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Activities on an Alzheimer's care unit in a nursing home?
Once again I am afraid my unrealistic expectations are getting the better of me. My beloved has been in a facility for almost 1 1/2 years. Still very verbal, but not often sensible. She recognizes family much of the time. She self feeds, but what she considers a "finger food" may not be everyones definition. The problem,…
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I sleep thru his midnight shenanigans
Sometimes I’m aware he gets up and other times I must be sleeping too soundly. Is there a trick to wake me when he gets out of bed? I feel so bad when I finally find him disoriented somewhere in the house and needing help.
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ER visit and surgery
Over the weekend my DH was not well. He didn't want to eat, seemed unsteady on his feet and complained of a stomach ache. On Sunday morning, we were at our son and his finacee's for breakfast. DH picked through his food and ate maybe a teaspoon of scrambled eggs. He said his stomach ached, so our son walked him to the…
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Aduhelm investigation heats up
Sept. 2, 2021Updated 2:14 p.m. ET Two powerful congressional committees investigating the controversial federal approval of Biogen’s Alzheimer’s drug, Aduhelm, demanded extensive information and documents from the Food and Drug Administration in a letter released on Thursday, making it clear that the committees’ leaders…
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Good dementia/caregivers story in WaPo
Almost overlooked this online because the headline focus is 9-11, and how many who did recovery have serious dementia young as 50. But it also talks a lot—and better than most in MSM—-about what all caregivers face in dealing with any dementia at home, the problems and what’s needed, etc.. I rarely see that done much or so…
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VENT: I gave DH the benefit of the doubt and then I got to clean up poop
This morning DH was heading to the water closet. I was walking right behind him eager to help. DH shut the door and said "I can do this". So I stepped back and gave him his privacy. After a minute or two I concluded it was not going well, but respected his privacy. He comes out of the bathroom a little later looking very…
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need help with guilt
I am taking care of a boyfriend with VD I am getting better with handling problems that pop up due to alot of reading about dementia. Problem im having is when i read about stages i reconize many of the symptoms of each stage my boyfriend is going thru now or has gone thru already. Its like he goes from stage 3 to stage 5…
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Alzheimer's Doctor in NYC
Hello, I am new to this board. My dh was diagnosed with Alzheimer's last week. We received our diagnosis from a doctor affiliated with NY Presbyterian but would like to work with a doctor from NYU Langone. I'm wondering if anyone can recommend a doctor with whom they've had a good experience. I've seen Dr. Arjun Masurkar…
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Jiminy Cricket! This day has been exhausting!
I didn't get much sleep last night. DH was restless and we got up multiple times so he could pee. DH is having leg cramps at night which are very painful and they make the trip to the bathroom an ordeal. I try to get him to eat potassium rich food which are supposed to help the crampy...alas I have not yet been effective.…
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Progressing
In the past week my husband has been slowly showing signs of progression. When it was time for him to step into the shower he asked "How do I do that?" I now wash his upper body and hair because he no longer knows how to do that. Has been nodding off while sitting on the couch after breakfast. Usually he stays awake. He's…
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Is this a good idea?
My wife is getting more in the "no" camp. There are things that simply have to be done, and sometimes she absolutely refuses to co-operate. When these times happen, I call our daughter, who has had unbelievable success talking her into doing what must be done. But my wife is getting to the point where even our daughter is…
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Its hot vent but any help
DH isn't diagnosed with MCI or any type of dementia as of right now so I don't post here often. He is an active alcoholic, uncontrolled diabetic, and his mom passed away from Alzheimer's - the dementia trifecta. He has much going on that I feel is the beginning of some type of dementia. With that being said...he has always…
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Desire to go to other house/JohnDoe
My LO has this daily desire to go to our other house, which we don’t have. It can start any time in the day but mostly around dinner and as late as 3am. Some times she will collect a few things to take. It has become very difficult to deal with. Usually a ride around the back roads in the area will distract her, maybe…
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FYI(8)
You may find these interesting. https://www.youtube.com/watch?v=3CiFk2hP23U https://www.youtube.com/watch?v=C11Xd6AuK_k
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Infidelity accusations(2)
One of the most horrible symptoms of Lewy Body Dementia is when your husband accuses you of infidelity. This morning my DH woke up and was extremely angry at me. He repeatedly called me a “prostitute” and said some really vile things regarding his delusions of me being “with other men all night.” He also wanted to hit me.…
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Electric shaver
Can anyone recommend a good electric shaver that actually cuts the whiskers? My DH does not have a heavy beard, but this issue has been a thorn in my side for years. I have a closet-full of mediocre shavers that are going in the trash; some which were not exactly cheap Must one spent over $300 dollars for a decent shaver?…
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No idea where I stand...
My husband was diagnosed with Alz 8 months ago and is probably moving into stage 4 now. We have always had separate money, etc. for our personal things and a joint account for our home expenses. He asked me in January to take over the "our" account and take care of our mutual bills and expenses and I have been doing that…
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What to tell DH about our move.....
We are moving to a house in a senior community. We have lived in our home for over 50 years and I know my husband would be livid if he knew I was planning on moving us. I am sure he will try to run away and go back to our home even though he can't find his way to anything familiar. He can barely walk most days. The kids…
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Thoughts(1)
Aside from realizing that my DH is no longer cognitively the man he was, I’ve come to realize that this disease has caused him to lose empathy. I’m crushed that I will no longer receive comfort from him, that his shoulder is no longer a place to lean on, that his arms will no longer encircle me…
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Really stupid question
My DH is in the early stages. Still drives but his judgement is gone. Yesterday one of my dogs pooped in the house and my husband picked up the poop and put it in the kitchen garbage. When I went to move it into the garage garbage can he flipped out. Screamed, yelled, pushed and started banging on our newly remodeled…
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CBS AD online forum tomorrow
https://twitter.com/cbsnews/status/1432855728654520324?s=21
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$400,000 short
Yesterday we were financially evaluated for MC placement for DH. We are $400,000 short for qualifying. Even though this facility advertises they accept Medicaid, they only accept Medicaid for long term care nursing patients, not assisted living memory care. I wish I had known this prior to sending in the paper work and…
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50 years(1)
50 years ago I spent an evening talking to a second year "math girl" in a stairwell at the University. I knew her slightly. We had both just moved into the first coed dorm. I had been the tour guide when she came in in 1970 and she had dated my roommate for while. But I had never really talked to her. I had met her parents…
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abc and others fighting Ida
I know the worst is over from wind damage, but flooding is still ongoing. Just wondering how you are faring since the weather started becoming bad. How are your folks and other family members? I hope everything was manageable for everyone.
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Something brand new and very scary!
Today was a really hard day all around. Many of you live through worse everyday but today was a first for me. I read all of your posts and although they aren'T sugar coated it doesn't seem real until you actually go through it. My 56 year old HWD has had his ups and downs. Most recently some anger/agression issues which…
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Simple Shindig
DH rarely leaves the house for a couple of reasons. Most days he is not interested in going anywhere. He is generally incontinent now and I am anxious about taking him to an unfamiliar environment. DH still enjoys socializing with friends and family. My Mom will be 82 on 9/1. I had a very small simple shindig for her at…
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Incontinence(6)
My DW has gradually become incontinent. When I try to pull down her soiled pants she fights like the devil. I'm stronger than she is, so eventually brute force wins out. But I'm afraid I might hurt her, and it doesn't help that I get very angry. Sweet talk lost its power long ago. Any ideas?
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Real Hope or Snake Oil?
An online article titled "Is This The End of Alzheimer's?" caught my attention this morning. Do I wish it was real? Absolutely! Do I suspect they may be selling a lot of sizzle rather than the steak? Maybe. But it is worth taking a look at for those of us caring for loved ones with the hideous disease. While this…
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Ivermectin (just in case )
AMA Why ivermectin should not be used to prevent or treat COVID-19 Aug 27, 2021 That is because ivermectin is not approved or authorized by the FDA for COVID-19. Additionally, the National Institutes of Health’s (NIH) COVID-19 Treatment Guidelines Panel determined that there is insufficient evidence and data to recommend…
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Costly nighttime shenanigans
So I woke up this morning to find my partner had been up during the night, saying the air conditioning was making a "funny noise," and she had gone outside at midnight and flipped the breaker because she didn't think it was working right. It was fine when we went to bed. She got mad when I wanted to turn it back on to…