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How to Alz-proof home?
I read that I should make changes to our home… locks on cabinets, take up small rugs, hide the poisonous items… I’m looking for suggestions to start implementing, things to consider…but, goodness, will I have to turn the house into a hospital setting? Obviously DH functions fairly well now, he is early mid stage, but…
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Crushed(9)
Hi, Crushed. I haven’t seen any posts from you recently. Are you maintaining the status quo, or have things shifted?
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A covid question for the medical community
One of my daughters is disabled, and does kidney dialysis three times per week. About a week ago she had trouble breathing, and went to the hospital where she tested positive for covid. A son, who lives with me, and I went to be tested because we had been around her. We tested negative, but he entered a different hospital…
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Donepezil truth?
Does anyone know if Alzheimers patients used to die faster before late 1990s when donepezil started to be used? I have read several things that indicate Donepezil CAN extend life by something like 2.4 years on average. They don’t say it is in the early stages though... The biggest claim about it is how it makes care taking…
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dizziness solved!
I was talking to my cousin this morning and told her about DH's dizziness and vomiting. She said it sounded like the rocks in his ear had moved. I said he has had dizziness a couple of times over the years, so I would have him do the exercise the family doctor had him do some 15 years ago. It is his right ear! He thinks he…
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Managing Diabetes in Person with dementia
My DH has been diagnosed with probable ALZ. He's still functioning very well - taking care of most activities of personal care for himself. I've had to take over counting out meds and making sure he takes them as well as managing appointments. I don't think he could handle bill paying/management of finances, but luckily…
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Bedtime dizziness and vomiting
Hi everyone, My husband has been having dizziness the last 4-5 months. It usually goes away after I help him up from his recliner and then he stands in front of his recliner for a few moments. A few weeks ago he vomited after going to bed. He was fine the next morning and following days. Last night, I helped him to bed…
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2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia and T
The National Institute on Aging (NIA) will host the third triennial National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers/Care Partners on March 20-22, 2023. The Summit will build on the progress of the previous Summits to review research progress, highlight innovative and…
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Shout out
I want to give a big shout out to the New Mexico Alzheimer's Association. This week they have put together three Living with Alzheimer's Caregivers seminars. Early stages was on Wednesday, there were two sessions of the mid-stages on Thursday, which I attended, and another today for late stage Alzheimer's. They were all…
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The Scam article has been published
https://www.nwitimes.com/news/jerry-davich-new-twist-on-old-phone-scam-uses-artificial-intelligence-don-t-trust-the/article_ef703ebc-cd8c-5970-a166-5b060385601b.html#tracking-source=home-top-story
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Depression Question
I find myself going in and out of depression. I have gone to a therapist with some success. I am trying to fight it with walking, good diet, reading, exercising, pray, reaching out to talk to people. I really don't want to ask for medications as I am afraid of side effects etc, especially when the basis for depression is…
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New to Discussion Board
My husband was diagnosed with dementia concerning Alzheimers August 2021. I am his sole caretaker. We have been married 13 years (I was a widow and he was a widower). I have been reading every book I can get my hands on to try and educate myself to meet his needs. I would say he is in early middle stage. In the last few…
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Anger
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Advice for bowel incontinence
TyZay Spouse has middle to late stage Alzheimer’s. Lately has been having bowel incontinence. Doesn’t seem to recognize that he needs to go to the bathroom and goes in his Depends and then makes his way to the bathroom. Or, takes his Depends off on the way to bathroom and goes all over the floor. When I ask why he does…
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Need your help for building a survey for those Under 65
I am trying to build a survey that impacts those under 65. What does it mean to their families and kids not to mention financially once they have cognitive issues in the job. It is so much worse than those over 65. Do you have any other ideas I should us or remove or reword. I hope to pass this on to an organization to do…
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Brooks and Dunn snaps her out of it.
When my DW starts going down the rabbit hole Brooks and Dunn "The Cowboy Rides Away" pulls her back out.
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tragedy
My DH has been dealing with AD since 2015. I had a sibling reunion two weeks ago with 5 sibs and their spouses. My DH is in stage 6 but seemed to enjoy all the chatting and liveliness of us,,69-81!! All meeting here in Huntington Beach, Ca from the midwest. Two weeks later...a tragic accident happened... my sister's…
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What kind of therapist to see as a caregiver?
I really do need therapy to help me as a caregiver. The stress is taking it's toll on my blood pressure, sleep and diet. My therapy now is alcohol, cannabis and trying to golf when I can. The first two only help in the short term and golf can be more of a frustration if I'm not swinging well. Golf is a sport that you need…
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I'm too smart - or so I thought
A few weeks ago I received a call from one of our grandsons, Matt. He sounded very shook up, and told me he was embarrassed by what he did. He was driving, with his phone on the passenger seat, when he got a text. He took his seat belt loose so he could reach the phone, then broadsided another car. He had a broken nose,…
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FTD with hypertension and difficulty swallowing
After 10 months of chasing medical testing, my husband had a PET scan last week and was diagnosed with frontotemporal dementia (FTD). He's just 68 yrs old, and is already almost mute. Since the onset of his dementia symptoms, he's had diastolic hypertension. He's never had high blood pressure in the past (runs 3 miles a…
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How Can I be in Shock?
Took DH to his doctor today. Yesterday he had a seizure and for the past month he has been totally incontinent, only saying around 5 words per day, napping often, unsteady on his feet, shakes on the right side, and not too interested in eating. Today, his doctor recommended I contact hospice. I knew this was coming...but…
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Constantly Talking!
My DH is driving me crazy! I work at home and when he isn't sleeping he is constantly talking non-stop! I can't even get on the phone when he is awake because every time I do so, he starts talking! I have to wait until he is asleep to make my calls. Its not like I can leave the room and work somewhere else because he…
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roller coaster of emotions
DH is in memory care and is on Hospice. On a Monday, he had another one of the events where he is drooling and non responsive for several minutes. He also fell. Hospice Dr RXd an Ativan and DH recovered. On Wed my nephew and wife visited after a 4 hr drive here and DH seemed to be ok. Fast forward 4 days and memory care…
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mottling on feet
Today my DH took his final shower. He barely made it to the wheelchair and then he didn't have enough strength to stay in the chair. He slid to the floor. The Hospice PA and I couldn't get him up and had to call 911 nonemergency to get him into the bed. After he got good and warm we noticed the mottling on his feet. We had…
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sleep patterns(1)
My DW falls asleep after supper on the couch and wakes up about 10:00 which is the time that I go to bed. She roams the living room, kitchen and dining room until about 3:00 am. She gets in a lot of mischief like disconnecting electrical items, rearranging kitchen cupboards, and pulling connections on the computer and…
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Income tax write off
My niece's husband is a CPA. For the first time I was able to write off my DH's memory care rent for the 4 and 1/2 mo he was in Memory care in 2022. Making out the long form you can also deduct medical items like Depends, RX's etc. This gave me a much larger federal return.
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This new chapter
Thank you for letting me vent - I am still trying to breath! I have not been on this site for many months and appreciate any tips you may have. My DH passed away almost 7 months ago. After a brief stay in a hospital to try and get his meds stabilized, I brought him home two days before he passed, Thank God for this! I am…
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A surprise bill from medicaid
This is an interesting article about a daughter who was taking care of her mother, who had dementia, at her mother's home and her father ended up with a $226,611 bill from medicaid after the mother died. https://www.npr.org/sections/health-shots/2023/03/01/1159490515/they-could-lose-the-house-to-medicaid
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My DH is insisting that I rehome my cats!
My DH was diagnosed two years ago with MCI, which has now progressed to moderate levels. He needs helps with almost everything, but does still take care of his ADLs. I am making all of the decisions about the house, getting bills paid, cars serviced, etc. Six months ago he decided that he wanted to move from South Carolina…
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Guiding the Care Journey: Building Dementia Workforce and System Capacity through Care Navigation
Care navigation can help close gaps in dementia care by coordinating medical and social services, partnering with caregivers, and facilitating access to disease education and community-based services. More from @MilkenInstitute here: http://bit.ly/3LGxWQK