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When do you know it’s time for a Nurologist that’s more knowledgeable on condition
I ask this as I read others see different kinds of Nurologists so I guess I asking when is that time? We see a Nurologist regularly so far just short term and confused no driving. Everything else on her own
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Young Onset Alzheimer's
My wife just turned 55 and was officially diagnosed with alzheimer's at 53. I am 59 and had to retire at 56 to take care of her. I have done a lot of reading on the disease and caregiver stories on caring for people with alzheimer's. I often tell people if they really want to know about dementia they should read the…
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He wants to go home . . .
Every day my DH begs me to take back to his home town (6 hours away) to see his mom and dad (who passed long ago). I try telling him they are in heaven. That his siblings are coming here to see us ( I’m not sure they are). Nothing works. I know his longings are real and I feel so bad for him but it’s also so hard for me to…
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Let's take a minute to celebrate the life we had
My wife is in the last stage of dementia. It's unbearably hard to watch. I put together a video of pictures that plays in her room filled with pictures of our life together and our many trips. We had a great life and I now look back upon that with gratitude. She seems to watch it. I love watching it and try to identify all…
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The man in the mirror
Hi I'm new to the group and my BF has EO alzheimers with FTD. He also has speech aphasia. He is 44 and was diagnosed last fall. All has been well, as far as him staying home alone. I close one day per week till 9pm. Well a few weeks ago we came home and he had to go potty he said in the mirror "I gotta go okay bye" I just…
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What are options for working spouse?
First time posting. We are 3 1/2 years into my DH Alzheimer's diagnosis. DH is 66, I'm 53, working full time, and and have a child in college. DH just came home after a month long hospitalization for med adjustments due to aggression. We have seen agitation and some aggression at home, however, he had an extreme act of…
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I find oddest things set them off ! How about you??
yesterday out had great day vine home get in house I ask her if she got mail and wife says “why would I get mail!” I said because first thing you do everyday we go out. Hasn’t spoke to me all nite waiting for this morning.
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DH has Alzheimer's disease
I am a 58 yr. old trying to care for my 61 yr. old husband with Alzheimer's. He was diagnosed with this disease when he was 57. I hate to see him decline in the easiest tasks he used to do. He can't read or write anymore, but he still claims that he isn't sick. I hate this for him or anyone that is going through it. I am…
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Memory Care Facility Stigmatization
It isn’t just the larger aggregate society fearing and pigeonholing individuals with degenerative brain diseases, it is also the administers supposedly serving our cognitively dying loved ones. My husband and our family has suffered another blow due to misconceptions of the disease. If there is an ideal dementia resident…
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Trying not to worry
My DH has been in memory care for six weeks now. He had a rough start—was very confused—but seems to be slowly adjusting. However…he’s had two episodes of agitation that got physical. In the first one he had a panic attack and hit a door. Today the memory care nurse called me and when I got on the phone with my DH, he told…
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Fiblets and more fiblets
My husband has been in memory care for 2 months. I am moving him to another facility, closer to home and less expensive but still highly recommended. They are very flexible regarding our needs with the move. I'm telling him that he's moving home, and that this new place is a backup because I don't want him to be alone if I…
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More clingy than ever….
I need to vent…DH is doing really pretty well on his new med regimen. He is sweet, pleasant and calm most of the day. But he is very very needy. Asks for assistance with things feels like every 5 minutes. His favorite question is what are we going to do next. He needs to be entertained. I can’t go into another room without…
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Making a move
I’ve only made a couple of comments, but I read everybody's stories every day. What a gift to all of us living this nightmare. There’s a wealth of knowledge here and I’m so thankful that I found this! Thank you all so much for sharing your experiences. I have looked but I don’t see much about moving and when it’s still…
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Activity and distraction ideas
First off you are all awesome. I have learned so much from you. Thanks! It didn’t take me long to figure out that the busier, more distracted, I could keep DH the happier our days are. The minute he gets bored things start to go down hill. I find keeping things busy is exhausting among all else. we currently watch movies,…
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A Sundowning Question for Parents of ASD Young Adults
This isn't specifically dementia related. I know there are several parents on the forum w young adults on the ASD spectrum. 21 yo DD helped a lot as a teen w MILwAD (her grandma who passed away in 2016) and was very familiar w her sundowning. Her boyfriend has a brother (24 yo) who is high functioning on the ASD spectrum.…
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Hospitalization and treatment of every new symptom
Got DH placement in a new MC after psych stay to adjust meds for behavior. Two weeks ago, he seemed to have a mild cold. Started walking with shoulders hunched over and shuffling step. Then urinary incontinence. Then a wheelchair in his room that was used for off days when he had trouble walking. Speech much word salad.…
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Dementia caused by trauma for 31 yr old
Has anyone else navigated dementia from severe ptsd and trauma? Especially being in 30s. My situation is unique as my person also recovered once before and has relapsed due to concussions plus trauma and fluctuates depending on stress level and ptsd. They're super coherent and able to articulate most of time etc. We both…
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Is it wrong to continue driving?
Hi there. I'm new here. My 54-year-old husband was just diagnosed with Alzheimer's, although we've been working for a diagnosis for over a year, and I think his symptoms probably started three or four years ago. Here's my question/dilemma: Is it wrong for me to let my husband continue to drive? I ride with him in the car…
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This Double Life
It's been about a month since I got the official diagnosis of what I've been seeing for the last several years. What a shift in my mentality. I'm more patient with my DW. I'm more content in the decision to move up to her dream home in her dream part of the country, even as she's become more isolated in this super rural…
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Thanks for all the help
I have been reading on this site for a while and only occasionally posting anything. I want to thank everyone for all the questions and all the answers they have been helpful. As an update as to our situation my wife is I think early stage 6 and about five weeks ago had a stoke. I took her to the hospital and they took…
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My DW's old coworkers went by the MC to see her yesterday
They brought her some very pretty flowers for her room. That was a nice touch. I'm glad they still think enough of her to visit. DW thought they were her sisters but deep down she still knew who they were.
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Excessive sleeping in mid stage of dementia
My husband is into his disease about three years now from diagnosis and is 83 years old. His physical health is very good despite his memory and confusion problems. He walks, talks, toilets and dresses himself (same clothes, though, if I don't insist on a change). He takes medicine only for high blood pressure and…
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Just need to talk to my friends (194)
Thank you, Mint and Caro. I thought I'd tried everything but did not try that. Been busy working on getting some of the tax stuff together. Then discovered there was water under the crispers in the refrigerator.. Luckily I had some of those big expandable sponges so used that and got it out. My hand really got cold, too.…
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Sleep Pattern
Spouse sleep pattern has changed, I’m guessing that’s normal. We are somewhere past moderate dementia diagnosed 2 years ago. She will usually go to bed between 8 and 9. Sleep seems ok, with occasionally getting up once or twice in the early hours, however, she will sleep until 11-12 in the morning. It’s about 50/50 if she…
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UPDATE 4/19/24
The infection is 99% healed with antibiotics! Thank you for your prayers. My husband is declining faster now but some days he's more aware & communicative than others. They have increased his medications for agitation to the point he's almost a zombie. When I visited him last week he was in bed and hadn't even gotten…
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ME OR NOT ME, that is the question.
ME OR NOT ME, that is the question. Whether it is better to….thats all i can remember, i think it was Shakespeare. Anyways. I have been doing fairly well adjusting to the various nuances of this here disease. I am doing better with recognition situation. I have worked hard on my responses, although it is a bear trying to…
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Documenting the diagnosis and stage of dementia
My DH has been exhibiting executive function deficits for more than 5 yrs as well as physical decline. We chased a diagnosis through the drs and medical system for almost a year. The only thing they found was MCI 4 yrs ago. It has progressed. Slow walking, slow reaction time, slow processing, some difficulty finding the…
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Orthostatic hypotension
My DH has been suffering from orthostatic hypotension as well as a haywire GI system. I have read autonomic dysfunction can happen with alzheimers patients. He is up and down all night long 15-20x. Noone is sleeping and the meds they have tried: risperidone, flimax and trazadone have all made the low BP much worse. He is…
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Spitting(3)
My DH has begun spitting... anytime, anywhere, no discretion. It's almost like a constant tic. Gross,gross,gross! The first thing I do each morning is walk through the house searching for globs of spit/phlegm to clean up. I've wondered if any of the medications he's taking could possibly cause this? (Singulair, Seroquel,…
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spring cleaning....but still find time to feel guilty. Rambling thoughts....
After months and months of illness and lethargy, I got my act somewhat to together this week. What started it was finally getting around to putting refrigerant in the air conditioner of my old beater truck (thank you, YouTube). Now I feel like the dam has broken: I've called a landscaper to take over the overwhelming…