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She has gone to heaven
I cry as I write this. My wife passed yesterday at 2AM. Now I am suffering in stage eight. I don’t know what to do in order to feel better. So I thought I would write my awe full feelings down and send them away. I know others have gone threw this. I am nervous and restless. I am very sad I miss my wife so much. I feel…
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Autoimmune dementia
Hello Everyone, I have just read some articles about Autoimmune dementia. I was wondering if anyone had heard of this / pursued diagnosis of this / sought treatment for this? Thank you.
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Everyone is his Friend
My SO who is 45 EOA thinks he knows everyone when we go out to the store or in public. Most people are receptive and understanding. I feel that since he doesn't go to the store as much as he used to and isn't exposed to the public this is a reaction? However I have also read that this is a part of the disease. He has also…
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May God bless you all
l am thankful for this forum that has so many kind and wise members. Thank you all for the sound advice, good comments and overall generous support. They are very helpful.
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Softening the Bedrails to Prevent Injury
Hello Everyone, this is my first post here, although I have been following many discussions over time as I care for my sweet husband who was diagnosed with mid- stage mixed vascular dementia two years ago. Sadly, he fell and broke his hip two months ago, which of course has affected both his dementia and his progress in…
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LO threatening to get kicked out of MC so he can live on his own.
My dad has been in MC for about 6-8 months. He was previously in two assisted living facilities, but got kicked out because he was wandering outside and getting lost (I got calls from police to pick him up). Since the last time this happened, he was moved into a brand new MC wing in the same facility. It's a nice place —…
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Socializing for Caregivers May Be Overrated
I read an interesting article that indicated that not everyone needs a social network of friends. In fact, some of us do quite well alone without the inevitable dramas that friends bring into our lives. As I am currently without a single local friend due to moving, I found this comforting. I realized that seeking to find…
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Those eyes!! 👀
I totally get it! I get why DH NEEDS to have me within eye sight at all times. I’m his safety I’m his security. I’m coming to terms with the fact that he was never home, always a meeting to go to and I got use to fending for myself and now he follows me everywhere! What is driving me crazy is DH constantly following me…
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Losing my patience as another holiday is ruined!
On thanksgiving I miss my mother (dead for along time, now) and other family members who I never get to see anymore & friends who I also don't get to spend time with. DH has already ruined the day with an outburst and my patience is totally gone. I feel completely alone and like crying, but can't because I'm the only…
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Have I totally lost it?
My DH has been in MC for 2 months. I have an absolute obsession to redecorate (paint and flooring) our living area and bedroom. I have felt like I have been in a prison so my surrounding are a constant reminder of the depressing life I have lived for 6 years. I feel like I am trying to rebuild my life by changing my…
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Spouse Wants to start arguing
1st time to post. My spouse has mild mix dementia. I am basically her only support. She can go couple of days fine but the sundown gets really hold of her. Spouse wants to argue about almost everything. I try to remove myself to another room, she still confronts me. Now she is locking herself in our bedroom. I can easily…
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Have no where to go with my feelings so
Very long post. I have been wanting to write this message for a long time but always get stuck with wondering how best to describe my situation. Saying up front, there is no answer for my issues with my DH, I just think it would be helpful to know if anyone else has had experience with this, or even wondering if I am…
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I moved my DW to memory care today
The move in went ok. I told her I needed surgery on my leg and rehab after. She understood but I could tell she was suspicious that it was a permanent move. We have been together since I was 20 years old. It absolutely killed me to leave her there. I know she feels abandoned and afraid. This is the worst day of my life. I…
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When to transition to full time caregiver?
Hi! I just joined this online support group and have spent almost an hour with the discussions before deciding to post my own discussion. My DH was diagnosed with CAA in 2022 and had mini strokes after a heart surgery late last year. He recovered well from that surgery and all diagnostic tests this year have been ok…
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Giving gifts to external caregivers
Just wondering if anyone gives Christmas gifts to your caregivers? We have one that comes in a couple of times a week. My DH is not at the stage yet where he needs a lot of on hands care except making sure he eats a good lunch but she is still there to support him. She does take care of things around the house while she is…
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Shrinking world
Caring for DW. Currently in stage 4 and some 5 conditions. This is more of a release and venting for me than a question. The longer this goes on the smaller the world becomes. Over the years friends family become more distant. Partly because you're no longer able do the things that we used to. It's even to the point that…
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Very sorry
Hi y’all. I have not been reading or writing lately. I wish everyone love, mercy, understanding, acceptance and peace on their journey. My wife and I are not doing well on ours. She is in stage seven, stuck in a bed or Jerry chair mumbling and not eating. She looks very unhappy and suffering. I don’t want to be a widower…
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How to handle son’s death
My wife is at stage 5/6. We found out yesterday her 52 year old son ( my step son) was found dead in his car 1500 miles away. He struggled with alcoholism and drug abuse and was homeless for the past four years living in his car. He refused all help to get him off the streets and into recovery. He has had very little…
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Support for a couple living with Alzheimer's
I see groups for the person with Alzheimer's and groups for caregivers. Are there groups for support for the couple going through that? Thank you.
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Morning brain fog solutions please?
Hi everyone. I’m new to this forum and this condition of my DH who has been waking up at 3:00 AM (regardless if we sleep at 9 PM or 1 AM) for the past 2 days and very confused. Today, he didn’t even recognize me. He went back to sleep after half an hour and wanted to go to bed in the guest room but I somehow managed to…
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Feeling Happily Empowered
It’s not often that I feel empowered these days. My DH has VD stage 6 we have sleepless nights wandering around the house, Christmas shopping sprees ha ha that take hours slowly shuffling from store to store hand in hand (which I do love) BUT yesterday we had a new tv delivered, my idea Christmas gift to us. Good idea…
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Grinding of Teeth
My DW has been diagnosed with Alz for 8 years. She is currently in stage 4. She just started grinding her teeth during awake hours. I am afraid she might do permanent damage to her teeth. She visited her dentist to reattach a crown. Her dentist was no help. Has anyone else run into this problem?
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Supporting DH and 93 year old mom - Advice?
I have a 68 year old DH with probably stage 5/6 ALZ - in MC for 5 months due to agitation, aggression, not sleeping and constant issues with trying to get out of the house. I'm going through that intense sadness of being without my partner of 46 years and so grateful to all of you who understand the emotions, loneliness…
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First Waking Thought
My first waking thought nearly every morning is “Oh no! Another day”! I know I am depressed. I am a high functioning depressive right now. I do everything I need to do in our daily lives and take care of DH in all the ways he needs me. I am not perfect but I am here learning and adapting. Meanwhile, I am trying everything…
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Didn't post much, and now it's over
One year ago we learned my husband had dementia. As the year went on, Parkinsons became another issue. Last month, he was in heart failure. And today the love of my.life, my best buddy, and dearest friend died. To all of you on this journey, you will stay in my heart. I have no words of wisdom. This is a horrible disease…
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Perseveration
this is my first time on this forum. My wife has Alzheimer’s and is probably in stage 4 or 5. She can perseverate on a problem and as much as I try to get her to think about something else, she keeps going back to the problem that irritates her. I need help to find ways of dealing with this issue in productive ways. How do…
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Catch-22
Well, I seem to have encountered a Catch-22. I explained our situation (wife with early dementia) to a lawyer, who said I would need a letter from my wife’s doctor before she (the lawyer) would draft a Power of Attorney. My wife’s doctor wrote a letter saying that my wife is cognitively impaired and that a POA would be…
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Grateful
thank you all for the kind supportive words. Note: my wife has been in hospice for six months now she has two small bed sores on her hip and buttock
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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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Kisssing in MC
My husbands MC called last night to tell me that DH and a female resident had shared a mutual kiss on the lips. The nurse said they were going to do their best to keep them separated. My first reaction was, "Oh, ****" although I didn't say it out loud. The nurse said she was sorry and we hung up. I didn't know whether to…