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Discussion List
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Bittersweet Day
Today is our 59th wedding anniversary. When I visit him in MC today, I will take him a cupcake and tell him what day it is. He will look surprised for just a second and then it will pass. He won't/ can't remember anything these days much less our anniversary. But he will enjoy the cupcake and I remember what day it is.…
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When You Moved Your LO to MC…
I am trying to gather information for the future on how hard the process might be once you make the decision your LO needs MC. You hear nightmare stories of people desperately looking for MC and unable to find it or settling for sub-standard care. My goal is to avoid that happening. 1) Were you on a waiting list for MC for…
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Social distancing for caregivers
Just wondering if other caregivers feel like they have lost all social connection with the outside world. My DH has isolated us with his bizarre behavior and obsessions. There are too many weird behaviors to name when we go out in public. I have actually started avoiding outings due to embarrassment. He has no social…
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I have EO alzheimer's
It took forever to accept this diagnosis. My family has always held me to very high standards. Along with the diagnosis they all stopped contacting me. I have begged anyone even my husband to come talk to my doctor during my appointments. They all tell me this is my problem. My doctor thinks I need to find alternative…
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unexpected feeling of jealousy
My wife is in memory care for over 2 years and is stage 7. A month or so ago a new resident moved into her MC, she was in much better physical health then my wife and a little better cognitively. About a week or a little more ago that resident had a sudden and unexpected turn for the worse and died a few days later. I was…
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Alzheimer’s with infidelity delusions
My DH has ongoing infidelity delusions. There are so many stories he comes up with of me being unfaithful I feel they are graphic and they are intensifying. Stories are of me being unfaithful with coworkers, contractors, neighbors, and even participating in a group. He claims I have been unfaithful our entire marriage…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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New here and probably should have been here a while ago.
Mom started forgetting things and developing coping mechanisms 3 to 4 years ago. My sister, who is a doctor, and I tried to get her to go have a cognitive test and she refused. She still refuses. She has progressed from confabulating to perseverating and seems sometimes very agitated. I think she "gets up" for her annual…
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Advice on Home Care, plus the Dreaded Question...
I’m new here and so grateful I found this site filled with amazing stories, compassion, helpful information, love and support. It’s a wonderful community navigating a difficult journey… I too, am on the journey. My DW is likely stage 4 and becoming less verbal, more withdrawn, and lost interest in cooking. She needs…
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Childhood Resentments Bubbling Up Caring for Mom
Hey there, new caregiver for Mom who was diagnosed in February of 2026 and has been having issues starting 2020. I just moved across the country to be with her, and while she thinks that this is temporary while she has Lacanemab infusions I am realizing that this is going to be a long-term caregiving situation. I hope you…
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Balancing Independence and Safety
My mother was diagnosed with early-onset Alzheimer's last August at age 65 and is scheduled to begin Kisunla infusions in July. We are hopeful the treatment will help slow progression, but in the meantime we're struggling to balance her independence with her safety. For those who have been through this, how did you…
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planning for memory care - Oregon vs. California
New member here, this is my second post. I have read through many posts, and I want to say thanks to all of you for compassionately sharing your struggles and experiences, they are most helpful. I am now clear that my DH needs memory care, for his safety and for my wellbeing. He has moderately severe dementia, bladder…
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Seperating married couple
I'm not sure if anyone has experience with this. My sister and I are my mothers DPOA and we have documentation from 2 physicians stating she is no longer competent to manage her affairs. Unfortunately, my stepfather and his son have done some very underhanded things ( family drama) to the point 3 attorneys we consulted…
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Plan B
I realized what plan B meant today. I went to urgent care for an asthma exacerbation. When they called my name I stood up and for some weird reason my right leg buckled and I was on the floor. I broke my fibula near my ankle and my 5th metatarsal. I totally freaked out everyone in the waiting room including the staff.I was…
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bank statements causing problems
My mom used to always take her bank statements and financial records and create this complicated spreadsheets. Once she moved into AL, I take care of all her finances, and I have been working hard to ensure her statements are not mailed to her— NOT because I don't want her to see her income and expenses, but because she…
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Glucosamine
Important news about taking glucosamine: https://www.sciencedaily.com/releases/2026/06/260610003044.htm
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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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One more time
Just thought I'd drop in to say "Hi", and share a little story about what's been going on with me. Seventeen days will mark four years since DW passed. Yes, there is life after dementia. Following is a little story some may find worth reading. Feel free to skip this post anytime. I'm not even sure why I'm sharing it. About…
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credit card
We are looking for ideas for a credit card for my dad. He needs a low limit. He has given his card number out to phone scams Currently we took his card away, but he needs something.
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Guilt
Does anyone feel from guilt, feeling like somehow our loved one wouldn't be an Alz sufferer if we'd done things differently in our lives, not hurtful things but just maybe taken different paths in life overall, provided better, etc.? Thx HK
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Just starting the journey
My DW has dementia and I will be the primary caregiver. We have been married 52 years and I am at a loss as to what to do, how to start, what to do or not do.
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DW Doesn't Understand Questions
I'm really fighting hard to help DW to understand the questions shes required to answer prior to her annual physical exam. I.e. The form asks "Over the last two weeks, how often have you been bothered by any of the following problems?", and then comes a list of potential problems like "Feeling down, depressed, or hopeless"…
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I lost my mother thirty years ago ...
Right away I found that sharing my story online helped me begin to heal. I started a website in her memory that is still around, although it is in need of updating, and I'm trying to work on that as I have time. It's still here: https://www.zarcrom.com/users/yeartorem/ Also, I will be walking this fall for my 29th year in…
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Coping When Loved One Remembers Things Wrong
Hi everyone, I wanted to share something that’s weighing on me after my recent visit with my husband. I spent a few hours with him yesterday at the nursing home, and while things went smoothly during lunch, he became anxious and started exit-seeking after. The toughest part is how his memories of these visits sometimes get…
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Non Stop Talking
My DW has not stopped talking since we came home from shopping at 1 pm today. When there is a slight pause she streams all kinds of accusations at me whch I deny as calmly as I can. She rants about people watching us or people stealing money she claims she has hidden. There is or has been a variety of caustic topiics…
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In need of advice on having a certified caregiver come in
Hello all. It has been a minute since I have written here on the forum. I want to be more active here, but I am more so often on the Reddit forums. To preface, I am 21 years old and still living at home. Currently on Summer break and just got a new job that I am starting Monday. Mom has Alzheimers, dad and I are primary…
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To choose or not to choose
I'm recently diagnosed positive for early stage Alzheimer. Currently I am taking a prescription to help with some memory issues. My Neurologist wants me to decide on one of two intravenous medicine. I am not crazy about the possible side affects. I would like to hear from someone who is on this one and of any side affects.
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I need your empathy and suggestions.
New to this. DW has cognitive issues and is being diagnosed over next 2 months. Most times I am able to deal with this and we still have many good times together. But there are many times when this is so frustrating for both of us and very depressing for me. Walking outside or into another room sometimes relieves the…
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Did I do the right thing?
There was a notice in the mail that my LO would have to take a driver's exam in order to continue to hold her driver's license. In the report it stated quite clearly this is a result of her Alzheimer's diagnosis. My LO is in total denial, and any mention of Alzheimer's can become a trigger for agitated and aggressive…
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At home activities
Would like to receive any suggestions for an activity my husband can do with moderate ALZ.
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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