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From White Crane re: question by Another Day
Dear Another Day...and others, on April 26 you commented on a post I had written. At the end you asked me how I got things started to get someone to come in and stay with DH. Please forgive me for being so late in answering you. I didn't see your post until yesterday. It's hard for me to get on the computer for very long…
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By Ed - Prevagen
I've seen a couple of posts recently from new members who were mentioning Prevagen. Please don't spend your money on that stuff. We've had quite a few posts about it in the past, but due to a new upgrade on the site, the only posts that are available now are from 2 years or less in history. But there are some posts…
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New Here
Hello, My mental health therapist finally gave me enough of a push to help me take this step. I have read a number of discussion threads and it appears I found a good place. I'm 62 and my DH is 67. We are a second marriage and have been together 16 years . We both are retired, him, because he had to and me well I decided…
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Putting pet down and how to present to DW
Taking our beloved dog to vet to put down this morning. DW has to go with me and she will be devastated if she knows the dog isn't coming home. She thinks of them as her children. I'm thinking that I'll have to leave DW in the truck when we get there but that is risky to. Going to tell her that the dog needs to stay there…
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Dual Caregiver
My DH was diagnosed with EOAD atypical type at age 58 in 2021. I am legal guardian and care giver of our disabled adult son (Brain Tumor/TBI/Epilepsy). Being a dual caregiver to DH, who seems to be in mid-stage, totally delusional, and our son has pushed me to the breaking point and we are not yet even near the end. I had…
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Sudden Tears and DH is getting more confused
During church service yesterday, I looked at DH sitting next to me singing the hymn. His voice was strong and he looked so normal. Suddenly the thought came to me that maybe this wasn't really happening. Maybe it was a nightmare and he was really okay. Then reality brought me back and I cried my way through the rest of the…
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Tomapx
Anyone using this drug to help with their love one's angry outburst and depression?
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I had to say good-bye
I believe the last time I posted was last March when dh was admitted to hospice care. The love of my life passed away last Thursday, May 25, 2023. I remember reading heartbreaking posts from my fellow community members, but now writing such a post is an out-of-body experience. Words such as "now he is at peace" does not…
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By Ed - money versus Parkinson's?
https://www.theguardian.com/us-news/2023/jun/02/paraquat-parkinsons-disease-research-syngenta-weedkiller
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Bible Verse to Lift You Up 5/30/23
CHRIST GIVES ME STRENGTH * TODAY’S BIBLE VERSE Philippians 4:13 New King James Version “I can do all things through Christ who strengthens me.” * MEDITATION My parents were always there for my husband, our two children and me. Yet, I struggled as their caregiver, feeling sorry for myself. I thought, “Why me? Why do I have…
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‘Just Put Her in a Home,' They Say
‘Just put her in a home,' they say. Family, friends, co-workers (I still work full time), and health care professionals all mean well, and they have my best interests in mind when they tell me that. I know this, and I am grateful for them taking the time to listen to my stories of sadness, and for lovingly making that…
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Besoin d'aide
Salut CV je suis nouvelle ici ET je ne sais pas comment fonctionné j'ai besoin de votre aide merci
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An interesting description of dementia by someone who has it.
My DH is about 2 years into his diagnosis of moderate MCI and dementia of unspecified nature. He was having an especially difficult day and couldn't seem to remember anything or get himself oriented in time or place. I asked him what was going through his mind, and he told me he felt like he was seeing his life through…
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By Ed - Article about Bruce Willis' dementia
https://news.yahoo.com/bruce-willis-family-missed-early-000321697.html
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Had to lie to him
I tried everyway I could to make my partner who is 6 yrs into this nightmare, understand I want him to go to nursing home because I just cant take care of him anymore. I am in such a bad way I cant function as a good human being anymore. I know this because I cant seem to overlook all the crap he says to me. He is so sure…
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Lorita's page 6
how do i get back on Lorita's paage
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Just need to talk to my friends (190)
Morning, I thought it might be well to begin #190 to maybe make it easier for all of us to connect with the new platform. I hope it's easy. It's a beautiful morning - sunny and calm - not too cold. We stayed up until MN watching Barney Miller, then slept well - got up about 7:30. The GPs are outside barking at…
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ALZ Connected Resources
If you haven't explored that yet, please do. When you hover over it (upper right of this screen), you will have the option to choose "Solutions Center". Choose that to see what is available there. This is not only for newbies, but also for others who may be further down the dementia road.
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Shave and no haircut
I know I should count my blessings that my husband is still willing to shower daily and still able to shave himself every other day. But I have hit a brick wall on the haircut. He has curly hair (not much on top) and it has been cut for years by a woman he really likes. I got him to go in November, and since then, he has…
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Helpful books for the caregiver!
I would like to highly recommend the following books that have been a huge blessing and help to me: 1) Keeping love alive as memories fade by Gary Chapman. 2) Grace for the unexpected journey by Deborah Barr. The second book is a daily journal. These books are deep, and the true stories help to know that someone has or is…
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Another Milestone In Our Journey
DW has been in MC for 18 months and although she is well cared for, the long slow progression continues to rob her of ability to do the the simplest things. In recent months her ability to feed herself has declined significantly. The staff at the MC helps her with eating & I schedule some visits at mealtime to help as…
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You Tube Shorts
One of my favorite things to do is watch is you tube shorts. I call it "short attention span theater." It is videos 30 to 90 seconds long on a multitude of topics. Lately there is this guy who moved his 91 year old father with dementia in with him and is documenting the whole process. I have been watching every one that…
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Adult Day Care Update
I posted last month about the great experience I had getting my DH to comply with going to Adult Day Care. I reported the success I had convincing him to attend and how much he loved his first day. I was extremely relieved to find the perfect solution for DH while I'm at work. I received a lot of great comments from…
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By Ed - Sometimes when stressed, we need a little humor
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Rosalynn Carter Institute for Caregivers
While reading an article sharing the info that Rosalynn Carter has been diagnosed with dementia, it mentioned the Rosalynn Carter Institute for Caregivers. Here is a link about their dementia section:
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Please visit the General Caregiving board.
I started a thread for books about Alzheimer's Disease and caregiving. The intention is for members to find pertinent books in one place, instead of scattered about in random threads. There are already some good posts. Please visit and add a book if you can recommend it.
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A good day
We had a old friend over today for lunch. I kept it simple when usually I would overdo it and stress myself out getting ready for company. My DH was anxious before she arrived - started asking if he could stay with me and I was going go away without him. I redirected by getting him to sweep the floor. I decided to focus on…
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just need to talk to my friends 191
thread 191 just need to talk to my friends
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Brother came to live with me
I've recently had my brother with dementia come live with me. I knew he has dementia. He has such STRONG ANGER OUTBURSTS! I was totally taken off guard. I found this forum and hope to learn about his situation.