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Successful placement
This is a summary of my wife’s journey so far. I hope it might be helpful to someone. January 2013. She reported memory loss to her doctor. She was 58. November 2015. She started having problems at work doing her job. July 29, 2016. She was diagnosed with Alzheimer’s. She was 61. June 2019. Started wandering. She was 64.…
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Experienced my first "shock"
I joined this forum in March of this year - and it has been helpful and informative. My DH was diagnosed with MCI concerning Alzheimer's in August of 2021. Afterthought, I had noticed vague signs probably as early back as 2019. He has displayed the typical signs of memory loss, difficulty operating computer, cell phone,…
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Bible Verse to Lift You Up
FORGET THE PAST & PRESS ON Philippians 3:12-14 New Living Translation “I don’t mean to say that I have already achieved these things or that I have already reached perfection. But I press on to possess that perfection for which Christ Jesus first possessed me. 13 No, dear brothers and sisters, I have not achieved it, but I…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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Bible Verse to Lift You Up 9/29/23
*Friends, As always, thank you for your comments. May God bless each one of you. Ronnie FAITH OR SINK Matthew 14:30-31 New King James Version But when he saw that the wind was boisterous, he was afraid; and beginning to sink he cried out, saying, “Lord, save me!” And immediately Jesus stretched out His hand and caught him,…
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Bible Verse to Lift You Up 10/14/23
FORGET THE PAST & PRESS ON Philippians 3:12-14 New Living Translation “I don’t mean to say that I have already achieved these things or that I have already reached perfection. But I press on to possess that perfection for which Christ Jesus first possessed me. 13 No, dear brothers and sisters, I have not achieved it, but I…
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I'm Struggling
I'm not doing well. Physically, my weight is too low...not quite 90 lbs. I'm in physical therapy for a partial tear in my right rotator cuff and a possible pinched nerve in my neck. Both of these have been brought on from caring for my husband. I'm sorry, this is hard for me to write and I don't know how to express it. DH…
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First major incontinence incident
Do I get a badge? I just spent the last hour scrubbing my bathroom because my DH dropped trou and went in the tub. I'm trying not to cry. Definitely feel like we turned a corner today. Thanks for listening.
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Blood test to help diagnose Alzheimers?
Does anyone have experience with, or extra knowledge about, the blood test, "PrecivityAD", that measures the levels of specific types of beta-amalyoid proteins in the blood and that may help with a differential diagnosis in the early stages? I just found an earlier (2021-2022) thread that was helpful! Any other recent…
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Moving to Memory Care Facility
My husband has vascular dementia. After four years as his sole caregiver, I am no longer able physically and emotionally to handle all. I think I've decided a MCF will be better for him (and me) than professional home care. He is very proud and stubborn (he doesn't want anyone but me to care for him). I have toured…
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Struggling with your decision on placement?
Maybe this will help. https://www.youtube.com/watch?v=F6_0coly0Yw&t=861s
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Urinary Incontinence
Just what is urinary incontinence? Well, what it is not is urinating in places other than a toilet. At least that is what I was told. Her is a good read; Incontinence: Leakage, Causes, Diagnosis, Treatment & Prevention (clevelandclinic.org)
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Misunderstandings
I find myself in so many catch 22s. My mother has vascular dementia which has affected her speech and emotions. She has a very difficult time communicating. For instance, she will say one word for a totally different word or speak in random generalizations. She gets extremely angry when people don’t understand what she’s…
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Differences - dementia journey vs. stage 8
This is what I found to be true. It might vary widely for others. I found this forum because I suspected my wife had dementia, and I learned so much here early on, and followed suggestions that made sense to me. When she was diagnosed (June 2018), she was pretty clear headed, but had problems mostly with numbers and some…
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DH is in denial
It’s been 3 months since my DH was diagnosed. His disease is getting worse and I’m not sure how to deal with the fact he claims nothing is wrong. Although he mentions how screwed up everything is. In these 3 months he was scammed three times, his PC is now in my possession and I won’t give it back. All of his credit cards…
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United Farms CBD Gummies
Hi Y'all, I just saw an ad for these gummies, supposedly they can reverse the symptoms of dementia. The ad said they are from Elon Musk, with testimonials from users about complete reversal of dementia. Anything that sounds too good to be true, etc., etc. Any information, news?
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Stage 6-7- Now on Palliative Care in 2 weeks
My DH has been approved for Palliative Care what should I expect from that course of care His PCP says he is at that stage not Hospice at this time. Has that been helpful to anyone??
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I’m the problem!
I cannot get over my anger! DH has always been self centered , selfish, the only person important to him in his life is him!! I’ve put up with it and built my own life, been quite happy with things until 3 years ago . Should I have divorced him after his second affair and he moved out of the house on our anniversary and…
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Closed
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Quick Journey for us - 18 months with FTD
Hi everyone, I just wanted to check back in with this group and let you know that my husband passed three weeks ago. It's been a quick journey (comparatively) for us, with only 18 months from onset to passing. Over the past 6 months, he quickly became mute, and the difficulty swallowing became increasingly problematic.…
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DH Punched Staff in the Head
It finally happened. Sh*t hit the fan. DH punched staff in the head and staff is in the ER. I don't know why the facility didn't call 911 to take DH away. I don't know what to do. I'm beyond devastated. The last thing I want is for someone to get hurt. And now it's become a reality.
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suggestions needed.
My DH has gotten to the point with his Alzheimer’s I am afraid of him and I have made the hardest decision ever to put him in a group home. What do I do to make this easier on him and me? He won't understand or remember if I try to explain why I am taking him or why I am leaving him there. How do I do this? I will be going…
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Home aide
Hello all Ive been preparing for the day I may have to put hubby in memory care. Hope I never do which has me thinking about homecare. We have long term insurance which covers home care and if I only used homecare he’s covered for 5 years. Of course along the way might need to switch to memory care but if he can stay home…
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Disagreement with the hospice nurse
What do you do if you disagree with the hospice nurse? DH is currently on Haldol and Clonazepam. He's starting to have some issues with swallowing, but only occasionally. The hospice nurse took him off soft foods 3 weeks ago and has me only giving him ice chips and popsicles. Now she wants to take him off his meds and put…
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DW with EO
Forgive me for starting a new discussion. I am so thankful that there is a community of supporters helping us all through these life challenges. In short my DW was genetically tested for EOAD because her sweet mother carried the gene, and passed away in June of 2008 at age 52. We are currently going through the same thing…
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Planning for placing EOD LO
My DH has neurocognitive disorder caused by an autoimmune disease. He also has a myriad of other health issues ranging from pretty severe heart disease, difficulty ambulating due to neuropathy, adrenal insufficiency, and more. He is in his late 50's and was diagnosed with dementia 15 months ago but has had cognitive issues…
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SHEETS FOR HOSPITAL BED
Hello, My DH is going into a hospital bed this weekend. It will be long enough to accomodate his height 6'2". Do I use xtra long twin size fitted sheets? Are there other options? What about mattress padding? Any tips would be welcome. He literally went from walking with assistance up and down our long driveway, to bed…
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is this incontinence
Last night my husband had a small accident before he got out of bed to pee. Then he peed all over the toilet. He was upset I was trying to stay calm and said it was ok just an accident. I cleaned up, changed the sheets had him wash up. I suggested today that he wear depends at night, just in case. He seems to be ok with it…
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An older post, but still relevant - It just doesn't matter
https://alzconnected.org/discussion/61198/it-just-doesnt-matter#latest
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Post MC Placement New kind of ugly
I placed my H on 9/1. Some time to catch up around the house. Took my trip home and back on 9/30. Placement was "because I had to work" though he is going to be staying. Weekdays there are more activities and he rarely called. Weekends he had more down time and would call to see when he is coming home several times a day.…