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Is it sundowning or something else?
Does sundowning last all day and night? or is something else going on? DH is a completely different person when it hits, every other day last month, and this week it lasted 36 hours 3x. He just paces near the front door, beckons me to go over to where he is but doesn't say why. He won't sit even if I brought a chair. He…
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Now i am lonely
Finally gave my DW to a great MC place last Wed. She escaped on Sat into a locked room so they lost her briefly, police came by here looking for her, broke my heart. Next day Sun she escaped from the facility altogether, however they were with her, 2 nurses and a security person stayed by her and tried to coax her back w/o…
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It’s funny until it is not!
A dear friend just sent me a humorous You Tube video of a fellow singing about events surrounding memory loss. Lost keys and glasses, forgotten names and appointments, etc. The audience was enjoying a laughing good time. There was a time when I would have fit in with that audience. Now it just causes pain and sadness. I’m…
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Dentist for a new upper plate
They called yesterday to remind me. So I got the Kid's van so I could get her there. DW will not allow me to get her dressed. Called our daughter, she talked to her Mom and got her say she would go. But same as before. Called her back and DW wouldn't even talk to her or listen this time. They were very nice when I called…
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A Report from the GLOBAL COUNCIL ON BRAIN HEALTH on BEHAVIOR CHANGE
I may have shared this but don’t remember. If I did please let me know and I will delete. Thanks https://www.aarp.org/content/dam/aarp/health/brain_health/2022-03/gcbh-behavior-change-report-english.doi.10.26419-2Fpia.00106.001.pdf
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Finding Comfort: Living with Advanced Dementia in Residential Care
https://www.caringkindnyc.org/_pdf/FindingComfort_cknyc.pdf
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Dementia and Dating
Ok, just going to be straight-forward here. I've made the decision to get out and date again, find that special someone I can be with moving forward with. I'm exhausted caring my LO who's essentially a 6 yr. old at this point. I'm still in my mid-50s and don't want to continue on this way without a mate whom I can really…
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A new issue
Today we were driving to our daughter’s for dinner. My husband undid his seatbelt and then could not do it back up. He had no idea why he did it. Coming home he opened his door and then immediately pulled it closed. We were on a freeway and it totally surprised me. Of course I yelled and told him that if he ever did that…
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Resentment(2)
I have thought long and hard about why I feel resentment towards my husband instead of the overwhelming love that others feel towards their spouses. Without therapy I came to this conclusion. When we first married he said he wasn’t good at finances and I was so much better so he would let me do it. I tried to teach him but…
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Vascular Demetia
Hello, new to the site. My mother suffered a TIA event last year and there has been a serious cognitive decline since then. Short term memory is shot. We have had an MRI that showed evidence of vascular damage in the brain. PET CT is scheduled in a week or so. Anyone else out there going through a similar path as this.…
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How short is short
This morning dw and I were doing our daily devotional. She reads the title and I read the scripture then she reads the devotion. So she reads the title this morning and I read the scripture then she rereads the title and waited for me to read the scripture again which I did. This is not the first time this has happened.…
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My Mother's Day Weekend
I don't know how to start this post but long story short.. my DH who is 60 with Alzheimer's, had a violent outburst for the first time last night while our grand daughter was in bed with us like she has been the past couple months. I woke up my son and daughter in law since I was afraid and even more so afraid that my…
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This is your lucky day
Dr. Natalie Edmonds had a free 1 hour caregiver video last evening. I asked her if I could share the replay with you, and she said I could. Much of this was covered in the 5 day course I recently took, but the course went into much more detail. This replay is available until May 8 (Mother's Day) until 10 PM, eastern time.…
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He's refusing medical treatment
He's been pretty confused the last few days. He went to his Dr. appointment yesterday. His lower dentures have been stuck in for several days. No pain or discomfort. Dr. said that could be contributing to his confusion and to go straight to a dentist to get them removed. He refused. He is also refusing to get his lab tests…
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I am at my wit’s end….
My DH and I sold our house and we are packing. I have done most of it because my DH gets confused if I give him too much to do. At the same time, he is always asking me if he can help. So when I find something that think he can handle, I let him; but I keep my directions minimal. Today I told him to pack up the top of his…
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Poo cornerI am so tired
i haven’t posted lately, I have been quite overwhelmed by work and my husband’s care. The geriatric psychiatrist came by and interviewed us together. Seeing my husband through his eyes, I could see how far he has progressed. He couldn’t remember anything he was asked, he told the doctor that we did all kinds of things…
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Dementia Is a Place Where My Mother Lives. It Is Not Who She Is.
Lovely, positive article written by a daughter whose mother has dementia. https://www.nytimes.com/2022/05/08/opinion/dementia-elder-care.html elained
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MC decision
Hello. I am new to the group. After a lot of soul searching and struggling with guilt, I am completing admission paperwork for MC for my husband today. This is, without a doubt, one of the toughest decisions I have ever made. I am planning to move him the first of June. He has late stage dementia and is in a wheel chair.…
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Black mood
Sometimes I just get very down and in a black mood. I have been listening to music today instead of watching cable news. A favorite old song came on and I tealized it now has a new meaning. I see a red door And I want it painted black No colors anymore I want them to turn black I see the girls walk by Dressed in their…
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Happy Mother's Day(4)
I hope you ladies can have a great day, with a little music, and I hope you can have a peaceful day.
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Change in Gait?
My DH was diagnosed a year ago with MCI. Since that time, he has progressed some, and has developed depression and anxiety that are now being controlled with medication. Over the last several months I have noticed that he is walking differently. He saw his daughter last week - the first time since Christmas - and she asked…
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My husband had a stroke.
It happened yesterday morning. He suddenly couldn’t move his right arm and leg. I called 911 immediately and he was treated within that golden hour. However, as the day progressed, his symptoms worsened. We don’t know why. They conducted many, many tests and scans. So far all that the scans show is evidence of…
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Tough decision
As i posted 2 weeks ago i finally made the decision to place my DW in a MC home. Beautiful place and highly recommended. My wife and i have been joined at the hip for 50 years now. Her memory is very bad and she does not recognize our daughter at all and daily she doesnt remember who i am, then remembers and hugs me and…
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Advice about how many in household.
I have searched everywhere for the answer. Back in December I was diagnosed and scheduled for Total Aortic Valve Replacement. I then filed for Medicaid and placed my DH in MC because I was the only caretaker for him. Since then there has been some times I've attempted to fill out paperwork for financial assistance. But I…
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Something new(2)
My husband has mid stage dementia.......lately he starts in the early evening and insists he has to get going.........When asked where he is going he says home. He has lived here with me for over 30 years. He insists he needs to go back to his childhood home, which was sold several years ago. He has to find his mother, who…
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Music, music, music
Not the song, although it was a good one. But I think we overlook the positive effects music can have on our LOs. This morning after she took off her incontinence underwear, she didn't want to put clean ones on, but just go without any. Finally I got them on her, but she wasn't happy with me. After breakfast I put youtube…
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I've made my decision
She will not be placed. At least not for the immediate future. I've been managing my stress level, in large part because of increased family help. I wish everyone had it, and I know how fortunate I am to have the help. One of our daughters (you know the one) spent several hours getting most of the paper work needed for…
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FYI(12)
https://www.youtube.com/watch?v=Ds3ob4bX2H4
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Meds(7)
We seem to be having a whole lot of problems finding the right meds for my wife [She has early on-set, late mid-level Alzheimer's]. Either they do nothing, or they make her physically sick, or they turn her into something like a drunken zombie. Anybody else have this problem?
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DH says he doesn’t need my help
I was so upset when he tells me- he doesn’t need any help! I have to help him make a phone call to order cab, make his doctor’s appointments, accompany him to appointments, do his meds, cook dinners and clean, order grocery and more! I can’t take it when he says I don’t help him or he doesn’t need any help! I dared him to…