-interview/story?id=124616534
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Neighbor Gave my Mom A Cat...
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Two weeks in
My husband was diagnosed with dementia two weeks ago. He is on anti-seizure medication. The insurance continues to deny the doctor's request for a special Pet Scan. I am just beginning and with his denial that he has dementia and the problems with the insurance company, I don't know if I can do this. I have stage 4 cancer…
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Life expectancy
Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.
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Mom's been in MC for a week
She is confused by the move. The MC staff say she's handling it better than most. She is "polite and compliant" and willingly joins activities. For that I am grateful, because she was always a very social person. Mom is now early Stage 6, but still has strong social skills, and there are some other ladies in MC like that…
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Moving Day is tomorrow.
I have been with my loved one since July of 2019. Luis was diagnosed in August of 2023 with early onset alzheimerz stage 4/5 at the age of 44. This has been a long journey. I longed for the days to have a normal life. I knew the day would come when he would have to go into a facility of some sort. Well tomorrow is the day.…
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My own irritability as a caregiver
my DH has Alz, early to mid stage. My mood is so up and down in this caregiver role. I can feel very irritable, and angry with his responses. Other days I’m able to cope. I don’t like myself when I get so negative and can’t seem to let it go. I don’t take it out on him but I’m sure it shows. Any suggestions how to stop…
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POA financial decisions
I'm the POA/trustee for my parent. The legal documents say that all costs related to care of the person will be paid by the parent. I live out of state. Flying out there is a significant cost for me and flying out as a family is prohibitively expensive. My husband was laid off a few months ago and my job is at risk. Flying…
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Should we visit every time my LO in MC calls and is scared?
I so appreciate this group the ability to ask this question. I am supporting my mom long distance who is supporting her sister (my aunt) who is in memory care for Alzheimer’s. My aunt never married and has no children of her own. My aunt calls my mom several times a day confused about where she is and sounding scared. My…