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Heartbroken at end of MC Move day
First time poster long time researcher for how to make today happen. Moved my 72 year old father (late stage 5 - entering 6 AD) into MC from home where he lived alone but has been getting wake up - bedtime care by me the past 3 months and almost daily “help” from me for the past 3 years. I know this was the best for him…
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Whine, whine
How do you stay positive? My Sis is my mother’s full time companion. She is burnt out - as she says, “I didn’t sign up for this”! I know when she promised to take care of our mother, she thought it would be traveling with her, plays bingo, etc. I’m sure dementia was never in her plans. I do a lot for both of them. But I…
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Help! Wandering out of MC room and calling anxious and lost
Hi all Looking for some advice if anyone has gone through this before. It is my fathers 4th night in memory care since moving from home. He is doing pretty well with it overall.. except evenings. I keep getting repeated calls from him where he has excited his room at MC and wandered down the hallway. Then calls very…
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No peace of mind
My mom was placed in MC by her husband 6/11/21. We keep waiting for her to settle in but it seems almost every other day there is an issue. She was getting very agitated when her husband would visit and it finally escalated into her yelling and screaming and banging her head on the glass. She tells him she wants to go and…
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Tips and best practices-new to group
Hello all I am new to this group but have so far have really appreciated reading about others experiences My mother was just diagnosed with ALZ. Mid stage She lives alone but I live nearby. I took the car keys away so she is dependent on me for transportation to the grocery store and appointments but has excellent hygiene,…
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When do you know it's time to look at a facility?
New here and my mother in law has Alzheimer's for the past four years. I think she is in stage 5. She still lives by herself and we do all we can to help and let her still have some life. But we don't think she is eating and taking her meds timely if at all. We can spend a few hours with her and she won't remember any of…
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What are reasonable expectations?
Moved my dad into a Memory Care facility and am wondering if maybe Skilled Nursing a better fit? He has vascular dementia and has severe physical limitations on top of dementia. I estimate he's Stage 6. The main issue that we are struggling with is his fecal incontinence. Memory Care can't seem to get a hold of it and…
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suggestions for a caregiver
Hi Community! I’ve been the caregiver for my mom for the past two years while my father struggled with his own health issues. My mom rarely got angry with me and always said I brought her great comfort. My dad recently told me that I’ve been causing her great stress and agitation after my visits (she mentions me taking…
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Bible Verse to Lift You Up 7/21/21
STICKY NOTE 7/21/21 * With the help of Holy Spirit, I will not give up loving and caring for others and telling them about Jesus. * Romans 5:3-4 Good News Translation "We also boast of our troubles, because we know that trouble produces endurance, endurance brings God's approval, and his approval creates hope." * Question…
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Rough moment
My Mom, stage 6 hinting at 7, lives with me and my family. We manage to do everything ourselves fine, but it's a handful. My Mom has had a few nights in a row of decent sleep. Most nights where she sleeps for more than 4 hours at a time, she wakes pretty foggy. But this morning, she got up and for the first time she was…
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Need Some Advice(3)
Hello. My name is Caroline and I'm 21. This is my first time posting/ using this message forum. I am desperate for some advice. I currently live with my grandfather (who has Dementia) and my mother. My grandfathers Dementia is getting really bad and hard for my mom and I to handle. For example: He is constantly paranoid.…
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Bible Verse to Lift You Up 7/14/21
We Stumble But Do Not Fall Psalm 37:23-24 New International Version "23 The Lord makes firm the steps of the one who delights in him; 24 though he may stumble, he will not fall, for the Lord upholds him with his hand." * Illness and taking care of those who are ill can wear us down and wear us out. But let's hold onto what…
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She's not even here and she's causing me problems!
We recently relocated MIL to another state for the next year or so due to the upcoming birth of our grandchild (who will live with us) as well as to give DH and I a breather from the day-to-day duties of caring for a person with dementia. We had already decided that MIL's bedroom would need to be relocated to the basement,…
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Helping my husband accept his diagnosis
My husband has severe memory issues and is having an MRI on Thursday after failing the memory tests and at even forgetting the visit to the doctor for the tests.. He forgets most day to day appointments and agonizes over his phone calendar trying to get it right. His doctor has said he has moderate cognitive impairment and…
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MRI results(1)
We received a call from my mom’s neurologist today to tell us that her MRI showed moderate cerebral atrophy and “age-related changes.” The neurologist said we would discuss it further after mom completes her cognitive testing next week. I know what moderate cerebral atrophy means from a medical standpoint but my question…
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Free Brain Donation
I have been trying to add another version of this on the AA site but the file is too large. So for now this will have to do. I reached out to AA and so far not much help. This is very important for all? If AA is successful, you will see the better one. One of the best ways to advance research toward finding answers about…
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AAN ISSUES ETHICAL GUIDANCE FOR DEMENTIA DIAGNOSIS AND CARE
That is great to see that they change the way they think about driving. I wish they did better about dying but they did improve it a hair. Press Release EMBARGOED FOR RELEASE UNTIL 4 PM ET, July 12, 2021 AAN ISSUES ETHICAL GUIDANCE FOR DEMENTIA DIAGNOSIS AND CARE MINNEAPOLIS – The American Academy of Neurology (AAN), the…
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New here & new to this journey
My fiance and I already care for his mother who lives with us due to her mental disease. She has siczohprania, bipolar, anxiety, and depression. A week ago she has now been diagnosed with early stages of dementia. We can see the changes in her and are seeking support wherever we can. Education, daily support on habits,…
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Release From This Alzheimer’s Prison
I have prayed and pleaded with God to release my mom and me from this Alzheimer’s prison we have been in for 3.5 years. My husband and I own a business which allowed me the ability to leave our company and be a FT caregiver to my mom. I feel grateful and blessed to have had the honor to care for her. While we have had many…
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Financial Assistance(2)
Hello, I am looking for financial assistance for my LO who is not qualified for Medicaid.
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Rambling, changing voice
Hello, first time posting here. My mom is possibly in stage 4. I’ve noticed that she will just start rambling and she talks more quietly. She is coherent if difficult to hear. Is this a symptom of the disease progressing?
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Newly diagnosed and need help
My mom was diagnosed with early stage this winter, but to us she has progressed very quickly. 2 questions: 1) She often confuses direct family members (thinks her husband is her mother, says her sister is someone else, etc.) and often doesn't believe she is in her own home. This seems to be odd for what the doctor…
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Service Dog
Does anyone have any experience or information on utilizing a service dog for someone with Alzheimer's?
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Upcoming neurology appointment for mom
Finally got my mom to agree to see a specialist. In Jan 2020, she had an intake appointment at a geriatric psychiatrists’ office. Refused to go back because ‘talk therapy’ wasn’t going to help her ‘anxiety and depression’. Plus the pandemic hit, so not a good time anyway. The person she saw informally told me MCI at the…
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Rapid End Stage Progression
In 2021, my father has gone from still being able to walk and have conversations in January and living at home to now he is going into a reclined wheelchair in MC facility and has lost almost 80 lbs. During that span of time, he has been in a couple of different facilities -- kicked out of one for aggression. He went from…
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Help in Richardson, Texas
I have found a company called Home Care Assistance in Richardson. I spoke to Ben. He was kind and informative. He told me he hires only 1 person out of every 24 applicants. He answered all my questions and also brought up several points I had not even thought about yet. I have to read through the information he emailed to…
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New to this world- sad and overwhelmed.
Hello all, I lost my Mom a couple months ago in her late 80s. She was tack sharp until the day we lost her. My dad and her were married over 70 years. He’s been forgetful, here and there, but not overtly so. However, since Mom died, he’s been declining rapidly. Extremely rapidly. I have always lived close to the family…
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What to do when bathroom becomes source of anxiety
Hi I have a question. My gram and I mentioned is in an advanced state of Vascular Dementia. She has boughts of combativeness/anxiety in the morning and late aft/evening. We are trying to isolate the triggers. The aft/evening is sundowning -we know she suffers from this as she has for a while but the mornings are new. It…
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Are certain phone calls helpful or not?
My mom, probably stage 6, lives in a board and care home and it is wonderful for her situation. I (daughter) live close by. I see her a couple times a week and we speak on the phone daily (sometimes several times a day when she is agitated.) Mom receives the occasional phone call from her long distance sister and she…
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Trying To Cope(1)
Thanks for letting me join this site. My DH was diagnosed in November 2020 with early stages of Alzheimer's, but i had suspected it was going on for several years. He's 69 and his Father had it too, but not until his 80's. It's so hard to accept & trying my best to handle keeping up with everything since he can't anymore.…