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New Symptoms and Much Denial in Spouse
At first I thought it was distraction. Not following through on plans, forgetting words. Then I thought it was depression. Denied. There was a change in smell and taste. Tests were negative. Now this could be early dementia. My spouse is 58 years old. I told her I was concerned and I was dismissed but she finally agreed to…
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What to expect in first month at MC
Taking the big step. My husband is going to MC today. A few things are bugging me. I’m not convinced either that he is ready and stabilized enough, or if this step would even be necessary if he had more appropriate hospital care in a geriatric GPU. Will be saying lots of prayers that this will all work out. Setting all…
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Boy do I need help
this is my first post. My 78 yr old DH is full into dementia. He had a stroke a few years ago then ended up in the hospital with Covid and pneumonia for a week. He was very delusional there and carried on when home. He is able to dress, do all personal hygiene, he can do pretty much all he’s even driving with the 6 month…
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update information scam
Just received our third call in three days to update our medical information. First call alluded that they were from CVS. Spoiler alert -they were not. Next two said 'medical supply company'. All three asked if I had back pain or leg pain. No idea what they were trying to sell me as my answer was the same each time --…
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Door Monitors/Alarms
Need suggestions for the best type of door monitor/alarms. I have just recently noticed my DH stops and stares - likes he's lost. This has happened the last two mornings. I want to be proactive in case he starts to wander. Could you please share with me your experience with door monitors/alarms? Thanks.
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One Year Evaluation Showed in Improvement in AD Symptoms
My DH was diagnosed on January 25, 2024 as having AD after cognitive testing, testing for ApoE4 and a PET Scan revealing amyloid plaque. He began taking Donepezil 5 mg 1 x/day in September 2023, which was upped to 10mg 1 x/day in October with Memantine 5mg 2x/day added. On February 28, 2024 he began Leqembi infusions and…
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DH Diagnosed with Young Alzheimer’s
Hello! I am new here. My husband was just recently diagnosed with Young Onset Alzheimer’s. He is only 55 (as am I). He was misdiagnosed for the last 4 years with Pseudo Denentia (meaning he was having memory issues to do this severe depression that came on suddenly). I had to have DH hospitalized for the depression 4 times…
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Mom with lewy body dementia
My mother is in the nursing home which she hates. She has terrible hallucinations of men with long white beards and no teeth who torture her every waking moment. She says they pull her hair out and spray powder in the air where she can't breathe. She says they make her hands and knees hurt. She has rheumatoid arthritis.…
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Post surgery symptoms and medications
My DH was diagnosed with AD in Jan '24. I started noticing problems a year before that, when he couldn't seem to comprehend things that were being said to him, couldn't remember who he'd talked to on the phone or what had been said, got very upset and cried about things very easily, said he felt like he was losing his…
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Just finished tests
I guess Iam in denial but the MRI and other tests don’t show anything abnormal. My dh has a score of 22 on cognitive test so our gp wants him to take aircept. I know you have all been down this path but it’s just so vague. Is this all there is to this. I guess we just start down the path. Very strange a devastating disease…
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My husband was in the hospital. Again.
I can only write this post because my husband was just released from his second hospitalization in a month. Last Friday,after he had been at memory care for only seven days,I I got a call from the nurse. She said my husband was running into walls and doors deliberately, and if he didn’t stop, she’d have to send him out. An…
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Early Onset Webinar
I just watched the Early Onset webinar that Lane Simonian had posted from Michael Ellenbogen. Most of the information is what is discussed here all the time, about signs and symptoms, having to leave work, and isolation. There were suggestions about setting up a support group. Here are some websites. The webinar itself may…
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DH is diabetic, has a sweet tooth
added problem with DH with Dementia is diabetic, lately he sneaks in the kitchen & will eat anything sweet, icecream, candy etc, shoots his diabetes up! i hid the cookies, wont order any more ice-cream,, its hard to keep an eye all day & night. Would rather not put a lock on the cupboard & fridge ! anyone else facing this…
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What kind of safety gate should I use?
My husband is in stage 5-6, still very fit physically. I need to keep him from going upstairs, to prevent falls on the steps. Has anyone found a good 'baby gate' for this? I have solid wood to attach to at the base of the stairs. The latch has to be complex enough that he can't easily open, and it has to be sturdy enough…
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Wanting to go home, when we are home
Everyday my 80 year old husband with moderate dementia, wants to know how he is going to get home. We live in a home in the same community that we have had several houses. We have lived here for 4 years. I try to explain that we are home, he says no. I tell him not today, he says he can’t stay here. I have tried to divert…
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Accelerated Progression from Stage 5 into 6
My DH's Alz has advanced significantly in the last 6 months. Then he contracted COVID and in the hospital for 2 weeks. The illness and hospitalization have made him much worse. He is going to be moved from the hospital into a Rehab Facility. Are there any suggestions on how to lessen the fear and anxiety for him? I then…
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Behavior shift-FTD
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New stage
DH has entered a new stage. He's sleeps almost all the time. We're having difficulty waking him enough to eat. For almost 3 weeks now he's eaten very little, decreasing more by the day. Almost nothing in the last week. His drinking has also slowed over the past 2 weeks, to just a little bit. I've told them that I'm ok with…
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MC facility not communicating about anger issues
I have learned from my DH's staff at memory care that he has been in several altercations in the last month, always in the evening after dinner. He struck other residents and caregivers on several occasions. The only reason I know about it is from the CNAs who are on the floor. Neither the head of the nursing department or…
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Parallel living
Not sure how else to describe this but DH constantly refers to our "Other house"? Which he says is identical to this one, but he wants to take his belongings there. I'm continually putting things in our car for the "morning" to be taken there. After he goes to bed I take them out of the car and put them away. Sometimes…
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DH wants a divorce
My DH is in the advanced stages of Parkinson’s disease and dementia. He has been in assisted-living for two years, and the disease has been progressing rapidly these last months. He has had moments of clarity, but has been confused most of the time. His ability to speak has become very limited. So I was quite surprised…
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Legs are weak....
DH is moving slowly into another phase, he is sleeping some most days and has mentioned several times his legs "are sore." I asked if that meant weak, and he said yes. Some days he works a little weeding and would do more if he could see well enough or could handle tools much….but often he doesn't have very much exercise.…
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Is incontinence around the corner?
I searched through old posts but did not find an answer. My DH does not make it to the bathroom in time for peeing. It seems that every time he is having to change his clothes. I will make the necessary changes to prepare for this but is this how it starts or is this just older men issues? He is aware he has to go but just…
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Not my spouse, but I'm used to you guys.
My big brother, who has a diagnosis of MCI - amnestic type - got it into his brain that he needs to drive cross-country to visit his stepdaughter in Florida. This will be the end of October. She is due to have her second baby on October 10. No amount of reasoning will convince him that this isn't a good idea, naturally.…
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Progression or something else
My DH, 72yo, was diagnosed with moderate dementia this year but has been having memory and word finding problems for years. He started on oral Aricept and did not tolerate so started the exelon patch. About a month ago, he started talking about people being in the house. He was at home alone while I worked at that time. We…
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Any Friends from Metro-Detroit Attending Tam Cummings Event?
In my search for MC for my DH (69) I've landed on the email/newsletter list for several Detroit-Area MC facilities. I don't always appreciate these and have unsubscribed from most, but I received an Eventbrite invitation from a local facility to attend an upcoming event: Dementia Education Conference with Dr. Tam Cummings,…
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Seroquel too strong?
First time DW took it, she conked out (sleeping) just 2 hours afterward. Woke up for 2 hours, kinda spacey, then went down again. I called medical office to tell them. Was told cut the pill in half tomorrow. But I am still concerned — she is small-framed, which could be a factor. Prescribed b/c, although she's been…
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DH was placed in a Geri-Psych program yesterday
What a sad day! My DH was admitted to the hospital yesterday for much-needed medication management. He has been more and more out of control lately and the final straw was when he threated to hit another resident here who was just walking by. My choices were to have him placed in a more expensive Memory Care not a part of…
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Advise from anyone on Medicade in NJ
I’m curious on story’s that happen on Medicade when it’s time. Did they take your home ? When partner is no longer around what happens to you with bills? Anything will help. And has anyone had a Reverse mtg when all this medicade stuff started and what did you do ??
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I have no idea what he means...
Many times I can interpret what my DH is trying to say, or I can give a satisfactory answer to some question even if I'm not sure what he's asking. But a few times lately, he fixates on something and repeatedly mentions it and I have no idea what he means. I take a guess and give an answer but I know the comment will come…