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Frustrated. I can't do this
Today I just feel like I can't do this anymore. My loved one had another bout of diahrea. He just acts like it is normal life and I guess I have to face that it is. Thank heavens he made the change to disposable underwear. He does this and then when we go to the doctor he tells them he is fine and has no problems. They…
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I made a decision.
I'm going to place DH. I've been back to work for 2 weeks. Averaging 4.5 hours sleep a night, in about 2 hour increments. Bathroom issues are increasing. Meds were increased earlier this week, but have no effect. He requires almost constant attention, or he gets upset. Big incident today that required me to leave work. I…
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MC yes or no
Unfortunately everyone I don’t know I made the decision along with my son to transfer my sweet wife to memory care nine days ago and it has been excruciating I believe more so on me than her the first day was really rough for her and I I second-guessed for the first full six days was it too early did I do it right then I…
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Kinda funny
My wife had to pee, and was sitting on the toilet. I asked her if she trusted me. She said she did. I said "Good. I have to pee too. Spread your legs a little".
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Medication question
DH's anxiety is increasing again. He cries at least twice a day for 30 minutes at a time for no apparent reason. He gets very agitated about 3 hours after he wakes, and again before dinner. He paces at night and I can't settle him into bed. Once asleep, he sleeps 4-5 hours before getting up and wandering the house for 1-2…
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Very late stage seven -no recognition
DW is late stage 7 She can walk and swallow and that is about it. She does not react to verbal commands. You put a spoon on her lips and she opens her mouth. Take her by the hand and she gets up etc. She is 69. She does walk "around" people. No longer tries to open doors. She has no idea who I am Anyone else in this…
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Paranoia?????
Why is my DH getting so paranoid? He is approximately stage 3-4, still able to go out and about a bit, and can function on his own in public. I have recently noticed that most of his conversations have to do with people who either don't like him and talk about him (not true) or are looking at him funny, etc. If I try to…
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book by Pauline Boss
I have been struggling with the "loss" of my DH to dementia. At the suggestion of someone on this forum, I looked up Pauline Boss. My (wonderful local) library ordered her book, Ambiguous Loss: Learning to Live With Unresolved Grief. I started reading today, and it's just what I need. She gets it, as so few people do. I'm…
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Any experience with CBD for LO?
I'm wondering if CBD would be helpful? My DH has suffered from anxiety all his adult life, and it is supposed to be good for that. Might be able to sneak it into his coffee or other drink. Just wondering if anyone has any experience.
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I'll See You In My Dreams
https://youtu.be/dJkaZ8hQM60 The road is long and seeming without end ... I'll see you in my dreams ... I'll see you in my dreams When all the summers have come to an end I'll see you in my dreams We'll meet and live and love again I'll see you in my dreams Yeah, up around the river bend For death is not the end And I'll…
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For those talking of advocacy
Hi. I saw on an earlier thread where several people were talking about the need to advocate publicly for AD, to lobby on Capitol Hill and to raise general awareness. Some of you may not be aware that the Alzheimer's Association actually has a separate, non-partisan, advocacy/lobbying arm, called AIM - Alzheimer's Impact…
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Henri dropped tree on PWD's house
My sister's husband Mom is the PWD. They were living in her house to take care of her. After the came tree came through the roof they moved her to their own house and she hasn't been able to settle down. Sister says she is pacing. Do you think it is the new enviroment or that she knows something bad happened? How long may…
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I am in the club nobody wants to be in… I don’t remember the name.
I am in the club I can't remember it’s name and can't find the post. But that's what I thought yesterday: oh no ! I'm in the poop club! It helped me a little to dedramatize the situation. Yesterday I came home from work a little over an hour after he returned from daycare and as I walked up the basement stairs, I…
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he thought I was trying to get rid of him
I took my DH to the senior center in the next town over to look at a program they have 2 days a week 3.5 hrs each day for people with dementia. He enjoyed meeting everyone and he seemed to like it. As soon as we left he said I'm not going there. I told him he should try it for a week or 2 but he was pretty adamant that no…
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Who has placed LO in MC?
For those of you who have placed their LO in MC. Did they go willingly? Did they put up a fight? My DH has anosognosia I don't have guardianship, did you have guardianship? What allows you to place your LO? I'm sorry for these stupid questions, but I'm sure others have been in the same place before and could offer advice.
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Showing significant signs of improvement - thyroid med adjustment???
My friend had taken a marked turn for the worse a few weeks ago. He would uncharacteristically get mad at me for the slightest offense and thenwould sulk and be irritated with me for days. During a particularly bad week, he put his pills in the full glass of water, he tried to cook food on a paper plate over a gas stove.…
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Six month wait to see his neurologist
My DH's appetite has gone down even more the last few weeks resulting in loss of weight. He weighed in at 145# during our October visit with his neurologist, in 2019, and is just below 120#s now. Having read some posts on here, I know loss of appetite is common with Alzheimer's. DH is late stage five and early stage six. I…
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In 2 days I understood that I can't leave him alone anymore
Wednesday evening there was the poop in the bathroom, and this morning something I didn't understand, but I could have been poisoned. Every morning I get up early to go running or biking. This morning it was cycling. Sports are important to me. Usually when I get home an hour later he is up and waiting for me. This morning…
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Disaster Preparedness Links For Caregivers
https://www.alz.org/help-support/caregiving/safety/in-a-disaster Some of the links have additional links to multiple different helping agencies: https://www.nia.nih.gov/health/disaster-preparedness-alzheimers-caregivers https://www.aarp.org/caregiving/basics/info-2019/preparing-for-emergency.html…
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Advice from this forum that made a difference
Wow. This bit quoted below made a profound difference in my day. I have been reducing choices over the years, and I stopped at binary decisions. Do you want X, or Y? From dinner choices to what she is wearing, to showering or not. It's really frustrating, and sometimes we go all day without getting anywhere. It did not…
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Caregiver starting. Need excuse he will believe
I have a lady coming in tomorrow to walk with my husband and make him lunch. He would be angry if he thought she was here for him. I thought I would say she was here to help me with my computer and then suddenly get a call from the dentist about a available appt if I can come in right away. She can agree to wait until I…
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How to redirect difficult behaviors
I haven't seen this yet, but thought it might help someone here. How to redirect difficult dementia behaviors (3 mistakes to avoid)
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Booster vaccinations
My sources in medicine are strongly supportive of booster shots on an eight month schedule , especially for Nursing home and MC patients. This is especially true if you are in an heavily unvaccinated state or area. County level vaccination data is at https://www.nytimes.com/interactive/2020/us/covid-19-vaccine-doses.html…
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Is there anything like Scottish Dementia Working Group here?
It's made up of people with Alz. but supported by family & community and Scottish Alz Assoc I was a caregiver for my husband for many years and I wondered if there was anything like the Scottish Dementia Working Group here
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Great experience at a concert
My HWD is pegged at stage 5.5 with mixed dementia. He walks the dog and enjoys sitting on the deck watching birds. He does not engage in much other activity. We went to a concert last night. It was an hours drive away, parking and access were easy (he is ambulatory but slow). He loved it. A couple of people engaged him in…
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crushed(8)
do you happen to know how many Dr members there are in America's Frontline Drs
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if you are a caregiver
I hope you will take time and read/listen to this. I believe the content is really, really helpful. https://www.thehearth.org/tbuilder-layout/news/
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small tailspins
Funny (not) how many things we take for granted. The remote for the TV in my partner's bedroom went out--she had trouble working it, but managed--so I called for a new one. But I didn't think to ask for the old model. This one is different, and she can't figure it out and couldn't even find it this morning because it looks…
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Neuro Today Update--Possibly FTD
Today was our 6 month neuro appointment. I took all of your advice and wrote the doc a note and delivered it yesterday which he read right before the appointment. In it I described DH's shed/yard tool sexcapades, his sleep issues, his anger/agitation & agression, his impulsiveness (he gave away his car at church last…
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I can't follow my own advice when it comes to travelling
DH rarely leaves the house. Nearly every outing with DH is exhausting to me even if it is just a walk around the neighborhood. Our last hotel stay was 2 years ago. It was anxiety inducing for us both. DH couldn't operate the card key or find the elevator that was right outside our door. The noise in the hallway bothered DH…