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Post for Lgb35 on Semantic Dementia
Lgb35 I saw your recent question on how to get info on Semantic Dementia (SD) in another thread but I thought answering there might get lost. "we received confirmation today that DH also has Semantic Dementia. When I asked for resources so we know what’s next and how this form progresses, I was told to look up FTD…
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Guilt and Regret
My wife passed away 8 months ago, and I was taking care of her 24/7. It was getting difficult, sometimes I lost patience and was abusive to her - other than the grief that I'm still going through for someone who I loved so much, how do I handle the guilt and regret that I feel at times? It was getting really tough at the…
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Taking advantage of not remembering
I think others have mentioned this but I take advantage of PWD's inability to remember in order to avoid problems. For example, PWD tries to peel label off of a bottle (salad dressing, or whatever), but fails since it's difficult and can make a mess or spill things in the process by forgetting to cap the bottle. Rather…
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Downsizing with Dementia
It's been three years since the official diagnosis though it was happening way before that. And I realize I haven't looked back. I haven't looked back at how we were before all of this crept in ever so slowly. And I actually forget who he was sometime back in our lives together when I never imagined anything like this. And…
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Geriatric Psychologist
Hi, My mom was recently diagnosed with Alzheimer's. She is still in stage 1 and can be independent. Has anyone gone to a geriatric psychologist and did it help?? I appreciate all the help I can get. Thank you!!
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Social Scientists, We Are Here
As I read through the threads on here and, like all of you, find great value and comfort from this forum, I am struck by the discrepancies between our real life and what is described by most (I am sure there are exceptions) articles or studies. As I began our journey, the medical community could offer little, if any,…
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When siblings do not help
Hi, I have a mother who was just recently diagnosed with Alzheimer's. I have 2 other siblings, but they do not move unless I remind them. I am annoyed and frustrated. What can I say or do for them to help out?
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Our journey together.
We are in year 3 of my wife’s battle with Early Onset Alzheimer’s Disease but I still feel this way with her. To My Beautiful Wife Each time I look at you, I just smile to myself and think, You are perfect just the way you are, my one in a million. You are my special kind of love that makes me realize that life gave me the…
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DH always wants to leave the house
All day long, DH is constantly wanting to “get going”. He is fixated on walking a specific route in the neighborhood. We walk the route, stopping to talk to anyone we see (which is another challenge), we come home, change out of our sweaty clothes, then he says “are you ready to go?” This goes on ALL DAY LONG. He doesn’t…
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Feeling alone and lost
I have not got a diagnosis for my husband yet but its so difficult as he used to do so much and now he jist sits and I can't get him to do anything . I have been finding all kinds of stuff in trash cans almost daily I feel like a dumpster diver. if I asked him why he say I dont know and just like he didn't do it. I been…
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Sundowning
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living the movie Groundhog Day
My wife and I have had a wonderful 40+ years together. Recently, the neurologist diagnosed her Alzheimer's as "early moderate" stage. I believe the moderate stage began during the past year. The biggest change so far (in the moderate stage) is not greater loss in memory (although there is some). Rather, it's behavior…
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Refusing to take meds
This is a new problem for us. My DH is pitching a FIT when it’s time to take his meds. He absolutely refuses to do so. I’m probably not doing this right, but I beg him to take them for his dr’s sake. Last night I begged him to take them for Cody, that’s the dog. He did. He started chewing them a few weeks back, so I…
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Grieving
I find I am grieving the intimacy that we used to have. I tried to hug him this morning he said to me, I don’t love him. I felt like it tore my heart right out of my chest. We have been married for 67 years. It is my DH. I find myself often in tears I’m 84. I feel like I live in the house alone. He gets angry so easy I do…
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Help with restless, sleepless nights
At bedtime, my wife will sleep for about an hour then will become restless and repeatedly get up and down, then roam around the bedroom and upstairs all night like a zombie. She has moderate/late stage Alzheimers and takes risperidone (Risperdal) but doc is weaning her off and will replace with Geodon soon. She also takes…
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Is neuropshych exam worth it now?
DH was diagnosed with early AD via PET. We have upcoming scans to see if he's a candidate for the infusion treatments. We have a neuropsych exam (the 3-4 hour one) scheduled. Is it worth it to still get it done? Costs are rising and I'm not sure the value. Would love to hear some opinions.
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Considering move into Assisted Living for both of us
DH has AL, probably stage 4. He is 90 and I am a couple of years younger with my own health issues but still an active senior. Our children are concerned about 2 things: firstly what will they do with their father if I am suddenly incompacitated or die, and secondly they see the strain this is putting on me. In all…
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So over this...
I hate my husband. I've been thinking this way for a long time and just felt like I needed to say it. I hate everything about him and this disease. I have no help, so the last 7 years have been very difficult. I have some in home help starting soon. Sorry to burden everyone with such a negative post.
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How long can show timing last?
I was purposefully eavesdropping on my DH's phone conversation with his Mom because that's the kind of person I am now. And I was thinking how good he sounded with her. But then I heard him tell her about an argument he had with his sibling that did not really happen. He did this about six months ago before his diagnosis,…
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Qualities I Need to Work On
Yesterday, DH wanted to go to the grocery store with me. I should have been pleased about this since he hasn’t had any appetite or energy lately. As he slowly pushed the grocery cart around using it as a walker, I gathered some items we needed; and he filled the cart with items that we don’t need, or he should not be…
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Long Naps
Can I just say…I love it so dang much when my DW takes a long nap. She's at about 3-4 hours a nap every day now. I know that means she's moving along, but I do enjoy these moments of quiet. I'm happy she gets them too.
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Questions About Elder Care Attorneys
I'm exhausted from not sleeping at night because I contacted an elder care attorney and they now want almost $9,000.00 to arrange things like Medicaid application, getting the house/cars/etc. into only my name. We already both had our Power of Attorneys, Wills and Five Wishes taken care of. My question is this - is this a…
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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Rexulti , insurance wont cover it
hi there, have a prescription for Rexulti for my mom w dementia & Alzheimer’s, however the pharmacy says Humana will not pay for it, & it’s $1,400.00 if I pay out of pocket. Does anybody know a Canadian pharmacy they trust? Thank you M
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Photograph and Memories
Photograph And Memories By Miles Woolley My beautiful wife has an interesting history of high achievement in her education and intellectual advancement. She started her adult life with a bachelor’s degree in nursing and served in the Army Nurse Corps earning the rank of First Lieutenant. Following that, she returned to…
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Increased appetite?
Recently DH has had an increase in his appetite. He will get up during the night and eat. I find the evidence of this when I wake up. I don't always wake up during the night when he gets up because I have a cochlear implant which has to be removed at bedtime, and that leaves me completely deaf. So when I do wake up, I find…
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My Mother's Siblings
I have a question, what should I do about my mother's siblings who are coming from out of state and want to spend all day at our house? I think that it's too long and offered a 3-4 hour visit yet they complain. Any thoughts?
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New to all of this as a caregiver
My brother Jim(not his real name) was recently diagnosed with Alzheimer's. They said he's at the beginning of it's advanced stage. Our other brother, Max, has been living with him and taking care of him, but he's sick too and his illness will be fatal within the year. I'm stepping up to help Jim after Max passes, likely…
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Dad, strained relationship
My dad has just been diagnosed with dementia. He and I have a strained relationship, but my sister and I are helping him as much as we can or as much as we can handle. our mom died November 20 22 and within the last year we’ve both noticed a decline in our Dad so we’ve had him tested. His memory is OK but his impulse…
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LO Needs External Help But Won’t Accept It
Our 88 year Mom, who lives alone and, was recently diagnosed with moderate Alzheimer’s. Mom’s drivers license was revoked following her diagnosis, and her children moved her car out of her home so she would not attempt to drive. The social worker assigned to help us, following Mom’s diagnosis, advised us that Mom should…