-
Changes(1)
Today my DH slept quite a bit in his chair, which is unusual. He did okay this morning, heating up his blueberry muffin in the microwave and making a sandwich for lunch. Tonight he was using the microwave and I said to set the time for 45 seconds. I checked and he had set it on 4 minutes and 50 seconds. Oh dear! Also, he…
-
How to deal?
Hi there, I have been reading posts here for awhile now but have not felt that I need to post my own until tonight. My LOWD, who is just 56 has a combination of FTD and EOAD, late stage 5 early stage 6. His biggest stressor at the moment is not having his drivers license, he hasn''t driven for the past 2 1/2 years. He…
-
I have a question about getting a dog.
My DW is 71 and in the early stages of ALZ. She is highly functional and only a few of our friends notice it because they have experience with it. She works everyday selling travel in our home based agency with my supervision. Covid has made the situation possible as very few people are traveling. I work with her and we…
-
46th wedding anniversary
This week is the 46th anniversary of our wedding. I have fully accepted that our marriage partnership has been over for almost three years. I brought her cake for the week on Saturday. The sadness is overwhelming. 1971 I knew her , she was occasionally dating my roommate. DW turned 19 1981 She was a Physician We were…
-
Suggestions/help with things to occupy DH
My DH has NOTHING to occupy him. He shadows me constantly. He is driving me nuts! His only hobbies prior to his diagnosis were reading and going to the gym. He can no longer work out, and cannot cognitively follow anything requiring reading. He's no longer interested in news or any TV programs, sports, gardening activities…
-
webnar this week
Dementia Alliance International https://mail.aol.com/webmail-std/en-us/basic#
-
Alzheimer’s Foundation of America unveils “The Apartment,” full-scale model dementia-friendly reside
Alzheimer’s Foundation of America unveils “The Apartment,” full-scale model dementia-friendly residence (Alzheimer's Foundation of America (custom credit) | Alzheimer's Foundation of America) By KOLD News 13 Staff Published: May. 22, 2021 at 12:50 AM EDT|Updated: 8 hours ago TUCSON, Ariz. (KOLD News 13) - The Alzheimer’s…
-
Is this my problem or his?
I know I've posted about this before, but DH just won't sit still. I don't care if he's busy doing something, but it almost always requires my help. Example: salt shaker isn't in the exact spot it should be. So he brings it to me and asks what he should do with it. I say put it next to the pepper shaker. He asks where that…
-
So.MUCH. Toilet paper (??)
There are much much worse things others are dealing with now, but this has perplexed me, so I wanted to ask for any ideas.... We have had toilets clogged to the point that plumbers were coming every couple weeks, for several months. I had drains snaked, checked, etc etc, nothing wrong with pipes, and no objects found. I…
-
I don’t know day to day
Some days I maintain hope things will stabilize and we will be able to continue our unsettled but no small life. And then the next day I feel as if I will barely survive the day the constant need of reassurance or trying to communicate with what equates to an eight-year-old I even forget myself that my discussions with her…
-
Sudden changes
My DH was diagnosed with Moderate Major Neurocognitive Decline due to possible AD in December of last year. Outside of the short term memory issue, he's been relatively under control. The last few weeks he's shown dramatic downturns; nightly panic attacks, auditory hallucinations, near psychotic episodes during night…
-
noticeable changes after the Moderna Vaccine
DH and I had our 2nd Moderna vaccine yesterday morning. Today, I feel fluish and fatigued. This is in line with the literature I reviewed prior to the vaccine. DH is off balance, confused and his tremors are noticeably more pronounced. In addition, DH is having hallucinations which is a completely new behavior for him.…
-
Losing my best friend and afraid
My husband has not been diagnosed but is having symptoms of memory loss, confusion, rage, and intense paranoia. He has limited insight and believes I am his enemy most of the time. He has made physical, financial, and divorce threats. He is a moving target, and other times he is rational and apologetic. He was a Division 1…
-
An update from WL
Last February I brought my DW home from memory care as I discussed here. I just feel led to give you an update on the outcome of that decision in hopes it might help others making this difficult choice. When she first came home there was some confusion on her part but she soon settled in as if she had never left and she…
-
Please let me know?
Please let me know if I am adding to much information to this site. I do a lot of reading and these are things I feel are import to share here. That is only bout a 5th of what I read. If it to much please let me know. Thanks
-
Moving(1)
I am new to this site and it is usually not in my nature to seek out help as I am a strong person who handles it all but I really need at this time some direction and advise from people who have done this before me. My DH was diagnosed 4 years ago with CBD (corticobasal degeneration). At the beginning of the pandemic I was…
-
Come on Pfizer and Moderna
Why don't we still know the number of people at risk for clotting from the coronavirus vaccines and why don't we know who is at risk for these adverse side effects. Here is part of the answer: Pfizer and Moderna executives declined the offer [from Johnson and Johnson to investigate clotting events], saying their vaccines…
-
On a leash
Sorry for the short rant but today is one of the days I feel like I am on a leash I can’t be more than 5 feet away before the frantic paging starts trying to get the weekend started with the upkeep of catching up the laundry that includes items that have been missed placed not sure whether they have been used or not so we…
-
What legal documents are needed
A couple of weeks ago someone mentioned in the middle of a thread that you need 5 legal documents. I have 3 (DPOA, will, living will) and wondering what the other 2 are. Getting ready to have the talk about getting affairs in order with DH and need to be specific with him because of his paranoia. Can anyone recall what the…
-
The National Alliance for Caregiving Calls on White House to Prioritize Family Caregivers When Devel
https://finance.yahoo.com/news/national-alliance-caregiving-calls-white-120000644.html
-
feeling the chronic stress
Really reacting this week to the grinding, one-sided nature of our interactions. There is much that needs doing around here, but my energy is zilch. It takes everything I've got just to keep us in the road. This morning it was merely taking the dog to the groomer, and I'm already exhausted by the time we get back just…
-
Any advice about managing catastrophic reactions?
At least I recognize this for what it is, but I'm not sure what to do about it. Triggered yesterday by yet another confrontation about driving. Got pretty heated. The adrenaline helps her focus, so I got pretty detailed about why she shouldn't, including that it's in her medical record. The risk of getting sued, the risk…
-
Caretaker Yes or No
My DW is late mid stage with a high stroke risk due to CAA in addition to VD. She is active physically and can fool people quite well on her good days ( sometimes even me ). I have used care-helpers at different times over the last 10 months. The most recent issues have come in the mornings before I leave for work @ 6:00…
-
Just need to talk to my friends (146)
Hi, Thought I'd go ahead and get started with an empty cottonsack tonight. Guess I'll never forget how that felt. Those of you who are new to our thread may not know what I mean by that - when I was growing up we picked cotton or pulled bolls. We put it in a long cotton sack with a green cotton boll tied in one corner at…
-
Mask Dilemma
DW refuses to wear a mask. In our state she doesn't need one if she's fully vaccinated. In order to enter the place for vaccination she has to wear a mask. Go figure.
-
Husband had panic attack, I think
I originally posted this a couple of days ago, mostly to vent, but I guess I was also hoping someone would comment on it., I may have put it in the wrong place. I think my DH had a panic attack. We were watching the met game. I watched it with him for a while, but then decided I wanted to go and watch something I liked. I…
-
Luxury Nursing home for French people in Tunisia
A friend who visited my partner during his respite stay him suggested me to have a look at the nursing home that opened in Tunisia for French people. She head about it in a TV show. Even if it is in French, you can have a look. https://www.carthagea.fr/ Due to terrorism, Tunisian tourism has declined a lot. So they have…
-
Elder Abuse in People Living with Dementia: Considerations for Prevention, Detection and Interventio
On June 23, 2021 from 2-3 p.m. ET, please join the National Alzheimer’s and Dementia Resource Center for the webinar, Elder Abuse in People Living with Dementia: Considerations for Prevention, Detection and Intervention. A description of the webinar and registration information follows. Elder mistreatment is a common…
-
Cozaar (Losartan Potassium)
My husband was just put on Losartan Potassium for high blood pressure. He was diagnosed last year with MCI. (My feeling is that it was a result of his high blood pressure — that he has had for years.) I did some research on Losartan and saw where studies have shown it to improve or reverse dementia. Has any of your loved…
-
Back from the 19-day respite stay
Monday was the checkout of my partner’s respite stay in a memory care. Reminder : the first days he called me in the night complaining because the place was very sad. To everyone visiting him he told that I hadn’t told him I will let him there (we visited together, consulted a psychologist twice on this topic). He was…