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Are you going to Scarborough Fair
Seems the songs I used to hear all take in a new meaning. Just feeling melancholy, listening to my dw favorites blowing in the wind, sounds of silence, the answer my friend is blowing in the wind.
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New member(4)
Hi, I'm new here. My emotions are all over the map. But the feelings of being very overwhelmed, alone and angry are a constant. The love of my life was diagnosed with Alzheimer’s last month. He's 63 and we've only been together for 14 years. There were little signs here & there that something wasn't right; things you'd…
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Finally approved by VA for in home help.
We got approved for help. I was excited but also apprehensive. Guess it was loosing control and trust issues. The lady came last week and she is very nice, DH seemed to like her. I stayed for the first hour to just see how he would react. I then went to the bank to take care of some business that I have not been able to do…
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Off Topic For A Smile Or Two
Sometimes it is just good to have a little something to smile at: Ravel's Bolero played by four musicians on ONE cello . . . https://m.facebook.com/story.php?story_fbid=10160283608514260&id=6569469259&m_entstream_source=timeline J.
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Fill in your profile
Folks please please please please Fill in your profile with ages dependents and what STATE you live in Almost all practical help we can give you depends on those facts Don't put it in a post put it in your Profile
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Advice to get mom to move
I am needing to move a LO who has ES FTD into MC and I need advice on how to get mom to walk in the door. She is aware of her surroundings and can navigate/stand on her feet just fine. I am a daughter who lives out of state and have been a remote caregiver for mom the last 2-3 years, traveling home every 6 weeks to look…
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Aromatherapy(1)
Has any one tried aromatherapy for dementia in their LO? If so, which oils help? I hear music and aromatherapy help. May be it will help him stay awake. DH sleeps at least 3 hours in the afternoon, though he goes for a one mile daily morning walk by himself. We take one mile evening walk together. I told him he should keep…
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Zoom support groups for my father
Hello, my father would like to attend zoom support groups as a husband of someone who is afflicted with Alzheimers. I do not know where to start looking for resources for him. Maybe I should attend one, too. Thank you for your help!
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A new thread from Jack in WN
When do I know it's time to consider a qualified dementia facility? My wife's anger and verbal abuse towards me is increasing , especially late afternoons and evenings. This is Jack's first post.
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Between everything breaking, the record heat...and DH I'm about to go postal
We are playing the "Well, I guess I'll get going now" game tonight. Says he has work to do, I explain he doesn't work, he doesn't drive, he's retired for the 2000 time. He just asked me in the space of 5 minutes if he could go................I am so at the end of my rope here I WANT TO GO!!!
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Update for Ed and others on Care Course
Ed, you'd asked for an update and I'm about a third of the way into the Care Course (by Dr. Natali Edmunds), and it's a game changer for me. Stress was badly affecting my outlook and my health. Here's a couple of things that have helped me so far: Stress isn't a bad thing. We actually need it to alert us to be ready to…
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MC Placement- 6 Month Update
First I have to say that we have been extremely fortunate with the MC placement experience. DW is thriving in in her new environment! She has friends amount the residents and staff, daily activities and is receiving good care. She has never ask to come home and the most she ask is where I have been to which I respond “at…
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Kitchen Woes - He cooked the coffee pot
Yep. DH rediscovered the stove today, and melted the handle clean off of the coffee pot. I now have a hardened mini-puddle of whatever the handle was made of, melted onto the stovetop and burner pan. And another chunk of the same material by the sink. It is a wonder he didn't burn himself, or do something to blow us up.…
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What do you think?(4)
Some times the strongest among us are the ones who smile through silent pain, cry behind closed doors and fight battles nobody knows about.
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Still Working and Husband is Losing It
Hi All, I’m new to this group. I’m 62 and work from home at a pretty demanding job. My husband is almost 80 and has moderate cognitive impairment but he’s getting worse. It’s happening fast. He is also Greek and insists on drinking ouzo every day. I’m feeling very alone as I don’t know anyone in my situation. Thanks for…
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I am new to this forum and looking for support
My DH got sick 3 yrs ago and we worked our way through Kaiser trying to diagnose problem. He has had several TIA's, and several vascular issues. I've noticed decreased executive function for the past 5+ yrs. Diagnosed with mixed dementia with nuerogenic bladder and bowel. From reading about the 7 stages, I believe he is…
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Music back in my life
Back in college where we met, my wife and I would fall asleep to music on the radio. After we were married, my wife’s tolerance for my music wained, to the point where she would turn off whatever I had on. I can’t completely blame her, as my taste in music and hers had a small intersection. We enjoyed music in that overlap…
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Communication or not?
Yesterday I watched webinar on communication with people with dementia. It was a good presentation with valuable practical tips. Today DH wanted his shorts because it is suddenly hot (80) here in Connecticut. We store out of season clothing in a cedar chest in our living room but it also is a major job to do the seasonal…
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This Is Us — Miguel
I have watched this from the beginning and I am going to be sorry for it to end. Last night's show was Miguel’s story. He’s been kind of a peripheral character and we didn’t really know much about him apart from the Pearson’s. Last night he was fleshed out. Part of his story is the spouse caregiver of his wife with…
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Hello my forum family and friends
It's been a little over 5 weeks since DH Jesse passed due to early onset Alzheimer's Disease. I am doing reasonably well, I guess. I feel very lost. Sometimes I am deeply sad. Other times I remind myself to be grateful that Jesse is no longer suffering. Other times I am very angry because it seems so unfair that a vibrant…
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Long term care staffing shortages
https://www.seniorly.com/resource-center/seniorly-news/states-hardest-hit-by-long-term-care-staffing-shortage
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MC for DW 10 days Ago
My DW, age 70, started exhibiting symptoms a little over two years ago. She was diagnosed with atypical Alzheimer's - meaning the part of the brain initially impacted was different then most. Her disease progressed rapidly and I was her only full-time caregiver as family does not live in the Chicago area. I could no longer…
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Oddest thing missing
I can understand my LO misplacing a ring or losing a set of keys but today I'm missing two bath towels. I have turned the house upside down and can't find them. How do you lose two big towels? What is the oddest thing that has come up missing in your house?
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My friend Ken shared this with me. He is just an amazing person.
https://www.youtube.com/watch?v=0eWtqMomlRs&t=2s
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We saw her Neurology Specialist
She advised me to get DW on a waiting list for care. It is a relief that she told me but on the other hand. darn* it , it ain't fair. She took care of all of us for years- this is the reward she gets. I know I have to do it.
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Finally witnessed an obvious TIA - Vascular Dementia
I think I'm finally catching on to the subtle signs that my DH is suffering another micro-vascular stroke, which always precedes an abrupt change in behavior or cognition. Before bedtime on Tuesday, DH was watching TV, which is often accompanied by some sort of stream of-consciousness mumblings, long conversations with the…
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Anyone with live in caregiver???
As I am handicapped and my dh is declining, I was thinking about looking into a live-in caregiver. I can provide room and board. It would be good for someone doing online college courses, I would think. Has anyone gone through this? Do I also need to pay a small salary? What are the pitfalls I need to watch out for? What…
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Taking up the Slack
There has been many discussions on this forum of how friends, family and acquaintances disconnect from our LO's with dementia. My DW and I also have had our fair share of those folks. For whatever reason they have from not knowing how to approach, not knowing what to say, from feeling uncomfortable, or what ever…
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Back from our trip
Hi all, we returned yesterday from a three day trip to attend an aunt's 98th birthday party and spend Mother's Day with my mother, who is 102. There were 70 family members at my aunt's party. Cousins came from coast to coast. We spent the day catching up on everyone's lives. The weather was perfect. DH still knows the…
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One thing I miss because of this disease
I miss just sitting and talking.........not about anything in particular..........just talking. He's in a good place tonight but just told me he used to go out in boats and rescue people.........ahuh............I know his father was a Sheriff and he used to go with him to pick up dead bodies, I suppose this is where this…