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delusions?
Hi. I am the care-giver for my father since Christmas. He has had memory issues for several years and has never been diagnosed with Dementia or Alzheimers. I'm pretty sure he has one or the other. Anyway, for years he has been complaining about bugs on his recliner. He went so far as to get a new chair, it's leather. He is…
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Cheryl Wirth, transfer mom 93 with dementia to assisted living
I’ve been taking care of my mother at her house at night and my house during the day . I have become cranky and losing my patience more . I am 72 years old . Have put in application for assisted living memory care home . Do you have any suggestions on how to make the transfer as smooth as possible . I’m sure she will be…
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How to deal with an abusive parent with dementia
Hi everyone, I am new and am glad to be here. My 92-year-old mom has mid/late-stage dementia. She was verbally abusive (and sometimes physically) most of my life. I am now 52 and have had counseling over the years to deal with her abuse. However, she now has mid/late-stage dementia and is getting both physically and…
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Mother-in-law with Alzheimer's diagnosis refusing treatment/diagnosis
Hi all, I am new to this forum. My mother-in-law was diagnosed with early stages of Alzheimer's about nine months ago. Since then, it has been an uphill (upmountain?) battle. She has refused to accept the diagnosis and will not return to see her neurologist despite MRI and cognitive confirmation of the disease. She has…
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My Biopsy for EO was positive
I am 54, my died at age 56. Trying to navigate how many years will I have? Lumbar puncture is being scheduled today. I'm scared. Memantine has been started.
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Dietary Changes/Scientific Study Very Promising
This is definitely worth exploring. Scientific study by a proven leader in lifestyle-based medicine.
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Does aggression and agitation fade as the disease progresses?
My DH is 68 - Alz diagnosis after PET scan and MRI and testing - has been highly agitated for months. I had locks on all our doors and gates as he was constantly trying to get out and would become very angry with me as his "jailer". He could have moments where he was sweet, but after needing 911 to help get him inside…
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MC
When did you know it was time for your LO to go into MC, especially for LO that did not live with you?
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#2 and and AM confusion
My 44 bf who has eeoa for the last few weeks has been super disoriented in the mornings. I have to help him fine the bathroom and tell him to go to the bathroom. "Pull your pants down and sit on the toilet". Which takes a while as he will go in and out of the bathroom. Also he has stopped wiping his bottom after #2. I tell…
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Posting in both forums - Staging Tool and (shocking) Caregiver info
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Medicare respite
Has anyone used the 5 days of respite provided by Medicare? Was you LO on hospice at the time? What type of facility were they in? How did it go?
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Showers
Why does husband always refuse to shower? We live in assisted living they will help but he refuses.
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Not sure what to do?
Hello, my name is Mary and I moved in with my mother in January and have been her primary caregiver since then. And to put it nicely I am exhausted. I moved in as my brother was moving out after about a year. My brother's wife abruptly filed for divorce in December of 2022 and he was forced out of him home within 48 hours…
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When is it Time to Move?
Good Morning, What are the signs that indicate it is truly time to move a parent who is in late stages of dementia to a Memory Care residence?
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Dad's discussion with hospice SW
I had a discussion with my dad's hospice SW for the first time today. After speaking with her for an hour, dad all of a sudden told me I'm talking too long. The SW then said she will end the discussion. I think my dad thinks I'm disclosing too much to the SW and wants me to quit talking to her. Well, the SW respected my…
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I feel like I'm constantly giving in...
Maybe this is the way it needs to be, but I find myself constantly giving in to DH's requests/demands just to keep him content and prevent him from getting irritated. Example…it's VERY VERY HOT right now but he wants to go for a walk. I suggest waiting until after dinner when the sun is not so hot. He says OK. He asks me…
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National Plan to Address Alzheimer’s Disease: 2022 Update
https://aspe.hhs.gov/sites/default/files/documents/59cefdd628581b48b2e389891a675af0/napa-national-plan-2022-update.pdf The 2022 Update includes several notable recent actions to address disparities in ADRD care. Earlier this year, the Indian Health Service (IHS) established the Alzheimer’s Grant Program, a first-of-its…
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How to prepare a dementia patient to transition?
I'm transferring my dad from one LTC facility to another. He's set in his ways so I'm anticipating some resistance. But the new facility is 30 minutes from my home as opposed to 2 hrs away. It's a much better facility than he's currently in. How do I frame my conversation with him on that day?
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Caregiver to husband with Alzheimers
3 or 4 or more times a day my LO is so worried about his money and he wants to know how much he has in the bank so he can go get a drink. What can I do or say without being so frustrated to change the direction of the conversation?
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Bidets
I read the old discussions on bidets from 2021, and found some good suggestions. I'm wondering about brands, updates, current suggestions as I plan to buy one and have it installed. DH and I have discussed before, he is not interested, but since I have ongoing bowel issues myself I think I can fiblet an explanation he will…
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Cognitive therapy with a speech therapist for mild dementia
Can anyone explain what should be happening in a therapy session? I finally convinced my husband to attend a virtual visit. The therapist started with a lengthy list of general questions regarding memory that have been asked/answered at several prior medical apptments within the same network. She then said she'd like to…
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NYTimes.com: Learning to Love My Father as His Mind Unraveled
This article is free for everyone to read: https://www.nytimes.com/2024/06/15/opinion/father-dementia-family.html?unlocked_article_code=1.0E0.jqBS.sBINCeGly_Zg&smid=em-share Lots of things in the article will resonate with many of us. The experience of living with my father’s dementia ranged from tragic to tragicomic to…
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Move from AL to MC?
My mom (94) is in a wonderful AL she has COPD and is on oxygen support. Mom has short term memory loss She can’t remember if she ate, what she ate, or who visited that day But …she remembers family members The problem: she is refusing showers, hair wash, changing clothing, going to dining room and has become incontinent.…
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Stages of Alzheimer’s
I am not familiar with the stages of Alzheimer’s. My husband is 81 years old and first exhibited signs of dementia about 5 to 6 years ago. Now he would not be able to live alone. He sometimes can’t find the trash can, the bathroom and other things that should be familiar. He thinks he is still working and sometimes needs…
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Father's Day
With Father's Day tomorrow, I have been a little sad this weekend. My dad, PWD, stills knows I am his daughter (some of the time), but does not say my name. I live out of state and do not get to see him often. I hate this disease; it robs you of your loved one and it is a continual, gradual loss; sustained grief. I am a…
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New to this
Hello everyone. My step-mother and Mother both have Alzheimer's, early stages for Mom and getting more advanced for step-mom. Any advice on navigating this without it breaking me? I also am worried since my Grandfather also had it and I've been experiencing some loss of words, and forgetfulness, I may be next. I've had a…
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From The NYT: The Ethicist- Spouse with Dementia
I have so many thoughts on this starting with "has this columnist ever lived with a PWD?" https://www.nytimes.com/2024/06/14/magazine/husband-dementia-divorce-ethics.html?unlocked_article_code=1.z00.2GoA.8KLGpmxh2ufJ&smid=url-share
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Shout out
Every morning I come to the forum before my day starts. i read, learn and try to share when my experience might be helpful. If I have nothing to add, I still respond with the buttons below the posts (Insightful, Like, Care, etc). This morning as I read your posts I was filled with many emotions: Gratitude, empathy,…
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Another Step in the Progression
My DH is 86 and was diagnosed with Alzheimers in August 2021. He remains gentle, with a sense of humor, and in good physical shape for his age. He still volunteers at a community garden which he has done for 17 years. His fellow volunteers know him well, are protective and caring, so I know he is safe while there. The…
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I'm finding respite to be hard on me
I took my husband to the facility hospice found for 5 days respite care. Red flags as soon as we arrived. I won't tell the drawn out story, but it was dirty and didn't feel safe so I took him right home. I spoke to his social worker and she made arrangements at one of their facilities (it was the backup option because it's…