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By Josie in Podunk (formerly lostinpodunk) - Changed My Screen Name
When I first came here 2 years ago I truly was LostinPodunk. I was struggling against the tide of the not unexpected diagnosis…hoping/fighting for answers I now know aren't coming because there truly are none other than dealing with each day and changes as they come. Now, thanks in great part, to all of you I do not feel…
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Inappropriate In Public Stage
It hadn’t occurred to me before, but now I’m wanting to go out less. My wife has started clutching at her clothes and exposing her middle. She approaches strangers and tries to talk to them. She tries to get into other people’s cars or fights with her reflection in their windows. Wanders off in stores; she’s good at it and…
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Hello from Sandyshe
Hi all it’s Sandymac here, but I couldn’t sign in under the new format, so rejoined under my new name….didn’t want to miss out I haven’t read anything much yet, still trying to work out how everything works, but I suppose we’ll all get used to it in time Off to bed now
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Water(2)
Has anyone else here had this problem? My DH has become fixated on drinking water lately. Lots of water. He is probably stage 5/6 and has great mobility and eats well. When he drinks anything he drinks the whole glass down all at once and then a minute later forgets that he drank it and asks for, or gets another himself.…
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Pot Sirring
Growing Dementia related issues have made it where I have had to remove my daughter and son-in-law’s numbers from Handyman’s phone as he keeps stirring a pot I struggle almost daily to keep a lid on. His degrading executive function skills cause him to ring them up every time he gets stuck on stewing about continuing…
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bed sores question
After 3 months of being bedridden my DH has developed a bed sore. I had avoided them with a small pillow that was very soft. Then he developed a heat rash on his back so Hospice is now having me put a king size pillow to stop the heat from building up. I have a lamb's cover under him that was supposed to help with bed…
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by Ed - Deleting a thread, and about using bold type
If you start a new thread, but decide that you wished you didn't, you could edit the post, then get rid of what you wrote, and replace the title with DELETED (yes, you can do that now). That would make it easy for people to skip over it. And - does everyone think it's easier to read the type when it is in bold?
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Vitruvius: Seven months since DW's placement and I'm adrift
It's now been seven months since I placed my DW. This became necessary as the stress of taking care of her lead me to the ER. I visit every other day, but she is now on hospice and barely acknowledges my presence. My guilt stems from this: I retired to care for her, but could no longer care for her at home, so now I have a…
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My cousin is gone
My cousin, age 96 years, who was my late mother's last first cousin, passed away two nights ago from Alzheimer's Disease. She had been in a Memory Care facility and recently fell and broke her hip. Surgical repair was not considered to be an option. Hospice was called. I had been calling her every week although I doubt…
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First day at adult day care
Hello, fellow travelers. Today was DH's first day at social adult day services. I gather it was not a resounding success. The very kind program director said he did so-so. He enjoyed the visiting dog, but would not eat very much of the lunch provided or use the toilet, despite multiple prompts. He got up several times from…
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Simpler discussion format
Hello everyone. I found a simpler disussion format at Mayo Clinic: https://connect.mayoclinic.org/group/caregivers-dementia/
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by Ed - Diagnosis and depression
Just wondering how many of your LOs developed depression after finding out about the diagnosis.
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by Dio - Day of Move Ideas for Placement - Success
To all you brave warriors who have successfully placed your LO in MCF, please share your execution plan on the day of moving in. I'm looking for ideas. Since DH is still very cognizant of what's going on around him, I'd hate to traumatize him with the move. Some ideas so far include: Have friends bring him to dine at the…
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LGW Blindsided by hallucinations
My DH told me there was a pig outside our window. Instead of being thrilled that he had actually said something I told him there was no pig. I am so irritated with myself. I know he won't remember the conversation but I can't believe I argued with him. I hate this disease. He doesn't have many hallucinations (that I know…
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Therapist in the Boston area
Does anyone know a therapist in the boston area that understands caregiver stress? I know you really need someone that understands what it is like caring for someone with alzheimers. Thank you so much Deb
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Spouse with dementia and parkinson’s
Morning guys. Having a lot of frustration and trouble coping with husband’s moderate dementia. I believe he has now gone into the next “phase”. No sign of affection or caring towards me, I.e. no hugs, kisses or recognition of me. Then out of the blue he gets mean and nasty blaming me for watering my plants, that he’s the…
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How to tell my husband he can't work on cars anymore
Hy husband is in the moderate stage and still thinks he can work on cars. This results in taking apart the car and can't put it back together, making it unable to drive to the shop. He gets angry when I tell him I'd rather pay someone. How do I get him to let go?
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Distance to Memory Care
Hi All, I am closing in on a few MC facilities for my DH and have received contradictory advice as to how close or far away the facility should be. Some say the facility should be close by so you can visit frequently, deliver odds and ends, etc. However, another person told me don't worry too much about the distance--it's…
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Colt 99 First week of MC
MC move in and first week. I don’t post here often but I do read a lot. If you have shared your MC move story over the past several years, I have probably found it in my research (old platform) and I thank you for sharing. I will focus on the actual move and first week now and will include the planning and preparation in…
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Link to Understanding the Dementia Experience
The alzconnected link to this article may no longer work, try this instead- Smashwords – Understanding the Dementia Experience – a book by Jennifer Ghent-Fuller
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Help with getting spouse to appointments
Hello, I am new to this, need help, would love some input on something. how do I get my husband to go to appointments, sometimes he will, but there are times he will not, says things like the last time he was there was not treated right but thats no so, has a problem with trusting them at times. There are times we will be…
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Off topic for sure
I've been reading a little more about Helen Keller, and the movie "The Miracle Worker", a 1962 movie about how Helen Keller was helped. It really is a fascinating story, and Helen Keller was played by Patty Duke, 15 years of age at filming. She actually met Helen Keller in 1961, and the photo follows.
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I looked at the new privacy policy and here's what I found
I went over both the AA privacy policy as well as the Vanilla Logic policy. They're similar. The Good Both policies are fairly readable. There's a certain amount of jargon but for the most part, both entities explain the jargon they use. They both are fairly transparent in their disclosures. Under the Do Not Track…
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Off Topic: Favorite Movie Endings
With the Oscars coming up, I wanted to share some of the all-time best movie endings. Cinema Paradiso The parish priest forces a movie projectionists to remove all the kissing scenes from the movies he shows to the villagers. In a fire, the projectionist losses his sight, but is saved by his young mentee who later becomes…
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Clinical Trials: Leqembi
An FDA advisory board is going to provide input on the anti-amyloid drug Leqembi in June. For aducanumab the FDA statistician showed that the drug had almost no affect on non-APOE4 carriers, which may have impacted the FDA advisory board's decision not to recomment its approval, although the FDA later approved it anyway.…
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Even a Slow Progression Hits Milestones
I keep telling myself that DH is progressing slowly. And that may be true. But this past week, 2 things happened. First, we were at Culver’s and DH was eating a burger. There was a lemon wedge I had put on the tray. Halfway through the meal, he saw it, opened up his burger and squeezed lemon juice over the burger. I said,…
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FTD or ALZ
My husband was diagnosed 2 1/2 years ago with Alzheimer's, but was already scoring a 17 on the MMSE, (so basically pretty far along). We recently decided to switch to a local doctor because his geriatric doctor is an hour and a half away, and difficult to get a response from on short notice. When digging through all of the…
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My Bob is gone
Hello. My beloved husband, Bob, passed away in his sleep on Thursday, 3.23.2023. It was unexpected by the staff, by Hospice as he wasn't showing the "clinical" signs of actively dying. When I was with him just days before, he was consumed. Wouldn't make eye contact, no recognition, sleeping on/off, smiled briefly when I…
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DH passed
My DH passed away early this morning. I’d left MC at 8:30 to go home and sleep. I returned to MC around 2 in the morning. He died in my arms 90 minutes later. It’s astounding to me that exactly 6 months ago on Sunday, October 16th I called 911 and he was admitted to geripsych for 30 days. Memory care for 45 days. Hospital…
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