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Child of ALZ patient living far away from him
Hi this is my first post. My father has stage 6 ALZ and lives in CA, and I live in PA, 2500 miles apart. I'm having trouble coping with him being so far away, not being able to call and talk to my dad, plus his diagnosis is recent and the onset was crazy fast (4 weeks) due to mini strokes. Any suggestions? Thanks in advance
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Stressful situation
It's been a bit since I posted - been mostly reading your posts. But here I am....my sister is EO and formally diagnosed. She lives with my mother. I live 1400 miles away. This week, my mother is having knee surgery and I traveled to help with her recovery. Meanwhile, I am juggling my sister's daily routine (which I know…
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Here we go again(5)
I’m been trying not to post a topic this week because so many of our spouse members have had such terrible weeks. My concerns seemed petty compared to that. But my step-dad upped the ante a little bit ago and I’m too upset to eat supper. Thursday I took Mom to her neurology NP follow-up. We basically spent the time…
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Bible Verse to Lift You Up 5/31/22
Dear Caregivers, I want you to know I understand the great sacrifices you are making to care for loved ones with dementia or Alzheimer's. Some of you already know I took care of my parents for nine years. My mother had severe dementia which eventually left her totally helpless. It was awfully hard even though I had help. I…
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First time posting. Not even sure what I want to say.
My mom has AD and is in stage 6A or so. She was diagnosed about 1 1/2 years ago, but had symptoms for several years before that, though they were thought to be stress-related at the time. I have so many conflicting emotions, sometimes all at once. I miss her terribly (her old self, I mean). I feel guilty that a) I strongly…
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Memory care/Assisted Living and private pay/Medicaid
Hi, I will be touring about ten places that have both AL and MC in the next few days and I’ve already seen another half dozen. I found one nice place that had both AL and MC but was only for residents with dementia. They accept Medicaid long term care so my mom could move in and stay until the very end. This was a nice…
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A tough time.
When I was immersed in the process of helping Mom to the end of her life, fighting off the sorrows of the world was often an impossible challenge. Surrounded by a hateful disease whose sole purpose was to kill my mother I did my best to accept her slow dissolution while conjuring laughter and love to make it all bearable…
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Anyone what to chat today?
It's 1pm eastern time here in California. I will be in/out of both chats rooms if someone needs/wants to chat. Nicole
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I am so tired
I am just tired. And in pain physically from a rotator cuff re-injury (from turning, lifting etc) and tennis elbow from repetitive motions. We are trying to find a caregiver - hoping tomorrow will be a good fit, the agency said then assessment nurse hand picked this person as a good fit for us and she’s finishing…
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4 months in...
My mom has been diagnosed with mixed dementia, both Alzheimer's and Vascular. She has moved in with my husband and I permanently. We are having to sell her home this Summer. She expects us to get rid of alot of our belongings to accommodate hers. I am very patient and having a hard time with this. Any advice will be…
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How to help my parents
Hello, I am new here and so grateful to have found this site. My mom has some form of dementia (they refuse to get a diagnosis) and is losing her vision from macular degeneration. We, my father and I, noticed the dementia about two years ago but in hindsight I would say this has been going on for 4 years, she was just good…
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Information For Those Moving/New At NH or MC Placement
The link is an excellent and lengthy overview of so much regarding many NH dynamics; kind of a "how to" model: Chapter 1: Before Your Mother Enters The Nursing Home | Illinois Citizens for Better Care Input from Members: From "King Boo:" However, in the event this information is at all useful to anyone on the boards, here…
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Dementia Discussions by Barbara Hament
I feel comforted listening to this podcast and to the different situations which caregivers go through. It is so relatable yet really showcases the uniqueness of all the different situations we go through.
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Mom not eating as much...ethical dilemma
My precious mother turned 75 today. She was diagnosed with Alzheimer's in 2013, but she recorded symptoms in her journals as far back as 2007. While Mom has retained her pleasant demeanor this entire time, she does seem to be turning a corner. Her face doesn't light up as brightly now when she sees me. I seem to be the…
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Drooling and coughing
I posted this on the other board, but maybe people here have experience too. My DH who is around late stage 6 has started drooling in the past several days. It isn’t all the time, but worse in the evening and before bedtime. The past couple nights he has also been coughing at night, a loud cough. I think it may be related…
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Showering(5)
I am preparing for the future so need to purchase a showerhead. Can anyone recommend a good one or at least what to look for when purchasing?
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Assisted Or Memory Care Living Question
Good Morning All, I have been trying for over a month to get in house care for my Mother so that I could return back home and try to get things planned in advance for moving my Mother there whether it be in my own home or in a Assisted living Memory Care facility. It has not worked out, either the private people want the…
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The Brain Health Academy
Free, evidence-based courses to equip healthcare and wellness providers with the knowledge and resources to help people reduce the risk of dementia and Alzheimer’s. https://www.usagainstalzheimers.org/brain-health-academy
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First Look Teaser and Movie Extras clips
I had forgotten that the forum rules do not allow for fundraising, but thank you to the Admin for reminding me when I posted that we had a teaser for Wine, Women, and Dementia: The Documentary last week. As I am spending the next month fundraising for the film, the Teaser sits on the donation page and that's a…
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Bible Verse to Lift You Up 5/27/22
God's Favor * Hebrews 4:16 Amplified Bible "Therefore let us [with privilege] approach the throne of grace [that is, the throne of God’s gracious favor] with confidence and without fear, so that we may receive mercy [for our failures] and find [His amazing] grace to help in time of need [an appropriate blessing, coming…
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New member looking for support
Hi. I’m new member looking to chat. I’m 73 and am my Moms primary caregiver. She is suffering from final stage heart failure and vascular dementia. I’m feeling overwhelmed and alone. Any guidance would be greatly appreciated. Thx !
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Need Help in Austin, TX
Hello..I am new to this forum and am in need of some guidance. My mother was diagnosed with dementia 3-5 years ago. She has had very mild symptoms - forgetting someone she just met, repeating stories - until a few months ago. She declined very rapidly and is now forgetting my father, the death of her parents, her age. The…
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What to do?(9)
My dad has Hallucinations and for the past week struggles with frustration and anger towards them. The medication were not working so we took him off them. Has anyone had experience where you found the medication did more harm than good? Thank you
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How to handle not going home?
Dad was diagnosed with Alzheimer in Jan 2022 at the same time Mom was diagnosed with Dementia. Dad had two stokes and was placed in the hospital for over a week, the doctors told my husband that because of Mom’s dementia they could not go home to live without assistance, due to Dad’s fall risk and Alzheimer’s. We did not…
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should I talk with Dad about my late mother?
My dad is 92 and has Parkinson's and his short-term memory is failing rapidly. My mother died about a year ago. Dad never mentions her. I don't know whether to bring her up with him or to leave him be in his silence. What do you think?
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In praise of firefighters (again!) 2 big adventures in 1 wk (Long post)
Well forum mates, last week was super-eventful and my head is still reeling from all the twists and turns. Thursday (I think it was?) DH almost choked to death and I was lucky enough to successfully save him. Then second-guessed whether I unthinkingly interfered in what he would have preferred (an exit strategy to the long…
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Having a hard time finding a Home Healthcare Provider
My mom is 77 years old and is currently in the moderate to severe stage of Alzheimer's. She is living with me and my 2 children ages 17 and 13. I have been overwhelmed with receiving information on Home Healthcare providers but the issue I am having is transitioning and introducing them to my mom. Right now, my mom can…
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CARING FOR PEOPLE WITH MEMORY LOSS
CARING FOR PEOPLE WITH MEMORY LOSS JUNE 4, 2022 | 8:00 AM -4:30 PM CST | HYBRID CONFERENCE FREE HYBRID CONFERENCE REGISTER NOW Choose to attend in-person or virtually via Zoom Join experts in a lively, informative discussion related to memory loss, caregiving tips, and what you can do to help. Register June 2022 4…
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Father has Alzheimer and Alcoholism
My father's girlfriend/caregiver has informed me she is leaving. My father will be on his own. He does not remember to take his meds, cannot cook a meal, and has almost no short term memory what so ever. However, he did pass his last driving test. His drinking has gotten much worse, probably because he can't remember how…
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Questions on Moving to New Family Home
We are moving the end of next week into a family home we just bought in same city. It will be far more comfortable than this rental home of 7 years. And more accessible for my son, a wheelchair user! But wondering how long it will take him to settle down back into his daily routine? Same caregivers, same schedule, but new…