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Mom is constantly angry with my sister
My Mom was diagnosed with Alzheimers in the fall of 2022. She is understandably having a very hard time with the loss of her financial independence and is constantly accusing my sister of controlling her. We have POA and I tell her we're making the decisions together, but her anger is focused on my sister, who is the…
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Update on Jo C
I’m reaching out on behalf of my mom, who most of you will know as “Jo C”. She hasn’t been online for a while, and I know that some in the community have been wondering how she’s doing. I’ve always respected her privacy here, so, while I’ve technically been a “member” for about 14 years, I’ve only ever stopped by quietly…
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Broken bone
I have known two people with stage late 6 early 7 dementia that have died about a week after breaking a hip. I don't why, if it is the shock, or the mind just can't handle that much, or if it was just a coincidence, also is it just the hip or all fracturs. My wife broke her upper arm yesterday so I am just wanting to hear…
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How to cope and help?
My family believes my father is struggling with early onset of dementia. He is very stubborn and does not like anyone telling him nor suggesting on what he can or cannot do. Always has called the shots and at 84 he is still driving his tractor and trying to farm. My mother lives with him and all of his kids me included are…
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Delusions
I am supporting (or trying) to support my brother and SIL. The latter has been diagnosed with Alzheimer’s. I believe the onset was at least 4 years ago when I noticed memory loss. It was not officially diagnosed until 2024. She has always been a very anxious person but more so now. Medication has largely controlled the…
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Just need to talk to my friends (205) May 2025
Thanks, CaroLynn, I kept meaning to do this yesterday and never got around to it. Chilly and c!oudy here this morning. I checked and WM will deliver something so had to go out and open the gate so they can come through and turn around without backing all the way to the road. Then. fixed my cereal and hot tea, got back in…
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Diagnosed with EOD a year ago at 55 years old
Hi. Last year I was diagnosed with EOD a day after my 55th birthday. Then after a lumbar puncture, PET scan and MRI the neurologist said she was doubting her original diagnosis. So then I spent about 5 hours doing neuropsych testing and even though it showed I had all the symptoms of LBD, the psychologist said that my…
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My MIL is getting worse
My MIL has dementia and is now starting to forget to eat, and isn't really taking care of herself. My SIL lives with them, but it's more like lives "off" them and she is NO help! I've noticed my MIL losing weight and not looking as put together as normal. When do I know when the time has come to get her more care. She…
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Out of state sister with early Alzheimer's is stubborn, petulant and resistant to help.
I am her HCPOA and DPOA. Neurologist explained her diagnosis to her, and told her she needs 24/7 aides if she wants to remain in her home, that she may not drive or be responsible for her medication, and must use a walker (many falls.) But she states she does not have Alzheimer's, is rude to and fires every aide we hire,…
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Regressing
DH with ALZ…he has forgotten not only that he loves bbq ribs but also how to eat them. It suddenly occured to me that there have been a number of clues that his eating habits have regressed to early childhood. He now cuts all his foods …asparagus, long green beans, meats…into bite size pieces before eating. I asked him…
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Pairing college students with seniors
new platform “Joey” paired a college student needing housing with a senior couple. DW has EOAD and DH still works. Student can work off some of the rent with chores. It seemed to work out well for this pairing CBS reporting https://x.com/cbseveningnews/status/1928978603959533863?s=61&t=daLMzkQZ7dgrlrf3SDYEoA
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Moving mom from AL to MC
this day is going to be so hard. We need to move mom up to MC. She has been wandering and walked out of the building. It is now a safety issue and we need to do this but it is breaking my heart. I don’t know how to navigate it all and how often I should visit after. I currently go twice a week and sibling goes twice a…
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How to help with dementia and sundowners
I am new to all this. I worked in a dementia care unit as a companion but it is nothing compared to feeling so helpless when it comes to my grandma. My dad wants to put her in a home and I gave her my word I would not let that happen. It breaks my heart seeing her decline and not know who I am. I had never even heard of…
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New to Group
Good morning community, I just connected to this support group. My 86 yo dad is struggling more each day with memory loss. He has always had some sort of learning disability and suffers from profound hearing loss. The increasing level of dementia is complicating daily interactions. I have a sister who lives 5 minutes from…
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Worried
Taking my DH on a 2 hrs trip. He has VD and Alz. Early stages but has lots of anxiety. I so worried first time this far from home. There will be about 30 people there( all my famil). Just making me sorta nervous. Oh well gonna try might be the last time I see some of my aunts and uncles.
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Am I being unreasonable?
I’m 81, my DW is 82. I have been her primary caregiver since she was diagnosed three years ago. We live in rural Western PA. Between our prior marriages we have 8 kids. They all live far away, the closest is her daughter who lives fours away. She is in stage 5. I have had to take over all the finances, medications, meal…
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Falling issues
So, my grandfather continues to prove that he is the most stubborn person in the world. I and my father are currently full time caregivers of my grandfather who has Parkinson's and Alzheimer's. He is currently a medium fall risk as diagnosed by his doc and physical therapist. He is still very independent, being able to do…
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How do I tell my mom we are where we are because of her illness?
First, my mom refuses to come to terms with the fact that she is mentally declining and that we need to address the fact that she is not just forgetful, but that she has severe memory loss, had a small stroke, and is starting to experience delusions. Of course, she denies and becomes enraged when these things are brought…
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Dealing with Medication Management
Hey Y'all! I'm a 27-year-old caregiver for my grandfather with VD, while also working full-time. He is probably mid-stage by now. Medication management has been difficult to deal with, to say the least. He is very resistant to change and likes to feel in control of things. He's been this way all his life. He's been an…
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Brain Exercising
i would really like some opinions. We are involved with a disability sailing group. One particular friend, in her 50’s, double degree, has been a mother, a teacher, piano and trumpet player, sailor and scuba diver, a very accomplished all rounder. She has had 3 traumatic head injuries, lost her memory completely and the…
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Should we move our loved one
My ex has no diagnosis but has many symptoms of memory decline. She wants to move several states over to live close to hers and my son. But she can only afford an apartment 30 minutes away from my son. Does anyone know of similar situations and how they turned out? Thanks
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Declining mobility and VD
There are so many on this site with much bigger issues than mine and farther along on the journey. DH has VD after several strokes in his parietal lobe. He has executive function issues, receptive and ecpressive language defecits but very little problem with memory. He can still do his ADLs but is declining physically at a…
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don't know what to say to DW
I visited DW yesterday at her MCF, and it was pretty disheartening. I managed to record a bunch of our conversation and transcribe it. The key points: * She asks why she is there, what changed between us? * Why didn't I talk to her about the change? * Why don't I want to be with her? * Is there someone else? * What's the…
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NYT: A Woman with a Rare Genetic Mutation ... (FTD)
From the NYT: https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html?unlocked_article_code=1.jU4.Pogt.lww3UxG0uYFK&smid=url-share https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html
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A new experimental treatment - in a nasal spray
Something to keep an eye on. The study focuses on those with moderate Alzheimer's. Can this nasal spray slow down Alzheimer's? Once couple is helping scientists find out
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My Mom Finally Got An Official Diagnosis
So after almost three months, my mom has officially been diagnoised with major cognitive disorder, aka dementia by a geriactic care provider. According to her, silent strokes from a while back (which affected her brain) and my mom's unresolved grief with my Dad were major contributing factors. It has been recommended that…
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So I guess this how it goes? One day your are fine and the next you are not
I realized I cant take care of 2 dementia patients on my own. So now I need to get agreement from my Dad to go into the nursing home. I spent 8 hours today dealing with them, doc appoints, falls, ambulances, hospitals - all in one day. I can't take all this stress. Its destroying me.
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Mom girgals after eating
Hello, has anyone noticed this with their LO? It looks like she is choking and is in pain.?
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DH has a hernia should he have an operation
My DH has been seen by urologist. He does not have any pain in the hernia but it is large. . The doctor has said that it is not urgent for my DH to have the operation. My husband has stage 3 dementia. He was in agreement that day but has forgotten about the examination and now said he doesn't want the operation. What…
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Dad with dementia survives mom
Mom had a massive brain hemorrhage and as medical POA, I had the difficult decision to take her off life support after 3 days in a coma. She passed 2 days later. Funeral was on the 19th. Now I'm focusing on taking care of Dad as he has late stage vascular dementia. We were supposed to plan for Dad to pass first but then…