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Husband
Hi all, My husband has Lewy bodies and was saying last night he’s dying, he said it again in the early hours of this morning, can anyone give advice please.
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risperidone
My HWD is currently taking Donepezil and Sertraline. He has been so agitated and verbally abusive lately that his PCP has written a prescription for risperidone 5 mg. The listed side effects are pretty scary, but maybe at this low dosage they are not a big risk. I was wondering if anyone has experience with it that they…
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Decline after caregiver?
Mom lives with us and has for about a year and a half, but we had a daily caregiver (8 hours a day) coming for a little over 2 months to help with Mom after she had fallen late July of this year. It was usually the same person M-F and then another person who came for the weekends. Both ladies were awesome, and of course…
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Medication administration
Hi ! my mother has been getting very confused with taking her medication despite me setting up the pill organizer each week . It is clear I need to get some help because I can’t get there each day and night. What are your experiences ? Is this something Medicare covers ? Are there agencies that will just come in for this ?…
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Feeling extremely overwhelmed
I am a 55-year-old female caring for my 80-year-old mother. There are so many things to discuss, so I will try to start small. I live an hour and a half away from her, so expense-wise, and my own extreme anxiety and depression, it is hard to be there all the time. I call her daily to check in, but that conversation always…
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Safety gate for stairs?
Morning all, I'm new here and caregiving for my mom who's in stage 5. Increasing wondering at night, mostly in the upstairs hallway but occasionally venturing downstairs. Any stair gate recommendations? Thanks!
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Wow, I underestimated the loneliness
My husband went to memory care this week. It's going fine. He's settling in fairly well. I feel like a jerk for even saying this. I'm lost and lonely. I've never lived alone before (family, college, roommates, then my husband). I'm trying to keep busy. Dishes are done. Laundry is caught up (for the first time in 2 years).…
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A different stage
Hello my friends, all day I have beencalled a bitch, move out, pay bills with my small paycheck and my DH needs his SSI $1000 income. I am feeling like scared,, he will lash out. Also I cant be around him
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First Post
This is my first post, although I have been reading conversations on this forum for months. You are all so knowledgeable and compassionate and I have gained more knowledge here than with all the doctors or well meaning friends and family combined. Here's our story: I've known my DH for 30 years. We have been incredible…
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Unhappy Anniversary
Today is our 13th wedding anniversary. Last year DW jumped out of bed and gave me a big kiss and wished me a happy anniversary. This morning I told her happy anniversary and she had no reaction just continued to talk about something that made no sense. I guess this year is the beginning of unhappy anniversaries for me.…
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structure and expense of long term care and hospice
This is a CNBC video I found interesting. How senior care became a $600 billion business | Watch
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What to do, what to do…
My father in law suffers from dementia. He has lived by himself for the past two years and is capable of caring for his daily needs. Still fine with the few meds he takes. He has regular interactions with each of his kids as well as occasional visits from family friends. He sundowns pretty severely each evening. We…
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Being accused of any and everything
I am caring for my grandmother. I was wondering if anyone has any tips for a specific and main hardship I'm having. She accuses me of being "the biggest liar she has ever met" about everything. She will ask me a seemingly easy question for example, she will be holding a peice of mail and ask me where it came from. So I…
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Anxiety building
i am going to visit my mother tomorrow mainly because she needs her wine, she goes though a box wine (34 glasses) every 4 days it's very bad on her part I have tried to intervene but she says she will never give it up. Tried consulting a doctor and my mother refuses any treatment. I have to cover her seat in my car with…
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Any point to Namenda at this point?
I'm so tired. DH was diagnosed with dementia 16 years ago and was placed on Namenda and Galantamine. It appears they did slow progression but at age 78 he is now in a memory care facility. The Galantamine was discontinued a year ago but the Namenda was continued. . At this time his dementia has progressed mentally- he is…
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A Trip
I have to make a confession. I've been telling people here how difficult taking trips with my DW in Stage 5/6 have been and recommending not to do them. Then, the glutton for punishment I am, I decided I'd try again to bring my DW to our old hometown. She went to college here and has wonderful friends and family here that…
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When or if or why to call ambulance if notable changes in bp and demeanor
hi all…my mom has late stage Alzheimer’s but lives at home with 24/7 care. My dad prob also has dementia but always thinks something is wrong. Yesterday she was much more dazed than usual and higher BP than usual. My dad wanted to call an ambulance. Mom just existing no expression of pain. I told him to let her be. I want…
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Need help with finding a new facility for my Dad in NY/NJ
My Dad has Alzheimer’s for the last 4 years and in the last year the disease has progressed with some combativeness, resistance to care and lack of inhibition. He has been discharged from two AL/MC facilities as I learned they are not equipped to deal with those symptoms of the disease. He has been hospitalized in…
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A little tip about door locks
The first time DH locked himself in the bathroom I realized that I don’t have keys to those locks or to the bedroom doors. I bought emergency key pins to open the push button locks. These worked for me, but maybe even a little screwdriver would work. Just make sure you have a way to open all locks so you can get in if they…
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Venting: I'm married to a teenager
My husband had been having colon issues for a couple weeks. He finally called his doctor, and they said to go to the ER. I took him to the ER, and I realized he can't manage his own health anymore. He went back for testing and samples while I waited in the lobby. He came back, and we were to wait for the results—thankfully…
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DH's reaction to memory book for my kids
M6 DH was diagnosed a year ago with Alz, he's 72. I noticed symptoms years before the diagnosis. I'd say he's mid stage, still pretty capable. With that said ... I had been working on a memory book for my children (from a previou marriages) for several years. Now that I'm retired I was finally able to finish it. It's via…
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Obsession with his cat
My DH was diagnosed with Alz a year ago, but I was seeing symptoms for at least 3 years prior. He still comes across "ok" to others. Just not able to come up with words alot of the time, but I see much more than this of course. We have two cats and DH is particularly attached to one. He now seems rather obsessed with it.…
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Guilt and Grief
My wife of 47 years died from Alzheimer’s in July 2025 on her 75th birthday. I was her only caregiver for the past 10 years. During the last 12 months or more of her life I prayed and asked others to pray for me to have more patience and understanding of her affliction. I knew at times I was being impatient and knew it was…
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Thank you all for advise and steps to take
i appreciate every ones input and allowing me to vent a little I have no one to talk to.
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Upcoming Events
Here are some upcoming events that Michael Ellenbogen shared with me: Updates, Announcements & Upcoming Events GUIDE Affinity Group Biweekly Sessions Join the ADC Program for one hour of real-world insights, best practices on GUIDE-related topics, and open Q&A on every other Wednesday, 8:00–9:00 AM PT / 11 - 12 Eastern.…
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Insomnia
hello…me again..so my mother has been tried on Mirtazipine and Celexa and Melatonin and she is not sleeping at night with anything given to her. Her doctor is trying to find a medication that will work, I really would like to keep my mother at home because she always told us that she did not want to be put in a nursing…
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Kinsua then Leqembi ??
I am 77, newly diagnosed with MCI and my doctor is recommending Leqembi. Would like to know if anyone has experience with starting on Kinsua and then moving onto Leqembi ?? Thanks
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bedtime ritual
Anytime we lay down on the bed, whether for a nap, but especially at bedtime my DW is constantly up and down. She's at that stage where she continually paces and jabbers so I suppose this is an extension. But the bed thing - I can tell she's exhausted but she will spend an hour up and down up and down, in and out. Very…
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in a dilemna re ALZ/divorce...any lawyers or people having had this experience?
My wife and I amicably separated at 65 years with no intention or desire to reconcile. It should have no bearing but to avoid judgement from y'all I will share that I tried FOR YEARS everything I could to address the lack of intimacy (emotional, physical - not talking just sex) and SHE refused and gave me an ultimatum:…