Welcome to ALZConnected! You are not alone.

NYT Article shared. "Could a Blood Test Predict if You’ll Get Alzheimer’s? The tests could help to improve dementia care, but scientists say there are still some caveats and unknowns." There's a lot of nuance in this article. I think the main question for patients is: If you get a positive result, what do you do? It…

Hello, I’m very new to this group and confused on this newly diagnoses of Dementia for my mother! We are still going through a lot of appointments and tests and we don’t have a actual diagnosis of what type of dementia my mom has but they are leaning more towards Lewy body because she has a tremor on her hand! My question…

I'm a caregiver for my Mom long distance. I don't have any support and I'm not sure how to cope anymore. She is declining and I feel she needs different meds because she is starting to show side effects. Not sure how to straighten this out. I've asked for help from docs but nothing changes or they are very vague on the…

My DH is always mean to me. He thinks it is real funny when he locks me in a room. He loves to see me get angry. Always tells me I am fat. First thing in morning he says, Wheres my breakfast!! Like I am his servant. My 8 yr old grandson was visiting and it was constant teasing. MY grandson gets so confused that he is very…

This site is an amazing resource of help and support for so many. I also saw a post in another section of a video on a particular subject. I found the information, presentation and vocabulary right on target for this audience so I thought I would share it here. It is offered just as another resource and supplement to this…

Mom is a hoarder and her house is full. The house is an hour’s drive away. I have averaged one full 8 hour day a week there for the last three years. I replaced the carpet and sealed and painted the walls in the living room that had cat spray, I dug a path to the water heater and had that replaced and I got all the food…

I hear this is common. Is it? My mom is in hospice care at her MC facility. I was with for a couple hours today. I would talk to her and she would answer back. She was more alert than she has been in a couple of days. I felt like it was a gift to be able once again to say something to her and she responded. It was mumbled,…

My DH appears to be declining physically more quickly than cognitively. He has VD but both his mother and older brother died from alz, so he may have mixed dementia but not diagnosed. He sits most of the day and has for years. His legs and hips are weak and getting weaker, he has difficulty: rising from sitting, standing…

My Mom has entered the later stages of early onset, 68 years old. Since the time change for daylight savings things have gotten worse quickly. Recently, she has had the police called on her for wondering the neighborhood and trying to enter strangers cars. This has all culminated in a fall and a broken foot landing her in…

Good Morning Warriors. I tried to research the subject of brain shrinkage and changes in facial features. There doesn’t seem to be much about this. My DH is gaining weight in MC facility but his face features are changing dramatically. In particular, his eye sockets are deepening. His cheeks are also sinking in. He has…

Dear Mr. Memory care manager, I have been working hard these last 50 years and always setting money aside for retirement. Now I need that money to pay for memory care for my DH. Memory care is my vacation, my world tour and my retirement all rolled into one. Today I arrived at my Dh's "care suite" only to find that yes you…

Hello, Not formally diagnosed yet, but my pTau-217 LabCorp test showed a .37 result. I was already diagnosed with MCI last March. My pTau test last year resulted in a .18 which is right at the cutoff, thus the retest. So somehow my levels doubled in a year. This shocked my doctor who seemed to poo poo my concerns up until…

My DH graduated to heaven recently after seven years of moving through the different stages of Alzheimer's. After living with anticipatory grief, this final ending of our earthly relationship has been very hard on me. He was the center of my world. I spent at least a couple of hours every day for the past year with him at…

I've been caring for my LO for 3 years. His progression is getting worse. I was not prepared for this, nor what is to come. Incontinence and it's a battle to get him changed. Showers are hard. Relieving himself outside of the bathroom. Wanders at night, gathering items, hiding items. He is not aggressive or combative at…

How could DH with VD smell the bread baking but cannot smell the urine soaked clothes he is wearing? Just curious 🤷🏻‍♀️

Yesterday I picked up a nasty cold and had a really rough night last night trying to sleep. This morning my wife (who has Alzheimer's, stage 5) had another emotional meltdown. Partially accusing me of of keeping her here at our house to kill her or some such nonsense. I am at low ebb, having little to no patience this…

A question for the community, My DW has been waking up the past week or so with a continuation of the sundowning attitude and demeanor she was experiencing the prior evening. Is this a common experience others have experienced with Alzheimer's? Is this an indication that my DW condition is in further decline?

I just have to tell this to someone…I wouldn’t be able to tell my friends or family without bursting into tears. I lost my DH a couple of months ago. I have occasionally remembered seeing his face in my dreams but never could remember the dreams themselves - until today. I dreamt that we were somewhere sleeping. I woke up…

My DW is getting closer to needing "Depends" underwear or similar. I just can't imagine that she will accept wearing them. I could remove all of her regular underwear and put "Depends" in the drawer but I'm not sure that will work. Any ideas would be greatly appreciated. Thank you all!

My DW is late stage Alzheimer's diagnosed in 2021 but Dr. thinks it started sooner. Her short term memory is almost gone, hallucinations, incontinent with, etc. Out of the blue she refuses to stand or walk. This makes looking after her very difficult. I am doing this on my own but do have a Care Giver come in Mon and Fri…

This is my first post. I have read & benefited a great deal from reading about your experiences. I've finally gotten up enough nerve to share... My DH was diagnosed with EOAD officially 2 years ago, but I realized it started much earlier. He is still social & most who aren't aware can't see it. There are times when he will…

At my DW's last visit with her neurologist it was suggested that she begin low dose quetiapine twice a day. (split 25 mg tablet). OK. So I never start her on a new medication before I have had an opportunity to evaluate the potential risks/rewards of using the medication. Reading the manufacturers medication guide #1 of…

My DH has AD & recently moved into a VA facility. This transition has been so hard - for both of us. He wants to come home, I know I can no longer take care of him, I dread going out to see him b/c my husband is no longer there, just a shell full of confusion. We started looking for a diagnosis when he was 58, only to be…

This will be a short post. I read a few other posts and so far my situation is not as concerning as others. My husband REM has an early diagnosis of Mild Cognitive Impairment most likely caused by Alzheimer's. He has issues with short term memory and repeatedly asking me the same questions over and over. He has developed a…

We met in 2010. Married in 2013. Just the two of us building a life on conversation, travel, curiosity, and the kind of partnership that doesn't need an explanation. The diagnoses of EOAD arrived in October 2023. The disease that started years before had progressed to the point where DW could no longer manage her own…

Hello, we just prepaid for the first 4 treatments of Kisunla because it was denied by insurance bc my DH is "too young" (less than 60 years old). We were told it would be about $30K a year, but the estimate we got from the provider was $30K for the first 4 treatments. Anyway, has anyone else decided to self-pay and what…

Hello My parent 87 y.o lives in an ALF. She hides and loses items in her room and believes people are stealing, stuff like her underwear and PJs. should I take some of her clothes out of the closet so she can find stuff easier? Also she starts calling me at 1 am even while taking trazadone 100 mg. Sometimes she is…

I thought I had more time. I prayed I had more time.😢 I have advocated for mom to get a name for what caused her dementia. Her neurologist believes hers is multi-focal, meaning hers have many causes, vascular being one. The PA asked mom last month if she wanted to be tested specifically for Alzheimers. To which she said,…

You bros need to scope bigassporn.love before that url disappears. I been on a big DELETED binge since my breakup and this spot keeps delivering fresh bombs. Yesterday's fave: thick goth girl measuring her friend's expanding rack every month and making charts-ends with both naked scissoring and jiggling until one orgasm so…

Hi. I am new to this community. My mom has the disease but to complicated it she has about10% vision and is obsessed with going to the bathroom. She is also very restless and doesn't sleep some nights. This makes caregiving difficult because she wants to use the bathroom every 5 minutes even though nothing happens at…