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Please don't wait too long.
I haven't posted a lot so I'll begin by giving history. My 88 yr old DH is 20 years my senior and has vascular dementia and ALZ. It began 8 years ago with a brain injury caused from a fall that probably was caused by a stroke. His care is relatively easy compared to what many of you are going thru. He doesn't wander but…
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Another year
Today is our 54th wedding anniversary. A lot of time and memories have passed since the day I “fed” DH wedding cake until today when I fed him apple cobbler dessert at his MCF. Our carefully crafted plans began unraveling about 12 years ago and there’s no sense looking back. I don’t regret a minute spent with him; he was a…
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What A Night
DH has had 2 wonderful days. He has joked and laughed and enjoyed everything we've done. It was a delight to do things with him even if some of it was on his schedule. It was nice that he could be outside on his own and monitored less frequently. Last night he went to bed and woke up once to the bathroom. He turned on the…
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Heart Monitor?
Hi. DH is a healthy 78 year old, stage 6, not yet incontinent. He has always had a slow heart rate and has done Holter heart monitoring twice in the distant past with no issues found. Two weeks ago he had a fainting episode probably due to painful stomach cramps and straining (constipation). Went to ER, no problems found,…
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Delusions(4)
My DH has been on one subject for the last week. He is going to buy a new SUV so he can leave when he feels like it. He sits out side talking to himself using bad language, calling one of our sons all kinds of names. He thinks he “stole” our old car from the garage. Truth is we gave it to him. He just keeps this up and…
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Just need to talk to my friends ,(172)
Hi, Thought it might be time for 172. It's been a very cool day for a change. Hope everyone's aches and pains are better. Seems like I've felt better today. . Did dishes and a few other things.. Enjoy your evening.
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melt down/ breakdown
I don't even know where or how to start this post, but here it is. The last 2 to 3 weeks have been pure hell! and that's just how it feels. My DW decline is just happening way to fast now. Everything from no longer remembering her twin sister, no longer able to clean herself properly, throwing her shoes in the trash. I…
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All these tests?
So I got the ball rolling for my dw, my head is still spinning. Dw doesn't remember the visit and I could see it definitely had an effect on her. She conflated several stories about what happened. I do not want to continue subjecting her to things that are gonna make her progress quicker. I am cool with a cat scan to rule…
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M1, here's the list
Unless otherwise noted, it is once a day/evening: Amlodipine 5 mg Atorvastatin 80 mg Losartan 25 mg Metopolol tartrate 50 mg 2X daily Areds2 2X daily Rivastigmine patch 4.6 mg Seroquel 12 1/2 mg Warfarin 2 1/2 mg B12 1000 mg She has been pretty fatigued, and I was considering stopping the patch. Fatigue is one of the side…
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MC folks: anyone doing/seeing regular covid screening these days?
I was supposed to try a visit today with friends--both over sixty, one of them with a bad heart condition. Got an email yesterday that my partner was "not feeling well" over the weekend, and her nephew talked to her yesterday and said she sounded pretty rough on the phone. No one has mentioned a covid test--I brought it up…
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Placement in 11 days
I decided to place my husband. It is a decision I never wanted to make but I find myself feeling so resentful that he has had 21 years of retirement and my 4 years have been spent caring for him. I alternate with sadness and depression. He has failed so much in the last month. For the last two nights he has not recognized…
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Article: I Have Alzheimers, Don't Feel Sorry For Me
Very touching writing: https://www.yahoo.com/news/alzheimer-don-t-feel-sorry-120015680.html J.
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I'm about to snap
This is my first post to a message board... My husband was diagnosed with Alzheimer’s last month but he’s been behaving erratically for at least 4 years. He denies that anything is wrong with him and refuses to take medicine because the “priests” told him he didn’t need to. His short term memory is sporadic at best. Lately…
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Here a bit over 6 years now.
I just noticed my "joined" date is just a little over 6 years ago. I know I visited here and read for at least a year before that, probably a few years. I was convinced DH had dementia years before his diagnosis, while all the doctors we visited continued to say no, it's just stress and depression, he's way too young to…
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Needing Support
DH was diagnosed with Alzheimers in early May though we know he had memory issues prior to that. He is on medication to help him sleep and to help ward off psychotic behaviors. It does help him sleep but we still have behaviors that are disturbing. * He does not drive and hasn't for almost 5 years. * I took his knife away…
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Seeing the slow pattern of decline.
For a couple of months my dw started asking if we were married. It started slow,once or twice in one week and then a little break, now it's getting more frequent. It has kinda changed as well, now she says I am not used to my married name, it's still kinda new, and that is becoming more frequent. Yesterday about 5 dw saw…
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Where hasn’t he peed?
Update from Casa poo here. The good news is that the husband hasn’t been making his daily deposits in the sink, he does now and then, but now he just whips out his penis and pees in the sink. Today I saw him peeing over our porch onto the neighbour’s garbage cans, sigh. I told him to get back into the house and use the…
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Can seroquel cause delusions?
Just wondering because when my wife was in the hospital, they put her on seroquel without me knowing it. Now that she's in MC, she told our kids that she's afraid because someone is going to kill her. And she is extremely tired. She is only on a very small dose, 12 1/2 mg twice a day, but I talked to the doc today, and he…
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Little things.
Just thinking about all the little things that help me. Oldies music, makes my dw happy, which makes me happy. I play music in the car,she likes car country, Brooks and Dunn. Boot scoot and boggie. Ice cream seems to have a magical power over dementia, it's mere mention stops the dementia demon dead in its tracks. Well…
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Dear CRUSHED,
Your expertise is needed. My parents have moved from Texas to Louisiana. Mom has Alz. How do we go about switching banks in regards to moms SS check? Do we contact the SS office? Or does the bank handle this ? Thank you! Sincerely, abc123I hope you, dear wife and family are all as well and happy as possible!
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Giving up driving
Since there has been much discussion here about a person with dementia stopping driving, I felt that it should be a separate topic. My SO was a good driver, but she once got confused and caused an accident with minor property damage and, fortunately, no other cars were involved. Her son's attorney advised him that she must…
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Dementia Divorce and Adult Step
Well, my entitled and money hungry 50 year old step “children” have finally won. I have been in a three year battle with them regarding my Lewy Body Dementia 84 year old husband. I read the previous post, and I saw myself there as well. It is not easy. I am also 68, and cared for my hubby throughout our entire 25 year…
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Full Code Hospice Patients and Nurse Dynamics
The Caregiver Forum has a Thread re a Member's LO being a Full Code, resuscitate status while on Hospice service. Many people are unaware that a person can indeed be a Full Code and still receive Hospice servces. In doing some reading, I found the following article link to be informative and also give a peek behind the…
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Footprints in the sand
Footprints in the Sand Footprints in the Sand, a beautiful poem! Apr 26, 2010 @ 11pm, One night I dreamed a dream. As I was walking along the beach with my Lord. Across the dark sky flashed scenes from my life. For each scene, I noticed two sets of footprints in the sand, One belonging to me and one to my Lord. After the…
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Kudos to Jo C
Her responses are always insightful, compassionate, and founded on a solid knowledge base. Additionally, suggestions that may sound unsavory are made with tact and empathy. I am grateful she is here to keep us moving forward. Who else appreciates Jo C?
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Another minor update
I just got a call from a nurse at MC. She said my wife was walking the halls, and was severely confused. She had no idea where she was. The aide just went into her room to check things out. She is sleeping now, and if she's anything like she was at home, that means she will sleep until morning. They also asked me to bring…
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How does incontinence begin? Info needed
How does incontinence begin? DW is starting to experience bouts of both #1 and #2 incontinence for several months. It can go on for several days and then she will return to being continent for a week or weeks. When incontinence happens she seems unaware of it and it's me seeing or smelling the result. I have been very…
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Noticeable decline
I took a long weekend away over Memorial Day, and when I returned I feel like I notice new losses, or changes in behavior, kind of like the way a baby develops new skills, seemingly overnight. DW is in Stage 4, after an MCI diagnosis 4 years ago. Her new behaviors are increased suspicion (“Who drank my wine?” has turned…
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I’m new to this forum-need support
Hi, My husband was dx with “MCI, likely early AD”, in November 2020. He currently denies that he has had any decline since, although I have seen decline mostly with his mood and behavior. I think it can also be difficult to see changes when with the person daily. He retired in December 2021 because he was not performing…
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On a lighter note - inventing words
Recently 'Quilting brings calm' posted a resurrected reference to an alzinfo.org website on the "7 Stages of Alzheimer’s". The entry for Stage 6 stated that: "As this stage [6] comes to an end, the AD person ... begins to manifest overt breakdown in the ability to articulate sentences and words. Stuttering (verbigeration),…