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DH can't talk or understand
I'm looking for tips from those of you that are dealing with a partner that can no longer talk or comprehend what you say. My DH can say a handful of words from time to time, but they make no sense. Most of his words are gibberish. If I say something, he has no clue what I have said, like I am speaking another language. We…
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Cat laxative
I realize when I post here, it usually has to do with fecal affairs.This one was epic. I give the cat a small amount of lactulose in liquid form. I kept it in the kitchen and everything went really well until a few days ago. I came downstairs and saw the bottle in the fridge, half empty and my heart sunk. I realized that…
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Sort of on topic , Netflix movie
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The Alz Connected website is being upgraded
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Placement before talking with Elder Care lawyer
A facility I'm considering has available space. The earliest appointment I can get with an ECL is the end of January. If the situation warrants, is it better to wait for consultation with lawyer or proceed with placement options. As best I can tell care will be private pay. Wish there was more available information to help.
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Foot Hurting (Left)
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Memories(3)
They say stop and smell the roses, so today I stopped and thought about my life with DW I met her more than 50 yeas ago, a little wisp of a girl with a brilliant mind and a titanium backbone , or as my mother called it "a whim of iron". Unstylish to be sure, a math major with two scientists for parents. But I was no…
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Visiting physician service
As DH’s mobility has continued to decline it is becoming more challenging to get him out of the house to medical appointments. There is a visiting physicians group near us that provides in-home medical care for persons with dementia or physical disabilities. The MDs in this group are internal medicine specialists, and they…
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Viscous Cycle
DH in memory care with Covid and UTI. He’s refusing to take his meds and now he’s peeing blood and his behavior is getting increasingly erratic. We tried crushing the meds putting them in pudding, liquids, nothing worked. He won’t take the antibiotics and willl not take anything for his psychosis. He just keeps getting…
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A little more than 3 months later
Happy new year to all of you ! Yes, I feel your perplexity... how can it really be happy ? At list, I hope it will be peacefull. I come sometimes to read news from you, but I must recognize that if I remain very attached to you as people with whom I lived for 3 years, and who helped me all this time, I feel less and less…
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Funny but kinda sad
My dh can still go to restroom most of the time by himself. Never hits the potty so there’s pee all over the floor. He will always tell me he’s sorry. Every morning I fill the spin mop and add pine soil, then I’m prepared. Dh has see me mopping, today he decided he could clean up his accident. He was so proud of himself! I…
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has anyone had to deal with Alzhimers and lung cancer.
Peewee's Alzheimer's is progressing . He has started to believe that live in another town. and that his brother lives with us. He wakes up in the middle of the night and can't figure out where he is at, and wants to know where his brother is. I talked to his Cancer Doctor today and he says that the cancer can take him in 6…
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How long is it safe for him to drive?
My husband is 85, undiagnosed, but I suspect somewhere around Stage 3, and he loves to drive. He's always been a very skillful driver, and his skills and eyesight are still excellent. He knows the routes most commonly used to our most common destinations, but for anything new or not common, I have to guide him. What…
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A new behaviour(1)
My DH has been urine incontinent for a few months now. Lately he has bowel incontinence as well once in a while. His new "thing" is peeing on the floor around the house. His favorite spot is opening the deck door and peeing out the door and inside the door. The bedroom is another favorite spot, both sides of the…
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Unreasonable to expect?
For those of you with spouses/partners in care facilities. Is it unreasonable to expect aides to brush residents’teeth or stand by remind / assist? Is it unreasonable for them to suggest /assist one to put on pjs for sleep? My husband does neither on his own. It’s like after dinner he retreats to his room and just gets…
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From Jennifer to you
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Caregiver journey map
https://www.caregiving.org/wp-content/uploads/2020/05/Journey-Map_Book_v1.3.pdf
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mood enhancing meds- any suggestions or thoughts??
We saw DH's primary care doc today. He has been having leg edema. Doc decided to put him on a water pill and told DH that he wanted him to walk 100 steps after every time he went to the bathroom. His hope is for exercise and better circulation. I know this sounds good- but I will literally have to tell him that is what doc…
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A question about I want to go home
When your LO says, "I want to go home", I understand they are looking for Mom and Dad. If the house where LO grew up is nearby, do you take them there? We couldn't go in, but can easily drive by. Is it helpful, or create more issues than benefits?
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Rant(1)
I hate my life. DH has FTD and “won’t” is his middle name. He won’t shower, shave, brush his teeth, change his clothes, wear Depends, stop taking food out of the freezer at night and putting it in the oven, turn off lights or water, sleep in his bed, and the list goes on. He is taking Olanzapine and Depakote which I don’t…
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How to decide to place or try to keep home?
I don’t post often, but I read several times a week. DH has declined to the point of needing daily care while I work full time as a school counselor. He had a huge decline in November when his doc and I decided to stop Donepezil due to him adding Klonopin. I really didn’t think it was doing much and had read that we should…
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Lecanemab accelerated approval
The best article I have found on lecanemab's FDA approval comes from the Alzforum. Lecanemab (brand name Leqembi) is going to be restricted to people with evidence of amyloid plaque who have mild cognitive impairment (MCI) or mild dementia. This comprises about 20 percent of those with AD. There are also cautions for…
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Exposed
Are there people on this forum that you wish you knew who they are. Some folks are just so negative that I wonder why they are always like that. Do you wonder as I know who many of them are. I hate when people think they can say what ever they want just because they know you don't know who they are.
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Can
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What just happened?!
DH has been home 15 days from a SNF. In that time we've gotten back into a routine, and things have been mostly calm here. I hope it isn't the calm before the storm. We had such a good day today. He happily let me give him a shower. I took him to Disney Springs, and we had a nice lunch followed by ice cream. We sat by the…
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Unexpected reaction at memory care
Today My daughter, SIL and I took my DH to a family home board and care. He thought we were going for a car ride and to see how the wood worker had repaired his night table. (Table had to be taken to care facility and its repair requirement was part of the fibbing to get stuff out of our house). We got there at lunch time.…
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DH is positive
On top of everything else, DH tested positive for Covid last night. This might have contributed to his double incontinence and confusion. I know he has a sore throat and is starting to have a little trouble catching is breath. I told the staff to be vigilant as he is a heart and cancer patient.I’m still visiting twice a…
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Lecanemab and the FDA
The FDA may make a decision on the anti-amyloid drug lecanemab on January 6th. This drug has about the same effectiveness as aducanumab/Aduhelm which the FDA approved last year but which Medicare refused to cover due to concerns over cost, effectiveness, and safety (especially the risk for brain bleeds and brain swelling…
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A literal s storm
It’s so crazy. Two 1/2 months ago D H was driving. Followed by a month of geripsych and 1 month in MC. Doc said he was in about the end of stage 4. Four days ago he became more confused and incontinent. Tested for UTI awaiting results but put on Antibiotics. Covid hit MC and DH may have it. He’s definitely not feeling…
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My Birthday(1)
This Sunday is my 70th birthday. We are going out with some friends to celebrate. I am not sure if Hubs even remembers. I want him back so bad, back five years or so to when things were relatively normal, before the six hour surgery that started the whole memory problem. I get plenty of counseling support (and legal in…