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HEARING THINGS
I enjoy reading and lately while reading I have been hearing music that seemed to be coming from outside. (Let me say that we have central air when the house gets too cold, we shut the air off and when the house gets stuffy, we turn the floor fan on.) I thought that I was going crazy and went outside to see if I could see…
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Lonely but longing to be alone…
Hello- New to posting, though I have looked in on others for several years. My DH (age 70) has Alzheimer’s and Vascular Dementia, heading into moderate stage although not yet problems with ADLs. We have known this was coming (through testing) for around 10 years. Slow progression, so I feel fortunate for that. SO many of…
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Seeking insights about brain autopsy
Hospice called and reminded me to make final arrangements. DW was weighed at 100 pounds, she’s 5’-7”, and this is a drop of nearly 3 pounds from her last weighing. Her aides have reported that she is only eating about 25% of the food offered her. She hasn’t opened her eyes in many weeks that I have seen, but they tell me…
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Over it!
I am in the worst mood today and I just can't shake it! I am so angry, and just sick and tired! I don't want to do anything. I am so unmotivated. I just want to lay in bed. I don't want to talk or smile or even try. I am trying so hard to get past it! I am wasting my whole day 😢
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Death watch
I think my partner has given up and is starting to actively die. She sleeps the vast majority of the time, will wake up briefly to eat now and then if I feed her (makes no effort to feed herself that I’ve seen). She must get up a little bit at times that I’m not there because things are still moved around in her room a…
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Are my feelings normal?
My DH is in mid-stage 6 of Alzheimer's disease. We've had a wonderful 22-year marriage. My emotions and attitudes towards him these days are all over the place. When he is ornery, refuses to take a bath or swallow his pills/eat his meals, accuses me of controlling his life, twists my wrist because he is mad at me (only…
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maybe just a late night vent??
I think I may have finally snapped. I called my son this morning to come over and try to help calm my wife. For over a week now, she has been telling me everything is hers, and if I don’t leave, she will call the police. She doesn’t know who I am and insists I get out.” I know this will sound super selfish, but for those…
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Wandering Story with a Happy Outcome
Not every person with dementia who wanders is found safe.
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Choosing identifiable & simple food
I realize this depends on the stage, but have you had success serving food that is easy to identify, one at a time? I see that finger foods are discussed elsewhere in the forum. I've read the suggestion below, on serving food and eating tips and this may be related. I noticed PWD was interested in spicy condiments lately…
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New normal
This is my first post. I’m 54 yrs old caring for my DH who has EO. We are three years into his diagnosis. He has been told many times he has Alzheimer’s by the drs but each time is like the first time. I’m scared of what the future holds. He is definitely not the same person. Mood swings are the biggest struggle right now.…
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I guess it's really time
My husband has FTD with delusions and hallucintaions. He thinks I'm different people throughout the day. He is disoriented and never knows where he is. Several times a week he wants to ride around in the car to go "home" or to the office. Twice last week we rode around for hours until he finally got tired and agreed to go…
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An Introvert in Memory Care
Hi! I know that personalities change with MD (I'm witness to it every day). But my mom is still basically very introverted. She's never been one to be very gregarious or outgoing and make a ton of friends (at least not that I've ever witnessed in my lifetime, anyway). I'm wondering if any of you have any experience placing…
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The neediness just gets me
I saw my Mom at the AL on Monday. She was fine. Our visit ended when the activity director announced a game of Left, Right, Center. Wednesday night Mom called and asked when I’m coming out. I said in a day or so, I was just there on Monday. Her reply- I don’t remember that. Well, of course not. This is basically a command…
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Butterfly wings
Just thinking of you and realized i haven't seen a post from you this week. Hope you are okay.
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Medication
My LO memory has declined according to her recent memory test she had a few months ago. Her neurologist prescribed a medication called Memantine. The first week she was doing fine, but the second week there has been some changes. She tells me she is drowsy, dizzy and feels funny. I noticed her mood has changed since taking…
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I'm on the autism spectrum and Mom has dementia
So, hello, I'm new here. I've been feeling very isolated, alone, confused, frustrated. My mom is a drinker. She got a dwi in January. She's almost 75. She's almost died. She was almost 3 times the legal limit after being found in a field face down next to a church near her home in 2023. She laid there all night in the…
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FIRST TIME PARTICIPANT: My AAIC code did not work.
All last week I tried to log into ALZ.org online to view sessions, but the staff wasn’t answering emails during the conference and is now in vacation until the 12th of August. Can anyone explain to me how to use the code I was provided to log in online? I learned today from a YouTube presentation that the videos only…
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Mom is nearing the end
I’m sitting with my mom at her MCU. She has deteriorated very rapidly, stopped eating, is mostly asleep and very minimally aware. I live 5 hours away and for a variety of reasons have not visited her in many months. Fortunately until recently we had wonderful phone calls and she always knew it was me. I wish I had come…
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Caregiver for Brother Mid Stage Alz question
I am female, and the lone caregiver for my twin brother who lives with me. He is on the downside of mid-stages Alzheimer's and symptoms are speeding up. We are soon to be 70 years old. He cannot drive, can barely write his name and cannot do numbers at all. Moves very slowly and is beginning to have trouble finishing…
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Early stage, waiting for the other shoe to drop
DH was recently diagnosed with ES Alz. Looking back, there were definite signs 5-6 years ago. A few weeks ago, he totally missed the toilet in the middle of the night, twice. Since then, nothing. Lots of good advice from this group on that. Most of the time, he seems perfectly normal, except for his choice of word…
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Life in the Alzheimer's Warehouse
Good morning Dear Friends. I sometimes find it helpful to write down my thoughts. I am sharing what I wrote this morning in hopes that it will offer a perspective that while we don't have control over our situation, we can and do choose what we think of each day. Let's all fight with every fiber of our beings to stay out…
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Short Film: A Marriage to Remember
Lovely. https://www.youtube.com/watch?v=PZu51MnqfF4
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Scared and unsure
Iam so new to all this I apologize I just don’t know where to turn. My husband is showing signs of memory loss and it’s scary. I’ve got him to go to his pcp but I have no idea what is ahead. Iam having anxiety attacks and can’t seem to function well myself. This is a hell. I am just reaching out because I have no one to…
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How do I convince my mom to sign a medical and financial POA
Hello! First and foremost, I am so very thankful for this site. It is a wonderful feeling, knowing that you are not alone in this craziness that has up ended our lives. My mom is afflicted with Alzheimer’s and dementia. She’s 74 and was diagnosed last October. I would say she is pretty much status quo for how she is…
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No signs (I don't think) but had father and grandmother die with the disease
Hello- I'm new to this forum. Today's paper had a very interesting article about the new testing which is becoming available for early onset of the disease. I'm 57, healthy and I eat properly and exercise 5-6 times weekly. I'm retired so I don't have the "stresses" of a job. I recall my dad being concerned about not…
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Neurologist Recommendation?
Can anyone recommend a good geriatric neurologist who diagnoses dementia/ Alzheimer’s in the Capital District area of NY? Not sure if I’m allowed to even ask this. New today to this website and discussion forum. Mom is in AL but they are recommending MC, and I don’t know if it’s because MC is more $ and they have more room…
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Please send good vibes
So after my mom was put on notice for incontinence, I was in a panic. I visited a LOT of memory care facilities. So many were not places I could see her in at all, for one reason or another. I was extremely depressed. Most said they were confident they could deal with her incontinence issues, but other things just didn’t…
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Not that she'll remember, but....
I'm wondering if my mom's PCP can have a conversation with me and my mom about moving her into MC. Not that my mom will remember having the conversation, but she seems to respect what her doctor always has to say….and it will be in writing in her after-visit summary.
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Regarding "Groups"
I accidently clicked on Groups and noticed that a few new members had started a group to discuss their own situation, by way of introduction. No one will know about them in a group, they need to post in one of the caregiver boards. There used to be several Peer Volunteers to check for new members. I hope that some of the…