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interesting reaction to stress
Just returned from a road trip to Georgia. The first day of driving was a bit stressful for DH. Slowed traffic, confusion about directions, etc. Each time a CD ended, every 40 minutes, I had to remind him how to eject it, for the entire 10 hours. No such problems on the way home, when he was more relaxed. I found that…
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Understanding vascular cognitive impairment
Is there anyone here who has experience with vascular dementia? Last July (2020) my husband was diagnosed with Mild Cognitive Impairment. He started recognizing his short-term memory issues around February, 2020. I had been documenting his issues since 2018, though. But, I think they started well before then. There have…
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Should suppositories crumble?
I mentioned in an earlier post that DH's hemorrhoids are causing him severe pain again. I spoke too soon when I said both docs came through because dealing with one of the doctor's office has been very frustrating. I am on the verge of firing the Gastro, but I am unsure if there is any other option in our small town.…
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Is dementia getting worse?
DH a senior hasnot been diagnosed with Dementia but I think he has it and is getting worse. Before he couldn’t remember long time ago events, lately he can’t recall what I said few minutes ago. I have to repeat myself. Went to audiologist last week, got him a hearing aid, doesn’t want to wear it, does not acknowledge he…
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Did I handle it well or handle it badly
My brother's 60th birthday is tomorrow. I offered to have a small casual low-key birthday celebration for him this weekend at our home. Gatherings at our place are usually a simple store bought dish and a simple store bought dessert on paper plates. SIL stated she wanted to have a luncheon for my brother on Sunday. She is…
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great experience with dental office
We all struggle getting health care for our LOs, but I'd like to share a positive experience. When I called to schedule my DH's dental exam, I informed the office staff he now had dementia and I would be coming with him- I wanted to check COVID procedures, etc. A week before the appointment, I was called at work by the…
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Lunch with DW
I brought lunch in to DW. Fish sticks, yogurt, Ensure and cookies I made . I hand fed her. Her hair is down to her shoulders, just like on on our first date in 1972. She has not had an intelligible word in over a year. She does not respond to spoken "commands". If you need her to stand up you take her hands a pull gently.…
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More covid news from NYT
April 22, 2021Updated 11:58 a.m. ET The health effects of Covid-19 not only can stretch for months but appear to increase the risk of death and chronic medical conditions, even in people who were never sick enough to be hospitalized, a large new study finds. In the study, published Thursday in the journal Nature,…
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diagnosis and treatment
Dr. Serge Gauthier Dr. Gauthier is the Director of the Alzheimer Disease and Related Disorders Research Unit of the McGill Center for Studies in Aging and Professor in the Departments of Neurology & Neurosurgery, Psychiatry, and Medicine at McGill. https://www.youtube.com/watch?v=-mOYGfR_Bdg
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Question for the group
For those of you that were still working when your LO was diagnosed, what was the decision point for not letting them stay home alone anymore? I’m still working full time, 2 days a week from home, and am starting to be worried about what he’s doing when I’m not there. Nothing bad has happened, but he can get confused…
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How Do I
Put my wife in a home. I am a mental wreck and this is killing me. If I do she will die. I loose.
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His house, no our house
This is the second go around for my husband and myself with both of us coming off of bad relationships and now we have been together over 20 years and are in our 60s. Not long after we made the commitment to each other we started looking at houses together and found one we both loved and bought it. We have done some major…
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Last night was a good night
We rarely watch a movie. Last night I was checking out Netflix, and saw that they had K-9 available. We saw the movie before, but decided to watch it again. That resulted in nothing short of an enjoyable evening. She seemed to follow the whole movie. Sometimes I think she is in stage 6, but I didn't think stage 6 patients…
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Dark Cloud over me today
Any tips on how to change the sadness of the day. When I awoke I didn't know where I was, then all the memories flooded back. What can I do to not feel so sad and defeated. What a cruel, cruel disease for all of us. I feel so helpless and hopeless today.
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Replace every window? Need homeowner advice, perspective.
Has anyone ever heard of this; every window in a house being replaced? The insurance company and two other companies evaluated our windows and all agreed that every window needs replaced due to hail damage. They've been excellent quality windows. The frames are dented from hail. But every single window to be completely…
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Newbees: Identifying is this dementia?
Wish I’d known of Teepa Snow’s dementia expertise earlier. My husband had the beginning stages of dementia since at least 2007. Teepa has many educational videos on YouTube to assist caregivers dealing with the challenging behaviors of their affected loved ones. This video addresses caregivers stress level straight out of…
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How do I tell her? What do I tell her?
I have decided that I am going to take my vaccinated body on a trip to Florida to see my sister and nephew, and my brother-in-law and his wife, in Florida and South Carolina. They have all been vaccinated as well. This would be my first travel since COVID. It will also be the first vacation when I will not bring my DW. She…
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Elder care attorneys
Does anyone have experience with elder law attorneys in Virginia, specifically the Hampton Roads area in southeastern Virginia? I found only one online, a pretty big firm that advertises for elder law that’s about 40 miles away. Any suggestions on what questions I should ask or expect to be asked and documents to collect…
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NYT Piece on Recruiting for Lilly Study
This may be behind a paywall for some. They Have Alzheimer’s. This Clinical Trial May Be a Last Hope. - The New York Times (nytimes.com)
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My husband has dental appointment
He went for a teeth cleaning and the dentist found 2 cavities and we have appointment for filling and another cleaning. I am concerned how he’ll react to drill. The cleaning 6 months ago went fairly well but he did have trouble with the water they shoot into your mouth. He is 80 and my best guess is late middle stage.…
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Things were going good until....
Well things were going well until about 3:30 this morning.. My DH woke up confused, but it was later on in the morning before he started getting aggressive! I can't stand this!! I will be honest I am a crier... I want so much to be calm and I try really hard to be calm in this type of setting, but when he wants to put his…
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Alzheimer’s Association offering respite care grants to Tri-County residents in need
Do you ever wonder why these idiots don’t post it here? The Alzheimer’s Association California Central Coast Chapter is offering financial assistance to Santa Barbara, San Luis Obispo and Ventura County caregivers in need of respite care for their loved ones with Alzheimer’s disease or other forms of dementia.…
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Caricatures
I've noticed for some time that my partner has been making some pretty direct descriptions about people. At first when he was talking to me, now he's starting to say such things to everyone else. Yesterday, a friend tells him about another friend. He replies "she's nice but she's ugly"... plus it's not true, she's quite…
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VENT: On a crappy morning (like today)....
My home fragrance is ever changing from strong smelling poop to PineSol. So far today, the fragrance has gone from poop to PineSol, then poop to PineSol, then poop to PineSol. Its just barely 10 am. Where does all the poop come from?! DH is having hemorrhoid issues again. He is in great pain. I have messaged both the PCP…
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How Google Could Help People Living with Dementia
https://www.differentbrains.org/how-google-could-help-people-living-with-dementia/
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Safety Suggestions if a PWD Is aggressive
This post includes several lessons I learned regarding safety. Please don't wait for a crisis to implement safety practices. After DH was diagnosed, he became aggressive, threatening and verbally abusive on more than one occasion. It was very scary; I was shocked the first time it happened and probably didn't think very…
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Is this dementia ?
My senior husband who has been having memory issues lately has been putting the ice cream in the fridge instead of the freezer. Ice cream is all melted! Any one else’s loved one doing this? How annoying!
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End Stage - Rapid Decline - Early Onset
Just wanted to "talk" to others and provide an update for others out there wondering how it looks as things progress. I feel like there is not a lot of information specific to disease progression for early onset. At Christmas, my 56 year old DH was able to go out to dinner and feed himself. Today he is at home on hospice,…
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Oklahoma bill passed
“Residents in our long-term or assisted-living facilities are too often prescribed antipsychotic drugs with sometimes devastating effects,” West said. “This law will protect these residents by helping to better monitor for adverse effects and ensuring the families of residents remain fully informed of the treatments being…
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Yesterday was almost too much to cope with.
The day was over the top. It’s the next day and I still feel shellshocked. The electrician got here at 9:30 to fix the light in the upstairs bathroom. DH treated him with disdain and later griped at him for dragging mud into of the house and getting it on the carpet and on the bathroom floor. There was no mud on the carpet…