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Seems like progress
Hi all, My dad is 77 and was diagnosed with bvFTD in Jan. 2021. He and my mom (age 76) live 850 miles away from me. She seems OK cognitively, but has always had a lot of anxiety and now she has trouble walking -- I assume it's arthritis (she hasn't seen a dr. herself in probably 35 years). My dad was acting odd for at…
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Looking back, what advice or tips would you give yourself
Hello- A friend and I are stepping in to become caregivers for mutual elderly friend. She has no children or any family. She just received the basic dementia diagnosis, and we await more testing for stage and kind. After doing lots of reading I’m guessing early with touches mid stage Alzheimers. We will be getting all the…
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Wine, Women, and Dementia is about to take off!
I'm barely hanging on as our cross-country trip to film Wine, Women, and Dementia takes off! Playing catch-up. https://www.stumpedtowndementia.com/post/winewomenanddementia-catch-up All the news before we hit the road. Overrun https://www.stumpedtowndementia.com/post/overrun_winewomenanddementia The route and schedule of…
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Help for Mom who is 67 and has rapid decline
I’m new here and looking for some help/guidance. My 67-year-old mother started forgetting words early in the year, but in the last couple months she has declined rapidly to the point where she doesn’t think her home (of 37 years) is her home, and she forgot who my dad was. She still knows my name, but today she forgot I am…
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update on my mother
Hi! I only posted one or two messages in this forum after I first joined. I thought I should give you an update. My 82 year-old mother was diagnosed with vascular dementia at the beginning of January. She passed away on March 15. Although I am sad and miss her, I am grateful that the COVID outbreak allowed me to teach my…
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feeling guilty for taking a vacation
My mom is 91 and has dementia with psychosis. She is in a skilled nursing facility and is finally on the right mix/dosage of medication. She has been calm for a couple of months now. (She was hitting, kicking, throwing things, yelling, etc.) The staff are wonderful. Because of COVID, I am not allowed to visit in her in her…
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3:30am & my mom is going crazy!!
I don’t know what to do…. My mother won’t sleep I’ve given her all of her meds +some & she is sitting on my front porch w/ my husband because she thinks I am the Antichrist…. It’s 3:30am and I just want to scream!!!! I put her on hospice a week ago & for a couple of days she was good, slept at night was awake during the…
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Life Insurance(1)
Hi! My mother has early onset dementia, and she neglected paying a lot of her bills when her symptoms first started a few years ago. This included her life insurance. She previously had a term policy. I had tried to reinstate it (after she had been diagnosed). But, when they saw "dementia" on the medical form, they would…
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What should I do?(3)
I recently had my dad (has dementia, Alzheimer’s and cerebral amyloid angiopathy) and my step mom move in. My dad wasn’t getting the care he needed and his health was failing. After having had him move in, he’s adjusted well and doing much better. However, I have had to take over their finances because they were donating…
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FTD but not yet?
Some of you remember my earlier posts. Brief reminder of the last one almost a month ago - Mom got a 23 on her MMSE and the NP said probable MCI with depression. You possibly also remember that I didn’t quite believe it was only MCI and if it was true, felt manipulated by my parents. Since then Mom has improved. The…
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To mrl...
mrl, I accepted your invitation to connect then thought I was hitting a button to private message you a "Hello!" but it looks like I removed you from the connection instead, and now your invite is no longer available to me. Sorry for the confusion!
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Today was a hard day
She cried. I cried. Magnesium citrate worked but it was hard.
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FYI(9)
You may find these interesting. https://www.youtube.com/watch?v=3CiFk2hP23U https://www.youtube.com/watch?v=C11Xd6AuK_k
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Things I am grateful for today.
#1 Mom used the toilet and was able to use the walker to get back to the bed. #2 She seemed content and peaceful today. #3 My sister and my dad were able to apologize to each other before the situation got out of control. #4 I got to spend some quality time with mom today. I sat with her and made small talk that she was…
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Goinginto Aged Care
I have looked after my mum for over 10 years. She suffers from Dementia and Oesto Arthritis in her knees which has left her bar ely able to ealk. 2 weeks ago she had a couple of falls and after being in hospital for 2 days thhe Allied Health told me she required 24 hour care and i cannot provide that, so looked for a good…
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How would you answer them about age?
My grandma has started to ask how old she is. I’ve been reading “understanding the dementia experience” that so many people have recommended on here (THANK YOU!!!) and it mentions this and how it can be a shock to hear your age. Well, my grandma asked my mom yesterday and my mom told her the truth, and it upset my grandma…
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Jerking/Anxiety
Hi, My LO, who either has VD or ALZ (gotten both diagnoses from different doctors), has had jerking for a few years. Doctors could never find a cause. I always suspected it was due to stress/anxiety (the LO is a huge worrier) and has gotten worse as the LO's short-term memory has continued to erode, causing more anxiety…
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Endless phone calls
I was recently appointed conservator of my aunt due to the dementia. Phew! That is a big step, although there is still a lot of work to do (tracking down all of her bills, etc.). Here is my issue and question: My aunt has always been very attached to her phone - for years she would get up in the morning and start making…
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Bible Verse to Lift You Up 9/2/21
SEE GOD GOD THOUGHT: Matthew 5:8 NIV “Blessed are the pure in heart, for they will see God.” VICTORY GOAL: The GPS of my heart is set on love for God first and next for all people. POWER PRAYER: Holy Jesus, guide my thoughts so I desire to do what is pleasing in Your sight.
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Expectations for Home Health Aide
My father has hired a Home Health Aide to help with my mother's care; she has middle stage dementia. What are the expected duties/job definition for that type of position? While she is kind to my mother she is passive in all her activities. She does not react unless my Mom directly addresses her. For example, my Mom asked…
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How do you find a palliative dentist?
Dad's dental checkup revealed deep cavities in a back upper molar underneath an existing crown, and additional cavities in the adjacent tooth. The dentist wants us to make a 2.5 hour appointment for restorative work and a new crown. Dad is Stage 5/6 and probably has life expectancy of two to four years, based on what I…
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Desire to go to other house/JohnDoe
My LO has this daily desire to go to our other house, which we don’t have. It can start any time in the day but mostly around dinner and as late as 3am. Some times she will collect a few things to take. It has become very difficult to deal with. Usually a ride around the back roads in the area will distract her, maybe…
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Grandmother wants to move back into her home
Hello, My parents and I help my grandma a lot but there are reasons we do not directly live with her. My father also has early Alzheimer's and so there is a lot to juggle. After a fall and hospital stay, my grandmother's doctor advised she live with 24 hours care. Her long term care insurance covered an assisted living…
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the dreaded hospice bed
Well the day has come. Mom is no longer in her queen bed from home, the bed she has had for a very long time. She is now in a hospice twin size bed with an adjustable air mattress. In all the transitions I have faced on this dementia road, this has been one of the hardest. And, the first time I have cried in front of Mom…
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New to this(8)
My Mother in law has vascular dementia and it is something she has had for a while. She was able to hide it from others but she is getting worse. She seems to swing wildly from a near catatonic state to a reasonable level of functioning (1 to 6 on a 10 point scale). She has been to numerous doctors and there does not…
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Bible Verse to Lift You Up 8/31/21
Friends here, first of all, may I thank you for your messages. I read each one and appreciate them.. If you need prayer, just ask in the comments. Hope we all pray for each other. And please feel free to add your thoughts on the verses I write. Peace and Joy to all! * FORGETTING WHAT IS BEHIND” * Philippians 3:12-14 NKJV…
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Conflicted(1)
My mom was diagnosed with Alzheimer’s about 7 years ago. At the beginning my sister did most of the caring although she was fairly independent. As the disease progressed and it became too much for my sister I stepped in to help. I switched jobs where I can partially work from home. At some points the roles switched and I…
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Alzheimer's Doctor in NYC
Hello, I am new to this board. My dh was diagnosed with Alzheimer's last week. We received our diagnosis from a doctor affiliated with NY Presbyterian but would like to work with a doctor from NYU Langone. I'm wondering if anyone can recommend a doctor with whom they've had a good experience. I've seen Dr. Arjun Masurkar…
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Covid with Dementia
Hi all, This is my first post here, but in recent weeks I have gained so much valuable insight from reading your posts. My mother is 85 years old and has vascular dementia. She is completely immobile, and her food intake is at about 25 percent. Her liquid intake has declined to about 3 cups a day. She spends most of her…
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Vivid dreams advice
My LO has Parkinsons with Dementia and I'm her primary caretaker. She has just started having vivid dreams. She used to see a little girl and mom, last night she graduated to see a couple of men outside her bedroom. My sister (she just appears ocassionally), says I should tell her that the men aren't there -that she is…