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Speech
My DW is in year 3 of EOAD. She’s always been a talker, talking to whomever would listen. The last few months she still talks but with her limited vocabulary she makes no sense. Her words are very clear but all mixed up. I’ve just noticed this past week that now when she talks it starts with a few clear words but then…
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Title Co Trouble
My DH has vascular dementia, and he’s wheelchair bound since his stroke in July of last year. He lives with me at home and I move him around with a hoyer lift. I do my best to make his life as enjoyable as possible. One thing that would make his life more enjoyable is if I had a wheelchair van to take him on rides and go…
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Falls asleep but doesn't stay asleep
DH falls asleep easily at bedtime but doesn't stay asleep. I give him Mirtazapine and I added Benadryl but they don't help. Melatonin didn't help him. He wakes me up three to four times every night, turning on lights, walking around or just sitting on the edge of the bed. Is this common in people with dementia? Is there…
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We made it
My husband passed peacefully this morning. I woke just before and was holding his hand. I had been hoping that he could find an off-ramp, and he did. We have been blessed. My deepest thanks to all of you for your support, sympathy and advice on this long hard road. I'll come back here often. Wishing all of you peace as you…
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Just need to vent a little
On June 5th we left my DH's Neurologists office and were told that he has months to live. We werent told an actual amount of months, just months. Today being fathers day I thought maybe I would get some extra help from one or more of our 4 adult children, but basically it was on me the whole day. Im so frustrated I cant…
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50 years
In a few days we will have our 50th wedding anniversary. I know for a certainty that she is the best thing that ever happened to me in my life. She last recognized me in 2017 and has been bedridden since 2021. She is 73 lovely as ever, with a few streaks of grey in her hair. I have stunning wonderful memories rated from G…
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My husband has MCI and blind on rt side.
He’s has Mild Vascular Neuro Cognitive Dementia. I’m exhausted. And I Cry.
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Anyone heard of potential benefits of Kefir?
Hi Y'all, My wife was diagnosed 3 years ago with dementia, she is still very much with me, but I have seen many examples of her slow slide due to this horrible disease. Our GP prescribed two medications when she was diagnosed, Memantine and Donepezil. We have no idea how much they've helped. We have a good friend who's a…
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Who can I trust?
Hello all, it's been a while. My bf (46yo EOA) is a very active stage 7b. He is still mobile. We have entered the stage of not wanting to shower but I can get him in there (not fighting l, yelling or scratching tonight). Here is my predicament. I have been trying to find an Adult Foster Home but there aren't many around. I…
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DH with dementia no longer shows hand preference
My husband is in approximately late stage 5 of dementia. I noticed recently that he no longer shows a hand preference when eating, holding a pencil or reaching for an object. What does this mean? He was always left-handed, but will now try to eat with either hand. He requires assistance eating, but tries to do it himself.…
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Short term memory loss
my LW is currently in a nursing home for PT after surgery for diverticulitis. Happily, she did not need a colostomy bag. On the dementia scale, she is in the lower middle. She also has short term memory loss, which compounds her negative outbursts. If I am with her, I witness her anger at staff for slow responses.…
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New to group
Hello I just wanted to introduce myself. My husband is 56 year old. He was diagnosed with PPA and frontotemporal dementia about 5 years ago. I believe we are now entering ALZ as well. This week I had to finally take away his right to drive and it was heartbreaking. I tried to blame it on the insurance company knowing he…
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Still Here
I haven’t posted in a while, I am struggling with the situation here. DH is now on day 47 of not eating, over a month with no heart meds, and he’s refused fluids of any kind since Monday. The Hospice nurses are astounded that he’s still as strong as he is. He’s non-responsive to everyone but me…if take his hand and talk to…
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Slow motion in Stage 8
Dear Forum mates, I am just checking in as the dust begins to settle (sort of) following my beloved DH's peaceful passing a few months ago, ending 6+ years of our devastating dance with dementia. I have thought of you all so many times, but have been alternating between some days of doing nothing but breathing and…
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Rexulti and increased confusion and restlessness?
DH has been taking Rexulti for 2 weeks now and he seems to be more confused, wanting to go see his parents, wanting to go skiing, more restless. I don’t know if it’s coincidence or is this a result of the medication. I don’t think it’s had any effect on the agitation so I’m inclined to stop it. His doctor said to go to the…
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Just wandering
MY DH ,THAT HAS VD AND ALZ. PROB STAGE 3 OR 4 , SEEMS SO NORMAL RIGHT NOW. OR IS IT THAT IM JUST SO USE TO IT? I MAKE SURE THERE IS NO STRESS IN HIS LIFE, EVERYTHING HE NEEDS OR WANTS HE GETS . HE TAKES ALL HIS MEDS. HE STILL WONT SHOWER ,DOESNT EAT RIGHT LIKES SWEETS OR ONLY SMALL PORTIONS. I SUBSTITUTE WITH BOOST MILK…
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Mild Cognitive Impairment and Pain
I googled "Can Mild Cognitive Impairment result in pain in the body?" The response was, "Yes, Mild Cognitive Impairment (MCI) can be associated with bodily pain, although the relationship is complex and not fully understood. Research suggests that individuals with MCI are more likely to experience pain, and this pain may,…
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Help with bringing in help
Hi All, My DW is putting up a fight about brining in a caregiver in our home. Probably Stage 5 but I don't feel comfortable leaving her for extended times. I would like a break as well. Anyone have a good therapeutic fib for why So-n-So is coming in? Any stories that you've used to bridge the resistance? Thank you
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Defecates on himself, refuses to shower
Husband defecates on himself and refuses to shower. Even with Depends a stain will come through. I cannot get him to shower. I don't know what I'm going to do, but I can't take much more.
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I need a safe space for me
please allow me to vent… I am so tired. My head constantly aches. I don’t sleep well. My DH has AZ and, I am beginning to think, another form of dementia as well. We see doc in two weeks to discuss. He is all over the place some days. Some days hallucinating. Some days body temp out of control. Then he sits down and reads…
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Near the end
We are down to the last hours. I am lying in bed with DH, music in the background, window open to sun and breeze. I am so terribly sad while being so grateful that he will be free. my heart is breaking.
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Dentist trip
I’m taking my DW to the dentist next week for the first time since she was diagnosed 2 years ago. She is currently in stages5/6. Has anyone had any problems with their LO at the dentist? Trying to prepare myself before I take her.
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Screams At Night
My DW has now had a few loud screaming events at night. She doesn’t remember if she has had a nightmare, but thinks she has. None of her meds list this as a side effect. Is this another of the joyous things that can come with dementia? Anyone else here experience this and found any solution?
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Taboo subject of divorce
Ater reading others post and knowing my own situation I am just wondering if anyone has considered divorce. I hear and believe it is the disease but also think that no one should be treated the way some are. If we are only staying out of obligation are we doing the right thing. In my situation after giving my wife a last…
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How to get rid of urine smell
My DH's MC room constantly has a urine odor. He changes his wet pants as needed and the aides put them in the open hamper in the bathroom. Laundry gets done once a week and by then the odor is so strong and permeates the room. I just brought home his laundry because I want the room to smell clean for visitors for Father's…
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What is "Quality of Life?"
Definition of Quality: "The standard of something as measured against other things of similar kind." Long story short- My wife was diagnose in 2019 with AZ. At this time she was still lucid and could understand the road that laid before her and me. At the time I asked her, "what are your wishes? What do you want me to do…
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Executive functions
my DW has lost a lot of her executive functions. It is my care responsibilities to take care of all decisions. She sometimes demands to know what is going on and i try to explain even though she won’t remember. I use DARE everyday as much as i can and also redirect, but it is a struggle. DARE is Do not ARGUE,REACT or…
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Wandering
Why do they wander. I just can’t figure this out. My DW wandered for the first time about 5 months ago. With the help from local PD, we got her back home safely. Fast forward to this month. No wandering until last week when she left house (while I was showering) and walked about 2 miles until PD found her. Had to be talked…
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Mild Cognitive Impairment
This is my first post. In July 2023 I noted to family that my 81 year-old DW was having significant memory problems. In January 2024 she was diagnosed with Mild Cognitive Impairment (MCI). I am particularly interested in others who have a LO diagnosed with MCI and for how many years or did it eventually progress to a more…
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DH home from respite care
Dh is to return home today from a 10 day respite stay at a great place . I am having conflicting feelings and thoughts. I am at some level looking forward to having him at home again and then I wish he could just stay at this memory care place. It is a great place. He participating in all the activities they have and seems…