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I'm almost as overwhelmed as my mom
New to this site but my mother was diagnosed and placed for her safety into assisted living nearly a year ago. Lots Of logistics issues but I wont go into all of that in my first note. A month ago, she had a fall, ended up in hospital with covid, pneumonia, pulmonary embolism and, since going into hospital, delirium… Cant…
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When is it time for palliative care?
My DH has been in and out of Geri-psych units since May, and has spent more than a month in his current unit. Halfway through his stay, he developed aspiration pneumonia and spent five days in the hospital getting IV antibiotics. He’s back in the Geri-psych unit now, but has had a significant decline. He’s on a puréed…
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Memory Care
My Dad was just placed in a memory care facility. I live in a different state and would like input on how much time I should spend with him when I am in town. I don’t want to disrupt his schedule. A little info about his current condition. He knows who we are, he can shower and dress himself. He needed help with…
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Key lime dessert
DW is on hospice She can only eat food of a pudding consistency I make key lime pie filling for DW in little aluminum cupcake cups. It is just egg yolks condensed milk and lime juice I add green food coloring since that helps me mix it thoroughly. I use aluminum cups with lids since i take 4 at a time to the memory care 1…
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Mom
I need to get help for my brother in Las Vegas for in home care I live in San Jose ca and she is getting worse has fallen many times again today
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A good man with Alzheimers
I was called today by my husband’s memory care administrator to tell me that my husband was a hero. After dinner yesterday he witnessed a fellow resident inappropriately touch another who was in a wheel chair. He stood up and confronted the offender and loudly said, “Stop it. Don’t do that”! This gained the attention of an…
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Voting
This has been a subject of discussion in my support group recently. One man told us that he voted on behalf of his wife because he knows how she would vote if she could. She's currently on hospice, she cannot walk, talk or feed herself. She certainly can't sign her name. He admitted that he forged her signature. I told him…
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Medicines No Longer Working
Hi all! I haven’t posted in a while. My mom, now 68, has been in AL since January. Since then, she has been on MANY medications whether sedative, antidepressant, mood stabilizers etc. It’s gotten to the point the doctor at the home has told us she is no longer responsive to treatment. She no longer holds a conversation.…
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New to all this
My husband was officially diagnosed with alzheimer's 3 weeks ago, in the early stages of this. I have bounced back and forth between denial, anger, tears and fear for what our life will be and for how long. I'm not sure what to do, what the steps are to help him and myself manage this. He has problems finding the words to…
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Ectropion Relief
I searched forum for ectropion and read about someone weighing surgery for eptropion. MIL lower lids turn out exposing the red inner lid. We did surgery 1÷ year ago but they have sagged again. Same doctor now thinks face lift is needed! Not doing that. Does anyone have any suggestions to make her more comfortable, and to…
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Working through the issues (and emotions) - giving and requesting ideas for help
Hi. I just joined this group and have reviewed a number of strings. I find it crazy that with as rampant as this disease is, each case is still somewhat unique and there is not one methodology to deal with all cases. I look forward to learning from you all! I want to ask for direction as well as share some things that our…
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This is really hard!
Today is not a good day. I feel like I'm doing all that I have been instructed to do for my mom but it's really hard to not take it personally. I seem to be the target of everything that is wrong with her including the effects of my deceased father's indiscretions. She's 74, highly educated, financially independent but…
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I’m new to this forum, and to Alzheimer’s.
My question is, have any of you seen Alzheimer’s symptoms (in particular, alertness) improve? My relative is apparently in mid-late stages and I haven’t seen this person for almost a year. She has recently been assigned a new caregiver and I just learned she is doing so well she was taken off hospice after being on it for…
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Any Advice?
My DW is in stage 5+-, with anosgnosia and increasing aphasia. Other than when I can offer entertainment, projects, walks, outings, etc she spends a lot of her time either sitting in front of the TV, puttering in the yard, or walking the dog. She is often depressed and constantly complains that she has "nothing" going on…
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Humming
my DW is humming songs all the time that she is awake. She also fidgets with her fingers a lot. I ask her what she is humming and she says she’s not humming. Any thoughts?
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Looking for in person communication with spouses of the afflicted
Hello; I'm Gerry and I'm attempting to locate in person support groups within the Roanoke, Virginia area. Any ideas for me? Thank You!
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I desperately need help
My husband has Alzheimer’s, I work 40 hours a week, I’ve called everyone I can think of to sit with him , he wanders off from the house, has anyone have a solution, He won’t do daycare and I’m trying my best to keep him out of a nursing home, I have no one to rely on, feels like I’m losing my mind
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Vocabulary Disappearing
Of late I have noticed a drastic change in my DW’s vocabulary. Words don’t come easy if at all. When we go for a walk in the park we normally see lots of squirrels. Today, the squirrels became “damn idiots “. So sad to see the decline especially in the past month.
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My situation is getting confusing
Hi, My mom is 80 yrs old now and her dementia would be stage 5 progressing towards stage 6. I had brought her back to her house from my brother's place in June and my journey since then has been horrible. I have kept a caregiver too to take care of her needs. She was initially non cooperative and then later on in an…
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J
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I am a child of a parent with Dementia with Aphasia
Hello My father has Dementia with Aphasia. My stepmother and sister have been his caregivers over the years but now mom has Metastatic Breast Cancer so will need to focus on that. I am flying to Texas to take over his care. I am new to this. So far he is starting to have "accidents" ie, cannot make it to the toilet due to…
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Stressed out
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End state dementia meds
My father has severe agitation that seemed to come and go. Now the hospice and adult care home are wanting to increase Halperidol, sleeping med, and a pain med to reduce the agitation and sleeping problems. It hasn't seemed to have helped much but they have pumped so many drugs in him. He has had agitation and sleeping…
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Hospice - Meds / Ensure
Hi All - I was visiting my parents while the hospice nurse came in for a check on both of my parents. It was the usual blood pressure, listening to the heart and lungs, etc. Since I was there, she brought up the fact that both of my parents are on Memantine and would I want them to discontinue it? I know hospice doesn't…
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New research on the timeline of Alzheimer's
Research is being called "ground breaking" Alzheimer’s May Progress in Two Phases, Transforming Understanding of Brain Damage - CogniFit Blog: Brain Health News
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Constant 😴 sleeping.
Has anyone had their loved one sleep 12-14 hours per day. Was there something medically going on to cause that.
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Struggling to get mother diagnosed
I have Medical POA thank goodness, but for last 6 weeks her dementia became worse very rapidly daily. I tried to get her to see her doctor, but she refused. I obtained mental health warrant and she was taken to a psychiatric hospital. My mom denied being suicidal, confused, and said I was trying to force her into a nursing…
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Voting
I've gotten so many personally written postcards stating that public record indicates my husband hasn't voted and asking him to do so.. A person even drove to our home today in a secluded rural dirt Rd to encourage him to vote. He brought his kid and was freaking out about his kid getting fingers dirty when I offered to…
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How to explain why hospice means no hospital?
Mom has been on hospice for 3 weeks. No matter how many times we tell her she is not dying, she won’t believe us. Hospice has added Seroquel and Ativan to her list of medications Fast forward- she fell Friday, didn’t hurt herself. She fell midnight Saturday night. I was called and told she didn’t hurt herself. I tried…
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Jo C
What was the name of that wonderful Christmas store?