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Do you tell lawyer about the dx?
Hi everyone, I am at the very beginning of this journey. I have known something is wrong for over a year. We have seen a neurologist and have a tentative diagnosis of Alzheimer's. He is scheduled to have a neuropsych but that takes several months. Most people would not realize there was anything wrong. His personality is…
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Lady Texan(3)
LT, thinking about you this morning and hope you're doing okay. Memory care has ripped up my world, I can only imagine what Jesse's death has done to yours. Let us know when you can.
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Connecting some more dots in Alzheimer's disease
This recent study on Alzheimer's disease has made some breakthrough connections: "The study may also help connect the dots between loss of neurons and the well-documented accumulation of amyloid-β and tau proteins in Alzheimer’s disease. The pattern of mutations the team found suggests that they are caused by reactive…
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ASSISTIVE TECHNOLOGY
I have a Alexa speaker and smart plug in one room, Google echo min another. I am thinking of getting a good hub max, Google device with a screen for kitchen. I think it will help LO to see the weather, date, time and watch tv etc. I can watch the recipes as I cook! DH doesn’t see date on his iPhone, I watch or calendar…
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Bowel Movement during the Night
This morning when I pulled the covers back from over DH, the telltale smell of a bowel movement. My DH is immobile, so he wouldn't have been able to get up. When I turned him over at 2 a.m., all was okay. He didn't remember anything, and it is my belief he slept through it. This has happened once before, but the doctor…
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Why, oh why?
This is not a trick question. There are no right or wrong answers. Only honest answers. Why are you caregiving for your loved one? Why do you give so much of yourself, when it is so hard?
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Dealing with my 'shadow'
My DW is driving me crazy following and finding me. If I retreat to my office - she not only comes in but stays and wants to know what I'm doing. Same if I go to the garage to work on a project, go to the closet to change clothes, try to watch a TV show, and worst of all when I'm in the kitchen cooking for us (she can no…
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This morning I lost it badly
I can handle just about anything she throws (not literally) at me, but I have a hard time when she is not cooperative, and that's just about all the time. First thing this morning she gave me a problem because I insisted she get dressed. She was in the living room with nothing on but a sweatshirt. I literally had to drag…
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Covid variant is extremely contagious
Covid is also ripping back because people are tired and careless and don't pay attention. My daughter and her husband were both vaccinated and boosted The two older children were vaccinated the 2 year old was not. He was at a friends house When a neighbor stopped by . No one knew she was a fervent antivaxer and COVID…
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Yelling and screaming
I can deal with DH missing the toilet, going in different areas of the bathroom to urinate, but what I can' t deal with is his yelling. If he doesn't like something he raises his voice: sitting down on the toilet, shouted at a caregiver trying to give him a shower (didn't work out), putting on socks and bumped his toe and…
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Plan for if something happens to me?
I am wondering if anyone has made written arrangements in case something should happen to them ( the spouse/caregiver)? I cant talk with my DH about it. He can no longer think things thru and would not remember the conversation anyway. I want to know that he will be taken care of if I were gone. But isnt that a very…
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Tips for patience
My friends say to me "Oh you are so patient with your husband." - but the truth of the matter is I am not always patient and I sometimes have to consciously work at it. Two things I have tried that seem to help. (1) Analyze events in order to recognize the situations that trigger me to struggle with being patient, and (2)…
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I am so sick
Well the aunt and cousin are NOT coming but in the meantime I got horribly sick. Aches and pains combined with uncontrollable shaking and chills. Up all night coughing, shortness of breath, runny nose and dry heaves. The kicker is I have a temperature of 102 which is very unusual as I seldom run a fever. I'm going to take…
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Small win?
My partner actually went outside today at her new MC, tidied up, and watered the flowers. I’ll take it. Have to give her A for effort too: yesterday she snuck into the nursing station while it was unoccupied and made a stealth phone call to me (saying of course she was ready for me to pick her up). I didn’t get the call,…
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Didn’t recognize friends
We went out for dinner with friends we have known for 7 years, vacationed with and see usually once a month. On the way home my husband mentioned he did not recognize them. You wouldn’t have known that from his behavior. I noticed that when he did make a comment during the conversation it was hard to understand and…
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Alzheimer's claimed another
My Dearest Husband lost his 14 year battle with Alzheimer's last night. Leslie
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Okay to Laugh
Married to DW for 43 years, one grandson "Micha". DW a little confused sometimes as to exactly who I am. Conversation from this morning. DW: Well.... you're...Micha's grandfather... Me: Yes DW: ....it's really a small world isn't it.
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Update and uninvited houseguests
Update. I found our tax papers and got them turned in to our preparer in time for and extension. Refrigerator still out. LG has blackballed us from any tech work and won't come to our house any more because DH cursed out the tech out so badly for not fixing the frig immediately. Found a local appliance repair who will be…
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Bought myself a gift - Hot Tub
I found a very nice reconditioned 5-person hot tub for $3,000 last October. It currently serves as my respite twice a day. DH is not interested, which is fine by me. It means I get 30 minutes late morning and evening to soak and de-stress, alone, while he watches old re-runs on TV. I spend 15 minutes with bubbles to soothe…
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DW having a good day
DW has had Alzheimer's since 2015 ,probably earlier also but finally found out what was wrong. These topics have helped me alot. I'm not alone going thru this. These caregivers on here are part of one big family. We care, we share and we shed tears for one another. I get so darn* mad at times even though I know it isn't…
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This question is for those who have attended local support groups
I joined a local support group, and there were only 4 of us there. My expectation was to have quite a few more. How many people attended the support group you attended? I seemed to be the most experienced in the group, although they were also going through some pretty hard times, and their LOs seemed to be more advanced…
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About the course I took
As most of you know, I just finished a 5 day course online. It was put on by Dr. Natalie Edmonds, a geropsychologist, who also has the Careblazers videos on youtube. Here's my take on it: This interactive course ran for 5 consecutive days, and the segments were 1 hour each. The last day she stuck around for about another…
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Emergency information binder
Do u know of a app that we can use to put loved ones info like medication, dr’s contact info, and other relevant info? I have added medication on my notes app in my iPhone. If a app, preferably free can do all that is required so I can carry the list in my handbag! Thanks
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Asking for help: What is realistic to expect?
I need to vent, but if you have advice I would appreciate it. My DH is in ES of EO Alzheimer’s. He was finally diagnosed late last year, and he is struggling to accept the diagnosis or tell family. He has opened up only to a few family and friends. I’m struggling with the reality of being a fulltime caretaker and wondering…
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Sent to ER when I got to ER found in parking lot.
My mom has COPD now pneumonia. The nursing home sent her to ER by herself when I got to ER there she was in the parking lot in a wheel cheer no coat temp is 45. Who is responsible for her when they send her in ambulance?
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Dementia Mentors - has anyone used them recently?
I am considering seeing if my husband wants to use the Dementia Mentors private mentor service. I think having someone to talk to one-on-one may help. Does anyone have any experience with this agency? I've searched the posts, but the references I find are from a few years back, and I know things have changed everywhere.…
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Just need to talk to my friends (169)
Hi, Guess it's time to start #169 - can you all believe that? Anyway, wanted to begin the new one tonight so Sara's morning post would be on it. Iris, I had no idea my laptop had that option. I was trying to delete and it was sort of dark so don't have any idea how it happened. It's been a windy, somewhat chilly day - same…
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How to use Message Board Questions
Hello Everyone, My DH has a tentative dx of Alzheimer's and I found this online support message board very helpful! I am reading through the posts and learning something with each one. I couldn't figure out where to ask these questions, so I hope you won't mind if I post them here: Is there a way to tell which posts you…
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Seroquel(9)
My husband had an appointment with his PCP who he has only seen once. I went in early and dropped off a short note explaining that he was starting to have anxiety and delusions most afternoons thinking he was at work and needed to fix something. He would get mad when I didn’t know how to help him. I asked if he should use…
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Surprising deluge
I know there are those dealing with much more heartbreaking issues right now, and I hope this does not in any way offend anyone by possibly sounding shallow.It certainly is not my intention to diminish what you all are going through with your loved ones and your profound losses over the years.(Currently I am on year #12 in…