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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Ultimate Answer
We discuss and share our lives and living with a LO with dementia But the ultimate answer is our relationship with God and to pray and give all your troubles to Him Only then will we see his answers and not ours
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Clothing and hygiene matters.
My DW of 48 years no longer cares about how she dresses and more often than not believes she has showered, brushed her teeth and is ready for the day. If I mention that her blouse is inside out or pants are on backward she gets upset at me and says "no-one but you will notice". When I mention showering or teeth brushing…
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Surrendering leased car and alternatives to driving
We will be turning my mom's leased car in this Friday. My mom, who was diagnosed with Alzheimer's in 2021, seems to be an OK driver (no accidents yet) but we recently moved her from NH to MA to an independent living facility in my neighborhood. She already let her NH license lapse and would never be able to handle the…
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Establishing level of capacity of judgement
Anyone have experience evaluating capacity of judgment? I am being referred to Forensic Psychiatry at a cost of $5,000 to $10,000. Gotta be a better way.
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How to find a doctor to do capacity assessment for DPOA
We've been dealing with Mom's dementia for a while now, and we really need to activate her DPOA. It requires us to get an assessment from two "licensed physicians." Problem: I called Mom's doctor, and they had no clue. The office people don't think the doctor has ever done that. I don't know what kind of a process I need…
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Questions about Lequmbi
I'm getting my 12th infusion in a couple of days. Everything is going ok- no side effects, feeling fine in general. With no advanced symptoms, I'm wondering if the Lequmbi is holding the progression of AD at the mild cognitive leveI. If and when I stop, I'm assuming that I'll be displaying more severe AD symptoms. Will…
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Preparing LO For Death of a Friend
Hello everybody! I hope everyone is enjoying their summers so far. I am writing to try and gain some insight on how to handle this situation, for me and my mom. My mom is 61 and in the moderate stage of her Alzheimer’s. We live in an apartment building and have been very close friends with the woman that lives above us for…
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LO Has Been Diagnosed 15 years
Has anyone dealt with slow progression AD? My MIL was initially diagnosed in 2010. She was in early stage AD. 15 years later, she is at Stage 4. Her husband has been a faithful caregiver. No one is complaining. We have had the opportunity to share many more holidays and special events than we ever thought we would. Has…
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New here, adding introduction
Hello all! Guess it's my turn to introduce myself here. I'm Catherine, eldest daughter of a mother with Alzheimer's (among other issues). I've "known" for years something was up with her, but living 400 miles away made it hard to put my finger on what. After your standard "fall & break a hip" scenario, she's now in an ALF,…
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So new to this
My mom was newly diagnosed . I have 1 million questions - but can I start with this ? Has anyone had any luck with getting home care ( housework ) covered ? My mom has Medicare and supplemental . I know it is a long shot - Thanks !
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How to deal with violence
I posted this before but is getting worse and he thinks he is okay. Gets Up early and wanders around the house and says no to everything and lashes out when I tell him to go back to bed. I am not in love with him, just feel an obligation. Can I just leave him and never look back
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Memory Care transition
Well it has been 2.5 weeks since my DH has been in memory care. Prior to this, he spent 3.5 weeks in the hospital. The first couple of days he was there, I literally slept like a log. My bed didn't even look like i had moved a muscle. But as the days wear on I'm finding my big old house so quiet. It's sad. The facility is…
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How does Alzheimer's ASSN help
And how do I actually contact them I live in California
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Does your state medicaid cover MCF?
Spoke with CELA yesterday and found out medicare in CA can cover SNF for patients with dementia who need it but does not cover a MCF. We would have a share of cost but at least we wouldn't have to pay the entire amount ourselves. If I'm not able to keep DH with VD home with help until the end, I'm hoping his poor physical…
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Books, and thermostats
Two questions today… Suggestions, please: My partner has always been a big reader, though she hasn't been able to follow a story (on tv or by reading) for a couple years now. She always wants to carry a book with her and does sort of read it. Everything we have at home has been deemed "too negative," or "not interesting"…
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I haven't posted in quite a while
Every time I think about it, something else happens and I put it off. It's been eighteen months since my DH entered MC and I wish I could say I have adjusted to being alone. My life is full of activities but underneath is the sadness that never goes away. In the evenings, when I am alone, it hits full force and the tears…
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Dementia worse in nursing home
Has anyone had their parent get worse immediately if placed in nursing home? My dad was placed in nursing home a couple of months ago and his dementia is definitely worse. He can't remember the place he just lived in for the past 25 years. Its so sad.
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Fear of being alone
my mother has maybe stage 6 dementia and she is terrified of being alone, to the point where I can’t go into the bathroom without her. I don’t mind bringing her with me, or keeping her in eyesight at all times (which she needs for safety reasons anyway) but the terror and anxiety she is feeling is gut wrenching. I hold her…
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Advice on letting go of the guilt and next steps...
My mom is a recent Alzheimer's diagnosis (in the last 6 months) but has been on a steady, slow decilne since 2021. Since her actual diagnosis, things are rapidly declining and I have so much guilt that I am not there for her more. She lives with my Dad/her husband still but is mostly alone during the day while he is at…
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Correction
How best to correct someone with memory loss ?
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GPS Enabled Watch
I don't post often - but I check-in every day for your sage advise! My DH (70) has Alzheimer's + Vascular Dementia and was diagnosed 1.5 years ago using blood test and MRI. The Neuropsychologist conducted testing and concluded he was in the 'Moderate' stage. I (64 F) am trying to work another year before I retire, so he is…
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New Here!
Hello, I am the 40-something daughter in law of a PWD. I cook for her and my FIL at least once a week (he is is her primary caregiver). Meals at our house, meals at their other child's home and meals out. All their lives, the boys (her only children) and husband were and still are MAJOR "ball-busters" - for lack of a…
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Mother is getting worse
So my mom has been showing signs of dementia/Alzheimers for over a year now. We recently found out that she has atrophy of the brain but did not ask them to test for the reason. She, and my daughter and her family, are living with me temporarily because to add insult to injury she had a tree fall on her house so they are…
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MC decision
I began visiting MC facilities as my Plan B to be ready if something happens to me. However, after seeing some very nice places I’m thinking more about the improved care he would get there and the extra freedom I’d have. DH is mid stage 6. I’ve been unsuccessful at getting him to shower (I do what I can to keep him clean…
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Constant questions
DW is in stage 6 of Alzheimer's. She is a question machine, and not just with me, with anyone and everyone. It gets frustrating, especially because of the repetition, her asking the same question over and over, unaware that she has already asked numerous times. Her short term memory is totally gone. I do believe her…
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Improving Services and Program for People with Dementia
Michael Ellenbogen sent me this excellent, concise article on how to improve services and programs for people with dementia (including his own recommendations for hospital care). https://progressally6yogf8hc32ioroi.s3.us-east-1.amazonaws.com/list/Journal/99/j99-delorenzo.pdf
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Just need to talk to my friends (208)
HB, thanks for telling me about auto comprehensive paying for rodent damage. I doubt this will be over $1000 which is my deductible. JeriLynn, I would be interested in the device you mentioned that makes a noise to scare rodents. I have those scent packets but don't know how to keep them from falling out but maybe the…
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Quick question I
My DW with EOAD has been losing her vocabulary in the last couple of months. Nothing that comes out of her mouth makes any sense. The words are clear but the composition of the sentence makes no sense I’m thinking because of her shrinking vocabulary. My question is do they also lose their ability to understand what someone…