-
Alzheimer's Progression is not Linear...
So anticipating what might be needed or how to respond/care is so difficult. My husband has been diagnosed since 5/2023 with Alzheimer's which was certainly happening well before that. In all the research, and support groups, and meetings, and readings, and doctor's visits, and clinical trials, I've been navigating dizzily…
-
Six Months Since Moving
It has been six months since we moved two states from our hometown of 72 years to be near our daughter. DH has ALZ. I am still profoundly homesick! I miss everything I left behind, my older brother, our friends, our doctors, our dentist, all our familiar places and routine. We are going back this week to visit my brother.…
-
Newly diagnosed with early onset Alzheimer's I'm 59
Im single and work fulltime. I live paycheck to paycheck. I'm in early/mild , kinda crossing over. I have no idea what to expect. Or any kind of timeline. I have debts and need some direction. There is no long/short term disability where I work. I expect a 2 week severance when they find out. How long will i be able to…
-
Memory care
These last few days may have been the saddest of my life. Our kids and I moved my DH to memory care on Tuesday. DH has been mostly calm but with anxiety and confusion in the mix. I am grateful he wasn't combative or accusatory towards me or the children. Now I am saddened and filled with a deep sense of loss I have never…
-
Live womens groups in San Diego area?
Putting this out there to see if there are any early onset women in the San Diego area who would be interested in getting together occassionally. My wife, 65 years old, EO and early stage is interested in meeting other women for support and socialization.
-
Convincing Mom to Get Help
Hi everyone, We are having a very difficult time trying to convince my mom to get help or get caregiver. She’s been a very independent woman for a long time and given my father passed away a long time ago, she’s been alone for awhile so she’s had to take care of herself. But we are worried something bad is going to happen…
-
This is hard....
Hello all....I'm new here and I am feeling so overwhelmed. I am the caregiver for my sister who has Alzheimer's and the things I have gone through over the past year has been exhausting. I have no other help and her Medicare has been cancelled, so I'm kind of on my own until after January when I can apply to have it…
-
Wanting to leave the house
hello. My dad has dementia and his symptoms have been progressing the past 3 months. He is waking up in the morning wanting to get dressed and leave the house to go to work even though he no longer works. My mother is the caregiver and lives with him and when she tries to stop him from leaving he gets very nasty and can be…
-
55 and have early/mild Alzheimer's
-
Aggressive Parent Need Advice
Hi, I've never commented on here before but I need advice and have no one to turn to. My father has dementia possibly from Alzheimers, which has been going on for about 6 years now. He started showing signs of aggression the past month, but he just tried to break my mom's wrist and is threatening us. I stepped in and he…
-
Managing Exit-Seeking and Aggression Issues in Memory Care Facility?
Hello. My mom (83) has dementia. We moved her into a memory care facility last year. Aside from her memory issues, she is very independent (no need for assistance with basic stuff like showering, walking, eating, etc). However, she has strong exit-seeking behaviors, in that she is very upset being locked in the MC ward and…
-
Some good advice (cross posted)
This is my caregiver education for the month of November as an adult foster care provider for my loved one. I thought it was good advice that we can all use.Communication and Interpersonal SkillsThe caregiver/member relationship can often be tenuous and difficult. Home care is a stressful setting that typically involves…
-
Some good advice
This is my caregiver education for the month of November as an adult foster care provider for my loved one. I thought it was good advice that we can all use.Communication and Interpersonal SkillsThe caregiver/member relationship can often be tenuous and difficult. Home care is a stressful setting that typically involves…
-
Anger When Family Tries To Help
Hi everyone! I wanted to reach out and see if anyone else has had experience with this and what you did to mediate it. So I am a caregiver (F25) to my mama with Alzheimer's (F60), and she is on her first big trip since her diagnosis. Her sister took her out of state to visit other family members and my mom is having a…
-
Just got pet results
I’m freaking out because it appears to me that it’s saying I have ad. Now to wait for my appointment to go over my bloodwork and pet results in two weeks. Unfortunately my family has a strong history of early onset dementia, but still, 42 is the youngest in my family if it’s true. I’m hoping doing some research will help…
-
Keeping a list , documenting the journey
No formatter is installed for the format not-found
-
Any luck with caregivers?
My DH is in early stage 6. I’ve tried 4 caregivers. Every time he starts off positive with their visits and by the 4th or 5th time he’s agitated that they are there. Follows me everywhere to get away from them. Granted not one of them has done what I expected to bond with him. They start off very conversational etc and…
-
Anyone ever move a loved one on Medicaid to another State?
My sister’s nursing home has asked us to move her. They are citing that she is “exit seeking” and that she is difficult to deal with - saying that she needs to be in a memory care wings. They do not offer the service. I suspect that is not the true reason - yes, she is difficult, and she is an exit seeker (5-6 times a day…
-
Language issues
My spouse has had problems with language for several months. I mention it when people ask about him, but I struggle to explain it. So, yesterday, I started a list. He was staring out the kitchen window (at the sunset). When I asked, "What's up?" he said, " I'm looking at the thing that's going to go away soon." What do…
-
I have a question about Parkinson's Disease
I have a friend who has Parkinson's Disease. Her voice is very soft and I have to ask her to repeat two or three times before I can understand what she is saying. She wears hearing aids and probably doesn't hear her own voice well. I would like to suggest that she receive speech therapy to improve her voice and speech. Can…
-
Looking for Live-In Care Resources
Hello. I am new to this group. I didn't know this even existed until just today, and I'm so thankful to have found this page. My mom was diagnosed with mild cognitive impairment back in 2016. Slowly she has been progressing, and things have taken a turn pretty quickly this past month. I am navigating live-in care vs full…
-
Aphasia?
I am curious to know if anyone is experiencing what I am with my DH. Clearly he has Alzheimer’s, all the symptoms, probably stage 6. Occasional incontinence, even bowel, no memory, small shuffling steps, layers clothes, doesn’t want to shower, agitation, shadows me, beginning to struggle with using utensils at dinner, all…
-
Forgot to title my post!
Sorry everyone, that last post- I forgot to title! Should have been titled Aphasia.
-
Visiting a stage 7 patient
DW has not had the slightest cognitive reaction for 3-4 years. She can still swallow but reacts to nothing else. She has excellent care. So why do I visit? It is no practical use to her and emotionally very trying for me. But I do.
-
Advice on auditory hallucinations?
I've been searching and reading the forums for a while, looking for my situation but I've not quite found it. I'm a caregiver for my aunt. She's diagnosed with Dementia, but doing quite well, able to clothe herself, eat, walk around, etc. The biggest problem is hearing voices, as she has been for a year. For the most part…
-
Suggestions on "sedatives" please
My HWA at stage 6 needs a sedative to help with increasing agitation and sleeplessness. He tried seroquel and trazadone but he reacted very poorly to both. They made his wakefulness and confusion worse and caused a couple of falls due to increased "wobblyness". Basically, they reacted just the opposite and made his…
-
Scared
My mom was officially diagnosed with Alzheimer’s last year. I noticed her memory was slipping a lot before the diagnosis but my mom kept blaming it on old age, at the time she was around 66-67yrs old. She’s now 69 and she refuses to accept her diagnosis even though she been rapidly losing her memory and has been…
-
Incontinence Underwear….Depends v/s Always
Not knowing of any other brand I got my LW to use Depends at the onset which was 7 months ago. I recently found out about Always. My question is which one is better or are they basically the same.
-
Decline stopped. Is this the new normal?
What a roller coaster it's been! Earlier this month, I asked for advice on my mom who entered hospice and was declining daily. No longer able to swallow and was sleeping more often. I thought it was close her final weeks. This past week she doesn't seem to be declining any longer. She is eating again (although not alot)…
-
What to do?
Last few days DH has taken $600 out of his bank account, answered a phone call at 8:15 am from some scam place asking for his Medicare # because they will pay for a back and knee brace. Thank goodness I intervened as he was looking for his Medicare card! He woke up and called the house phone at 5 am! Not sure what to do .…